Re: Help...small blister appearing

[Guest guest]

Hi Dawn,

I have a daughter born 27 years ago on your son's birthday, she

gave me a grandson. Boy's are such a grand blessing.

It is very strange to only have 2 casts unless the foot is

a " positional clubfoot " meaning the foot can be brought to full

correction the first time it is examined. These feet rarely need any

additional attention after a few stretching casts.

His feet must be very tiny? Does the clubfoot look anything like

the non-clubfoot when you try to position them? Are you able to

mirror the positions in each foot? Is the " clubfoot " stiffer than

the " non-clubfoot " ?

Photos would be helpfull, you may e-mail to me or add to the photo

section. As for now, being a weekend I would discontinue shoes till

you have more information. Would not like to see him have worse

problems. If he indeed needs the shoe/fab he may be too small and

need casting till he fits the shoes properly. Do keep stretching.

Beth

>

> This is the first time I've written to this group. I just joined a

> couple of weeks ago and wish I had joined earlier... First a simple

> introduction and then a question.

>

> My son was born 17 Jan 06 and diagnosed w/ a unilateral left

clubfoot

> prior to birth. I did some research on the net and found out about

> the Ponseti method prior to his birth. We are currently seeing a

> peds orthopedic surgeon in Strasbourg, France. He was not trained

by

> Dr Ponseti but stated during our interview w/ him prior to my son's

> birth that he followed Dr Ponseti's method. We were confident w/

him

> so 1 week after my son was born he was put into his first cast.

Our

> physician stated that the foot was a " soft deformity " and would

> require 2 casts prior to the DBB. My son's foot appeared corrected

> after the 2nd cast was removed, and was placed to a DBB on 6Feb06.

>

> I thought it would be smooth transition and was not prepared for

the

> first couple of nights w/ the DBB. The first night we were up all

> night. My son only slept 20min at a time all night long. Since

then

> he has been sleeping at 2-3 hr intevals and seems to be getting

used

> to the DBB. Since his cast was removed I also take him to physical

> therapy 3x/week. All has been going well, but tonight when I

removed

> his shoes I saw a small area of peeling skin to one of his heels

and

> the other appears like it may do the same.

>

> I have to thank this site for sending the handout on the Tips and

> Tricks for Parents, because now I know what I'm looking for. I

> tightened his shoestraps to the next hole in the hope that will

> correct the problem. I realize the sore will not heal, but is

there

> anything else I can do in the meantime???? We do have an

appointment

> this week, but would like to know if we're doing the right thing.

>

> Dawn in Strasbourg

>

[Guest guest]

Use 'DuoDerm' and keep him in his DBB

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 18/24.

---------------------------------

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[Guest guest]

Christee,

I know what DuoDerm is but don't have access to any right

now...anything else you might recommend? Would the tabs of a bandaid

work or do you think this might cause more irritation to the site?

>

> Use 'DuoDerm' and keep him in his DBB

>

> Christee

> Mother of...

> *Josh, Central Auditory Processing Disorder/Sensory

sensitivity/learning & Speech disorders (9yrs old)

> **Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

> ***Dylan, (4 yrs old)

> &

> ****Lilee ~ Unilateral A-Typical (complex) Club Foot

w/Cavus/Plantaris (R foot) & Mild/Moderate Metatarsus Adductus (L

foot).

> *Ponseti/ Brace 18/24.

>

>

>

>

>

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Hi, and welcome!

You can try to heal the blister in the shoes. But if it doesn't

start getting better right away, if it stays as is for more than a

day or so call it a day and resign yourself to having to do something

else to get it healed. The duoderm Christee suggested is a good

option, but it didn't work for my daughter while in the shoes. Not

that it wouldn't work for you, worth a try at least. I loved it for

after we cut the hole out though, that did work with the

duoderm. You put it on, leave it on till it falls off. the sore

heals under it. It's used for bedsores in hospitals mostly.

If you can't get it healed nor at least better soon, consider

removing the offending area. In simple terms, cut a big hole in the

shoe lol.

Consider though that every clubfoot patient should have a 3w last

cast, regardless of tenotomy. So while it didn't take too long to

get him corrected, that is something that may be worth considering

here. If he's almost corrected... that's great. But almost

corrected doesn't make for a good shoe fit.

Can you tell us about his casts? he had two? what did the last one

look like? I am just not sure, because it seems to me that two casts

isn't enough to get the foot into the proper position due to the

nature of the correction process itself. I can't imagine getting

through the steps with out the third cast. It just seems that there

are at least three steps in getting the foot corrected, fully

dorsiflexed and fully abducted. I could be wrong though because I

don't understand the correction process that detailed quite yet.

Incomplete correction is by far, the most prevalent cause of these

kinds of sores and blisters. With user error being second, and

atypical clubfoot the last. Only three reasons why shoes don't

work. All can be remedied. So first look to correction. If you

have the ability to send pictures, take this series:

1 each - from front AND back - directly from the knees down with baby

standing (hold him up) bearing weight.

1 each - soles

1 each - from the side (profile) with leg straight and you using your

palm to push his foot up as far as possible past " L " as possible

(relax him, tickle him - he'll push against you and suddenly release)

1 - each outside view with him standing and bearing weight.

You can't send pictures to this list, but at the CFPics list you can

in an email as an attachment. A short survey is sent to you to

return for membership, it is located in the file that is sent to the

email addy you subscribe with for this list. Send that back and you

will be able to send those pictures to the list after approval. I

will not be available tomorrow, but Beth and the other members will

who will be able to help you troubleshoot this.

http://health.groups.yahoo.com/group/CFPics/

If correction is good, you'll need to look to fit and how you're

putting them on. Is he slipping? Can you use any of the tips to

modify the shoes so they can be made tighter? is the heel 150% down

in the back of the shoe? Don't know? Cut the hole, and see what's

going on inside there. A window is a good thing, and if you get the

pressure spot off the sore it'll heal up nicely. The shoe will hold

up. I think these shoes would hold up under nuclear war

actually... To find out where to remove the shoe, use a bandaid and

mark it right over that sore (put bandaid on baby) with a water based

marker (like crayola). Open the shoe fully and press his heel back

in there deep and tight (as if it was fully into the bottom of the

shoe - this is easy with a fully open shoe) and it'll make a mark in

the shoe. That's where you cut. Not where the spot is

rubbing. Because once you cut the hole, you'll always see his foot

where it should be and will be able to get it there easier. This

spot is where the sore will sit now, not where it was rubbing when he

was slipping/not seated properly.

Anyway, hope to hear good things when I get back online tomorrow

evening. Hang in there! We'll help you get this figured out for sure.

Kori

At 01:22 PM 3/4/2006, you wrote:

>This is the first time I've written to this group. I just joined a

>couple of weeks ago and wish I had joined earlier... First a simple

>introduction and then a question.

>

>My son was born 17 Jan 06 and diagnosed w/ a unilateral left clubfoot

>prior to birth. I did some research on the net and found out about

>the Ponseti method prior to his birth. We are currently seeing a

>peds orthopedic surgeon in Strasbourg, France. He was not trained by

>Dr Ponseti but stated during our interview w/ him prior to my son's

>birth that he followed Dr Ponseti's method. We were confident w/ him

>so 1 week after my son was born he was put into his first cast. Our

>physician stated that the foot was a " soft deformity " and would

>require 2 casts prior to the DBB. My son's foot appeared corrected

>after the 2nd cast was removed, and was placed to a DBB on 6Feb06.

>

>I thought it would be smooth transition and was not prepared for the

>first couple of nights w/ the DBB. The first night we were up all

>night. My son only slept 20min at a time all night long. Since then

>he has been sleeping at 2-3 hr intevals and seems to be getting used

>to the DBB. Since his cast was removed I also take him to physical

>therapy 3x/week. All has been going well, but tonight when I removed

>his shoes I saw a small area of peeling skin to one of his heels and

>the other appears like it may do the same.

>

>I have to thank this site for sending the handout on the Tips and

>Tricks for Parents, because now I know what I'm looking for. I

>tightened his shoestraps to the next hole in the hope that will

>correct the problem. I realize the sore will not heal, but is there

>anything else I can do in the meantime???? We do have an appointment

>this week, but would like to know if we're doing the right thing.

>

>Dawn in Strasbourg

>

>

>

>

>

>

>

>

>

[Guest guest]

I use MOLE FOAM. More padding. I also use 2nd Skin Burn Pads if DuoDerm is not

available, and Kling-Gauze (a special made top gauze thats real soft like

cotton). Bandaids will only cause more irritation I think.

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 18/24.

---------------------------------

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