Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Hi Leah I'm so sad that we didn't venture down to Chicago this year. Just thinking about that drive in this heat!! YUK Anyway, I am thrilled to hear you are going to go the GH route. I want to be of any help that I can. When you are ready to start; give me a shout and I'll fill you in on all I did over here in Ontario!! Take care and I wish I could have been there this year to see you and your family again! Debby Our Dr H Appt > > Our appt. with Dr H. went very well (new stats will be in my > signature at the bottom). She tweaked Olivia's meds a bit and we > discussed GHT in depth. We've found out that her OI (brittle bone > disorder) will not become worse because of GH. Which means our > Genetisist misinformed us greatly. I agree that GH is the best option > for Olivia right now, weather or not she responds in height, she'll > still get the full benefit of increased muscle tone, muscle mass, > appetite, etc. which means she could have a much better quality of > life and be a regular 5 year old instead of always tuckering out. > > So now our true battle begins with the Canadian government over > GHT. Please wish us luck because this is probably going to take 1 to > 2 years just for her to start GHT. > > Leah, mom to 10 and Olivia 5.5yrs, RSS, OI, 22lbs, 36 " , leg > assemetry 1cm, mild kephosis. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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