accessory soleus muscle

April 5, 2006

Well I have some good news. We are going to take Zander to Dr.

Herzenberg for a second opinion . He also was able to give us a little more

information about the accessory Soleus muscle he has in his foot.

Apparently it is rare. I asked before and I want to ask again has anyone

encountered this?

This accessory Soleus muscle may have been the cause of resistance to

correction in his congenital clubfoot. I have searching online and

can't really come up with anything about it and would like to learn more.

We wish we would have done more research before Zander had his

surgery, but we can't change that now and want to get him the best care

possible.

If any of you have any information about this I would really like to

hear from you.

Sincerely,

rdadej2 wrote: Hi all,

Philip, that would be lovely - we're in Cookstown, but I'm still off

work so I can get out and about.

We were in Musgrave yesterday and is now in reduced hours

in the FAB - yippee!! His consultant is very pleased with his

progress and he had a hip x-ray as well yesterday which was

perfect. It's great to reach this point - it all seems like various

milestones we set ourselves. I said to Miss Duffy about

staying in the boots until he is 3 1/2 or 4 and she said that if we

could do it then good for us! I'll try not to cross that bridge

before we come to it (honestly, I will try!).

Take care,

Ruth

> >

> > Ruth

> >

> > Good to see you found this site. Our son Josh was born 4 years

ago

> with

> > bilateral talipes and we live in Northern Ireland.

Unfortunately

> for us at

> > that time there were no trained Ponsetti practitioners within

> Northern

> > Ireland. A couple of consultants were considering it at the

time,

>

> > Duffy (RVH) and Mr Laverick (Ulster) but had never actually

> treated any

> > kids. We took the decision to go and see Gavin De Kiewiet

> (Sunderland) who

> > was one of only two Consultants in UK recommended by Dr Ponsetti

> on his web

> > site. We travelled weekly for castings to Sunderland for 4

> months, he then

> > had a tenotomy, needed an Achilles lengthening procedure and was

> wearing

> > boots and bar for 3 years. He is now out of the boots and bar

and

> we now

> > travel for reviews every 3-6 months. Josh is doing very well

and

> it is

> > unlikely you could tell that there was ever anything wrong with

> his feet.

> > We were fortunate enough to attend a Ponsetti Conference in

> Manchester last

> > year were Fred Dietz (Iowa) was speaking, he examined Josh's

feet

> and was

> > very encouraging in his assessment of how Josh was doing.

> >

> > I would say it was probably nearer 10 months or so before we had

> Josh out

> > most of the day. We started off letting him out of the brace

for

> 1 or 2

> > hours, then he only wore it at nights and sleeps when he was

> commencing to

> > try and walk. If I could give you any advice it would be to

> ensure that the

> > bar is the correct length as we had some problems at the

beginning

> but once

> > we had the bar at the correct length Josh was more than hapy and

> didn't

> > cause many problems even when crawling around. He did have

really

> strong

> > tummy muscles and big strong legs due to the casts and bar.

> >

> > More than happy to answer any other questions, we know how hard

it

> can be.

> >

> > Philip & a-Anne

> >

> > My son

> >

> > My son was born on 04 November 2005 with bilateral

> > talipes. He started treatment at 10 days old in Musgrave Park

> > Hospital in Belfast as we live in Northern Ireland. We are very

> > lucky in that the hospital uses the Ponseti method as we would

> > really have had no alternative if it hadn't been this. The

> talipes

> > was not picked up during my pregnancy, so I have only been able

to

> > do all my research on the topic after was born. We

have

> > now reached the stage of reducing the hours from 23/24 and I

have

> > read with interest the messages that recommend that you don't

> reduce

> > too quickly as our doctor has said that we can now go to just

> night

> > time and nap time.

> >

> > I would appreciate any advice from more experienced parents and

> > would also ask if anyone has had problems with their babies'

> > toenails, particularly the big toe.

> >

> > My son is gorgeous & like everyone his dad & I want to do the

best

> > we can.

> >

> > I look forward to some good advice!

> >

> > Ruth

> >

April 5, 2006

,

Great news you're seeing Dr. H! Zander will be in good hands now :~}

As far as asking us here... it's likely you won't get any answers

because none of us really knows what's inside these feet as far as

extra tendons and such. One would have to open the foot to know

methinks. And since very few if any have experienced any surgery

(except for the heel tenotomy which requires no real incision,

certainly not enough to *see* anything) there is likely no good info

here about this. You probably know more about this than any of us

already! As far as I know, or have ever heard, no babies treated

with the Ponseti Method have had this and there are no studies that I

know of other than for surgically corrected feet that address

it. So, I hope you won't be too disappointed if people can't say

much about it here.

With that being said, I hope that you will find more information and

tell us what you do find out. It is very interesting and you may

want to ask Dr. H. if he's got any way to tell this without

surgery. I would imagine that it's just *found* like in your case

and then they can give an answer to why the foot didn't correct. I

would love to know if Dr. H. has had any feet that he couldn't

correct (being that he's really good at Ponseti) and when he did open

the foot up he found an Accessory Soleus Muscle.

Interesting stuff to say the least.

Kori

At 06:00 AM 4/5/2006, you wrote:

>Well I have some good news. We are going to take Zander to Dr.

>Herzenberg for a second opinion . He also was able to give us a little more

>information about the accessory Soleus muscle he has in his foot.

>Apparently it is rare. I asked before and I want to ask again has anyone

>encountered this?

> This accessory Soleus muscle may have been the cause of resistance to

>correction in his congenital clubfoot. I have searching online and

>can't really come up with anything about it and would like to learn more.

> We wish we would have done more research before Zander had his

>surgery, but we can't change that now and want to get him the best care

>possible.

> If any of you have any information about this I would really like to

>hear from you.

>

> Sincerely,

>

>rdadej2 wrote: Hi all,

>

>Philip, that would be lovely - we're in Cookstown, but I'm still off

>work so I can get out and about.

>

>We were in Musgrave yesterday and is now in reduced hours

>in the FAB - yippee!! His consultant is very pleased with his

>progress and he had a hip x-ray as well yesterday which was

>perfect. It's great to reach this point - it all seems like various

>milestones we set ourselves. I said to Miss Duffy about

>staying in the boots until he is 3 1/2 or 4 and she said that if we

>could do it then good for us! I'll try not to cross that bridge

>before we come to it (honestly, I will try!).

>

>Take care,

>

>Ruth

>

> > >

> > > Ruth

> > >

> > > Good to see you found this site. Our son Josh was born 4 years

>ago

> > with

> > > bilateral talipes and we live in Northern Ireland.

>Unfortunately

> > for us at

> > > that time there were no trained Ponsetti practitioners within

> > Northern

> > > Ireland. A couple of consultants were considering it at the

>time,

> >

> > > Duffy (RVH) and Mr Laverick (Ulster) but had never actually

> > treated any

> > > kids. We took the decision to go and see Gavin De Kiewiet

> > (Sunderland) who

> > > was one of only two Consultants in UK recommended by Dr Ponsetti

> > on his web

> > > site. We travelled weekly for castings to Sunderland for 4

> > months, he then

> > > had a tenotomy, needed an Achilles lengthening procedure and was

> > wearing

> > > boots and bar for 3 years. He is now out of the boots and bar

>and

> > we now

> > > travel for reviews every 3-6 months. Josh is doing very well

>and

> > it is

> > > unlikely you could tell that there was ever anything wrong with

> > his feet.

> > > We were fortunate enough to attend a Ponsetti Conference in

> > Manchester last

> > > year were Fred Dietz (Iowa) was speaking, he examined Josh's

>feet

> > and was

> > > very encouraging in his assessment of how Josh was doing.

> > >

> > > I would say it was probably nearer 10 months or so before we had

> > Josh out

> > > most of the day. We started off letting him out of the brace

>for

> > 1 or 2

> > > hours, then he only wore it at nights and sleeps when he was

> > commencing to

> > > try and walk. If I could give you any advice it would be to

> > ensure that the

> > > bar is the correct length as we had some problems at the

>beginning

> > but once

> > > we had the bar at the correct length Josh was more than hapy and

> > didn't

> > > cause many problems even when crawling around. He did have

>really

> > strong

> > > tummy muscles and big strong legs due to the casts and bar.

> > >

> > > More than happy to answer any other questions, we know how hard

>it

> > can be.

> > >

> > > Philip & a-Anne

> > >

> > > My son

> > >

> > > My son was born on 04 November 2005 with bilateral

> > > talipes. He started treatment at 10 days old in Musgrave Park

> > > Hospital in Belfast as we live in Northern Ireland. We are very

> > > lucky in that the hospital uses the Ponseti method as we would

> > > really have had no alternative if it hadn't been this. The

> > talipes

> > > was not picked up during my pregnancy, so I have only been able

>to

> > > do all my research on the topic after was born. We

>have

> > > now reached the stage of reducing the hours from 23/24 and I

>have

> > > read with interest the messages that recommend that you don't

> > reduce

> > > too quickly as our doctor has said that we can now go to just

> > night

> > > time and nap time.

> > >

> > > I would appreciate any advice from more experienced parents and

> > > would also ask if anyone has had problems with their babies'

> > > toenails, particularly the big toe.

> > >

> > > My son is gorgeous & like everyone his dad & I want to do the

>best

> > > we can.

> > >

> > > I look forward to some good advice!

> > >

> > > Ruth

> > >

April 5, 2006

Kori-

Thank you for responding. Dr. H and I have been corresponding via e-mail and

he has seen this on some feet when he performed surgery, but I am thinking maybe

this was before he was practicing the Ponseti method. I am very anxious to meet

him and see what he has to say. I honestly don't want to wait the month to go

see him, but what can you do?

I know he said that it is rare.

I will definitely keep you all posted if after I speak with him.

frogabog wrote: