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Re: Transition from cast to DBB/FAB

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Posted
Posted

I don't have any experiance with pressure sores but I can say that we tried the

Markell FAB and it was horrible. She got huge red marks on her feet and blisters

she cried non stop. She is in the shoes now and they are WONDERFUL!!!

She has not had one problem with them at all and to me they are a lot easier to

get on her. She wears them about 20 hours a day. (8 Months Old) She can sit up,

rollover, crawl, and is trying to pull her self up. I worried about all of the

milestones but she figured it out and it doesn't take long for them to be all

over the place.

HTH

Dorthy

Mom to Janie bcf

jennie billhartz wrote:

Hello again everyone.

My son, Evan, was in a DBB/FAB about a month ago and developed a sore bad

enough that he had to go back to casts for several weeks. We met w/ our doc

(Dr. Dobbs) yesterday and he said he thought, although not totally healed, the

sore had healed enough to go ahead and get back into the brace. He asked if I

had a preference and I said I'd like to get the 23/7 brace process started to

avoid any problems with Evan's mobile development when the time comes. Well,

less than 24 hours in the brace, he has developed another red spot just below

the previous sore that looks like it will form into a blister. Plus, we think

the scab from the previous sore is going to fall off at any moment, opening that

sore back up. I'm not sure what to do at this point. Dr. Dobbs nurse said that

if the scab falls off and the sore is open, it will take longer to heal. And,

if he's developing another one and it opens up, that will add even more time in

the casts. So, my question is, should I

keep Evan in the brace and see if the sores get worse such that we have to

re-cast? We might not have to re-cast, after all. Or, should I go ahead and

re-cast now in anticipation that these sores aren't going to heal in the brace?

I just don't want the 23/7 schedule to inhibit Evan rolling over, his tummy time

or even getting up on all fours. Has anyone had this kind of problem with sores

and blisters? It's only one foot and I've tried the moleskin pads. My son is

really small (6 months and just 10 lbs; he was the smaller of twins), and I'm

not sure if this is causing some of the problems.

The other option for us at this point is to ask Dr. Dobbs to fit Evan for the

brace, which I understand works fine for smaller babies and usually

doesn't result in the sores, blisters, etc. I'm not sure I'm ready to go to

another brace just yet, but if bracing is better than continuing with the casts

in keeping my son's development moving forward, then I will ask for that brace.

Jennie

Jennie

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Posted
Posted

I have heard the s are wonderful. I am going to talk w/ Dr. Dobbs about

trying it out tomorrow. I goofed on the lingo. We don't have the Markell FAB,

we have the brace that Dr. Dobbs designed (I don't know what it is called). It

is a plastic boot within a larger plastic boot and three velcro straps to hold

the foot in. Anyway, the sores appear on the top, towards the inside of his

foot where the tightest strap goes through the buckle and over the foot. My

son's scab fell off during his therapy session about an hour ago, so we have to

be re-casted until it heals fully. Ugh. Here we go again!!!

Dorthy Bowers wrote: I don't have any experiance with

pressure sores but I can say that we tried the Markell FAB and it was horrible.

She got huge red marks on her feet and blisters she cried non stop. She is in

the shoes now and they are WONDERFUL!!! She has not had one problem

with them at all and to me they are a lot easier to get on her. She wears them

about 20 hours a day. (8 Months Old) She can sit up, rollover, crawl, and is

trying to pull her self up. I worried about all of the milestones but she

figured it out and it doesn't take long for them to be all over the place.

HTH

Dorthy

Mom to Janie bcf

jennie billhartz wrote:

Hello again everyone.

My son, Evan, was in a DBB/FAB about a month ago and developed a sore bad

enough that he had to go back to casts for several weeks. We met w/ our doc

(Dr. Dobbs) yesterday and he said he thought, although not totally healed, the

sore had healed enough to go ahead and get back into the brace. He asked if I

had a preference and I said I'd like to get the 23/7 brace process started to

avoid any problems with Evan's mobile development when the time comes. Well,

less than 24 hours in the brace, he has developed another red spot just below

the previous sore that looks like it will form into a blister. Plus, we think

the scab from the previous sore is going to fall off at any moment, opening that

sore back up. I'm not sure what to do at this point. Dr. Dobbs nurse said that

if the scab falls off and the sore is open, it will take longer to heal. And,

if he's developing another one and it opens up, that will add even more time in

the casts. So, my question is, should I

keep Evan in the brace and see if the sores get worse such that we have to

re-cast? We might not have to re-cast, after all. Or, should I go ahead and

re-cast now in anticipation that these sores aren't going to heal in the brace?

I just don't want the 23/7 schedule to inhibit Evan rolling over, his tummy time

or even getting up on all fours. Has anyone had this kind of problem with sores

and blisters? It's only one foot and I've tried the moleskin pads. My son is

really small (6 months and just 10 lbs; he was the smaller of twins), and I'm

not sure if this is causing some of the problems.

The other option for us at this point is to ask Dr. Dobbs to fit Evan for the

brace, which I understand works fine for smaller babies and usually

doesn't result in the sores, blisters, etc. I'm not sure I'm ready to go to

another brace just yet, but if bracing is better than continuing with the casts

in keeping my son's development moving forward, then I will ask for that brace.

Jennie

Jennie

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Posted
Posted

Hi Jennie,

The sores will likely just get worse with

pressure. You're seeing new ones, and that is

not a good thing. However, first... I would

want to know WHY you're getting sores in the

first place? It sounds like the foot is moving

somehow in the orthosis if they come up like

blisters. Dobbs implemented this AFO with a bar

to prevent sores, yet sores happen anyway for

some kids. Too often for my comfort to tell you

the truth. Trading sores from ill fitting shoes

(user error in these cases, because I know Dobbs

is correcting these feet properly) for ill

fitting AFO's... well, let's just say I am just not a fan of this brace.

Worrying about development... really that's not

an issue. These kids can do anything in their

braces and it is not known to hinder

development. Some kids will develop faster than

others regardless of bracing. Delaying the 23/7

to get sores healed really shouldn't be a problem

at all. However, casting can encourage muscle

atrophy which is why casts aren't used long term.

If I were in your position I'd ABSOLUTELY ask for

the Ponseti FAB. This brace... I AM a

fan of. Quite honestly, I still prefer the

Markell shoes over the AFO's on a bar because

with a corrected foot and proper

education/information about applying them they

don't cause sores. But do contact Dobbs office

and tell them you want the PM FAB. It will work

for you and it is a very good brace. Let's get

your little man into a brace that won't hurt his

feet and get you comfortable with him wearing it

without worrying about sores k? Call them now,

go in and get your son's feet impressed and the

impressions sent off to MD Orthopaedics with a

STAT order for the shoes. I would probably say

go ahead and have him casted for the time being

too. If you can heal those sores to the point of

having nice fresh healthy skin that would be

better than letting the sores get bad again and

try the PM's because no matter what kind of shoe

it is, pressure on an already tender area or a

sore will just make things worse. So get him

healed up and move forward with the PM's. They are very nice and comfortable.

hang in there, it'll get better soon!

Kori

At 10:28 AM 5/31/2006, you wrote:

>Hello again everyone.

>

> My son, Evan, was in a DBB/FAB about a month

> ago and developed a sore bad enough that he had

> to go back to casts for several weeks. We met

> w/ our doc (Dr. Dobbs) yesterday and he said he

> thought, although not totally healed, the sore

> had healed enough to go ahead and get back into

> the brace. He asked if I had a preference and

> I said I'd like to get the 23/7 brace process

> started to avoid any problems with Evan's

> mobile development when the time comes. Well,

> less than 24 hours in the brace, he has

> developed another red spot just below the

> previous sore that looks like it will form into

> a blister. Plus, we think the scab from the

> previous sore is going to fall off at any

> moment, opening that sore back up. I'm not

> sure what to do at this point. Dr. Dobbs nurse

> said that if the scab falls off and the sore is

> open, it will take longer to heal. And, if

> he's developing another one and it opens up,

> that will add even more time in the casts. So, my question is, should I

> keep Evan in the brace and see if the sores

> get worse such that we have to re-cast? We

> might not have to re-cast, after all. Or,

> should I go ahead and re-cast now in

> anticipation that these sores aren't going to

> heal in the brace? I just don't want the 23/7

> schedule to inhibit Evan rolling over, his

> tummy time or even getting up on all

> fours. Has anyone had this kind of problem

> with sores and blisters? It's only one foot

> and I've tried the moleskin pads. My son is

> really small (6 months and just 10 lbs; he was

> the smaller of twins), and I'm not sure if this

> is causing some of the problems.

>

> The other option for us at this point is to

> ask Dr. Dobbs to fit Evan for the

> brace, which I understand works fine for

> smaller babies and usually doesn't result in

> the sores, blisters, etc. I'm not sure I'm

> ready to go to another brace just yet, but if

> bracing is better than continuing with the

> casts in keeping my son's development moving

> forward, then I will ask for that brace.

>

> Jennie

>

> Jennie

>

>

>---------------------------------

>Ring'em or ping'em. Make PC-to-phone calls as

>low as 1¢/min with Yahoo! Messenger with Voice.

>

>

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Posted
Posted

I just wanted to second Kori's reassurance about not worrying on the

development. I worried about this too and although everything I

read said these babies develop the motor skills along normal

timelines, I still worried. has no problems getting around

in his brace...while he isn't crawling yet, he has started scooting

backwards in an effort to crawl. I have a niece 6 weeks older than

he is and she was doing this just a couple of weeks ago - he seems

right on track developmentally.

I have to agree that another short period of casting is better than

potentially letting the sores worsen. I don't have experience with

the Dobbs AFO or the P/M but I can say that the only time we've had

problems with the Markells was when they were too small for him and

we didn't realize it.

Good luck!

Kaci

> >Hello again everyone.

> >

> > My son, Evan, was in a DBB/FAB about a month

> > ago and developed a sore bad enough that he had

> > to go back to casts for several weeks. We met

> > w/ our doc (Dr. Dobbs) yesterday and he said he

> > thought, although not totally healed, the sore

> > had healed enough to go ahead and get back into

> > the brace. He asked if I had a preference and

> > I said I'd like to get the 23/7 brace process

> > started to avoid any problems with Evan's

> > mobile development when the time comes. Well,

> > less than 24 hours in the brace, he has

> > developed another red spot just below the

> > previous sore that looks like it will form into

> > a blister. Plus, we think the scab from the

> > previous sore is going to fall off at any

> > moment, opening that sore back up. I'm not

> > sure what to do at this point. Dr. Dobbs nurse

> > said that if the scab falls off and the sore is

> > open, it will take longer to heal. And, if

> > he's developing another one and it opens up,

> > that will add even more time in the casts. So, my question is,

should I

> > keep Evan in the brace and see if the sores

> > get worse such that we have to re-cast? We

> > might not have to re-cast, after all. Or,

> > should I go ahead and re-cast now in

> > anticipation that these sores aren't going to

> > heal in the brace? I just don't want the 23/7

> > schedule to inhibit Evan rolling over, his

> > tummy time or even getting up on all

> > fours. Has anyone had this kind of problem

> > with sores and blisters? It's only one foot

> > and I've tried the moleskin pads. My son is

> > really small (6 months and just 10 lbs; he was

> > the smaller of twins), and I'm not sure if this

> > is causing some of the problems.

> >

> > The other option for us at this point is to

> > ask Dr. Dobbs to fit Evan for the

> > brace, which I understand works fine for

> > smaller babies and usually doesn't result in

> > the sores, blisters, etc. I'm not sure I'm

> > ready to go to another brace just yet, but if

> > bracing is better than continuing with the

> > casts in keeping my son's development moving

> > forward, then I will ask for that brace.

> >

> > Jennie

> >

> > Jennie

> >

> >

> >---------------------------------

> >Ring'em or ping'em. Make PC-to-phone calls as

> >low as 1¢/min with Yahoo! Messenger with Voice.

> >

> >

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Posted
Posted

You are right. First, the fundamental question here is WHY is my little guy

getting the sores to begin with??? His foot doesn't slip around or out of the

boot. We monitor this by the position of his toes. ly, my guy is so

small, his knees are really stiff, and the brace is so heavy for him right now,

he doesn't have enough strength to move his feet around in the brace.

IF, and that's a big IF, we can figure out why this is happening, then we need

to figure out IF, another big IF, we can fix it. Because skin breakdown

manifested in a sore/blister occured so quickly after getting back into this

brace (less than 24 hours), I'm not sure if this brace will work for my guy. My

guy is a very slow grower (we are seeing a specialist next week about that), so

casting him until he gets bigger isn't going to work. That could take months.

Anyway, we are going in tomorrow 8:00 am to be re-casted and I am going to talk

with Dr. Dobbs about why this is happening and that I'd like to try the

brace.

Thanks so much for the encouragement on the developmental aspect. That has

worried me a bit given that my little guy is already 6 months old and hasn't

even started the 23/7 cycle yet. This I can stop worrying about!!

Jennie

frogabog wrote:

Hi Jennie,

The sores will likely just get worse with

pressure. You're seeing new ones, and that is

not a good thing. However, first... I would

want to know WHY you're getting sores in the

first place? It sounds like the foot is moving

somehow in the orthosis if they come up like

blisters. Dobbs implemented this AFO with a bar

to prevent sores, yet sores happen anyway for

some kids. Too often for my comfort to tell you

the truth. Trading sores from ill fitting shoes

(user error in these cases, because I know Dobbs

is correcting these feet properly) for ill

fitting AFO's... well, let's just say I am just not a fan of this brace.

Worrying about development... really that's not

an issue. These kids can do anything in their

braces and it is not known to hinder

development. Some kids will develop faster than

others regardless of bracing. Delaying the 23/7

to get sores healed really shouldn't be a problem

at all. However, casting can encourage muscle

atrophy which is why casts aren't used long term.

If I were in your position I'd ABSOLUTELY ask for

the Ponseti FAB. This brace... I AM a

fan of. Quite honestly, I still prefer the

Markell shoes over the AFO's on a bar because

with a corrected foot and proper

education/information about applying them they

don't cause sores. But do contact Dobbs office

and tell them you want the PM FAB. It will work

for you and it is a very good brace. Let's get

your little man into a brace that won't hurt his

feet and get you comfortable with him wearing it

without worrying about sores k? Call them now,

go in and get your son's feet impressed and the

impressions sent off to MD Orthopaedics with a

STAT order for the shoes. I would probably say

go ahead and have him casted for the time being

too. If you can heal those sores to the point of

having nice fresh healthy skin that would be

better than letting the sores get bad again and

try the PM's because no matter what kind of shoe

it is, pressure on an already tender area or a

sore will just make things worse. So get him

healed up and move forward with the PM's. They are very nice and comfortable.

hang in there, it'll get better soon!

Kori

At 10:28 AM 5/31/2006, you wrote:

>Hello again everyone.

>

> My son, Evan, was in a DBB/FAB about a month

> ago and developed a sore bad enough that he had

> to go back to casts for several weeks. We met

> w/ our doc (Dr. Dobbs) yesterday and he said he

> thought, although not totally healed, the sore

> had healed enough to go ahead and get back into

> the brace. He asked if I had a preference and

> I said I'd like to get the 23/7 brace process

> started to avoid any problems with Evan's

> mobile development when the time comes. Well,

> less than 24 hours in the brace, he has

> developed another red spot just below the

> previous sore that looks like it will form into

> a blister. Plus, we think the scab from the

> previous sore is going to fall off at any

> moment, opening that sore back up. I'm not

> sure what to do at this point. Dr. Dobbs nurse

> said that if the scab falls off and the sore is

> open, it will take longer to heal. And, if

> he's developing another one and it opens up,

> that will add even more time in the casts. So, my question is, should I

> keep Evan in the brace and see if the sores

> get worse such that we have to re-cast? We

> might not have to re-cast, after all. Or,

> should I go ahead and re-cast now in

> anticipation that these sores aren't going to

> heal in the brace? I just don't want the 23/7

> schedule to inhibit Evan rolling over, his

> tummy time or even getting up on all

> fours. Has anyone had this kind of problem

> with sores and blisters? It's only one foot

> and I've tried the moleskin pads. My son is

> really small (6 months and just 10 lbs; he was

> the smaller of twins), and I'm not sure if this

> is causing some of the problems.

>

> The other option for us at this point is to

> ask Dr. Dobbs to fit Evan for the

> brace, which I understand works fine for

> smaller babies and usually doesn't result in

> the sores, blisters, etc. I'm not sure I'm

> ready to go to another brace just yet, but if

> bracing is better than continuing with the

> casts in keeping my son's development moving

> forward, then I will ask for that brace.

>

> Jennie

>

> Jennie

>

>

>---------------------------------

>Ring'em or ping'em. Make PC-to-phone calls as

>low as 1¢/min with Yahoo! Messenger with Voice.

>

>

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Posted
Posted

What is " muscle atrophy " ?

frogabog wrote: Hi Jennie,

The sores will likely just get worse with

pressure. You're seeing new ones, and that is

not a good thing. However, first... I would

want to know WHY you're getting sores in the

first place? It sounds like the foot is moving

somehow in the orthosis if they come up like

blisters. Dobbs implemented this AFO with a bar

to prevent sores, yet sores happen anyway for

some kids. Too often for my comfort to tell you

the truth. Trading sores from ill fitting shoes

(user error in these cases, because I know Dobbs

is correcting these feet properly) for ill

fitting AFO's... well, let's just say I am just not a fan of this brace.

Worrying about development... really that's not

an issue. These kids can do anything in their

braces and it is not known to hinder

development. Some kids will develop faster than

others regardless of bracing. Delaying the 23/7

to get sores healed really shouldn't be a problem

at all. However, casting can encourage muscle

atrophy which is why casts aren't used long term.

If I were in your position I'd ABSOLUTELY ask for

the Ponseti FAB. This brace... I AM a

fan of. Quite honestly, I still prefer the

Markell shoes over the AFO's on a bar because

with a corrected foot and proper

education/information about applying them they

don't cause sores. But do contact Dobbs office

and tell them you want the PM FAB. It will work

for you and it is a very good brace. Let's get

your little man into a brace that won't hurt his

feet and get you comfortable with him wearing it

without worrying about sores k? Call them now,

go in and get your son's feet impressed and the

impressions sent off to MD Orthopaedics with a

STAT order for the shoes. I would probably say

go ahead and have him casted for the time being

too. If you can heal those sores to the point of

having nice fresh healthy skin that would be

better than letting the sores get bad again and

try the PM's because no matter what kind of shoe

it is, pressure on an already tender area or a

sore will just make things worse. So get him

healed up and move forward with the PM's. They are very nice and comfortable.

hang in there, it'll get better soon!

Kori

At 10:28 AM 5/31/2006, you wrote:

>Hello again everyone.

>

> My son, Evan, was in a DBB/FAB about a month

> ago and developed a sore bad enough that he had

> to go back to casts for several weeks. We met

> w/ our doc (Dr. Dobbs) yesterday and he said he

> thought, although not totally healed, the sore

> had healed enough to go ahead and get back into

> the brace. He asked if I had a preference and

> I said I'd like to get the 23/7 brace process

> started to avoid any problems with Evan's

> mobile development when the time comes. Well,

> less than 24 hours in the brace, he has

> developed another red spot just below the

> previous sore that looks like it will form into

> a blister. Plus, we think the scab from the

> previous sore is going to fall off at any

> moment, opening that sore back up. I'm not

> sure what to do at this point. Dr. Dobbs nurse

> said that if the scab falls off and the sore is

> open, it will take longer to heal. And, if

> he's developing another one and it opens up,

> that will add even more time in the casts. So, my question is, should I

> keep Evan in the brace and see if the sores

> get worse such that we have to re-cast? We

> might not have to re-cast, after all. Or,

> should I go ahead and re-cast now in

> anticipation that these sores aren't going to

> heal in the brace? I just don't want the 23/7

> schedule to inhibit Evan rolling over, his

> tummy time or even getting up on all

> fours. Has anyone had this kind of problem

> with sores and blisters? It's only one foot

> and I've tried the moleskin pads. My son is

> really small (6 months and just 10 lbs; he was

> the smaller of twins), and I'm not sure if this

> is causing some of the problems.

>

> The other option for us at this point is to

> ask Dr. Dobbs to fit Evan for the

> brace, which I understand works fine for

> smaller babies and usually doesn't result in

> the sores, blisters, etc. I'm not sure I'm

> ready to go to another brace just yet, but if

> bracing is better than continuing with the

> casts in keeping my son's development moving

> forward, then I will ask for that brace.

>

> Jennie

>

> Jennie

>

>

>---------------------------------

>Ring'em or ping'em. Make PC-to-phone calls as

>low as 1¢/min with Yahoo! Messenger with Voice.

>

>

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Posted
Posted

Jennie, I think you will love the brace. After less than 24 hours in

the Markell shoes, had a pressure sore, was recasted and I ordered her

the s. We will never use another type of shoe or brace for her. It is

easy for me to put on and very comfortable for her. I would encourage you to

consider it from someone who has " been there, done that " .

Carol

Transition from cast to DBB/FAB

Hello again everyone.

My son, Evan, was in a DBB/FAB about a month ago and developed a sore bad

enough that he had to go back to casts for several weeks. We met w/ our doc

(Dr. Dobbs) yesterday and he said he thought, although not totally healed, the

sore had healed enough to go ahead and get back into the brace. He asked if I

had a preference and I said I'd like to get the 23/7 brace process started to

avoid any problems with Evan's mobile development when the time comes. Well,

less than 24 hours in the brace, he has developed another red spot just below

the previous sore that looks like it will form into a blister. Plus, we think

the scab from the previous sore is going to fall off at any moment, opening that

sore back up. I'm not sure what to do at this point. Dr. Dobbs nurse said that

if the scab falls off and the sore is open, it will take longer to heal. And,

if he's developing another one and it opens up, that will add even more time in

the casts. So, my question is, should I

keep Evan in the brace and see if the sores get worse such that we have to

re-cast? We might not have to re-cast, after all. Or, should I go ahead and

re-cast now in anticipation that these sores aren't going to heal in the brace?

I just don't want the 23/7 schedule to inhibit Evan rolling over, his tummy time

or even getting up on all fours. Has anyone had this kind of problem with sores

and blisters? It's only one foot and I've tried the moleskin pads. My son is

really small (6 months and just 10 lbs; he was the smaller of twins), and I'm

not sure if this is causing some of the problems.

The other option for us at this point is to ask Dr. Dobbs to fit Evan for

the brace, which I understand works fine for smaller babies and usually

doesn't result in the sores, blisters, etc. I'm not sure I'm ready to go to

another brace just yet, but if bracing is better than continuing with the casts

in keeping my son's development moving forward, then I will ask for that brace.

Jennie

Jennie

---------------------------------

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Posted
Posted

Ugh. Here I go again messing up the lingo. We are transitioning from casts to

the AFO (Dr. Dobb's of St. Louis brace). Not the DBB/FBB. Will I ever get this

straight????

jennie billhartz wrote: Hello again everyone.

My son, Evan, was in a DBB/FAB about a month ago and developed a sore bad

enough that he had to go back to casts for several weeks. We met w/ our doc

(Dr. Dobbs) yesterday and he said he thought, although not totally healed, the

sore had healed enough to go ahead and get back into the brace. He asked if I

had a preference and I said I'd like to get the 23/7 brace process started to

avoid any problems with Evan's mobile development when the time comes. Well,

less than 24 hours in the brace, he has developed another red spot just below

the previous sore that looks like it will form into a blister. Plus, we think

the scab from the previous sore is going to fall off at any moment, opening that

sore back up. I'm not sure what to do at this point. Dr. Dobbs nurse said that

if the scab falls off and the sore is open, it will take longer to heal. And,

if he's developing another one and it opens up, that will add even more time in

the casts. So, my question is, should I

keep Evan in the brace and see if the sores get worse such that we have to

re-cast? We might not have to re-cast, after all. Or, should I go ahead and

re-cast now in anticipation that these sores aren't going to heal in the brace?

I just don't want the 23/7 schedule to inhibit Evan rolling over, his tummy time

or even getting up on all fours. Has anyone had this kind of problem with sores

and blisters? It's only one foot and I've tried the moleskin pads. My son is

really small (6 months and just 10 lbs; he was the smaller of twins), and I'm

not sure if this is causing some of the problems.

The other option for us at this point is to ask Dr. Dobbs to fit Evan for the

brace, which I understand works fine for smaller babies and usually

doesn't result in the sores, blisters, etc. I'm not sure I'm ready to go to

another brace just yet, but if bracing is better than continuing with the casts

in keeping my son's development moving forward, then I will ask for that brace.

Jennie

Jennie

---------------------------------

Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo!

Messenger with Voice.

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Posted
Posted

Hey Jennie,

Sorry to hear you're having problems again. Is the spot where the

scab came off an open sore again, or is it just tender new skin? I

know you said you tried the moleskin, but have you tried the blister

block bandaids? They may be able to protect the area and pad it just

a little enough to keep from needing to re-cast again.

As far as the shoes go, at this point, I agree with Kori about getting

Evan into the shoes. I think you've given this the 'good

old college try' and you certainly have nothing to lose by going with

the P/M's. I know this is tough, but you just keep hanging in there

and keep repeating, " it will get better, it will get better... "

Smiles!

> >Hello again everyone.

> >

> > My son, Evan, was in a DBB/FAB about a month

> > ago and developed a sore bad enough that he had

> > to go back to casts for several weeks. We met

> > w/ our doc (Dr. Dobbs) yesterday and he said he

> > thought, although not totally healed, the sore

> > had healed enough to go ahead and get back into

> > the brace. He asked if I had a preference and

> > I said I'd like to get the 23/7 brace process

> > started to avoid any problems with Evan's

> > mobile development when the time comes. Well,

> > less than 24 hours in the brace, he has

> > developed another red spot just below the

> > previous sore that looks like it will form into

> > a blister. Plus, we think the scab from the

> > previous sore is going to fall off at any

> > moment, opening that sore back up. I'm not

> > sure what to do at this point. Dr. Dobbs nurse

> > said that if the scab falls off and the sore is

> > open, it will take longer to heal. And, if

> > he's developing another one and it opens up,

> > that will add even more time in the casts. So, my question is,

should I

> > keep Evan in the brace and see if the sores

> > get worse such that we have to re-cast? We

> > might not have to re-cast, after all. Or,

> > should I go ahead and re-cast now in

> > anticipation that these sores aren't going to

> > heal in the brace? I just don't want the 23/7

> > schedule to inhibit Evan rolling over, his

> > tummy time or even getting up on all

> > fours. Has anyone had this kind of problem

> > with sores and blisters? It's only one foot

> > and I've tried the moleskin pads. My son is

> > really small (6 months and just 10 lbs; he was

> > the smaller of twins), and I'm not sure if this

> > is causing some of the problems.

> >

> > The other option for us at this point is to

> > ask Dr. Dobbs to fit Evan for the

> > brace, which I understand works fine for

> > smaller babies and usually doesn't result in

> > the sores, blisters, etc. I'm not sure I'm

> > ready to go to another brace just yet, but if

> > bracing is better than continuing with the

> > casts in keeping my son's development moving

> > forward, then I will ask for that brace.

> >

> > Jennie

> >

> > Jennie

> >

> >

> >---------------------------------

> >Ring'em or ping'em. Make PC-to-phone calls as

> >low as 1¢/min with Yahoo! Messenger with Voice.

> >

> >

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Posted
Posted

Jennie,

Muscle atrophy, or wasting of the muscle mass, is what can occur if

the muscles are not used for an extended period of time. This can

happen in long term casting (not in the short term casting used for

Ponseti method). Just for example, if you break your arm, and have to

be in a cast for 8 weeks, when your arm comes out of the cast it will

likely be skinnier than before - you can still build the muscle back

up, but it may take a while.

> >Hello again everyone.

> >

> > My son, Evan, was in a DBB/FAB about a month

> > ago and developed a sore bad enough that he had

> > to go back to casts for several weeks. We met

> > w/ our doc (Dr. Dobbs) yesterday and he said he

> > thought, although not totally healed, the sore

> > had healed enough to go ahead and get back into

> > the brace. He asked if I had a preference and

> > I said I'd like to get the 23/7 brace process

> > started to avoid any problems with Evan's

> > mobile development when the time comes. Well,

> > less than 24 hours in the brace, he has

> > developed another red spot just below the

> > previous sore that looks like it will form into

> > a blister. Plus, we think the scab from the

> > previous sore is going to fall off at any

> > moment, opening that sore back up. I'm not

> > sure what to do at this point. Dr. Dobbs nurse

> > said that if the scab falls off and the sore is

> > open, it will take longer to heal. And, if

> > he's developing another one and it opens up,

> > that will add even more time in the casts. So, my question is,

should I

> > keep Evan in the brace and see if the sores

> > get worse such that we have to re-cast? We

> > might not have to re-cast, after all. Or,

> > should I go ahead and re-cast now in

> > anticipation that these sores aren't going to

> > heal in the brace? I just don't want the 23/7

> > schedule to inhibit Evan rolling over, his

> > tummy time or even getting up on all

> > fours. Has anyone had this kind of problem

> > with sores and blisters? It's only one foot

> > and I've tried the moleskin pads. My son is

> > really small (6 months and just 10 lbs; he was

> > the smaller of twins), and I'm not sure if this

> > is causing some of the problems.

> >

> > The other option for us at this point is to

> > ask Dr. Dobbs to fit Evan for the

> > brace, which I understand works fine for

> > smaller babies and usually doesn't result in

> > the sores, blisters, etc. I'm not sure I'm

> > ready to go to another brace just yet, but if

> > bracing is better than continuing with the

> > casts in keeping my son's development moving

> > forward, then I will ask for that brace.

> >

> > Jennie

> >

> > Jennie

> >

> >

> >---------------------------------

> >Ring'em or ping'em. Make PC-to-phone calls as

> >low as 1¢/min with Yahoo! Messenger with Voice.

> >

> >

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Posted
Posted

I knew there was something else I needed to try on the sore. I need to get the

blister block band aids. The spot where the scab came off is tender new skin.

That's good, but the fact that there is a sore directly underneath says

something still isn't right with the brace. Re-casting is not for certain, but

highly likely. They'll look at the area and make a call. I am definitely going

to talk to them about trying the 's.

Stay tuned.........

Jennie

wrote:

Hey Jennie,

Sorry to hear you're having problems again. Is the spot where the

scab came off an open sore again, or is it just tender new skin? I

know you said you tried the moleskin, but have you tried the blister

block bandaids? They may be able to protect the area and pad it just

a little enough to keep from needing to re-cast again.

As far as the shoes go, at this point, I agree with Kori about getting

Evan into the shoes. I think you've given this the 'good

old college try' and you certainly have nothing to lose by going with

the P/M's. I know this is tough, but you just keep hanging in there

and keep repeating, " it will get better, it will get better... "

Smiles!

> >Hello again everyone.

> >

> > My son, Evan, was in a DBB/FAB about a month

> > ago and developed a sore bad enough that he had

> > to go back to casts for several weeks. We met

> > w/ our doc (Dr. Dobbs) yesterday and he said he

> > thought, although not totally healed, the sore

> > had healed enough to go ahead and get back into

> > the brace. He asked if I had a preference and

> > I said I'd like to get the 23/7 brace process

> > started to avoid any problems with Evan's

> > mobile development when the time comes. Well,

> > less than 24 hours in the brace, he has

> > developed another red spot just below the

> > previous sore that looks like it will form into

> > a blister. Plus, we think the scab from the

> > previous sore is going to fall off at any

> > moment, opening that sore back up. I'm not

> > sure what to do at this point. Dr. Dobbs nurse

> > said that if the scab falls off and the sore is

> > open, it will take longer to heal. And, if

> > he's developing another one and it opens up,

> > that will add even more time in the casts. So, my question is,

should I

> > keep Evan in the brace and see if the sores

> > get worse such that we have to re-cast? We

> > might not have to re-cast, after all. Or,

> > should I go ahead and re-cast now in

> > anticipation that these sores aren't going to

> > heal in the brace? I just don't want the 23/7

> > schedule to inhibit Evan rolling over, his

> > tummy time or even getting up on all

> > fours. Has anyone had this kind of problem

> > with sores and blisters? It's only one foot

> > and I've tried the moleskin pads. My son is

> > really small (6 months and just 10 lbs; he was

> > the smaller of twins), and I'm not sure if this

> > is causing some of the problems.

> >

> > The other option for us at this point is to

> > ask Dr. Dobbs to fit Evan for the

> > brace, which I understand works fine for

> > smaller babies and usually doesn't result in

> > the sores, blisters, etc. I'm not sure I'm

> > ready to go to another brace just yet, but if

> > bracing is better than continuing with the

> > casts in keeping my son's development moving

> > forward, then I will ask for that brace.

> >

> > Jennie

> >

> > Jennie

> >

> >

> >---------------------------------

> >Ring'em or ping'em. Make PC-to-phone calls as

> >low as 1¢/min with Yahoo! Messenger with Voice.

> >

> >

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Posted
Posted

I am concerned about this with Evan. He is 6 months old and hasn't had use of

his legs since he was 2 1/2 months old. And, then, he was so small, he wasn't

strong enough. His knees are stiff and he is going to need all the strenght he

can muster to get those working.

I'll add this to my list of things to chat about with the doc.

Jennie

wrote:

Jennie,

Muscle atrophy, or wasting of the muscle mass, is what can occur if

the muscles are not used for an extended period of time. This can

happen in long term casting (not in the short term casting used for

Ponseti method). Just for example, if you break your arm, and have to

be in a cast for 8 weeks, when your arm comes out of the cast it will

likely be skinnier than before - you can still build the muscle back

up, but it may take a while.

> >Hello again everyone.

> >

> > My son, Evan, was in a DBB/FAB about a month

> > ago and developed a sore bad enough that he had

> > to go back to casts for several weeks. We met

> > w/ our doc (Dr. Dobbs) yesterday and he said he

> > thought, although not totally healed, the sore

> > had healed enough to go ahead and get back into

> > the brace. He asked if I had a preference and

> > I said I'd like to get the 23/7 brace process

> > started to avoid any problems with Evan's

> > mobile development when the time comes. Well,

> > less than 24 hours in the brace, he has

> > developed another red spot just below the

> > previous sore that looks like it will form into

> > a blister. Plus, we think the scab from the

> > previous sore is going to fall off at any

> > moment, opening that sore back up. I'm not

> > sure what to do at this point. Dr. Dobbs nurse

> > said that if the scab falls off and the sore is

> > open, it will take longer to heal. And, if

> > he's developing another one and it opens up,

> > that will add even more time in the casts. So, my question is,

should I

> > keep Evan in the brace and see if the sores

> > get worse such that we have to re-cast? We

> > might not have to re-cast, after all. Or,

> > should I go ahead and re-cast now in

> > anticipation that these sores aren't going to

> > heal in the brace? I just don't want the 23/7

> > schedule to inhibit Evan rolling over, his

> > tummy time or even getting up on all

> > fours. Has anyone had this kind of problem

> > with sores and blisters? It's only one foot

> > and I've tried the moleskin pads. My son is

> > really small (6 months and just 10 lbs; he was

> > the smaller of twins), and I'm not sure if this

> > is causing some of the problems.

> >

> > The other option for us at this point is to

> > ask Dr. Dobbs to fit Evan for the

> > brace, which I understand works fine for

> > smaller babies and usually doesn't result in

> > the sores, blisters, etc. I'm not sure I'm

> > ready to go to another brace just yet, but if

> > bracing is better than continuing with the

> > casts in keeping my son's development moving

> > forward, then I will ask for that brace.

> >

> > Jennie

> >

> > Jennie

> >

> >

> >---------------------------------

> >Ring'em or ping'em. Make PC-to-phone calls as

> >low as 1¢/min with Yahoo! Messenger with Voice.

> >

> >

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Posted
Posted

Jennie, you are beating yourself up too much on this terminology. :)

Dr. Dobbs' brace (we just call it the Dobbs brace - simple huh?) is a

FAB.

FAB stands for Foot Abduction Brace, which regardless of which one

(Markells, Dobbs' or P/Ms) they are all FABs. :)

And The DBB is really just an outdated name for the FAB. DBB stands

for Denis Brown Bar (or Brace), which just refers to the doctor who

created the original bar with shoes attached turned out to hold

abduction. Denis Brown, however, upon further research, had some very

inhumane methods for correcting clubfoot, therefore we usually just

say FAB. :0)

Also, none of these shoes would be worth diddly in holding correction

(for a Ponseti method foot) without the bar. AFO stands for Ankle

Foot Orthosis, which is traditionally not used in the Ponseti method

of correction due to the fact that an AFO cannot hold the outward

rotation of the foot. It is the fact that it is mounted to the bar,

holding the outward rotation of the foot, that makes it work.

Now, as to why this is not working for you, I am stumped. I think I

would have to see Evan's foot in the brace to help more. Do a

or Dr. Dobbs have any idea why this is happening? If it is indeed

pressure from that strap and it is not resolving by making the strap

looser, I would tend to think that this is just b/c his foot is so

tiny. I haven't heard of anyone with little tiny ones in the P/M's

getting sores so hopefully this will be a better alternative for you.

Best of luck with everything! Keep us posted.

Hello again everyone.

>

> My son, Evan, was in a DBB/FAB about a month ago and developed a

sore bad enough that he had to go back to casts for several weeks. We

met w/ our doc (Dr. Dobbs) yesterday and he said he thought, although

not totally healed, the sore had healed enough to go ahead and get

back into the brace. He asked if I had a preference and I said I'd

like to get the 23/7 brace process started to avoid any problems with

Evan's mobile development when the time comes. Well, less than 24

hours in the brace, he has developed another red spot just below the

previous sore that looks like it will form into a blister. Plus, we

think the scab from the previous sore is going to fall off at any

moment, opening that sore back up. I'm not sure what to do at this

point. Dr. Dobbs nurse said that if the scab falls off and the sore

is open, it will take longer to heal. And, if he's developing another

one and it opens up, that will add even more time in the casts. So,

my question is, should I

> keep Evan in the brace and see if the sores get worse such that we

have to re-cast? We might not have to re-cast, after all. Or, should

I go ahead and re-cast now in anticipation that these sores aren't

going to heal in the brace? I just don't want the 23/7 schedule to

inhibit Evan rolling over, his tummy time or even getting up on all

fours. Has anyone had this kind of problem with sores and blisters?

It's only one foot and I've tried the moleskin pads. My son is really

small (6 months and just 10 lbs; he was the smaller of twins), and I'm

not sure if this is causing some of the problems.

>

> The other option for us at this point is to ask Dr. Dobbs to fit

Evan for the brace, which I understand works fine for smaller

babies and usually doesn't result in the sores, blisters, etc. I'm

not sure I'm ready to go to another brace just yet, but if bracing is

better than continuing with the casts in keeping my son's development

moving forward, then I will ask for that brace.

>

> Jennie

>

> Jennie

>

>

> ---------------------------------

> Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with

Yahoo! Messenger with Voice.

>

>

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Posted
Posted

You mentioned that he is in therapy, is it PT? Keeping him in PT

should reduce muscle loss, and also putting him in the P/M's, at least

for a while, could be an advantage in this case because he will be

able to move his ankles more in them than in the Dobbs brace. We

really liked the Dobbs brace since it helped Sammy heal the sores he

got from the Markells, but eventually we decided to switch back to the

Markells and they have been working fine ever since. Although I think

a majority of people who switch to the PM's (especially after a

problem with Markells) swear they would never go back, I wouldn't know

since I've never used them, but they say they are great!

allison

> > >Hello again everyone.

> > >

> > > My son, Evan, was in a DBB/FAB about a month

> > > ago and developed a sore bad enough that he had

> > > to go back to casts for several weeks. We met

> > > w/ our doc (Dr. Dobbs) yesterday and he said he

> > > thought, although not totally healed, the sore

> > > had healed enough to go ahead and get back into

> > > the brace. He asked if I had a preference and

> > > I said I'd like to get the 23/7 brace process

> > > started to avoid any problems with Evan's

> > > mobile development when the time comes. Well,

> > > less than 24 hours in the brace, he has

> > > developed another red spot just below the

> > > previous sore that looks like it will form into

> > > a blister. Plus, we think the scab from the

> > > previous sore is going to fall off at any

> > > moment, opening that sore back up. I'm not

> > > sure what to do at this point. Dr. Dobbs nurse

> > > said that if the scab falls off and the sore is

> > > open, it will take longer to heal. And, if

> > > he's developing another one and it opens up,

> > > that will add even more time in the casts. So, my question is,

> should I

> > > keep Evan in the brace and see if the sores

> > > get worse such that we have to re-cast? We

> > > might not have to re-cast, after all. Or,

> > > should I go ahead and re-cast now in

> > > anticipation that these sores aren't going to

> > > heal in the brace? I just don't want the 23/7

> > > schedule to inhibit Evan rolling over, his

> > > tummy time or even getting up on all

> > > fours. Has anyone had this kind of problem

> > > with sores and blisters? It's only one foot

> > > and I've tried the moleskin pads. My son is

> > > really small (6 months and just 10 lbs; he was

> > > the smaller of twins), and I'm not sure if this

> > > is causing some of the problems.

> > >

> > > The other option for us at this point is to

> > > ask Dr. Dobbs to fit Evan for the

> > > brace, which I understand works fine for

> > > smaller babies and usually doesn't result in

> > > the sores, blisters, etc. I'm not sure I'm

> > > ready to go to another brace just yet, but if

> > > bracing is better than continuing with the

> > > casts in keeping my son's development moving

> > > forward, then I will ask for that brace.

> > >

> > > Jennie

> > >

> > > Jennie

> > >

> > >

> > >---------------------------------

> > >Ring'em or ping'em. Make PC-to-phone calls as

> > >low as 1¢/min with Yahoo! Messenger with Voice.

> > >

> > >

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Posted
Posted

Jennie,

the PM is very light. Perfect for him if this is a concern.

Kori

At 02:39 PM 5/31/2006, you wrote:

>I am concerned about this with Evan. He is 6

>months old and hasn't had use of his legs since

>he was 2 1/2 months old. And, then, he was so

>small, he wasn't strong enough. His knees are

>stiff and he is going to need all the strenght

>he can muster to get those working.

>

> I'll add this to my list of things to chat about with the doc.

>

>

> Jennie

> wrote:

> Jennie,

>Muscle atrophy, or wasting of the muscle mass, is what can occur if

>the muscles are not used for an extended period of time. This can

>happen in long term casting (not in the short term casting used for

>Ponseti method). Just for example, if you break your arm, and have to

>be in a cast for 8 weeks, when your arm comes out of the cast it will

>likely be skinnier than before - you can still build the muscle back

>up, but it may take a while.

>

>

>

>

>

> > >Hello again everyone.

> > >

> > > My son, Evan, was in a DBB/FAB about a month

> > > ago and developed a sore bad enough that he had

> > > to go back to casts for several weeks. We met

> > > w/ our doc (Dr. Dobbs) yesterday and he said he

> > > thought, although not totally healed, the sore

> > > had healed enough to go ahead and get back into

> > > the brace. He asked if I had a preference and

> > > I said I'd like to get the 23/7 brace process

> > > started to avoid any problems with Evan's

> > > mobile development when the time comes. Well,

> > > less than 24 hours in the brace, he has

> > > developed another red spot just below the

> > > previous sore that looks like it will form into

> > > a blister. Plus, we think the scab from the

> > > previous sore is going to fall off at any

> > > moment, opening that sore back up. I'm not

> > > sure what to do at this point. Dr. Dobbs nurse

> > > said that if the scab falls off and the sore is

> > > open, it will take longer to heal. And, if

> > > he's developing another one and it opens up,

> > > that will add even more time in the casts. So, my question is,

>should I

> > > keep Evan in the brace and see if the sores

> > > get worse such that we have to re-cast? We

> > > might not have to re-cast, after all. Or,

> > > should I go ahead and re-cast now in

> > > anticipation that these sores aren't going to

> > > heal in the brace? I just don't want the 23/7

> > > schedule to inhibit Evan rolling over, his

> > > tummy time or even getting up on all

> > > fours. Has anyone had this kind of problem

> > > with sores and blisters? It's only one foot

> > > and I've tried the moleskin pads. My son is

> > > really small (6 months and just 10 lbs; he was

> > > the smaller of twins), and I'm not sure if this

> > > is causing some of the problems.

> > >

> > > The other option for us at this point is to

> > > ask Dr. Dobbs to fit Evan for the

> > > brace, which I understand works fine for

> > > smaller babies and usually doesn't result in

> > > the sores, blisters, etc. I'm not sure I'm

> > > ready to go to another brace just yet, but if

> > > bracing is better than continuing with the

> > > casts in keeping my son's development moving

> > > forward, then I will ask for that brace.

> > >

> > > Jennie

> > >

> > > Jennie

> > >

> > >

> > >---------------------------------

> > >Ring'em or ping'em. Make PC-to-phone calls as

> > >low as 1¢/min with Yahoo! Messenger with Voice.

> > >

> > >

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Posted
Posted

Jennie,

That's what happened to Darbi after her healing

casts in the Markells. It was at that point that

we cut a hole in the back. Only then, and it

took a LONG time did that sore heal again. 5w

old, got sore near immediately, use shoes as is

for another couple of weeks with this horrible

weepy sore that will NOT heal, 1.5w w/healing

cast and got pink skin. Then sore again

immediately but just as bad as it was when it was

bad after 4 days of trying (while camping no

less...). Then the hole when we got back. The

hole was the only thing that worked to heal it

finally. Let me see inside too and I found out I

wasn't even getting them on right. She has a

scar there and she did not have the tenotomy. I

really put her through too much with that sore, not fair to her at all.

Don't make that sore worse. Cast him and heal

him and get him the PM's. Do not take no for an

answer, insist on them. You won't regret it.

Kori

At 02:36 PM 5/31/2006, you wrote:

>I knew there was something else I needed to try

>on the sore. I need to get the blister block

>band aids. The spot where the scab came off is

>tender new skin. That's good, but the fact that

>there is a sore directly underneath says

>something still isn't right with the

>brace. Re-casting is not for certain, but

>highly likely. They'll look at the area and

>make a call. I am definitely going to talk to

>them about trying the 's.

>

> Stay tuned.........

>

> Jennie

>

> wrote:

> Hey Jennie,

>Sorry to hear you're having problems again. Is the spot where the

>scab came off an open sore again, or is it just tender new skin? I

>know you said you tried the moleskin, but have you tried the blister

>block bandaids? They may be able to protect the area and pad it just

>a little enough to keep from needing to re-cast again.

>As far as the shoes go, at this point, I agree with Kori about getting

>Evan into the shoes. I think you've given this the 'good

>old college try' and you certainly have nothing to lose by going with

>the P/M's. I know this is tough, but you just keep hanging in there

>and keep repeating, " it will get better, it will get better... "

>

>Smiles!

>

>

>

>

> > >Hello again everyone.

> > >

> > > My son, Evan, was in a DBB/FAB about a month

> > > ago and developed a sore bad enough that he had

> > > to go back to casts for several weeks. We met

> > > w/ our doc (Dr. Dobbs) yesterday and he said he

> > > thought, although not totally healed, the sore

> > > had healed enough to go ahead and get back into

> > > the brace. He asked if I had a preference and

> > > I said I'd like to get the 23/7 brace process

> > > started to avoid any problems with Evan's

> > > mobile development when the time comes. Well,

> > > less than 24 hours in the brace, he has

> > > developed another red spot just below the

> > > previous sore that looks like it will form into

> > > a blister. Plus, we think the scab from the

> > > previous sore is going to fall off at any

> > > moment, opening that sore back up. I'm not

> > > sure what to do at this point. Dr. Dobbs nurse

> > > said that if the scab falls off and the sore is

> > > open, it will take longer to heal. And, if

> > > he's developing another one and it opens up,

> > > that will add even more time in the casts. So, my question is,

>should I

> > > keep Evan in the brace and see if the sores

> > > get worse such that we have to re-cast? We

> > > might not have to re-cast, after all. Or,

> > > should I go ahead and re-cast now in

> > > anticipation that these sores aren't going to

> > > heal in the brace? I just don't want the 23/7

> > > schedule to inhibit Evan rolling over, his

> > > tummy time or even getting up on all

> > > fours. Has anyone had this kind of problem

> > > with sores and blisters? It's only one foot

> > > and I've tried the moleskin pads. My son is

> > > really small (6 months and just 10 lbs; he was

> > > the smaller of twins), and I'm not sure if this

> > > is causing some of the problems.

> > >

> > > The other option for us at this point is to

> > > ask Dr. Dobbs to fit Evan for the

> > > brace, which I understand works fine for

> > > smaller babies and usually doesn't result in

> > > the sores, blisters, etc. I'm not sure I'm

> > > ready to go to another brace just yet, but if

> > > bracing is better than continuing with the

> > > casts in keeping my son's development moving

> > > forward, then I will ask for that brace.

> > >

> > > Jennie

> > >

> > > Jennie

> > >

> > >

> > >---------------------------------

> > >Ring'em or ping'em. Make PC-to-phone calls as

> > >low as 1¢/min with Yahoo! Messenger with Voice.

> > >

> > >

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Posted
Posted

i would opt for mitchell shoes at this point, but dont fret too much about

baby's development, the brace does little to nothing to slow it down.

Transition from cast to DBB/FAB

Hello again everyone.

My son, Evan, was in a DBB/FAB about a month ago and developed a sore bad

enough that he had to go back to casts for several weeks. We met w/ our doc

(Dr. Dobbs) yesterday and he said he thought, although not totally healed, the

sore had healed enough to go ahead and get back into the brace. He asked if I

had a preference and I said I'd like to get the 23/7 brace process started to

avoid any problems with Evan's mobile development when the time comes. Well,

less than 24 hours in the brace, he has developed another red spot just below

the previous sore that looks like it will form into a blister. Plus, we think

the scab from the previous sore is going to fall off at any moment, opening that

sore back up. I'm not sure what to do at this point. Dr. Dobbs nurse said that

if the scab falls off and the sore is open, it will take longer to heal. And,

if he's developing another one and it opens up, that will add even more time in

the casts. So, my question is, should I

keep Evan in the brace and see if the sores get worse such that we have to

re-cast? We might not have to re-cast, after all. Or, should I go ahead and

re-cast now in anticipation that these sores aren't going to heal in the brace?

I just don't want the 23/7 schedule to inhibit Evan rolling over, his tummy time

or even getting up on all fours. Has anyone had this kind of problem with sores

and blisters? It's only one foot and I've tried the moleskin pads. My son is

really small (6 months and just 10 lbs; he was the smaller of twins), and I'm

not sure if this is causing some of the problems.

The other option for us at this point is to ask Dr. Dobbs to fit Evan for

the brace, which I understand works fine for smaller babies and usually

doesn't result in the sores, blisters, etc. I'm not sure I'm ready to go to

another brace just yet, but if bracing is better than continuing with the casts

in keeping my son's development moving forward, then I will ask for that brace.

Jennie

Jennie

---------------------------------

Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo!

Messenger with Voice.

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Posted
Posted

I second how light it is. could barely lift her legs in the Markells but

she was able to lift them easily in the shoes. This was very important

for her comfort, as it made her very angry to not be able to lift her legs.

Carol

Re: Re: Transition from cast to DBB/FAB

Jennie,

the PM is very light. Perfect for him if this is a concern.

Kori

At 02:39 PM 5/31/2006, you wrote:

>I am concerned about this with Evan. He is 6

>months old and hasn't had use of his legs since

>he was 2 1/2 months old. And, then, he was so

>small, he wasn't strong enough. His knees are

>stiff and he is going to need all the strenght

>he can muster to get those working.

>

> I'll add this to my list of things to chat about with the doc.

>

>

> Jennie

> wrote:

> Jennie,

>Muscle atrophy, or wasting of the muscle mass, is what can occur if

>the muscles are not used for an extended period of time. This can

>happen in long term casting (not in the short term casting used for

>Ponseti method). Just for example, if you break your arm, and have to

>be in a cast for 8 weeks, when your arm comes out of the cast it will

>likely be skinnier than before - you can still build the muscle back

>up, but it may take a while.

>

>

>

>

>

> > >Hello again everyone.

> > >

> > > My son, Evan, was in a DBB/FAB about a month

> > > ago and developed a sore bad enough that he had

> > > to go back to casts for several weeks. We met

> > > w/ our doc (Dr. Dobbs) yesterday and he said he

> > > thought, although not totally healed, the sore

> > > had healed enough to go ahead and get back into

> > > the brace. He asked if I had a preference and

> > > I said I'd like to get the 23/7 brace process

> > > started to avoid any problems with Evan's

> > > mobile development when the time comes. Well,

> > > less than 24 hours in the brace, he has

> > > developed another red spot just below the

> > > previous sore that looks like it will form into

> > > a blister. Plus, we think the scab from the

> > > previous sore is going to fall off at any

> > > moment, opening that sore back up. I'm not

> > > sure what to do at this point. Dr. Dobbs nurse

> > > said that if the scab falls off and the sore is

> > > open, it will take longer to heal. And, if

> > > he's developing another one and it opens up,

> > > that will add even more time in the casts. So, my question is,

>should I

> > > keep Evan in the brace and see if the sores

> > > get worse such that we have to re-cast? We

> > > might not have to re-cast, after all. Or,

> > > should I go ahead and re-cast now in

> > > anticipation that these sores aren't going to

> > > heal in the brace? I just don't want the 23/7

> > > schedule to inhibit Evan rolling over, his

> > > tummy time or even getting up on all

> > > fours. Has anyone had this kind of problem

> > > with sores and blisters? It's only one foot

> > > and I've tried the moleskin pads. My son is

> > > really small (6 months and just 10 lbs; he was

> > > the smaller of twins), and I'm not sure if this

> > > is causing some of the problems.

> > >

> > > The other option for us at this point is to

> > > ask Dr. Dobbs to fit Evan for the

> > > brace, which I understand works fine for

> > > smaller babies and usually doesn't result in

> > > the sores, blisters, etc. I'm not sure I'm

> > > ready to go to another brace just yet, but if

> > > bracing is better than continuing with the

> > > casts in keeping my son's development moving

> > > forward, then I will ask for that brace.

> > >

> > > Jennie

> > >

> > > Jennie

> > >

> > >

> > >---------------------------------

> > >Ring'em or ping'em. Make PC-to-phone calls as

> > >low as 1¢/min with Yahoo! Messenger with Voice.

> > >

> > >

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Posted
Posted

I think I missed something here....why is your child already 6 months old but

not started the 23/7 routine yet? Was he treated elsewhere before you found

Dobbs or something?

s.

Re: Transition from cast to DBB/FAB

You are right. First, the fundamental question here is WHY is my little guy

getting the sores to begin with??? His foot doesn't slip around or out of the

boot. We monitor this by the position of his toes. ly, my guy is so

small, his knees are really stiff, and the brace is so heavy for him right now,

he doesn't have enough strength to move his feet around in the brace.

IF, and that's a big IF, we can figure out why this is happening, then we

need to figure out IF, another big IF, we can fix it. Because skin breakdown

manifested in a sore/blister occured so quickly after getting back into this

brace (less than 24 hours), I'm not sure if this brace will work for my guy. My

guy is a very slow grower (we are seeing a specialist next week about that), so

casting him until he gets bigger isn't going to work. That could take months.

Anyway, we are going in tomorrow 8:00 am to be re-casted and I am going to talk

with Dr. Dobbs about why this is happening and that I'd like to try the

brace.

Thanks so much for the encouragement on the developmental aspect. That has

worried me a bit given that my little guy is already 6 months old and hasn't

even started the 23/7 cycle yet. This I can stop worrying about!!

Jennie

frogabog wrote:

Hi Jennie,

The sores will likely just get worse with

pressure. You're seeing new ones, and that is

not a good thing. However, first... I would

want to know WHY you're getting sores in the

first place? It sounds like the foot is moving

somehow in the orthosis if they come up like

blisters. Dobbs implemented this AFO with a bar

to prevent sores, yet sores happen anyway for

some kids. Too often for my comfort to tell you

the truth. Trading sores from ill fitting shoes

(user error in these cases, because I know Dobbs

is correcting these feet properly) for ill

fitting AFO's... well, let's just say I am just not a fan of this brace.

Worrying about development... really that's not

an issue. These kids can do anything in their

braces and it is not known to hinder

development. Some kids will develop faster than

others regardless of bracing. Delaying the 23/7

to get sores healed really shouldn't be a problem

at all. However, casting can encourage muscle

atrophy which is why casts aren't used long term.

If I were in your position I'd ABSOLUTELY ask for

the Ponseti FAB. This brace... I AM a

fan of. Quite honestly, I still prefer the

Markell shoes over the AFO's on a bar because

with a corrected foot and proper

education/information about applying them they

don't cause sores. But do contact Dobbs office

and tell them you want the PM FAB. It will work

for you and it is a very good brace. Let's get

your little man into a brace that won't hurt his

feet and get you comfortable with him wearing it

without worrying about sores k? Call them now,

go in and get your son's feet impressed and the

impressions sent off to MD Orthopaedics with a

STAT order for the shoes. I would probably say

go ahead and have him casted for the time being

too. If you can heal those sores to the point of

having nice fresh healthy skin that would be

better than letting the sores get bad again and

try the PM's because no matter what kind of shoe

it is, pressure on an already tender area or a

sore will just make things worse. So get him

healed up and move forward with the PM's. They are very nice and comfortable.

hang in there, it'll get better soon!

Kori

At 10:28 AM 5/31/2006, you wrote:

>Hello again everyone.

>

> My son, Evan, was in a DBB/FAB about a month

> ago and developed a sore bad enough that he had

> to go back to casts for several weeks. We met

> w/ our doc (Dr. Dobbs) yesterday and he said he

> thought, although not totally healed, the sore

> had healed enough to go ahead and get back into

> the brace. He asked if I had a preference and

> I said I'd like to get the 23/7 brace process

> started to avoid any problems with Evan's

> mobile development when the time comes. Well,

> less than 24 hours in the brace, he has

> developed another red spot just below the

> previous sore that looks like it will form into

> a blister. Plus, we think the scab from the

> previous sore is going to fall off at any

> moment, opening that sore back up. I'm not

> sure what to do at this point. Dr. Dobbs nurse

> said that if the scab falls off and the sore is

> open, it will take longer to heal. And, if

> he's developing another one and it opens up,

> that will add even more time in the casts. So, my question is, should I

> keep Evan in the brace and see if the sores

> get worse such that we have to re-cast? We

> might not have to re-cast, after all. Or,

> should I go ahead and re-cast now in

> anticipation that these sores aren't going to

> heal in the brace? I just don't want the 23/7

> schedule to inhibit Evan rolling over, his

> tummy time or even getting up on all

> fours. Has anyone had this kind of problem

> with sores and blisters? It's only one foot

> and I've tried the moleskin pads. My son is

> really small (6 months and just 10 lbs; he was

> the smaller of twins), and I'm not sure if this

> is causing some of the problems.

>

> The other option for us at this point is to

> ask Dr. Dobbs to fit Evan for the

> brace, which I understand works fine for

> smaller babies and usually doesn't result in

> the sores, blisters, etc. I'm not sure I'm

> ready to go to another brace just yet, but if

> bracing is better than continuing with the

> casts in keeping my son's development moving

> forward, then I will ask for that brace.

>

> Jennie

>

> Jennie

>

>

>---------------------------------

>Ring'em or ping'em. Make PC-to-phone calls as

>low as 1¢/min with Yahoo! Messenger with Voice.

>

>

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Posted
Posted

Jennie, I'm a user and a big fan of the FAB, especially considering

your child is smaller than average. They are light weight and comfy, a lighter

weight would be to your advantage too, right, since your child has the other

issue(s)?

I won't swear the PM brace is fool proof, but the occurance of sores/problems

with them is nearly nill compared to the occurances in the Markell and Dobbs

bracing systems.

good luck with all this!

s.

ee

Mother of 3 Clubfooted Sons:

- Bilateral Club Feet April 1998

Everett - Bilateral Club Feet September 2003

Garrison - Bilateral Club Feet March 2006

Re: Transition from cast to DBB/FAB

You mentioned that he is in therapy, is it PT? Keeping him in PT

should reduce muscle loss, and also putting him in the P/M's, at least

for a while, could be an advantage in this case because he will be

able to move his ankles more in them than in the Dobbs brace. We

really liked the Dobbs brace since it helped Sammy heal the sores he

got from the Markells, but eventually we decided to switch back to the

Markells and they have been working fine ever since. Although I think

a majority of people who switch to the PM's (especially after a

problem with Markells) swear they would never go back, I wouldn't know

since I've never used them, but they say they are great!

allison

> > >Hello again everyone.

> > >

> > > My son, Evan, was in a DBB/FAB about a month

> > > ago and developed a sore bad enough that he had

> > > to go back to casts for several weeks. We met

> > > w/ our doc (Dr. Dobbs) yesterday and he said he

> > > thought, although not totally healed, the sore

> > > had healed enough to go ahead and get back into

> > > the brace. He asked if I had a preference and

> > > I said I'd like to get the 23/7 brace process

> > > started to avoid any problems with Evan's

> > > mobile development when the time comes. Well,

> > > less than 24 hours in the brace, he has

> > > developed another red spot just below the

> > > previous sore that looks like it will form into

> > > a blister. Plus, we think the scab from the

> > > previous sore is going to fall off at any

> > > moment, opening that sore back up. I'm not

> > > sure what to do at this point. Dr. Dobbs nurse

> > > said that if the scab falls off and the sore is

> > > open, it will take longer to heal. And, if

> > > he's developing another one and it opens up,

> > > that will add even more time in the casts. So, my question is,

> should I

> > > keep Evan in the brace and see if the sores

> > > get worse such that we have to re-cast? We

> > > might not have to re-cast, after all. Or,

> > > should I go ahead and re-cast now in

> > > anticipation that these sores aren't going to

> > > heal in the brace? I just don't want the 23/7

> > > schedule to inhibit Evan rolling over, his

> > > tummy time or even getting up on all

> > > fours. Has anyone had this kind of problem

> > > with sores and blisters? It's only one foot

> > > and I've tried the moleskin pads. My son is

> > > really small (6 months and just 10 lbs; he was

> > > the smaller of twins), and I'm not sure if this

> > > is causing some of the problems.

> > >

> > > The other option for us at this point is to

> > > ask Dr. Dobbs to fit Evan for the

> > > brace, which I understand works fine for

> > > smaller babies and usually doesn't result in

> > > the sores, blisters, etc. I'm not sure I'm

> > > ready to go to another brace just yet, but if

> > > bracing is better than continuing with the

> > > casts in keeping my son's development moving

> > > forward, then I will ask for that brace.

> > >

> > > Jennie

> > >

> > > Jennie

> > >

> > >

> > >---------------------------------

> > >Ring'em or ping'em. Make PC-to-phone calls as

> > >low as 1¢/min with Yahoo! Messenger with Voice.

> > >

> > >

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Posted
Posted

My Evan is really angry that he can't move his legs. So angry, in fact, that he

wakes up at night crying, not b/c he's sore, but b/c he can't move. We took the

brace off today until we get casted tomorrow and he was so happy to be able to

lift his legs!!!

Carol Shelton wrote: I second how light it is.

could barely lift her legs in the Markells but she was able to lift them

easily in the shoes. This was very important for her comfort, as it

made her very angry to not be able to lift her legs.

Carol

Re: Re: Transition from cast to DBB/FAB

Jennie,

the PM is very light. Perfect for him if this is a concern.

Kori

At 02:39 PM 5/31/2006, you wrote:

>I am concerned about this with Evan. He is 6

>months old and hasn't had use of his legs since

>he was 2 1/2 months old. And, then, he was so

>small, he wasn't strong enough. His knees are

>stiff and he is going to need all the strenght

>he can muster to get those working.

>

> I'll add this to my list of things to chat about with the doc.

>

>

> Jennie

> wrote:

> Jennie,

>Muscle atrophy, or wasting of the muscle mass, is what can occur if

>the muscles are not used for an extended period of time. This can

>happen in long term casting (not in the short term casting used for

>Ponseti method). Just for example, if you break your arm, and have to

>be in a cast for 8 weeks, when your arm comes out of the cast it will

>likely be skinnier than before - you can still build the muscle back

>up, but it may take a while.

>

>

>

>

>

> > >Hello again everyone.

> > >

> > > My son, Evan, was in a DBB/FAB about a month

> > > ago and developed a sore bad enough that he had

> > > to go back to casts for several weeks. We met

> > > w/ our doc (Dr. Dobbs) yesterday and he said he

> > > thought, although not totally healed, the sore

> > > had healed enough to go ahead and get back into

> > > the brace. He asked if I had a preference and

> > > I said I'd like to get the 23/7 brace process

> > > started to avoid any problems with Evan's

> > > mobile development when the time comes. Well,

> > > less than 24 hours in the brace, he has

> > > developed another red spot just below the

> > > previous sore that looks like it will form into

> > > a blister. Plus, we think the scab from the

> > > previous sore is going to fall off at any

> > > moment, opening that sore back up. I'm not

> > > sure what to do at this point. Dr. Dobbs nurse

> > > said that if the scab falls off and the sore is

> > > open, it will take longer to heal. And, if

> > > he's developing another one and it opens up,

> > > that will add even more time in the casts. So, my question is,

>should I

> > > keep Evan in the brace and see if the sores

> > > get worse such that we have to re-cast? We

> > > might not have to re-cast, after all. Or,

> > > should I go ahead and re-cast now in

> > > anticipation that these sores aren't going to

> > > heal in the brace? I just don't want the 23/7

> > > schedule to inhibit Evan rolling over, his

> > > tummy time or even getting up on all

> > > fours. Has anyone had this kind of problem

> > > with sores and blisters? It's only one foot

> > > and I've tried the moleskin pads. My son is

> > > really small (6 months and just 10 lbs; he was

> > > the smaller of twins), and I'm not sure if this

> > > is causing some of the problems.

> > >

> > > The other option for us at this point is to

> > > ask Dr. Dobbs to fit Evan for the

> > > brace, which I understand works fine for

> > > smaller babies and usually doesn't result in

> > > the sores, blisters, etc. I'm not sure I'm

> > > ready to go to another brace just yet, but if

> > > bracing is better than continuing with the

> > > casts in keeping my son's development moving

> > > forward, then I will ask for that brace.

> > >

> > > Jennie

> > >

> > > Jennie

> > >

> > >

> > >---------------------------------

> > >Ring'em or ping'em. Make PC-to-phone calls as

> > >low as 1¢/min with Yahoo! Messenger with Voice.

> > >

> > >

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Posted
Posted

He is a twin and was born pretty small (3 lbs, 13 oz) and was a slow weight

gainer. We couldn't begin casting until he hit 7-8 lbs, which he didn't hit

until 2 1/2-3 months. He is still gaining weight too slowly for my

pediatrician's comfort so we have to go see a specialist about that next week (a

gastreologist or whatever they are called). More docs - yeah!!

number23 wrote: I think I missed something here....why

is your child already 6 months old but not started the 23/7 routine yet? Was he

treated elsewhere before you found Dobbs or something?

s.

Re: Transition from cast to DBB/FAB

You are right. First, the fundamental question here is WHY is my little guy

getting the sores to begin with??? His foot doesn't slip around or out of the

boot. We monitor this by the position of his toes. ly, my guy is so

small, his knees are really stiff, and the brace is so heavy for him right now,

he doesn't have enough strength to move his feet around in the brace.

IF, and that's a big IF, we can figure out why this is happening, then we

need to figure out IF, another big IF, we can fix it. Because skin breakdown

manifested in a sore/blister occured so quickly after getting back into this

brace (less than 24 hours), I'm not sure if this brace will work for my guy. My

guy is a very slow grower (we are seeing a specialist next week about that), so

casting him until he gets bigger isn't going to work. That could take months.

Anyway, we are going in tomorrow 8:00 am to be re-casted and I am going to talk

with Dr. Dobbs about why this is happening and that I'd like to try the

brace.

Thanks so much for the encouragement on the developmental aspect. That has

worried me a bit given that my little guy is already 6 months old and hasn't

even started the 23/7 cycle yet. This I can stop worrying about!!

Jennie

frogabog wrote:

Hi Jennie,

The sores will likely just get worse with

pressure. You're seeing new ones, and that is

not a good thing. However, first... I would

want to know WHY you're getting sores in the

first place? It sounds like the foot is moving

somehow in the orthosis if they come up like

blisters. Dobbs implemented this AFO with a bar

to prevent sores, yet sores happen anyway for

some kids. Too often for my comfort to tell you

the truth. Trading sores from ill fitting shoes

(user error in these cases, because I know Dobbs

is correcting these feet properly) for ill

fitting AFO's... well, let's just say I am just not a fan of this brace.

Worrying about development... really that's not

an issue. These kids can do anything in their

braces and it is not known to hinder

development. Some kids will develop faster than

others regardless of bracing. Delaying the 23/7

to get sores healed really shouldn't be a problem

at all. However, casting can encourage muscle

atrophy which is why casts aren't used long term.

If I were in your position I'd ABSOLUTELY ask for

the Ponseti FAB. This brace... I AM a

fan of. Quite honestly, I still prefer the

Markell shoes over the AFO's on a bar because

with a corrected foot and proper

education/information about applying them they

don't cause sores. But do contact Dobbs office

and tell them you want the PM FAB. It will work

for you and it is a very good brace. Let's get

your little man into a brace that won't hurt his

feet and get you comfortable with him wearing it

without worrying about sores k? Call them now,

go in and get your son's feet impressed and the

impressions sent off to MD Orthopaedics with a

STAT order for the shoes. I would probably say

go ahead and have him casted for the time being

too. If you can heal those sores to the point of

having nice fresh healthy skin that would be

better than letting the sores get bad again and

try the PM's because no matter what kind of shoe

it is, pressure on an already tender area or a

sore will just make things worse. So get him

healed up and move forward with the PM's. They are very nice and comfortable.

hang in there, it'll get better soon!

Kori

At 10:28 AM 5/31/2006, you wrote:

>Hello again everyone.

>

> My son, Evan, was in a DBB/FAB about a month

> ago and developed a sore bad enough that he had

> to go back to casts for several weeks. We met

> w/ our doc (Dr. Dobbs) yesterday and he said he

> thought, although not totally healed, the sore

> had healed enough to go ahead and get back into

> the brace. He asked if I had a preference and

> I said I'd like to get the 23/7 brace process

> started to avoid any problems with Evan's

> mobile development when the time comes. Well,

> less than 24 hours in the brace, he has

> developed another red spot just below the

> previous sore that looks like it will form into

> a blister. Plus, we think the scab from the

> previous sore is going to fall off at any

> moment, opening that sore back up. I'm not

> sure what to do at this point. Dr. Dobbs nurse

> said that if the scab falls off and the sore is

> open, it will take longer to heal. And, if

> he's developing another one and it opens up,

> that will add even more time in the casts. So, my question is, should I

> keep Evan in the brace and see if the sores

> get worse such that we have to re-cast? We

> might not have to re-cast, after all. Or,

> should I go ahead and re-cast now in

> anticipation that these sores aren't going to

> heal in the brace? I just don't want the 23/7

> schedule to inhibit Evan rolling over, his

> tummy time or even getting up on all

> fours. Has anyone had this kind of problem

> with sores and blisters? It's only one foot

> and I've tried the moleskin pads. My son is

> really small (6 months and just 10 lbs; he was

> the smaller of twins), and I'm not sure if this

> is causing some of the problems.

>

> The other option for us at this point is to

> ask Dr. Dobbs to fit Evan for the

> brace, which I understand works fine for

> smaller babies and usually doesn't result in

> the sores, blisters, etc. I'm not sure I'm

> ready to go to another brace just yet, but if

> bracing is better than continuing with the

> casts in keeping my son's development moving

> forward, then I will ask for that brace.

>

> Jennie

>

> Jennie

>

>

>---------------------------------

>Ring'em or ping'em. Make PC-to-phone calls as

>low as 1¢/min with Yahoo! Messenger with Voice.

>

>

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Posted
Posted

Hi Jennie - my son Hayden had a lot of trouble with his skin under the casts.

We were in and out of them until I switched doctors. He learned how to roll

over in the casts, so I was worried once it was time to go into the FAB that it

would set him back. The day we put him into the s I was sitting there

watching t.v. and Hayden was on the floor. All of a sudden I was this triangle

swing by me and he had rolled over in the brace. Babies are smart little

critters and if no one is telling them they can't do something, they just do

it. By the by, Hayden has had no sores and minimal redness from the s.

And he has fat little porker feet so I have to crank them pretty tight.

jennie billhartz wrote: Hello again everyone.

My son, Evan, was in a DBB/FAB about a month ago and developed a sore bad

enough that he had to go back to casts for several weeks. We met w/ our doc

(Dr. Dobbs) yesterday and he said he thought, although not totally healed, the

sore had healed enough to go ahead and get back into the brace. He asked if I

had a preference and I said I'd like to get the 23/7 brace process started to

avoid any problems with Evan's mobile development when the time comes. Well,

less than 24 hours in the brace, he has developed another red spot just below

the previous sore that looks like it will form into a blister. Plus, we think

the scab from the previous sore is going to fall off at any moment, opening

that sore back up. I'm not sure what to do at this point. Dr. Dobbs nurse

said that if the scab falls off and the sore is open, it will take longer to

heal. And, if he's developing another one and it opens up, that will add even

more time in the casts. So, my question

is, should I

keep Evan in the brace and see if the sores get worse such that we have to

re-cast? We might not have to re-cast, after all. Or, should I go ahead and

re-cast now in anticipation that these sores aren't going to heal in the brace?

I just don't want the 23/7 schedule to inhibit Evan rolling over, his tummy

time or even getting up on all fours. Has anyone had this kind of problem with

sores and blisters? It's only one foot and I've tried the moleskin pads. My

son is really small (6 months and just 10 lbs; he was the smaller of twins),

and I'm not sure if this is causing some of the problems.

The other option for us at this point is to ask Dr. Dobbs to fit Evan for

the brace, which I understand works fine for smaller babies and

usually doesn't result in the sores, blisters, etc. I'm not sure I'm ready to

go to another brace just yet, but if bracing is better than continuing with the

casts in keeping my son's development moving forward, then I will ask for that

brace.

Jennie

Jennie

---------------------------------

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Posted
Posted

That sounds very familiar! I think the s would be ideal for him!

Carol

Re: Re: Transition from cast to DBB/FAB

Jennie,

the PM is very light. Perfect for him if this is a concern.

Kori

At 02:39 PM 5/31/2006, you wrote:

>I am concerned about this with Evan. He is 6

>months old and hasn't had use of his legs since

>he was 2 1/2 months old. And, then, he was so

>small, he wasn't strong enough. His knees are

>stiff and he is going to need all the strenght

>he can muster to get those working.

>

> I'll add this to my list of things to chat about with the doc.

>

>

> Jennie

> wrote:

> Jennie,

>Muscle atrophy, or wasting of the muscle mass, is what can occur if

>the muscles are not used for an extended period of time. This can

>happen in long term casting (not in the short term casting used for

>Ponseti method). Just for example, if you break your arm, and have to

>be in a cast for 8 weeks, when your arm comes out of the cast it will

>likely be skinnier than before - you can still build the muscle back

>up, but it may take a while.

>

>

>

>

>

> > >Hello again everyone.

> > >

> > > My son, Evan, was in a DBB/FAB about a month

> > > ago and developed a sore bad enough that he had

> > > to go back to casts for several weeks. We met

> > > w/ our doc (Dr. Dobbs) yesterday and he said he

> > > thought, although not totally healed, the sore

> > > had healed enough to go ahead and get back into

> > > the brace. He asked if I had a preference and

> > > I said I'd like to get the 23/7 brace process

> > > started to avoid any problems with Evan's

> > > mobile development when the time comes. Well,

> > > less than 24 hours in the brace, he has

> > > developed another red spot just below the

> > > previous sore that looks like it will form into

> > > a blister. Plus, we think the scab from the

> > > previous sore is going to fall off at any

> > > moment, opening that sore back up. I'm not

> > > sure what to do at this point. Dr. Dobbs nurse

> > > said that if the scab falls off and the sore is

> > > open, it will take longer to heal. And, if

> > > he's developing another one and it opens up,

> > > that will add even more time in the casts. So, my question is,

>should I

> > > keep Evan in the brace and see if the sores

> > > get worse such that we have to re-cast? We

> > > might not have to re-cast, after all. Or,

> > > should I go ahead and re-cast now in

> > > anticipation that these sores aren't going to

> > > heal in the brace? I just don't want the 23/7

> > > schedule to inhibit Evan rolling over, his

> > > tummy time or even getting up on all

> > > fours. Has anyone had this kind of problem

> > > with sores and blisters? It's only one foot

> > > and I've tried the moleskin pads. My son is

> > > really small (6 months and just 10 lbs; he was

> > > the smaller of twins), and I'm not sure if this

> > > is causing some of the problems.

> > >

> > > The other option for us at this point is to

> > > ask Dr. Dobbs to fit Evan for the

> > > brace, which I understand works fine for

> > > smaller babies and usually doesn't result in

> > > the sores, blisters, etc. I'm not sure I'm

> > > ready to go to another brace just yet, but if

> > > bracing is better than continuing with the

> > > casts in keeping my son's development moving

> > > forward, then I will ask for that brace.

> > >

> > > Jennie

> > >

> > > Jennie

> > >

> > >

> > >---------------------------------

> > >Ring'em or ping'em. Make PC-to-phone calls as

> > >low as 1¢/min with Yahoo! Messenger with Voice.

> > >

> > >

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Posted
Posted

Jennie,

I am so sorry to hear you are still having this trouble with Evan. It must be

so hard to see your poor little baby go through this especially having the other

baby not being help back any. We never had any sores get very bad, so I don't

feel like I can help you much in this decision, but my thoughts are with you and

Evan is is my prayers.

Good luck,

Marci & Mollie 5-25-05

bcf dobbs brace 16/7

jennie billhartz wrote:

Hello again everyone.

My son, Evan, was in a DBB/FAB about a month ago and developed a sore bad

enough that he had to go back to casts for several weeks. We met w/ our doc

(Dr. Dobbs) yesterday and he said he thought, although not totally healed, the

sore had healed enough to go ahead and get back into the brace. He asked if I

had a preference and I said I'd like to get the 23/7 brace process started to

avoid any problems with Evan's mobile development when the time comes. Well,

less than 24 hours in the brace, he has developed another red spot just below

the previous sore that looks like it will form into a blister. Plus, we think

the scab from the previous sore is going to fall off at any moment, opening that

sore back up. I'm not sure what to do at this point. Dr. Dobbs nurse said that

if the scab falls off and the sore is open, it will take longer to heal. And,

if he's developing another one and it opens up, that will add even more time in

the casts. So, my question is, should I

keep Evan in the brace and see if the sores get worse such that we have to

re-cast? We might not have to re-cast, after all. Or, should I go ahead and

re-cast now in anticipation that these sores aren't going to heal in the brace?

I just don't want the 23/7 schedule to inhibit Evan rolling over, his tummy time

or even getting up on all fours. Has anyone had this kind of problem with sores

and blisters? It's only one foot and I've tried the moleskin pads. My son is

really small (6 months and just 10 lbs; he was the smaller of twins), and I'm

not sure if this is causing some of the problems.

The other option for us at this point is to ask Dr. Dobbs to fit Evan for the

brace, which I understand works fine for smaller babies and usually

doesn't result in the sores, blisters, etc. I'm not sure I'm ready to go to

another brace just yet, but if bracing is better than continuing with the casts

in keeping my son's development moving forward, then I will ask for that brace.

Jennie

Jennie

---------------------------------

Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo!

Messenger with Voice.

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