Re: Re: Starband consult and ped visit (sorry...long)

July 17, 2010

What I'd really like to know is from the STARband plagio wearers who had good fitting bands (not the poor fitting ones because that would obviously be different). How often did they shave anything at the appointments? I know that it doesn't happen often for brachy, but I don't really know for plagio.My coworker's son's band wasn't shaved at every appointment and he went every two weeks. And, he was only 5.5 months when banded and had great and quick results (from 15 mm to 3 mm in 9 weeks of full time wear and 2 weeks of part time wear). I kind of think that the two weeks is just to keep an eye on things in case any shaving needs to happen. It seems to me that if the band is made well, this can happen without it being too loose in the important places. But, again, my experience is

with a brachy band, so I may be wrong.

From: christineashok <christineashok@...>Plagiocephaly Sent: Fri, July 16, 2010 11:07:44 PMSubject: Re: Starband consult and ped visit (sorry...long)

Hi,I am still quite surprised by the monthly appointment times. I can see they may not want to do weekly, but not sure why they need to wait so long. the band is most effective when it is holding properly at the holding points. If you leave too much "extra room" it it likely to slip around a lot. I guess I would push them to leave less room between adjustments and see her more. Basically the band is adjusted by carving out the foam and leaving more room when the band is getting tight. However to maximize the effect you don't want to make it too big to start because they you have less control over where the growth will go. My daughter had brachy (flat in back) and her sides held the band in place. We wanted her growth directed toward the back, so there was lots of room there. However there was less room in the forehead area to help keep it from slipping. She did grow in the forehead area too, so that is where most of our adjustments were.

Plus your ped is a jerk. I can send him/her hundreds or pictures of my daughter happily wearing her band. She was never miserable although in our case she didn't sleep well - but she has never been a great sleeper either before or after the band. Actually the only way she ever slept well was right next to me.I would be concerned about the fast growth, but not overly. Just make sure you have it checked out. My dauther's head was 50th percentile at birth, and went to 95%+ by age 6 mo. There was some concern for hydrocephalus but not too much because she showed no signs of delays (for the most part she was ahead). Her sutures where still open, so they ruled it out by doing an ultrasound of her head. Basically her head caught up with her body, and since 6 mo old her height, weight and head have all been about 95th percentile. You can do a ctscan which is the best way to see, but there is some radiation with a ctscan, so my ped preferred to

go with the ultrasound.Keep us posted on your journey.-christinesydney, 4.5 yrs, starband grad>> Well...it's been an interesting morning. Midwest ortho (starband provider) came out and did a home eval today. Explained everything thoroughly and was very much helpful. Took some measurements (no scan today) and said her cranial vault asymmetry is 15mm. They consider anything over 10mm to be severe and recommend helmet treatment. The good thing is that she surprisingly doesn't have much facial aysmmetry. So...at the end of the appt we had decided we wanted to go with them. They will do a 5 day post getting the cap...then a week after that...then 2 weeks after that and if fit is good they will not see us

for a month unless we start to notice some redness or feel she's had a huge growth spurt. I asked him the reason since docband wants to see her weekly. He said they used to do weekly for the first 6 weeks but found it wasn't necessary. He said he owuld gladly see us more often just to check if that made us more comfortable. > > Then the ped visit...she is adamantly against helmets. She thinks they are cruel...said she's never seen a child that isn't miserable in one. I stood my ground and told her we'd researched it and decided this is the way we want to go if she qualifies (and that we have even researched our insurance and at what point they will cover...and our measurements are in the covered category). We told her what the orthotist said at Midwest. She replied that we would need to go through the craniofacial center at Riley. I agree...they will tell us for sure it's just plagio and not cranio. She was a bit alarmed that my daughter's

head circumference jumped from the 50th percentile to the 80th percentile in the last 2 months (while weight and height percentile remained the same). She said it could be due to the way it is growing because of the flat spot. She even had the nerve at the start of the appt to say she probably wouldn't have given us the referral to Riley had she seen her (our pt called her office and asked for the referral). Ugh! So...Riley appt on Monday and praying those docs are pro helmet (and praying most of all that it just the plagio). > > Sorry for being so windy...I just realize everyone's frustration with the process now...>

July 17, 2010

We had a STARband for plagio and it was shaved at every appointment which was every three weeks. My son started the band at 6.5 months and wore the band for 4.5 months. MollyOn Jul 17, 2010, at 1:53 PM, <watsonmel3@...> wrote:

What I'd really like to know is from the STARband plagio wearers who had good fitting bands (not the poor fitting ones because that would obviously be different). How often did they shave anything at the appointments? I know that it doesn't happen often for brachy, but I don't really know for plagio.My coworker's son's band wasn't shaved at every appointment and he went every two weeks. And, he was only 5.5 months when banded and had great and quick results (from 15 mm to 3 mm in 9 weeks of full time wear and 2 weeks of part time wear). I kind of think that the two weeks is just to keep an eye on things in case any shaving needs to happen. It seems to me that if the band is made well, this can happen without it being too loose in the important places. But, again, my experience is

with a brachy band, so I may be wrong.

From: christineashok <christineashok@...>Plagiocephaly Sent: Fri, July 16, 2010 11:07:44 PMSubject: Re: Starband consult and ped visit (sorry...long)

Hi,I am still quite surprised by the monthly appointment times. I can see they may not want to do weekly, but not sure why they need to wait so long. the band is most effective when it is holding properly at the holding points. If you leave too much "extra room" it it likely to slip around a lot. I guess I would push them to leave less room between adjustments and see her more. Basically the band is adjusted by carving out the foam and leaving more room when the band is getting tight. However to maximize the effect you don't want to make it too big to start because they you have less control over where the growth will go. My daughter had brachy (flat in back) and her sides held the band in place. We wanted her growth directed toward the back, so there was lots of room there. However there was less room in the forehead area to help keep it from slipping. She did grow in the forehead area too, so that is where most of our adjustments were.

Plus your ped is a jerk. I can send him/her hundreds or pictures of my daughter happily wearing her band. She was never miserable although in our case she didn't sleep well - but she has never been a great sleeper either before or after the band. Actually the only way she ever slept well was right next to me.I would be concerned about the fast growth, but not overly. Just make sure you have it checked out. My dauther's head was 50th percentile at birth, and went to 95%+ by age 6 mo. There was some concern for hydrocephalus but not too much because she showed no signs of delays (for the most part she was ahead). Her sutures where still open, so they ruled it out by doing an ultrasound of her head. Basically her head caught up with her body, and since 6 mo old her height, weight and head have all been about 95th percentile. You can do a ctscan which is the best way to see, but there is some radiation with a ctscan, so my ped preferred to

go with the ultrasound.Keep us posted on your journey.-christinesydney, 4.5 yrs, starband grad>> Well...it's been an interesting morning. Midwest ortho (starband provider) came out and did a home eval today. Explained everything thoroughly and was very much helpful. Took some measurements (no scan today) and said her cranial vault asymmetry is 15mm. They consider anything over 10mm to be severe and recommend helmet treatment. The good thing is that she surprisingly doesn't have much facial aysmmetry. So...at the end of the appt we had decided we wanted to go with them. They will do a 5 day post getting the cap...then a week after that...then 2 weeks after that and if fit is good they will not see us

for a month unless we start to notice some redness or feel she's had a huge growth spurt. I asked him the reason since docband wants to see her weekly. He said they used to do weekly for the first 6 weeks but found it wasn't necessary. He said he owuld gladly see us more often just to check if that made us more comfortable. > > Then the ped visit...she is adamantly against helmets. She thinks they are cruel...said she's never seen a child that isn't miserable in one. I stood my ground and told her we'd researched it and decided this is the way we want to go if she qualifies (and that we have even researched our insurance and at what point they will cover...and our measurements are in the covered category). We told her what the orthotist said at Midwest. She replied that we would need to go through the craniofacial center at Riley. I agree...they will tell us for sure it's just plagio and not cranio. She was a bit alarmed that my daughter's

head circumference jumped from the 50th percentile to the 80th percentile in the last 2 months (while weight and height percentile remained the same). She said it could be due to the way it is growing because of the flat spot. She even had the nerve at the start of the appt to say she probably wouldn't have given us the referral to Riley had she seen her (our pt called her office and asked for the referral). Ugh! So...Riley appt on Monday and praying those docs are pro helmet (and praying most of all that it just the plagio). > > Sorry for being so windy...I just realize everyone's frustration with the process now...>

July 20, 2010

That's crazy. My son is 13mm and 89% and we banded at 6 1/2 months (we waited, wish I'm wishing we hadn't now that he has to go through this aweful summer heat) and have seen good improvement in just 4 weeks with the Hanger band. He's already down to 7mm and 88%. 5mm and under is "normal" according to Hanger and StarBand, so at 15mm he definitely needs to get banded.

I say find an new pediatrican who will go with your wishes!!! Ask around, there has to be a better one out there. Or maybe just make appts with a couple until you find one that believes in the helmet. What else do you have to loose at this point? At least you still have plenty of time though since your daughter is still very young. Good luck!

From: trevorandamanda <trevorandamanda@...>Subject: Re: Starband consult and ped visit (sorry...long)Plagiocephaly Date: Monday, July 19, 2010, 7:35 PM

Thanks for all your responses. The visit did not go well today either. He wants us to wait 3 months. I told him how we felt...the insurance...her asymmetry...and he said 'i've seen worse'. So, I was SO frustrated when I left I called the medical director (who I know has written a script for someone with less asymmetry than my Kate at the same age). I spoke with his nurse practitioner and we went over all the stuff again and I told her I would like a second opinion...that we would really like to start helmet therapy now and not wait any longer. So...she was going to have the medical director review her chart and get back with us tomorrow. Praying he gives us a second chance. I did get the official email from Midwest Orthotics and she is 15 mm cranial vault asymmetry and 92% CI. Thanks for all your support...it was so frustrating walking out of the clinic today feeling like we are back at square one. ~Mommy to Kate, 4

months > > >> > > Well...it's been an interesting morning. Midwest ortho (starband provider) came > > >out and did a home eval today.

Explained everything thoroughly and was very much > > >helpful. Took some measurements (no scan today) and said her cranial vault > > >asymmetry is 15mm. They consider anything over 10mm to be severe and recommend > > >helmet treatment. The good thing is that she surprisingly doesn't have much > > >facial aysmmetry. So...at the end of the appt we had decided we wanted to go > > >with them. They will do a 5 day post getting the cap...then a week after > > >that...then 2 weeks after that and if fit is good they will not see us for a > > >month unless we start to notice some redness or feel she's had a huge growth > > >spurt. I asked him the reason since docband wants to see her weekly. He said > > >they used to do weekly for the first 6 weeks but found it wasn't necessary. He > > >said he owuld gladly see us more often just to

check if that made us more > > >comfortable. > > >> > > > > > Then the ped visit...she is adamantly against helmets. She thinks they are > > >cruel...said she's never seen a child that isn't miserable in one. I stood my > > >ground and told her we'd researched it and decided this is the way we want to go > > >if she qualifies (and that we have even researched our insurance and at what > > >point they will cover...and our measurements are in the covered category). We > > >told her what the orthotist said at Midwest. She replied that we would need to > > >go through the craniofacial center at Riley. I agree...they will tell us for > > >sure it's just plagio and not cranio. She was a bit alarmed that my daughter's > > >head circumference jumped from the 50th percentile to the 80th percentile in the

> > >last 2 months (while weight and height percentile remained the same). She said > > >it could be due to the way it is growing because of the flat spot. She even had > > >the nerve at the start of the appt to say she probably wouldn't have given us > > >the referral to Riley had she seen her (our pt called her office and asked for > > >the referral). Ugh! So...Riley appt on Monday and praying those docs are pro > > >helmet (and praying most of all that it just the plagio). > > >> > > > > > Sorry for being so windy...I just realize everyone's frustration with the > > >process now...> > >> >>

July 20, 2010

That is crazy. My doctor is more on the pro-active side and at our 3 month visit he told me that if my son's head wasn't showing improvement with the repositioning at 4 months that we needed to go to see the doc band people for a consultation. The sooner you get the band on the better chance you have at improvement. Why wouldn't your pediatrician recognize this?

My best advice to you would be to find a different ped who takes a more pro active approach rather than let's wait and see. You are your child's biggest advocate right now. Just remember that! Good luck!!

Christy n

410.984.2962

From: Carr <julieccarr@...>Plagiocephaly Sent: Tue, July 20, 2010 9:15:48 AMSubject: Re: Re: Starband consult and ped visit (sorry...long)

That's crazy. My son is 13mm and 89% and we banded at 6 1/2 months (we waited, wish I'm wishing we hadn't now that he has to go through this aweful summer heat) and have seen good improvement in just 4 weeks with the Hanger band. He's already down to 7mm and 88%. 5mm and under is "normal" according to Hanger and StarBand, so at 15mm he definitely needs to get banded.

I say find an new pediatrican who will go with your wishes!!! Ask around, there has to be a better one out there. Or maybe just make appts with a couple until you find one that believes in the helmet. What else do you have to loose at this point? At least you still have plenty of time though since your daughter is still very young. Good luck!

From: trevorandamanda <trevorandamanda@ gmail.com>Subject: Re: Starband consult and ped visit (sorry...long)PlagiocephalyDate: Monday, July 19, 2010, 7:35 PM

Thanks for all your responses. The visit did not go well today either. He wants us to wait 3 months. I told him how we felt...the insurance... her asymmetry... and he said 'i've seen worse'. So, I was SO frustrated when I left I called the medical director (who I know has written a script for someone with less asymmetry than my Kate at the same age). I spoke with his nurse practitioner and we went over all the stuff again and I told her I would like a second opinion...that we would really like to start helmet therapy now and not wait any longer. So...she was going to have the medical director review her chart and get back with us tomorrow. Praying he gives us a second chance. I did get the official email from Midwest Orthotics and she is 15 mm cranial vault asymmetry and 92% CI. Thanks for all your support...it was so frustrating walking out of the clinic today feeling like we are back at square one. ~Mommy to Kate,

4 months > > >> > > Well...it's been an interesting morning. Midwest ortho (starband provider) came > > >out and did a home eval today. Explained everything thoroughly and was very much > > >helpful. Took some measurements (no scan today) and said her cranial vault > >

>asymmetry is 15mm. They consider anything over 10mm to be severe and recommend > > >helmet treatment. The good thing is that she surprisingly doesn't have much > > >facial aysmmetry. So...at the end of the appt we had decided we wanted to go > > >with them. They will do a 5 day post getting the cap...then a week after > > >that...then 2 weeks after that and if fit is good they will not see us for a > > >month unless we start to notice some redness or feel she's had a huge growth > > >spurt. I asked him the reason since docband wants to see her weekly. He said > > >they used to do weekly for the first 6 weeks but found it wasn't necessary. He > > >said he owuld gladly see us more often just to check if that made us more > > >comfortable. > > >> > > > > > Then the ped visit...she is adamantly

against helmets. She thinks they are > > >cruel...said she's never seen a child that isn't miserable in one. I stood my > > >ground and told her we'd researched it and decided this is the way we want to go > > >if she qualifies (and that we have even researched our insurance and at what > > >point they will cover...and our measurements are in the covered category). We > > >told her what the orthotist said at Midwest. She replied that we would need to > > >go through the craniofacial center at Riley. I agree...they will tell us for > > >sure it's just plagio and not cranio. She was a bit alarmed that my daughter's > > >head circumference jumped from the 50th percentile to the 80th percentile in the > > >last 2 months (while weight and height percentile remained the same). She said > > >it could be due to the way it is growing

because of the flat spot. She even had > > >the nerve at the start of the appt to say she probably wouldn't have given us > > >the referral to Riley had she seen her (our pt called her office and asked for > > >the referral). Ugh! So...Riley appt on Monday and praying those docs are pro > > >helmet (and praying most of all that it just the plagio). > > >> > > > > > Sorry for being so windy...I just realize everyone's frustration with the > > >process now...> > >> >>

July 20, 2010

I agree with everyone else. 15 mm is significant enough that it isn't going to completely resolve with repositioning - no matter how good you are at it. What reason did he give you for wanting to wait?

From: trevorandamanda <trevorandamanda@...>Plagiocephaly Sent: Mon, July 19, 2010 7:35:44 PMSubject: Re: Starband consult and ped visit (sorry...long)

Thanks for all your responses. The visit did not go well today either. He wants us to wait 3 months. I told him how we felt...the insurance...her asymmetry...and he said 'i've seen worse'. So, I was SO frustrated when I left I called the medical director (who I know has written a script for someone with less asymmetry than my Kate at the same age). I spoke with his nurse practitioner and we went over all the stuff again and I told her I would like a second opinion...that we would really like to start helmet therapy now and not wait any longer. So...she was going to have the medical director review her chart and get back with us tomorrow. Praying he gives us a second chance. I did get the official email from Midwest Orthotics and she is 15 mm cranial vault asymmetry and 92% CI. Thanks for all your support...it was so frustrating walking out of the clinic today feeling like we are back at square one. ~Mommy to Kate, 4

months > > >> > > Well...it's been an interesting morning. Midwest ortho (starband provider) came > > >out and did a home eval today. Explained everything thoroughly and was very much > > >helpful. Took some measurements (no scan today) and said her

cranial vault > > >asymmetry is 15mm. They consider anything over 10mm to be severe and recommend > > >helmet treatment. The good thing is that she surprisingly doesn't have much > > >facial aysmmetry. So...at the end of the appt we had decided we wanted to go > > >with them. They will do a 5 day post getting the cap...then a week after > > >that...then 2 weeks after that and if fit is good they will not see us for a > > >month unless we start to notice some redness or feel she's had a huge growth > > >spurt. I asked him the reason since docband wants to see her weekly. He said > > >they used to do weekly for the first 6 weeks but found it wasn't necessary. He > > >said he owuld gladly see us more often just to check if that made us more > > >comfortable. > > >> > > > > > Then the ped

visit...she is adamantly against helmets. She thinks they are > > >cruel...said she's never seen a child that isn't miserable in one. I stood my > > >ground and told her we'd researched it and decided this is the way we want to go > > >if she qualifies (and that we have even researched our insurance and at what > > >point they will cover...and our measurements are in the covered category). We > > >told her what the orthotist said at Midwest. She replied that we would need to > > >go through the craniofacial center at Riley. I agree...they will tell us for > > >sure it's just plagio and not cranio. She was a bit alarmed that my daughter's > > >head circumference jumped from the 50th percentile to the 80th percentile in the > > >last 2 months (while weight and height percentile remained the same). She said > > >it could be due

to the way it is growing because of the flat spot. She even had > > >the nerve at the start of the appt to say she probably wouldn't have given us > > >the referral to Riley had she seen her (our pt called her office and asked for > > >the referral). Ugh! So...Riley appt on Monday and praying those docs are pro > > >helmet (and praying most of all that it just the plagio). > > >> > > > > > Sorry for being so windy...I just realize everyone's frustration with the > > >process now...> > >> >>

July 21, 2010

That is the same line that many of us get from our peds. Unfortunately, some of us don't know any better at the time and just listen to them. I do believe that my ped would have sent me to a specialist if I had pushed the issue. We discussed her head at 4 months and 6 months and each time she told me it would round out if I kept her off her back. At 9 months, she felt her head, but didn't even mention the flat spot because we were concerned with some other issues at the time (unresponsive reflux and a failure to thrive diagnosis). Unfortunately, I didn't know anything about plagio or brachy and just believed her during the first two appointments. After that, well, I didn't know that there was a time limit to fixing her head so I figured that the other concerns were more important.

It sounds like a good plan to look into that other place OR even look into seeing a different ped. The only reason that we stuck with our ped is that she has been very responsive when we push her on things and is also responsive with things like phone calls, etc. She also did a great job managing my daughter's other conditions. And, she is good about consulting with other docs and referring to specialists when needed.

Good luck on figuring all of this out. It sounds like it may take a little time and if it comes to having to wait 3 months, at least you'll be able to get a script then. It's better than a flat out denial.

From: trevorandamanda <trevorandamanda@...>Plagiocephaly Sent: Tue, July 20, 2010 7:47:26 PMSubject: Re: Starband consult and ped visit (sorry...long)

He said it would round out as she starts to sit up and roll over and such. When I told him the orthotist said 15mm was in the severe category and I knew that level was well over what our insurance covered...he said that's what orthotists do and they are trying to 'sell' you a helmet. He was a jerk...but that seems to be the line I'm getting. There is another children's hospital in Indy - Peyton Manning's Children hospital. I'm going to look into them and see if they have a craniofacial department. Maybe try them if i don't hear good news back from the medical director at riley... I'm just at a lost...> > > >> > > > Well...it's been an interesting morning. Midwest ortho (starband provider) > >came > >> > > >out and did a home eval today. Explained everything thoroughly and was very > >much > >> > > >helpful. Took some measurements (no scan today) and said her cranial vault > > > >asymmetry is

15mm. They consider anything over 10mm to be severe and > >recommend > >> > > >helmet treatment. The good thing is that she surprisingly doesn't have much > > > > >facial aysmmetry. So...at the end of the appt we had decided we wanted to go > >> > > >with them. They will do a 5 day post getting the cap...then a week after > > > >that...then 2 weeks after that and if fit is good they will not see us for a > >> > > >month unless we start to notice some redness or feel she's had a huge growth > >> > > >spurt. I asked him the reason since docband wants to see her weekly. He said > >> > > >they used to do weekly for the first 6 weeks but found it wasn't necessary. > >He > >> > > >said he owuld gladly see us more often just to check if that made us

more > > > >comfortable. > > > >> > > > > > > > Then the ped visit...she is adamantly against helmets. She thinks they are > > > > >cruel...said she's never seen a child that isn't miserable in one. I stood > >my > >> > > >ground and told her we'd researched it and decided this is the way we want > >to go > >> > > >if she qualifies (and that we have even researched our insurance and at what > >> > > >point they will cover...and our measurements are in the covered category). > >We > >> > > >told her what the orthotist said at Midwest. She replied that we would need > >to > >> > > >go through the craniofacial center at Riley. I agree...they will tell us for > >> > > >sure it's

just plagio and not cranio. She was a bit alarmed that my > >daughter's > >> > > >head circumference jumped from the 50th percentile to the 80th percentile in > >the > >> > > >last 2 months (while weight and height percentile remained the same). She > >said > >> > > >it could be due to the way it is growing because of the flat spot. She even > >had > >> > > >the nerve at the start of the appt to say she probably wouldn't have given > >us > >> > > >the referral to Riley had she seen her (our pt called her office and asked > >for > >> > > >the referral). Ugh! So...Riley appt on Monday and praying those docs are pro > >> > > >helmet (and praying most of all that it just the plagio). > > > >> >

> > > > > > Sorry for being so windy...I just realize everyone's frustration with the > > > >process now...> > > >> > >> >>

July 21, 2010

,15mm is indeed severe and definitely qualifies for banding. You know what is best for your child and sometimes you have to keep pushing to get it, despite hitting roadblocks by physicians who are either uninformed or think they know it all and have nothing else to learn. Keep looking until you get the help your child needs. There are many parents on this board who know exactly how you feel because they've been through the same thing.Good luck and keep us posted.-Amy From: trevorandamanda <trevorandamanda@...>Plagiocephaly Sent: Tue, July 20, 2010 7:47:26 PMSubject: Re: Starband consult and ped visit (sorry...long)

He said it would round out as she starts to sit up and roll over and such. When I told him the orthotist said 15mm was in the severe category and I knew that level was well over what our insurance covered...he said that's what orthotists do and they are trying to 'sell' you a helmet. He was a jerk...but that seems to be the line I'm getting.

There is another children's hospital in Indy - Peyton Manning's Children hospital. I'm going to look into them and see if they have a craniofacial department. Maybe try them if i don't hear good news back from the medical director at riley... I'm just at a lost...

> > > >

> > > > Well...it's been an interesting morning. Midwest ortho (starband provider)

> >came

> >

> > > >out and did a home eval today. Explained everything thoroughly and was very

> >much

> >

> > > >helpful. Took some measurements (no scan today) and said her cranial vault

> > > >asymmetry is 15mm. They consider anything over 10mm to be severe and

> >recommend

> >

> > > >helmet treatment. The good thing is that she surprisingly doesn't have much

>

> > > >facial aysmmetry. So...at the end of the appt we had decided we wanted to go

> >

> > > >with them. They will do a 5 day post getting the cap...then a week after

> > > >that...then 2 weeks after that and if fit is good they will not see us for a

> >

> > > >month unless we start to notice some redness or feel she's had a huge growth

> >

> > > >spurt. I asked him the reason since docband wants to see her weekly. He said

> >

> > > >they used to do weekly for the first 6 weeks but found it wasn't necessary.

> >He

> >

> > > >said he owuld gladly see us more often just to check if that made us more

> > > >comfortable.

> > > >

> > > > Then the ped visit...she is adamantly against helmets. She thinks they are

>

> > > >cruel...said she's never seen a child that isn't miserable in one. I stood

> >my

> >

> > > >ground and told her we'd researched it and decided this is the way we want

> >to go

> >

> > > >if she qualifies (and that we have even researched our insurance and at what

> >

> > > >point they will cover...and our measurements are in the covered category).

> >We

> >

> > > >told her what the orthotist said at Midwest. She replied that we would need

> >to

> >

> > > >go through the craniofacial center at Riley. I agree...they will tell us for

> >

> > > >sure it's just plagio and not cranio. She was a bit alarmed that my

> >daughter's

> >

> > > >head circumference jumped from the 50th percentile to the 80th percentile in

> >the

> >

> > > >last 2 months (while weight and height percentile remained the same). She

> >said

> >

> > > >it could be due to the way it is growing because of the flat spot. She even

> >had

> >

> > > >the nerve at the start of the appt to say she probably wouldn't have given

> >us

> >

> > > >the referral to Riley had she seen her (our pt called her office and asked

> >for

> >

> > > >the referral). Ugh! So...Riley appt on Monday and praying those docs are pro

> >

> > > >helmet (and praying most of all that it just the plagio).

> > > >

> > > > Sorry for being so windy...I just realize everyone's frustration with the

> > > >process now...

> > > >

> > >

> >

>

July 23, 2010

,

Didn't you hear the same thing from CT - that you should wait 3 months?

Glad to hear about the improvement with Hanger since I know you were a little nervous about not getting a doc band. I'm just glad that it is working out.