Re: lingering Torticollis

[Guest guest]

My son's Totricollis is just about gone however he still tends to tilt his head

also. The PT is working on strengthening the muscles on both sides of the neck

and also suggested a vision exam. She said that sometimes the eye muscles(not

necessarily the vision) get used to seeing the world with the tilt and the baby

might be holding his/her head that way so that it's easier to see, and or out of

habit. Anyway my appointment with the Pediatric Opthamalgist is in September.

Hopeing not to find issues with the eyes.

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> My daughter has had a major preference for turning her head to the right and

tilting to the left pretty much since birth. Of course, the turning to the

right caused Plagiocephaly on that side of her head. After her 6 month

appointment we were referred to a physical therapist which we've been going to

see ever since. About a month after starting PT, she got the band, which she

just got removed last week. So we've been going to PT for about 5 months now.

She has gotten MUCH better about turning her head to the left. She is pretty

much over that part. But the tilting has her therapist stumped. She was

tilting for the longest time to the left. Then she started tilting to the

right. The therapist said sometimes that can happen. But then the next time

she was tilting to the left and it's pretty much been back and forth for about

two months now with some days where she holds it pretty much straight. The

therapist said she's never seen it swap back and forth like that. She thought

maybe it was due to weak core muscles because she was slow to crawl and mostly

army crawls, but today she said she was transitioning and crawling really well,

so she doesn't think it's the core muscles anymore. Last PT she was tilting to

the right and now today it's to the left. She says after 11 years, my daughter

has finally stumped her. The last couple of appointments the therapist said

that her neck muscles weren't tense and she didn't have the red crease on her

neck, either. She's wondering if maybe she has a vision problem. Which

watching her play and pick up food and things like that, I've never thought to

myself that she was having problems seeing. So maybe she has problems seeing

further away? Anyway, I was wondering if anyone else has had a similar problem

and could shed some light on this. We're doing the neck stretches at home about

5-7 times a day. Thanks.

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[Guest guest]

I would see a pediatric opthamologist about ocular tort, and I would also talk

to the PT about benign paroxysmal torticollis to see if that should be ruled out

as well (by a ped. neurologist) - it's rare, but it's caused by a neurological

condition and is characterized by a tilt to one side for a short period, a brief

period of being mid-line, then tilting to the other side.

Good luck,

Sharyn

Lexi DOC Band graduate 02/2010

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> My daughter has had a major preference for turning her head to the right and

tilting to the left pretty much since birth. Of course, the turning to the

right caused Plagiocephaly on that side of her head. After her 6 month

appointment we were referred to a physical therapist which we've been going to

see ever since. About a month after starting PT, she got the band, which she

just got removed last week. So we've been going to PT for about 5 months now.

She has gotten MUCH better about turning her head to the left. She is pretty

much over that part. But the tilting has her therapist stumped. She was

tilting for the longest time to the left. Then she started tilting to the

right. The therapist said sometimes that can happen. But then the next time

she was tilting to the left and it's pretty much been back and forth for about

two months now with some days where she holds it pretty much straight. The

therapist said she's never seen it swap back and forth like that. She thought

maybe it was due to weak core muscles because she was slow to crawl and mostly

army crawls, but today she said she was transitioning and crawling really well,

so she doesn't think it's the core muscles anymore. Last PT she was tilting to

the right and now today it's to the left. She says after 11 years, my daughter

has finally stumped her. The last couple of appointments the therapist said

that her neck muscles weren't tense and she didn't have the red crease on her

neck, either. She's wondering if maybe she has a vision problem. Which

watching her play and pick up food and things like that, I've never thought to

myself that she was having problems seeing. So maybe she has problems seeing

further away? Anyway, I was wondering if anyone else has had a similar problem

and could shed some light on this. We're doing the neck stretches at home about

5-7 times a day. Thanks.

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