Re: 2 Small girls, one RSS, one ???? too early to be concerned???

[Guest guest]

I forgot to mention my first 2 boys were typical pregnancies born at

7 11 and 7 14 and were both 12 lbs by 2 mos.

> Hi. I am posting regarding my 2.5 mos old daughter Summer. I have

> a 20 mos old RSS daughter Autumn. Summer's pregnancy went exactly

> like Autumn's yet this time her IUGR was caught because I was on

the

> doctors case. She was born 4 lbs 13 oz and 17.5 inches full term

37

> weeks after induction. She has had absolutly no catch up growth or

> anything so far. She was in the hospital at 4 days old for a week

> for reflux and tracheal laryngo malacia which caused her to desat

> during feeds adn had a hard time coordinating breathing and feeding

> along with all of those issues, she still has trouble but is

> managable. In the hospital a geneticist (not Autumn's) looked at

her

> and said would like to follow her to see how she does. She has the

> bilateral incurved pinkies, small lower jaw noted by speech

> therapists and doctors (which makes it harder to nurse), her

> pediatrician remarked that her upper palate is pretty high, reflux

> but I don't think she 'looks' RSS like Autumn did (mildly) She is

> tracking the same growth on the charts as Autumn and her ped

compared

> the 2 and they are practically identical. Autumns geneticist said

he

> will see her whenever I am ready, but I have not done anything yet

> because I have been thinking maybe she will show any signs for

catch

> up anything, yet just like Autumn, the only thing that is catching

up

> is her head size, was proportionate IUGR with little head and now

it

> is on the charts but nothing else is. Yet again, I don't think she

> has any triangularity yet, but Autumn's head and forehead became

much

> more pronounced as time went on (was noticalble almost immediatly

and

> kept on growing) but I don't know. Anyone else have 2 kids like

> this? Could I have an RSS and SGA daughter? Why? Is it too soon

to

> tell? I know catch up growth can occur anytime but ususally with

> IUGR they begin to thrive once out unless there is something else

> up. She is not so drastically off the charts but is off of them

just

> like Autumn. Autumn's weight and height continued downward some,

> especially weight as time went on and it looks like Summer is doing

> the same, but again, maybe something will happen tomorrow and

change,

> I don't know. Any insight?

>

> mom to Autumn 20 mos RSS 16 lbs 10 oz (this morn, ahhhh,

> worse than before) 29.25 or 29.5 inches, Summer 2.5 mos, 8 lbs ab

out

> 20.5 inches, Ocean 3yrs, Skye 7 yrs

[Guest guest]

,

I don't know what to say other than it's a good thing you are aware

and monitoring Summer's progress. I do think that there is at least

one other family with the same parents and two RSS children, but for

the life of me, I can't recall who it is. Or where they are.

I know you are going through a lot with Summer and are very concerned.

I'm glad to hear that your ped. and geneticist are supportive and will

help keep an eye on her.

Jodi Z

[Guest guest]

You know the family I think Jodi Z is referring to with the two girls with RSS

had written in to MAGIC and it was published in the RSS section within the last

year. I will look and see if I still have it.

B

anderkat3 wrote:

Hi. I am posting regarding my 2.5 mos old daughter Summer. I have

a 20 mos old RSS daughter Autumn. Summer's pregnancy went exactly

like Autumn's yet this time her IUGR was caught because I was on the

doctors case. She was born 4 lbs 13 oz and 17.5 inches full term 37

weeks after induction. She has had absolutly no catch up growth or

anything so far. She was in the hospital at 4 days old for a week

for reflux and tracheal laryngo malacia which caused her to desat

during feeds adn had a hard time coordinating breathing and feeding

along with all of those issues, she still has trouble but is

managable. In the hospital a geneticist (not Autumn's) looked at her

and said would like to follow her to see how she does. She has the

bilateral incurved pinkies, small lower jaw noted by speech

therapists and doctors (which makes it harder to nurse), her

pediatrician remarked that her upper palate is pretty high, reflux

but I don't think she 'looks' RSS like Autumn did (mildly) She is

tracking the same growth on the charts as Autumn and her ped compared

the 2 and they are practically identical. Autumns geneticist said he

will see her whenever I am ready, but I have not done anything yet

because I have been thinking maybe she will show any signs for catch

up anything, yet just like Autumn, the only thing that is catching up

is her head size, was proportionate IUGR with little head and now it

is on the charts but nothing else is. Yet again, I don't think she

has any triangularity yet, but Autumn's head and forehead became much

more pronounced as time went on (was noticalble almost immediatly and

kept on growing) but I don't know. Anyone else have 2 kids like

this? Could I have an RSS and SGA daughter? Why? Is it too soon to

tell? I know catch up growth can occur anytime but ususally with

IUGR they begin to thrive once out unless there is something else

up. She is not so drastically off the charts but is off of them just

like Autumn. Autumn's weight and height continued downward some,

especially weight as time went on and it looks like Summer is doing

the same, but again, maybe something will happen tomorrow and change,

I don't know. Any insight?

mom to Autumn 20 mos RSS 16 lbs 10 oz (this morn, ahhhh,

worse than before) 29.25 or 29.5 inches, Summer 2.5 mos, 8 lbs ab out

20.5 inches, Ocean 3yrs, Skye 7 yrs

[Guest guest]

, Your daughters are blessed to have a mother so on top of

things!!! Yes, indeed you could have a daughter with RSS and

another with SGA. Since geneticists don't know yet how RSS comes

about (but believe currently that it could be a combination of

genetics and environmental/uterine), it could make sense that

another sibling might be born SGA, if there are uterine causations.

Studies have shown that mothers of babies born SGA are far more

likely to have another sibling born small for gestational age

(whereas with RSS, the chances are probably no greater than any

other parent).

I think the great thing is that you are on top of things, and know

what to do to take care of your beautiful daughters.

> Hi. I am posting regarding my 2.5 mos old daughter Summer. I

have

> a 20 mos old RSS daughter Autumn. Summer's pregnancy went

exactly

> like Autumn's yet this time her IUGR was caught because I was on

the

> doctors case. She was born 4 lbs 13 oz and 17.5 inches full term

37

> weeks after induction. She has had absolutly no catch up growth

or

> anything so far. She was in the hospital at 4 days old for a week

> for reflux and tracheal laryngo malacia which caused her to desat

> during feeds adn had a hard time coordinating breathing and

feeding

> along with all of those issues, she still has trouble but is

> managable. In the hospital a geneticist (not Autumn's) looked at

her

> and said would like to follow her to see how she does. She has

the

> bilateral incurved pinkies, small lower jaw noted by speech

> therapists and doctors (which makes it harder to nurse), her

> pediatrician remarked that her upper palate is pretty high, reflux

> but I don't think she 'looks' RSS like Autumn did (mildly) She is

> tracking the same growth on the charts as Autumn and her ped

compared

> the 2 and they are practically identical. Autumns geneticist said

he

> will see her whenever I am ready, but I have not done anything yet

> because I have been thinking maybe she will show any signs for

catch

> up anything, yet just like Autumn, the only thing that is catching

up

> is her head size, was proportionate IUGR with little head and now

it

> is on the charts but nothing else is. Yet again, I don't think

she

> has any triangularity yet, but Autumn's head and forehead became

much

> more pronounced as time went on (was noticalble almost immediatly

and

> kept on growing) but I don't know. Anyone else have 2 kids like

> this? Could I have an RSS and SGA daughter? Why? Is it too soon

to

> tell? I know catch up growth can occur anytime but ususally with

> IUGR they begin to thrive once out unless there is something else

> up. She is not so drastically off the charts but is off of them

just

> like Autumn. Autumn's weight and height continued downward some,

> especially weight as time went on and it looks like Summer is

doing

> the same, but again, maybe something will happen tomorrow and

change,

> I don't know. Any insight?

>

> mom to Autumn 20 mos RSS 16 lbs 10 oz (this morn, ahhhh,

> worse than before) 29.25 or 29.5 inches, Summer 2.5 mos, 8 lbs ab

out

> 20.5 inches, Ocean 3yrs, Skye 7 yrs

>

>

>

>

>

[Guest guest]

<<Studies have shown that mothers of babies born SGA are far more

likely to have another sibling born small for gestational age

(whereas with RSS, the chances are probably no greater than any

other parent). >>

I have two sons. Jed is 12 and was IUGR, SGA.. BUT he had catch up growth so

is not considered SGA anymore. Liam is 4 1/2 was IUGR, SGA and is Still SGA

possible RSS....As he has not had any catch up growth...

Mom to Jed (1/22/93)

and Liam (12/12/00)

Orlando Fl

" When you get to your wit's end, you'll find God lives there. "

" Today I will not worry...unless I see animals lining up two by two. "

Family and Breeding Website

[Guest guest]

Thanks

mom to a sick RSS girl Autumn 20 mos now 16 lbs 6 oz and

dropping, Summer 2.5 mos 8 lbs, Ocean 3, Skye 7

> Hi. I am posting regarding my 2.5 mos old daughter Summer. I have

> a 20 mos old RSS daughter Autumn. Summer's pregnancy went exactly

> like Autumn's yet this time her IUGR was caught because I was on

the

> doctors case. She was born 4 lbs 13 oz and 17.5 inches full term

37

> weeks after induction. She has had absolutly no catch up growth or

> anything so far. She was in the hospital at 4 days old for a week

> for reflux and tracheal laryngo malacia which caused her to desat

> during feeds adn had a hard time coordinating breathing and feeding

> along with all of those issues, she still has trouble but is

> managable. In the hospital a geneticist (not Autumn's) looked at

her

> and said would like to follow her to see how she does. She has the

> bilateral incurved pinkies, small lower jaw noted by speech

> therapists and doctors (which makes it harder to nurse), her

> pediatrician remarked that her upper palate is pretty high, reflux

> but I don't think she 'looks' RSS like Autumn did (mildly) She is

> tracking the same growth on the charts as Autumn and her ped

compared

> the 2 and they are practically identical. Autumns geneticist said

he

> will see her whenever I am ready, but I have not done anything yet

> because I have been thinking maybe she will show any signs for

catch

> up anything, yet just like Autumn, the only thing that is catching

up

> is her head size, was proportionate IUGR with little head and now

it

> is on the charts but nothing else is. Yet again, I don't think she

> has any triangularity yet, but Autumn's head and forehead became

much

> more pronounced as time went on (was noticalble almost immediatly

and

> kept on growing) but I don't know. Anyone else have 2 kids like

> this? Could I have an RSS and SGA daughter? Why? Is it too soon

to

> tell? I know catch up growth can occur anytime but ususally with

> IUGR they begin to thrive once out unless there is something else

> up. She is not so drastically off the charts but is off of them

just

> like Autumn. Autumn's weight and height continued downward some,

> especially weight as time went on and it looks like Summer is doing

> the same, but again, maybe something will happen tomorrow and

change,

> I don't know. Any insight?

>

> mom to Autumn 20 mos RSS 16 lbs 10 oz (this morn, ahhhh,

> worse than before) 29.25 or 29.5 inches, Summer 2.5 mos, 8 lbs ab

out

> 20.5 inches, Ocean 3yrs, Skye 7 yrs

>

>

>

>

>

[Guest guest]

Thanks Jodi. I am lucky that my doctors are all on top of things.

With everything that has gone on with Autumn they are especially

careful they are not missing anything with Summer especially with all

that has gone on so far.

mom to a sick RSS girl Autumn 20 mos 16 lbs 6 oz and

dropping, Summer 8 lbs 2.5 mos., Ocean 3, Skye 7

> ,

>

> I don't know what to say other than it's a good thing you are aware

> and monitoring Summer's progress. I do think that there is at least

> one other family with the same parents and two RSS children, but for

> the life of me, I can't recall who it is. Or where they are.

>

> I know you are going through a lot with Summer and are very

concerned.

> I'm glad to hear that your ped. and geneticist are supportive and

will

> help keep an eye on her.

>

> Jodi Z

[Guest guest]

Thanks . I really just am so curious as to why my 2 girls had

IUGR and Autumn has RSS and Summer is growing just like her with

probs but not the 'look' Autumn had and has. My first 2 pregnancies

were normal without any complications. That's interesting about

genetics/environmental. There is only one thing the girls have in

common with uterine conditions and timing at conception that my first

2 did not, I was told it was no problem adn shouldn't cause any IUGR

or anything at all because it is not uncommon, but maybe it triggered

something. I don't want to write it, might be too much information

for those reading! I will always wonder though, but it wouldn't

explain why growth was good until the end neared so who knows,and it

would only maybe explain IUGR. thanks for all the support too.

mom to sick little Autumn RSS 20 mos 16 lbs 6 oz and

dropping, Summer 2.5 mos 8 lbs, Ocean 3, Skye7

> > Hi. I am posting regarding my 2.5 mos old daughter Summer. I

> have

> > a 20 mos old RSS daughter Autumn. Summer's pregnancy went

> exactly

> > like Autumn's yet this time her IUGR was caught because I was on

> the

> > doctors case. She was born 4 lbs 13 oz and 17.5 inches full term

> 37

> > weeks after induction. She has had absolutly no catch up growth

> or

> > anything so far. She was in the hospital at 4 days old for a

week

> > for reflux and tracheal laryngo malacia which caused her to desat

> > during feeds adn had a hard time coordinating breathing and

> feeding

> > along with all of those issues, she still has trouble but is

> > managable. In the hospital a geneticist (not Autumn's) looked at

> her

> > and said would like to follow her to see how she does. She has

> the

> > bilateral incurved pinkies, small lower jaw noted by speech

> > therapists and doctors (which makes it harder to nurse), her

> > pediatrician remarked that her upper palate is pretty high,

reflux

> > but I don't think she 'looks' RSS like Autumn did (mildly) She is

> > tracking the same growth on the charts as Autumn and her ped

> compared

> > the 2 and they are practically identical. Autumns geneticist

said

> he

> > will see her whenever I am ready, but I have not done anything

yet

> > because I have been thinking maybe she will show any signs for

> catch

> > up anything, yet just like Autumn, the only thing that is

catching

> up

> > is her head size, was proportionate IUGR with little head and now

> it

> > is on the charts but nothing else is. Yet again, I don't think

> she

> > has any triangularity yet, but Autumn's head and forehead became

> much

> > more pronounced as time went on (was noticalble almost immediatly

> and

> > kept on growing) but I don't know. Anyone else have 2 kids like

> > this? Could I have an RSS and SGA daughter? Why? Is it too soon

> to

> > tell? I know catch up growth can occur anytime but ususally with

> > IUGR they begin to thrive once out unless there is something else

> > up. She is not so drastically off the charts but is off of them

> just

> > like Autumn. Autumn's weight and height continued downward some,

> > especially weight as time went on and it looks like Summer is

> doing

> > the same, but again, maybe something will happen tomorrow and

> change,

> > I don't know. Any insight?

> >

> > mom to Autumn 20 mos RSS 16 lbs 10 oz (this morn,

ahhhh,

> > worse than before) 29.25 or 29.5 inches, Summer 2.5 mos, 8 lbs ab

> out

> > 20.5 inches, Ocean 3yrs, Skye 7 yrs

> >

> >

> >

> >

> >

[Guest guest]

Hi . Just wondering, when did Jed catch up in growth? I am

very curious with this. Thanks for sharing!

> <<Studies have shown that mothers of babies born SGA are far more

> likely to have another sibling born small for gestational age

> (whereas with RSS, the chances are probably no greater than any

> other parent). >>

>

> I have two sons. Jed is 12 and was IUGR, SGA.. BUT he had catch up

growth so

> is not considered SGA anymore. Liam is 4 1/2 was IUGR, SGA and is

Still SGA

> possible RSS....As he has not had any catch up growth...

>

>

>

>

>

> Mom to Jed (1/22/93)

> and Liam (12/12/00)

> Orlando Fl

>

> " When you get to your wit's end, you'll find God lives there. "

> " Today I will not worry...unless I see animals lining up two by

two. "

>

>

> Family and Breeding Website

>

>

>

[Guest guest]

<<Hi . Just wondering, when did Jed catch up in growth? I am

very curious with this. Thanks for sharing!>>

He caught up right away.. he was 4 lbs 10 1/2 oz at birth he was 36 weeks,

considered full term.... He was 14 lbs by 3 months....

Mom to Jed (1/22/93)

and Liam (12/12/00)

Orlando Fl

" When you get to your wit's end, you'll find God lives there. "

" Today I will not worry...unless I see animals lining up two by two. "

Family and Breeding Website

[Guest guest]

Thanks for the info, that is good catch up growth!

> <<Hi . Just wondering, when did Jed catch up in growth? I am

> very curious with this. Thanks for sharing!>>

>

> He caught up right away.. he was 4 lbs 10 1/2 oz at birth he was 36

weeks,

> considered full term.... He was 14 lbs by 3 months....

>

>

>

>

>

> Mom to Jed (1/22/93)

> and Liam (12/12/00)

> Orlando Fl

>

> " When you get to your wit's end, you'll find God lives there. "

> " Today I will not worry...unless I see animals lining up two by

two. "

>

>

> Family and Breeding Website

>

>

>