Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 I haven't been on here for the past month. We had a death in the family and things have been very hectic. However, I know we have had many conversations about behavior, so I wanted to share our latest story. The past year and a half has been very difficult with Coby. He has obsessions, compulsions, out bursts, language delays, violent fits, autistic traits, hyperactivity, ext… I'm sure you all remember how frustrating it's been for our whole family. We've been fighting doctors to help and finally we have made a HUGE break thru!!!! After going over every medication on the market, Coby's gene and I decided to try Coby on Risperidone. Dr. H suggested it at the convention because it helps with impulse control, obsessions, hyperactivity, and it's an appetite stimulant. I was very scared to give this " anti-psychotic " to my two year old son. Things had gotten so bad that I was not taking my kids outside of the house, because it was too over stimulating to Coby and he would ruin it for the rest of the family. So, we gave in and decided it was time to take a leap of faith and try what the doctors were suggesting. WOW…what an amazing difference it has made!!!! Judith said it best when she said, " I finally have the son that I knew he should have been all along. " He is so loving, compassionate, and helpful. He had spurts of it here and there before, but because he would get stuck on an action and then get frustrated, we didn't get to see it as much. And he's eating like a horse. He NEVER turns down food! 3 key examples: He never shared anything at anytime for any reason. Everything he wanted was his possession and no one was allowed to touch it. Carlee wanted to see something that was actually his and he handed it to her. I didn't have to ask and neither did she. He heard her crying for it so he let her see it. He had carried a football with him like a blankie. It had gotten really bad for about 3 days straight. He would not let go of this ball, not even in his sleep. If he dropped it at night he would wake up crying until he found it. He would bite the end of it and hold it in his mouth while he rode his bike, because he would NOT put it down at any time. After 2 days on the Risperidone he put the football in his high chair for about 6 hrs straight and the next day he never picked it up. Now he still plays with it, but he may act like it's a baby for a bit or then play catch with it, but if Carlee wants to play with him he will let her. (Oh, playing this is the FIRST time he ever played any kind of imaginary play!) He could not sit still to read a single page of a book. He now begs me to read him a book every night and he listens to the whole thing. He even interacts with me and points to pictures in the book and calls them by name. All the doc's that said it was just a discipline problem can eat crow. I have not had to discipline Coby one time. I'm sure that will not last, but I have not changed my routine and things are better. So please, any of you that are at your wits end, hang in there. There is a light at the end of the tunnel. I swore Coby was the worst behaved child on the earth, if he can make this big of a change any of our kids can too! le, mom to: Shye 10, Brock 8, Coby (rss) & Carlee 2 yr old twins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 le, I am sorry for your loss. However, your Coby story is amazing! I remember reading your other posts and thank GOD you found a doctor who listened and treated Coby. Your other kids must be so much happier too. Life sounds like it has taken a great leap for the better - very happy for you! , mom to and Emerence > I haven't been on here for the past month. We had a death in the > family and things have been very hectic. However, I know we have > had many conversations about behavior, so I wanted to share our > latest story. > > The past year and a half has been very difficult with Coby. He has > obsessions, compulsions, out bursts, language delays, violent fits, > autistic traits, hyperactivity, ext… I'm sure you all remember > how frustrating it's been for our whole family. We've been fighting > doctors to help and finally we have made a HUGE break thru!!!! > After going over every medication on the market, Coby's gene and I > decided to try Coby on Risperidone. Dr. H suggested it at the > convention because it helps with impulse control, obsessions, > hyperactivity, and it's an appetite stimulant. I was very scared to > give this " anti-psychotic " to my two year old son. Things had > gotten so bad that I was not taking my kids outside of the house, > because it was too over stimulating to Coby and he would ruin it for > the rest of the family. So, we gave in and decided it was time to > take a leap of faith and try what the doctors were suggesting. > > WOW…what an amazing difference it has made!!!! Judith said it best > when she said, " I finally have the son that I knew he should have > been all along. " He is so loving, compassionate, and helpful. He > had spurts of it here and there before, but because he would get > stuck on an action and then get frustrated, we didn't get to see it > as much. And he's eating like a horse. He NEVER turns down food! > > 3 key examples: > > He never shared anything at anytime for any reason. > Everything he wanted was his possession and no one was allowed to > touch it. Carlee wanted to see something that was actually his and > he handed it to her. I didn't have to ask and neither did she. He > heard her crying for it so he let her see it. > > He had carried a football with him like a blankie. It had > gotten really bad for about 3 days straight. He would not let go of > this ball, not even in his sleep. If he dropped it at night he > would wake up crying until he found it. He would bite the end of it > and hold it in his mouth while he rode his bike, because he would > NOT put it down at any time. After 2 days on the Risperidone he put > the football in his high chair for about 6 hrs straight and the next > day he never picked it up. Now he still plays with it, but he may > act like it's a baby for a bit or then play catch with it, but if > Carlee wants to play with him he will let her. (Oh, playing this is > the FIRST time he ever played any kind of imaginary play!) > > He could not sit still to read a single page of a book. He > now begs me to read him a book every night and he listens to the > whole thing. He even interacts with me and points to pictures in > the book and calls them by name. > > All the doc's that said it was just a discipline problem can eat > crow. I have not had to discipline Coby one time. I'm sure that > will not last, but I have not changed my routine and things are > better. So please, any of you that are at your wits end, hang in > there. There is a light at the end of the tunnel. I swore Coby was > the worst behaved child on the earth, if he can make this big of a > change any of our kids can too! > > le, mom to: > Shye 10, Brock 8, Coby (rss) & Carlee 2 yr old twins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 hi danielle, i am sorry for your family's loss!! i will keep you in my thoughts and prayers!! jodie c Quote Link to comment Share on other sites More sharing options...
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