At Last Stirling's UPD[7] result.

[Guest guest]

After waiting 6 long months and 3 attempts to get the blood tested,

we finally have a result through. It is negative! Not suprising as

according to our letter only 7% of RSS kids test positive anyway!

We also get to see the geneticist on 8 November to discuss the

findings.

It's a great advance for us, as they have twice failed to test the

blood. The second time because they were waiting for the Post Morem

report, however our v nice paediatrician told them to doit anyway in

August.

It's another box ticked, Shar has her ECG tomorrow to make sure she

is ok, so that's another one completed.

It's great to have such positive news for a chance esp as it is his

birthday on Thursday.

We are only waiting for Stirling's Lifegem to come back to us now!(

we are having a blue diamond created from his ashes.)

Cheers

T

(Shar nearly 4 (non RSS), Stirling (13/10/04-6/6/05) RSS)

[Guest guest]

Please keep us posted on the ECG tomorrow.

The diamond idea is beautiful. You are incredibly amazing.

- H

>

> After waiting 6 long months and 3 attempts to get the blood

tested,

> we finally have a result through. It is negative! Not suprising

as

> according to our letter only 7% of RSS kids test positive anyway!

>

> We also get to see the geneticist on 8 November to discuss the

> findings.

>

> It's a great advance for us, as they have twice failed to test the

> blood. The second time because they were waiting for the Post

Morem

> report, however our v nice paediatrician told them to doit anyway

in

> August.

>

> It's another box ticked, Shar has her ECG tomorrow to make sure

she

> is ok, so that's another one completed.

>

> It's great to have such positive news for a chance esp as it is

his

> birthday on Thursday.

>

> We are only waiting for Stirling's Lifegem to come back to us now!

(

> we are having a blue diamond created from his ashes.)

>

> Cheers

> T

> (Shar nearly 4 (non RSS), Stirling (13/10/04-6/6/05) RSS)

>

[Guest guest]

hi julie!!

i am so glad you have some more possible answeres and that you will be

finding out even more soon!! i will cont. to hold your family in my

thoughts and prayers!! you are such a strong person and an inspiration

to me as well as others i am sure. what a beautiful way to remember

your darling little angel. god bless you!! ((HUGS))

jodie c

[Guest guest]

,

How wonderful that the doctor has been supportive of your efforts.

I'm really touched by that. And thank you for keeping us posted. I'm

sure Stirling is in the hearts and thoughts of many of us. He is in

mine.

Jodi Z

[Guest guest]

That was such a wonderful idea!!

You and your family are always in our prayers,

Chrissy

Mom to

Louis 6 Madison 4 RSS Shane 2 1