Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 Welcome, & Sully, We're glad you found us! We hope you'll continue to stick around and give us updates when you're able. Who is Sully's doctor by the way? Any pictures of your little guy to share?! There's a yahoo group specifically for sharing pictures if you want to check it out- it's at http://groups.yahoo.com/group/cfpics you have to fill out the survey and return it to join- it's a moderated group. Best wishes, & (3-16-00, left clubfoot) http://ponseticlubfoot.freeservers.com/ http://members.tripod.com/ponseti_links-ivil > > Hello! What a great group you guys have going on here! I'll probably > lurk more than I post, but its great to know there's support out > there! Let me introduce myself... > My name is , I'm a 24 year old first time mom. We didn't know > about my son's club foot until he was born, the doctor mentioned it on > the exam table and later the next day an orthopedic came in, didn't > explain much and had me call his office to make an apointment. he > showed me some stretches to do and walked out the door. Since he was > so 'ho-hum' about it, I didn't think much until I got home and did > some online 'research'. Well, I found the worlds worst web sites and > spent the next few days crying non-stop, convinced I was going to have > the cripple kid in class. I got myself so wound up that I cancelled > the apointment with that doctor and made another up at Hershey > Children's Hospital which is akin to Hopkins, only a bit closer. The > staff up there were (are) wonderful, first the nurse explained > treatment, then said afterwards he'd be totally normal. Whew - that > made me cry again. > Sully was one week old when he got his first cast and went through 6 > more before his tendon release procedure (which he slept through!) He > was 2 months old when he got his last cast off, and his first real > bath! He wears his booties 23/7 and does not mind them anymore, > though the first two days were really rough. He's 3 and a half months > old now and bashes the walls, crib and my kneecaps with the bar but > rolls over front to back and back to front like its not even there. He > stands and scooters just fine, and by looking at his feet you can't > even tell which is the bad foot anymore. > I'm looking forward to sharing my experiences and reading all of > yours, hoping to hear some success stories and seeing lots of great > pictures! > and Sully > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 wrote: > Who is Sully's doctor by the way? Sully saw Dr VanderHave at Hershey, but she is moving out of state We have the option of Dr Siegel who is Ponseti certified (but has limited bedside manner) or the LNP Betsy Grady for follow up. We'll be seeing Betsy! Quote Link to comment Share on other sites More sharing options...
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