Maddy update Tuesday

[Guest guest]

Today Madison's culturs came back they were positive for Staph. Since the

antibiotic they have been giving her was clearing it up beautifully Dr. H said

she will talkt o the infectious disease docs and see if they will do the port

on Thursday but it's really their call.

They increased the heprine they were putting in the central line becasue the

blood keeps clotting however it's still not helping. They are going to see

about useing something stronger than heprine ( thats a blood thinner).

Dr. H said she wants to get her home by Friday but I'm not holding my breath

becuase everytime I get excited to see an end in site something goes wrong

and we go back to square one.

On a better note when i got home tonight I opened the door and the boys ran

with open arms. I got hugs and kisses all night. Louis was glued to my side.

When I was putting him to bed he was begging me to let him sleep in my bed. I

had almost a perfect home comming. It just feels really wrong to not have

Maddy here too. But soon!!!

keep you posted,

Chrissu

[Guest guest]

Chrissy,

Glad to hear you got to get a break and take care of your other ones

for a bit.

, mom to 5 and Emerence 2.5

> Today Madison's culturs came back they were positive for Staph.

Since the

> antibiotic they have been giving her was clearing it up

beautifully Dr. H said

> she will talkt o the infectious disease docs and see if they will

do the port

> on Thursday but it's really their call.

> They increased the heprine they were putting in the central line

becasue the

> blood keeps clotting however it's still not helping. They are

going to see

> about useing something stronger than heprine ( thats a blood

thinner).

> Dr. H said she wants to get her home by Friday but I'm not holding

my breath

> becuase everytime I get excited to see an end in site something

goes wrong

> and we go back to square one.

> On a better note when i got home tonight I opened the door and the

boys ran

> with open arms. I got hugs and kisses all night. Louis was glued

to my side.

> When I was putting him to bed he was begging me to let him sleep

in my bed. I

> had almost a perfect home comming. It just feels really wrong to

not have

> Maddy here too. But soon!!!

>

> keep you posted,

> Chrissu

>

>

>

[Guest guest]

Hi Chrissy,

I will continue to pray for you and Maddy. Hopefully she will be home on

Friday. Glad your boys were happy to see you. Keep us posted.

mom to Jordan 4 1/2 yr RSS G tube, GH, Tums, Vit D; and 10 weeks

[Guest guest]

Chrissy,

I don't know how you do it! Hope Louis is doing okay in school...

> Hey everyone,

> Maddy is back to normal. Today I noticed a small air bubble in

her line

> as i watched it i realized it never moved so I opened the bag to

find out

> that it was off. So i flushed the line and thank god it wasn't

clotted. I

> changed the batteries and it begane to work. So i called t he home

care nurse and

> told them I needed a new pump cause this one doesn't beep when

there is a

> problem. Then i checked her sugar and it was 207 and she hadn't

even eaten yet

> today. So I'm sure it must have been low and was on the rebound.

Will there

> ever be an easy day??

> Chrissy

>

>

>