Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Hi, I've got a question for you all. A couple of months ago I found out that I have RSS. But now my mom doubts it was being caused by a genetic disorder. Because at my birth I got stuck in the birthcanal with the umbilical cord around my neck. My mom thinks that is the cause of my RSS. I told her it isn't possible, that it's a genetic thing, but she keeps on saying it. Does anyone know something more about it? I hope so. Love, Amy 17 years old From the Netherlands 98 pounds 5 feet 18 (hope I calculated it right) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 HI Amy, I have never heard that before but do not believe it to be true... There is a support group in the Netherlands! Please see their link below but feel free to stay here too and help us parents out! I think you did calculate your height incorrectly too , mom to 5 and Emerence 2.5 22lbs 33 incches http://www.rss-online.nl/ > Hi, > > I've got a question for you all. A couple of months ago I found out > that I have RSS. But now my mom doubts it was being caused by a > genetic disorder. Because at my birth I got stuck in the birthcanal > with the umbilical cord around my neck. My mom thinks that is the > cause of my RSS. I told her it isn't possible, that it's a genetic > thing, but she keeps on saying it. Does anyone know something more > about it? I hope so. > > Love, Amy > 17 years old > From the Netherlands > 98 pounds > 5 feet 18 (hope I calculated it right) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Hi Amy, That happen to my son as well , but was not the reason of RSS. He was small and it was easier for the cord, which was long , to wrap around him. I don't belv this happens very often, but maybe some order members on this site can give their opinions. And yes stay here, It helps parents know what ahead. Thanks, Sheryl wrote: HI Amy, I have never heard that before but do not believe it to be true... There is a support group in the Netherlands! Please see their link below but feel free to stay here too and help us parents out! I think you did calculate your height incorrectly too , mom to 5 and Emerence 2.5 22lbs 33 incches http://www.rss-online.nl/ > Hi, > > I've got a question for you all. A couple of months ago I found out > that I have RSS. But now my mom doubts it was being caused by a > genetic disorder. Because at my birth I got stuck in the birthcanal > with the umbilical cord around my neck. My mom thinks that is the > cause of my RSS. I told her it isn't possible, that it's a genetic > thing, but she keeps on saying it. Does anyone know something more > about it? I hope so. > > Love, Amy > 17 years old > From the Netherlands > 98 pounds > 5 feet 18 (hope I calculated it right) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Dear Amy, go to the following website to get more information about -Silver Syndrome. www.magicfoundation.org/divisions/rss.htm and also www.buradley.com/rss/rssstory.htm I hope you will get all the answers you need. It has got nothing to do with your birth process. Go Girl. Elize South Africa --- amy_dirven wrote: > Hi, > > I've got a question for you all. A couple of months > ago I found out > that I have RSS. But now my mom doubts it was being > caused by a > genetic disorder. Because at my birth I got stuck in > the birthcanal > with the umbilical cord around my neck. My mom > thinks that is the > cause of my RSS. I told her it isn't possible, that > it's a genetic > thing, but she keeps on saying it. Does anyone know > something more > about it? I hope so. > > Love, Amy > 17 years old > From the Netherlands > 98 pounds > 5 feet 18 (hope I calculated it right) > > > > ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Dear , Thanx for your responce. I knew about the Magic Foundation (I found out about RSS over there) but the other one I didn't know. Love, Amy P.S.: When i saw your last name I'd swear you are from the Netherlands! > > > Hi, > > > > I've got a question for you all. A couple of months > > ago I found out > > that I have RSS. But now my mom doubts it was being > > caused by a > > genetic disorder. Because at my birth I got stuck in > > the birthcanal > > with the umbilical cord around my neck. My mom > > thinks that is the > > cause of my RSS. I told her it isn't possible, that > > it's a genetic > > thing, but she keeps on saying it. Does anyone know > > something more > > about it? I hope so. > > > > Love, Amy > > 17 years old > > From the Netherlands > > 98 pounds > > 5 feet 18 (hope I calculated it right) > > > > > > > > > > > > > ____________________________________________________ > Start your day with Yahoo! - make it your home page > http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
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