RE: Re: Seeking encouragement

[Guest guest]

,

There is also a tips and tricks of the DBB document on this site in the files

section. It is very helpful to new parents dealing with the DBB. It is very

important to get there feet/heels all the way down in the shoes. Also making

sure they are super tight! Print out the tips document, I think you will find

it extrememly helpful.

Here is a link to the site if you want to check them out:

http://www.mdorthopaedics.com

Let us know how it goes with the 2nd opinion. Also, one more thing I want to

add is don't assume doctors know what they are doing. 's 1st doctor was

highly recommended by many people. It turned out he didn't know the Poseti

method very well. Thus leading us to a 2nd opinion as well. Even though they

are doctors and claim they know it all, doesn't mean they do. Ask questions and

use your mommy instinct. There are many persons on this site who have had bogus

doctors the first time around and now have found a quality Ponseti doctor. In

fact, we can help you find the best in Florida if you are interested. Offhand I

forget the qualified Ponseti doc in Florida.

HTH.

kelors7682 wrote:

Hi ,

Thanks for your reply. We're in Cocoa, FL. Yeah, I guess I'm not

thrilled about casts in the summer time. It's all ready so hot. Hm,

what is the brace like? I'm not familiar with it. All I

know is I loathe the Denis Brown and will celebrate like never before

when Caleb is forever free from it's grasp. So your daughter had

a second tetonomy too? Well, I like to believe that his doctor knows

what he's doing, and it's no fault of his that Caleb isn't progressing

as quickly as hoped. I don't know. At first, everything looked

beautiful, but as months passed, his heels are still too high. I'm

just anxious in meeting this new doctor in a couple weeks. Thanks so

much for replying! It's so encouraging to know that other parents

have gone through the same exact thing!

---------------------------------

Sneak preview the all-new Yahoo.com. It's not radically different. Just

radically better.

[Guest guest]

Alison

Just to clarify things,

Our consultant met up with Dr Ponseti to discuss Josh’s feet and further

treatment. His advice was “not to cut the tendons, but to lengthen them as

it can weaken the tendons” ……………..so that is what our consultant did ie. on

Dr Ponseti’s advice. Perhaps you want to take up the legitimacy of Josh’s

treatment with Dr Ponseti himself.

_____

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ] On Behalf Of

Sent: 19 June 2006 21:39

To: nosurgery4clubfoot

Subject: Re: Seeking encouragement

Coming in a little late on this discussion but I just wanted to

clarify something...

The tenotomy, which does actually cut the achilles tendon is the final

step in the correction process per the Ponseti method. The open

incision lengthening procedure is a more invasive method of

lengthening the tendon and is not " normally " necessary nor a part of

the Ponseti method. Anytime the foot is opened up and the tendons

surgically altered in this manner it allows for the potential of more

scar tissue than the percutaneous tenotomy. Not saying that what

Josh's doctor did was wrong, just clarifying for those who may be

confused between the two procedures. I am unaware of any studies that

show that a second percutaneous tenotomy will weaken the tendon and I

believe there are several children here who have had one (a second

one) with no ill effects.

> Hi. My name is and my son Caleb is 8 months old who was born

> with bilateral club feet--my gift to him. I too had bilateral club

> feet but I had to go through so many surgeries until I was 7 years

> old. Caleb, is actually seeing the same doctor I had when I was a

> child. I think that's kind of neat. Anyway, when Caleb was 6 days

> old, the Ponsetti treatment began with weeks of castings. He then

> had the tetonomy (not sure how to spell it)the minor surgery of

> lengthening the heel cord. He had casts one more month after that.

> Then at 3 months old he got his first pair of the Denison Brown

> orthopaedic brace shoes. They are such a pain!!! Well, he's had

> those for 5 months now. Wearing them day and night. And his heels

> are still up too high. When he stands up, they look normal. But

> when he's not bearing weight on them, they are up too high. So, his

> doctor says he needs to have a second tetonomy. But since Caleb is

> 8 months old, his doctor can't do it in the office. It has to be

> done at a hospital. And with insurance reasons, blah blah blah, his

> doctor can't so we're meeting a new doctor in July who apparently

> will do the second tetonomy. I'm just so discouraged. I just want

> this all to be over with. Caleb slips out of his shoes 5 times a

> day and wakes up in the morning with at least one off. He was

> sleeping through the night, but not recently. I blame the shoes,

> because with one on and one off, the bar twists his poor foot and he

> wakes up screaming. Sorry for rambling on. I'm just seeking some

> encouragement. I know Caleb will be able to walk and run. I don't

> doubt that. I;m nervous about the second tetonomy and going back

> into casts after he's been out of them for 5 months now. Any

> advice? Thanks

>

> ____________---________-_____-__-__-___-___-_______-____--__

>

[Guest guest]

Just a question since I don't know, could this maybe

depend on the age? I.e. it might be better to cut it

for a small baby since it grows back within days, but

it should be lengthened for an older child?

Cheers,

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

--- Philip Knox wrote:

> Alison

>

>

>

> Just to clarify things,

>

>

>

> Our consultant met up with Dr Ponseti to discuss

> Josh’s feet and further

> treatment. His advice was “not to cut the tendons,

> but to lengthen them as

> it can weaken the tendons” ……………..so that is what

> our consultant did ie. on

> Dr Ponseti’s advice. Perhaps you want to take up the

> legitimacy of Josh’s

> treatment with Dr Ponseti himself.

>

>

>

> _____

>

> From: nosurgery4clubfoot

> [mailto:nosurgery4clubfoot ] On

> Behalf Of

> Sent: 19 June 2006 21:39

> To: nosurgery4clubfoot

> Subject: Re: Seeking

> encouragement

>

>

>

> Coming in a little late on this discussion but I

> just wanted to

> clarify something...

> The tenotomy, which does actually cut the achilles

> tendon is the final

> step in the correction process per the Ponseti

> method. The open

> incision lengthening procedure is a more invasive

> method of

> lengthening the tendon and is not " normally "

> necessary nor a part of

> the Ponseti method. Anytime the foot is opened up

> and the tendons

> surgically altered in this manner it allows for the

> potential of more

> scar tissue than the percutaneous tenotomy. Not

> saying that what

> Josh's doctor did was wrong, just clarifying for

> those who may be

> confused between the two procedures. I am unaware of

> any studies that

> show that a second percutaneous tenotomy will weaken

> the tendon and I

> believe there are several children here who have had

> one (a second

> one) with no ill effects.

>

>

>

>

> > Hi. My name is and my son Caleb is 8 months

> old who was born

> > with bilateral club feet--my gift to him. I too

> had bilateral club

> > feet but I had to go through so many surgeries

> until I was 7 years

> > old. Caleb, is actually seeing the same doctor I

> had when I was a

> > child. I think that's kind of neat. Anyway, when

> Caleb was 6 days

> > old, the Ponsetti treatment began with weeks of

> castings. He then

> > had the tetonomy (not sure how to spell it)the

> minor surgery of

> > lengthening the heel cord. He had casts one more

> month after that.

> > Then at 3 months old he got his first pair of the

> Denison Brown

> > orthopaedic brace shoes. They are such a pain!!!

> Well, he's had

> > those for 5 months now. Wearing them day and

> night. And his heels

> > are still up too high. When he stands up, they

> look normal. But

> > when he's not bearing weight on them, they are up

> too high. So, his

> > doctor says he needs to have a second tetonomy.

> But since Caleb is

> > 8 months old, his doctor can't do it in the

> office. It has to be

> > done at a hospital. And with insurance reasons,

> blah blah blah, his

> > doctor can't so we're meeting a new doctor in July

> who apparently

> > will do the second tetonomy. I'm just so

> discouraged. I just want

> > this all to be over with. Caleb slips out of his

> shoes 5 times a

> > day and wakes up in the morning with at least one

> off. He was

> > sleeping through the night, but not recently. I

> blame the shoes,

> > because with one on and one off, the bar twists

> his poor foot and he

> > wakes up screaming. Sorry for rambling on. I'm

> just seeking some

> > encouragement. I know Caleb will be able to walk

> and run. I don't

> > doubt that. I;m nervous about the second tetonomy

> and going back

> > into casts after he's been out of them for 5

> months now. Any

> > advice? Thanks

> >

> >

>

____________---________-_____-__-__-___-___-_______-____--__

> >

[Guest guest]

Just a question since I don't know, could this maybe

depend on the age? I.e. it might be better to cut it

for a small baby since it grows back within days, but

it should be lengthened for an older child?

Cheers,

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

--- Philip Knox wrote:

> Alison

>

>

>

> Just to clarify things,

>

>

>

> Our consultant met up with Dr Ponseti to discuss

> Josh’s feet and further

> treatment. His advice was “not to cut the tendons,

> but to lengthen them as

> it can weaken the tendons” ……………..so that is what

> our consultant did ie. on

> Dr Ponseti’s advice. Perhaps you want to take up the

> legitimacy of Josh’s

> treatment with Dr Ponseti himself.

>

>

>

> _____

>

> From: nosurgery4clubfoot

> [mailto:nosurgery4clubfoot ] On

> Behalf Of

> Sent: 19 June 2006 21:39

> To: nosurgery4clubfoot

> Subject: Re: Seeking

> encouragement

>

>

>

> Coming in a little late on this discussion but I

> just wanted to

> clarify something...

> The tenotomy, which does actually cut the achilles

> tendon is the final

> step in the correction process per the Ponseti

> method. The open

> incision lengthening procedure is a more invasive

> method of

> lengthening the tendon and is not " normally "

> necessary nor a part of

> the Ponseti method. Anytime the foot is opened up

> and the tendons

> surgically altered in this manner it allows for the

> potential of more

> scar tissue than the percutaneous tenotomy. Not

> saying that what

> Josh's doctor did was wrong, just clarifying for

> those who may be

> confused between the two procedures. I am unaware of

> any studies that

> show that a second percutaneous tenotomy will weaken

> the tendon and I

> believe there are several children here who have had

> one (a second

> one) with no ill effects.

>

>

>

>

> > Hi. My name is and my son Caleb is 8 months

> old who was born

> > with bilateral club feet--my gift to him. I too

> had bilateral club

> > feet but I had to go through so many surgeries

> until I was 7 years

> > old. Caleb, is actually seeing the same doctor I

> had when I was a

> > child. I think that's kind of neat. Anyway, when

> Caleb was 6 days

> > old, the Ponsetti treatment began with weeks of

> castings. He then

> > had the tetonomy (not sure how to spell it)the

> minor surgery of

> > lengthening the heel cord. He had casts one more

> month after that.

> > Then at 3 months old he got his first pair of the

> Denison Brown

> > orthopaedic brace shoes. They are such a pain!!!

> Well, he's had

> > those for 5 months now. Wearing them day and

> night. And his heels

> > are still up too high. When he stands up, they

> look normal. But

> > when he's not bearing weight on them, they are up

> too high. So, his

> > doctor says he needs to have a second tetonomy.

> But since Caleb is

> > 8 months old, his doctor can't do it in the

> office. It has to be

> > done at a hospital. And with insurance reasons,

> blah blah blah, his

> > doctor can't so we're meeting a new doctor in July

> who apparently

> > will do the second tetonomy. I'm just so

> discouraged. I just want

> > this all to be over with. Caleb slips out of his

> shoes 5 times a

> > day and wakes up in the morning with at least one

> off. He was

> > sleeping through the night, but not recently. I

> blame the shoes,

> > because with one on and one off, the bar twists

> his poor foot and he

> > wakes up screaming. Sorry for rambling on. I'm

> just seeking some

> > encouragement. I know Caleb will be able to walk

> and run. I don't

> > doubt that. I;m nervous about the second tetonomy

> and going back

> > into casts after he's been out of them for 5

> months now. Any

> > advice? Thanks

> >

> >

>

____________---________-_____-__-__-___-___-_______-____--__

> >

[Guest guest]

Sorry this came through twice, I'm sure I pressed

'Send' only once...

--- wrote:

> Just a question since I don't know, could this maybe

> depend on the age? I.e. it might be better to cut

> it

> for a small baby since it grows back within days,

> but

> it should be lengthened for an older child?

>

> Cheers,

>

> with (3.5y)

> and Alister (3.5y, right CF, Ponseti method, UK)

>

>

> --- Philip Knox wrote:

>

> > Alison

> >

> >

> >

> > Just to clarify things,

> >

> >

> >

> > Our consultant met up with Dr Ponseti to discuss

> > Josh’s feet and further

> > treatment. His advice was “not to cut the

> tendons,

> > but to lengthen them as

> > it can weaken the tendons” ……………..so that is what

> > our consultant did ie. on

> > Dr Ponseti’s advice. Perhaps you want to take up

> the

> > legitimacy of Josh’s

> > treatment with Dr Ponseti himself.

> >

> >

> >

> > _____

> >

> > From: nosurgery4clubfoot

> > [mailto:nosurgery4clubfoot ] On

> > Behalf Of

> > Sent: 19 June 2006 21:39

> > To: nosurgery4clubfoot

> > Subject: Re: Seeking

> > encouragement

> >

> >

> >

> > Coming in a little late on this discussion but I

> > just wanted to

> > clarify something...

> > The tenotomy, which does actually cut the achilles

> > tendon is the final

> > step in the correction process per the Ponseti

> > method. The open

> > incision lengthening procedure is a more invasive

> > method of

> > lengthening the tendon and is not " normally "

> > necessary nor a part of

> > the Ponseti method. Anytime the foot is opened up

> > and the tendons

> > surgically altered in this manner it allows for

> the

> > potential of more

> > scar tissue than the percutaneous tenotomy. Not

> > saying that what

> > Josh's doctor did was wrong, just clarifying for

> > those who may be

> > confused between the two procedures. I am unaware

> of

> > any studies that

> > show that a second percutaneous tenotomy will

> weaken

> > the tendon and I

> > believe there are several children here who have

> had

> > one (a second

> > one) with no ill effects.

> >

> >

> >

> >

> > > Hi. My name is and my son Caleb is 8

> months

> > old who was born

> > > with bilateral club feet--my gift to him. I too

> > had bilateral club

> > > feet but I had to go through so many surgeries

> > until I was 7 years

> > > old. Caleb, is actually seeing the same doctor I

> > had when I was a

> > > child. I think that's kind of neat. Anyway, when

> > Caleb was 6 days

> > > old, the Ponsetti treatment began with weeks of

> > castings. He then

> > > had the tetonomy (not sure how to spell it)the

> > minor surgery of

> > > lengthening the heel cord. He had casts one more

> > month after that.

> > > Then at 3 months old he got his first pair of

> the

> > Denison Brown

> > > orthopaedic brace shoes. They are such a pain!!!

> > Well, he's had

> > > those for 5 months now. Wearing them day and

> > night. And his heels

> > > are still up too high. When he stands up, they

> > look normal. But

> > > when he's not bearing weight on them, they are

> up

> > too high. So, his

> > > doctor says he needs to have a second tetonomy.

> > But since Caleb is

> > > 8 months old, his doctor can't do it in the

> > office. It has to be

> > > done at a hospital. And with insurance reasons,

> > blah blah blah, his

> > > doctor can't so we're meeting a new doctor in

> July

> > who apparently

> > > will do the second tetonomy. I'm just so

> > discouraged. I just want

> > > this all to be over with. Caleb slips out of his

> > shoes 5 times a

> > > day and wakes up in the morning with at least

> one

> > off. He was

> > > sleeping through the night, but not recently. I

> > blame the shoes,

> > > because with one on and one off, the bar twists

> > his poor foot and he

> > > wakes up screaming. Sorry for rambling on. I'm

> > just seeking some

> > > encouragement. I know Caleb will be able to walk

> > and run. I don't

> > > doubt that. I;m nervous about the second

> tetonomy

> > and going back

> > > into casts after he's been out of them for 5

> > months now. Any

> > > advice? Thanks

> > >

> > >

> >

>

____________---________-_____-__-__-___-___-_______-____--__

> > >