Re: Hypoglycemia and breathing question

[Guest guest]

R,

This is totally a guess on my part, but it would make sense that

Josiah's breathing would become difficult if his blood sugar levels

are low and/or he is ketotic. (Have you checked him for ketones?

They can be present before blood sugar drops. They can cause the

same symptoms you would expect from low blood sugar.) Most kids

lose energy and become lethargic when these levels are off.

Josiah's most vulnerable area is his breathing. If his levels are

too low, I would think that breathing would be one thing to

decline. In other words, an active child who runs around a lot,

talks a lot, is always on the move, will slow down considerably if

bs is low. For Josiah, breathing is the activity that would slow

down. Does this make sense?

No matter what any testing may show, you have demonstrated that when

he is symptomatic once you feed him he improves. You had a

hypothesis, you performed the experiment and now you have the data

to prove the hypothesis. (Sorry - I just got finished writing my

lesson plans for science!)

Now you know that you have to be prepared to either give an extra

bolus feed unexpectedly or to try to get him to eat or drink

something. I would also suggest that you, too, obtain this glucose

gel I have been talking about. If Josiah won't tolerate a bolus

and/or he won't eat or drink, then put some of that gel between his

teeth and cheek and it will be absorbed into his system right away.

It helps in an emergency until you can get whatever you need.

Jodi Z

[Guest guest]

hi heather r!!

i dont know the answere but wanted to welcome you to the group!! also

i hope you will find out soon and that he is feeling better!!

jodie c

[Guest guest]

Hey Jodi,

Thanks for the input about this issue, and the encouragement that I

might not be totally imagining this. We go to the endo next week so

I will definately bring this up with him....I hope he has lots of

time as we have many issues to deal with as this is our first

appointment since diagnosis. I will definately look into the ketones

issue and the glucose gel.....thanks again.

R

Mom to Josiah 28 months RSS NG Tube

>

> R,

>

> This is totally a guess on my part, but it would make sense that

> Josiah's breathing would become difficult if his blood sugar levels

> are low and/or he is ketotic. (Have you checked him for ketones?

> They can be present before blood sugar drops. They can cause the

> same symptoms you would expect from low blood sugar.) Most kids

> lose energy and become lethargic when these levels are off.

> Josiah's most vulnerable area is his breathing. If his levels are

> too low, I would think that breathing would be one thing to

> decline. In other words, an active child who runs around a lot,

> talks a lot, is always on the move, will slow down considerably if

> bs is low. For Josiah, breathing is the activity that would slow

> down. Does this make sense?

>

> No matter what any testing may show, you have demonstrated that

when

> he is symptomatic once you feed him he improves. You had a

> hypothesis, you performed the experiment and now you have the data

> to prove the hypothesis. (Sorry - I just got finished writing my

> lesson plans for science!)

>

> Now you know that you have to be prepared to either give an extra

> bolus feed unexpectedly or to try to get him to eat or drink

> something. I would also suggest that you, too, obtain this glucose

> gel I have been talking about. If Josiah won't tolerate a bolus

> and/or he won't eat or drink, then put some of that gel between his

> teeth and cheek and it will be absorbed into his system right

away.

> It helps in an emergency until you can get whatever you need.

>

> Jodi Z

>