Re: something needs to be sure.

[Guest guest]

I went through the same thing with my daughter. I would recommend

contacting early intervention for a physical evaluation. My daughter

was 50 percent delayed in gross motor skills after coming out of 23/7

FAB wear. Everyone swears that it is not related to the brace, so I

would look into physical therapy if I were you. It has helped my

daughter. She never would stand on my lap or anything like that. She

was very weak. She also didn't come out of her FAB full time wear

until she was almost 8 months. I think that it probably is true that

children who receive Ponseti treatment from the start and are only in

the casts for 2 months don't have problems, but your son obviously was

in casts much longer? Anyway...every state has an early intervention

program and there is no cost. My daughter is 16 months now and still

isn't walking, but physical therapy has helped tremendously, and they

come right to your house!

Good luck.

Donna

something needs to be sure.

To: nosurgery4clubfoot

<span><p><span><p>

<tt>

Hi all, my son Isaac is 7month old now and has worn the brace 23hours

a <BR>

day for three months.Now it's time to give him some more happy time

<BR>

without the brace on. I just found that his legs seem not as strong as

<BR>

them should be. Our friend's same months'son always bounces up and <BR>

down . I am wondering if it's normal or not and should i let him stand

<BR>

on his sole. Is that going to do any harm to his feet and leg? When he

<BR>

learns to walk, will his feet and weak legs keep him being left behind

<BR>

or will he have a strange manner of walking? Another thing is his <BR>

chubby legs become obviously thin just above the anckles, I have been

<BR>

keeping that strip fairly loose, does any other kid have the same <BR>

problem. Just a little bit worried that we might do something wrong or

<BR>

missed some important thing. Thanks.<BR>

<BR>

<BR>

,Melody & amp; Isaac & nbsp; & nbsp; & nbsp; <BR>

<BR>

<BR>

<BR>

<BR>

</tt>

<!-- |**|begin egp html banner|**| -->

<br><br>

<tt>

[Guest guest]

My son is exactly the same. He was in casts for so long that he wouldn't even

move his ankles or toes, never mind bear weight. I recently took him to the

physiotherapist and she showed me a few tricks to get him started bearing

weight and guess what? He is doing much better already after just a few weeks!

He will also be coming out of his brace full time at the end of this month. If

you'd like to know what the tricks are, you can email me privately if you like.

chenyao120 wrote: Hi all, my son Isaac is

7month old now and has worn the brace 23hours a

day for three months.Now it's time to give him some more happy time

without the brace on. I just found that his legs seem not as strong as

them should be. Our friend's same months'son always bounces up and

down . I am wondering if it's normal or not and should i let him stand

on his sole. Is that going to do any harm to his feet and leg? When he

learns to walk, will his feet and weak legs keep him being left behind

or will he have a strange manner of walking? Another thing is his

chubby legs become obviously thin just above the anckles, I have been

keeping that strip fairly loose, does any other kid have the same

problem. Just a little bit worried that we might do something wrong or

missed some important thing. Thanks.

,Melody & Isaac

[Guest guest]

My son,, is just exactly the same age as 's and started

the Ponseti method about the same time I believe, between 4 and 5

months. The difference with mine was that he was in casts only the

first month and out of them until we began the Ponseti method.

is now 9 months and still in the boots and bar 23/7 and is

pulling up and has been standing on my lap for a while. It may be

just because not all babies do things at the same time and it could

be due to the long casting. It sounds like, from 's

experience, that some physical therapy would be beneficial. It

certainly wouldn't hurt.

and 6-19-05 FAB 23/7

-- In nosurgery4clubfoot , Cohen

wrote:

>

> My son is exactly the same. He was in casts for so long that he

wouldn't even move his ankles or toes, never mind bear weight. I

recently took him to the physiotherapist and she showed me a few

tricks to get him started bearing weight and guess what? He is

doing much better already after just a few weeks! He will also be

coming out of his brace full time at the end of this month. If

you'd like to know what the tricks are, you can email me privately

if you like.

>

> chenyao120 wrote: Hi all, my son Isaac is

7month old now and has worn the brace 23hours a

> day for three months.Now it's time to give him some more happy

time

> without the brace on. I just found that his legs seem not as

strong as

> them should be. Our friend's same months'son always bounces up

and

> down . I am wondering if it's normal or not and should i let him

stand

> on his sole. Is that going to do any harm to his feet and leg?

When he

> learns to walk, will his feet and weak legs keep him being left

behind

> or will he have a strange manner of walking? Another thing is his

> chubby legs become obviously thin just above the anckles, I have

been

> keeping that strip fairly loose, does any other kid have the same

> problem. Just a little bit worried that we might do something

wrong or

> missed some important thing. Thanks.

>

>

> ,Melody & Isaac

>

>

>

>

>

>

>

[Guest guest]

My daughters's feet are pretty sensitive and after the FAB came off for the

23/7, it was a little more so she was reluctant to bear weight on them a whole

lot. I think the weight bearing is good for him so I would not worry about his

being a little different than your friends child. Children develop at such

different rates at this age. Isaac's legs may not be as advanced as the other

child and this may have nothing to do with the brace at all. If you are very

concerned, mention it to your doctor. Kelsey walked a little later than most

but now, at 2 1/2, you would never know any difference. The thin calves is

perfectly normal in children with clubfeet.

Jenni

chenyao120 wrote: Hi all, my son Isaac is

7month old now and has worn the brace 23hours a

day for three months.Now it's time to give him some more happy time

without the brace on. I just found that his legs seem not as strong as

them should be. Our friend's same months'son always bounces up and

down . I am wondering if it's normal or not and should i let him stand

on his sole. Is that going to do any harm to his feet and leg? When he

learns to walk, will his feet and weak legs keep him being left behind

or will he have a strange manner of walking? Another thing is his

chubby legs become obviously thin just above the anckles, I have been

keeping that strip fairly loose, does any other kid have the same

problem. Just a little bit worried that we might do something wrong or

missed some important thing. Thanks.

,Melody & Isaac

[Guest guest]

Hey ,

Don't keep those tips a secret, share away! I'm sure there are

several moms who would be interested to know. : )

Hi all, my son Isaac is

7month old now and has worn the brace 23hours a

> day for three months.Now it's time to give him some more happy time

> without the brace on. I just found that his legs seem not as

strong as

> them should be. Our friend's same months'son always bounces up and

> down . I am wondering if it's normal or not and should i let him

stand

> on his sole. Is that going to do any harm to his feet and leg?

When he

> learns to walk, will his feet and weak legs keep him being left

behind

> or will he have a strange manner of walking? Another thing is his

> chubby legs become obviously thin just above the anckles, I have been

> keeping that strip fairly loose, does any other kid have the same

> problem. Just a little bit worried that we might do something

wrong or

> missed some important thing. Thanks.

>

>

> ,Melody & Isaac

>

>

>

>

>

>

>

[Guest guest]

If this is his only issue, I would say wait a month or two to see if it

improves; however, you are the mommy and you know what you should do. I have a

niece who did everything early and still at almost 3 is continuing to advance

quickly. She did not bear weight until around 9 months and started walking at

11 months. Her brother is now 10 months old and he was the same way. I saw him

3 weeks ago and his legs were like jello. Now she is emailing me pictures of

him standing up holding onto a table. Once kids start they really blossom.

That being said, if you have a feeling something is up, and he would benefit

from EI get it. gets 4 different services and they have helped

tremendously!

11/19/04

chenyao120 wrote:

Hi all, my son Isaac is 7month old now and has worn the brace 23hours a

day for three months.Now it's time to give him some more happy time

without the brace on. I just found that his legs seem not as strong as

them should be. Our friend's same months'son always bounces up and

down . I am wondering if it's normal or not and should i let him stand

on his sole. Is that going to do any harm to his feet and leg? When he

learns to walk, will his feet and weak legs keep him being left behind

or will he have a strange manner of walking? Another thing is his

chubby legs become obviously thin just above the anckles, I have been

keeping that strip fairly loose, does any other kid have the same

problem. Just a little bit worried that we might do something wrong or

missed some important thing. Thanks.

,Melody & Isaac

[Guest guest]

Hi. My son is 4 months old and I have not noticed any weakness in the legs at

all from the brace. In fact, I think the brace may have actually strengthened

his legs a bit. He actually bears weight on his legs with me just holding his

hands. I think each child is different and will start to show his stuff when he

is ready. My oldest son (no clubfeet) wasn't able to stand like this when he was

only 4 months. My little guy (left clubfoot) does have the " skinny " ankles from

the shoes on the brace. I, too, loosened the top strap thinking it would help,

but it hasn't helped. I think a lot has to do with the fact that they are babies

with a lot of chubbiness in the legs that has been displaced because of the

brace. I am sure once they start growing and their legs mature the whole skinny

ankle thing will go away.

chenyao120 wrote: Hi all, my son Isaac is 7month old

now and has worn the brace 23hours a

day for three months.Now it's time to give him some more happy time

without the brace on. I just found that his legs seem not as strong as

them should be. Our friend's same months'son always bounces up and

down . I am wondering if it's normal or not and should i let him stand

on his sole. Is that going to do any harm to his feet and leg? When he

learns to walk, will his feet and weak legs keep him being left behind

or will he have a strange manner of walking? Another thing is his

chubby legs become obviously thin just above the anckles, I have been

keeping that strip fairly loose, does any other kid have the same

problem. Just a little bit worried that we might do something wrong or

missed some important thing. Thanks.

,Melody & Isaac

[Guest guest]

Hi ,

From what I understand standing and walking is

actually good for clubfeet, so I don't think you'll be

doing any harm to your son with it.

It's normal for the leg to be a bit thinner but I

don't think that makes it weaker. I found with my son

that lifting the brace seemed to make his legs

actually stronger...

He did have very thin looking ankles and feet compared

to the rest of the legs though but this was only due

to 'fat replacement', ie any baby fat that would

normally be around the feet and ankles is pushed up

due to the shoes. This will go away eventually. I

don't know if leaving the shoes loose to avoid it is a

good idea, don't his feet come out of the shoes if you

do that?

My son's feet and legs look just like his twin

brother's now and he walks (or rather runs most of the

time) exactly like his twin.

All the best,

with (3y)

and Alister (3y, RCF, Ponseti method, UK)

--- chenyao120 wrote:

> Hi all, my son Isaac is 7month old now and has worn

> the brace 23hours a day for three months.Now it's

> time to give him some more happy time without the

> brace on. I just found that his legs seem not as

> strong as them should be. Our friend's same

> months'son always bounces up and down . I am

> wondering if it's normal or not and should i let

> him stand on his sole. Is that going to do any harm

> to his feet and leg? When he learns to walk, will

> his feet and weak legs keep him being left behind

> or will he have a strange manner of walking? Another

> thing is his chubby legs become obviously thin just

> above the anckles, I have been keeping that strip

> fairly loose, does any other kid have the same

> problem. Just a little bit worried that we might do

> something wrong or missed some important thing.

> Thanks.

>

>

> ,Melody & Isaac

>

>

>

>

>

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