Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 Stacie, Hi! My son is Storm. He will be turning 10 on Aug. 28, starting the 4th grade next week. He is just entering early andronarche (pubic hairs, hair under arms, and stinky pits and feet!) He is 49.5 inches tall and weighs 58 pounds. He has been on growth hormone for 3 years. Would love to chat with you. We live in Texas. Carmen, mom to Storm, RSS and a slew of other kiddos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 Hi Stacie, How are you? I haven't heard from you in a long time. I have been wondering how and are doing? I hope all is well. How is ? is the same age. He turned 8 at the end of April. Please feel free to ask anything. Ken M > > Hi, it's been a long time and I've lost contact with other parents who > have kids the same age or near it as my son. Just would like to > connect or " reconnect " with parents of 8 or 9 year old RSS kids. > > My son, , is 8 1/2 years old with RSS, assemetry, and growth > hormone. > > Looking forward to chatting with you......... > > Stacie > in Calif. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Stacie, I remember you as one of the very first members of this list, and we met once when your family visited Monterey. Our son is now 10, and doing well. After 3 years on gH, he's finally on the growth charts - 5th percentile for height, 10th percentile for weight. He had his gtube removed a couple years ago, and he now has a pretty good appetite. He's gone into early puberty and takes monthly Lupron shots. He still sees Dr. Buckingham at Stanford. Josh is entering 4th grade this year, in a special ed class. He has some learning disabilities, possibly related to his RSS, but more likely to his prematurity. This list has really grown over the years - I can't keep up with it anymore! I just check in once every few weeks at the yahoo website, and post occasionally. However, we do go to the MAGIC conference every year, it's always informative, and so much fun (and my wife Kathie is from Chicago, so it's also an excuse to go visit her family and friends there). Good to hear from you. Let us know if your family ever decides to escape the heat and come down to visit nice cool Monterey again! - Joe > > Hi, it's been a long time and I've lost contact with other parents who > have kids the same age or near it as my son. Just would like to > connect or " reconnect " with parents of 8 or 9 year old RSS kids. > > My son, , is 8 1/2 years old with RSS, assemetry, and growth > hormone. > > Looking forward to chatting with you......... > > Stacie > in Calif. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 HI Joe, Welcome back !!! Glad you returned after falling off the planet !!! -- just kidding of course. Glad to see is growing so well. Sounds like he is doing great. How is your Doctoral Thesis coming? I have not been keeping track, as far as I know you could have finished by now and been hired as president of Stanford or something like that. Anyway, glad to hear from you. Ken M > > > > Hi, it's been a long time and I've lost contact with other parents > who > > have kids the same age or near it as my son. Just would like to > > connect or " reconnect " with parents of 8 or 9 year old RSS kids. > > > > My son, , is 8 1/2 years old with RSS, assemetry, and growth > > hormone. > > > > Looking forward to chatting with you......... > > > > Stacie > > in Calif. Quote Link to comment Share on other sites More sharing options...
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