pro band articles?

[Guest guest]

My sister just got back from visiting her nephew and she is worried b/c she says his head looks worse than my sons did, my son measured 15, 15 and 17 assymetry with eye and ear assymetry so was pretty severe so if his eye, ear and head are worse than my sons thats not good.  It really is to be expected since he is a sick little boy who has spent the majority of his life in the hospital.  And when he is not in the hospital he spends a great deal of time in the carseat or bouncy seat.  But she would love an article she could post to her on fb that would be pro band for her to read since his doctors do not seem concerned.  She said they are working on trying to get him to look a certain direction so I would assume he also has torticollis but he already receives therapy, including physical through early intervention so they are probably on top of that.  I am just surprised his many doctors, many of which are at the childrens hospital, or any of his therapists have never mentioned this to him.  I guess another case of ppl thinking it will round out :-(

-- -mommy to Emma, Becca, , and Girl Scout cookies are coming!

[Guest guest]

Let me clarify, when you say pro band do you mean articles that explain the effectiveness of the band? Or are you looking more for articles that talk about the risks of not banding? Or, the risks of not treating the plagio in general?

By the way, it is possible that his experts have decided that the plagio is the least of his issues. That is what I believe happened with . The head was discussed at 4 and 6 months, but not at 9 months because had lost weight and the doctor was so focused on that. Then, at 12 months, when she had already been stabalized on her reflux meds and referred out to the GI and allergist, the head was brought up again. However, I will always regret that I didn't bring it up. It's possible that the doctor might have given me the referral at that point since she had no problem doing so 3 months later. So, if your niece has significant medical issues, the doctors may feel that it's the least problematic issue and may not be aware of how your sister feels. I wonder how they would respond if she brought it up.

pro band articles?

My sister just got back from visiting her nephew and she is worried b/c she says his head looks worse than my sons did, my son measured 15, 15 and 17 assymetry with eye and ear assymetry so was pretty severe so if his eye, ear and head are worse than my sons thats not good. It really is to be expected since he is a sick little boy who has spent the majority of his life in the hospital. And when he is not in the hospital he spends a great deal of time in the carseat or bouncy seat. But she would love an article she could post to her on fb that would be pro band for her to read since his doctors do not seem concerned. She said they are working on trying to get him to look a certain direction so I would assume he also has torticollis but he already receives therapy, including physical through early intervention so they are probably on top of that. I am just surprised his many doctors, many of which are at the childrens hospital, or any of his therapists have never mentioned this to him. I guess another case of ppl thinking it will round out :-(-- -mommy to Emma, Becca, , and Girl Scout cookies are coming!

[Guest guest]

Either is fine, just don't want ones that jump on the " it'll round out

on its own " or " they'll outgrow it " bandwagon as I know some articles

in the last few years have actually said such.

That could be possible but he is already over 9 month old so he

doesn't have a lot of time left. None of his issues would be

adversely effected by the band. He has reflux probably caused by the

gap in his esophagus he had repaired at 10 days old. He has an off

center heart which makes his right lung also smaller as well as a hole

in his heart he is awaiting surgery for (they want him out of the

hospital and well for 6 month 1st), he has been in the hospital for

the reflux as well as pneumonia, he's had sepsis. That is why it ha

never come up before, he is always hospitalized. But he is home and

doing very well right now so now the only things are therapy to help

him catch up and just wait for the surgery. But if they wait until

after the surgery it will be too late to band. I might consider it

possible to just leave it if it were minor or even if it were more

severe but just his head. But with severe eye and ear assymetry I

would worry about it causing other issues and he certainly has enough

to deal with.

On 5/4/10, <melanie.watson@...> wrote:

>

>

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> Let me clarify, when you say pro band do you mean articles that explain the

> effectiveness of the band? Or are you looking more for articles that talk

> about the risks of not banding? Or, the risks of not treating the plagio in

> general?

>

>

>

> By the way, it is possible that his experts have decided that the plagio is

> the least of his issues. That is what I believe happened with . The

> head was discussed at 4 and 6 months, but not at 9 months because

> had lost weight and the doctor was so focused on that. Then, at 12 months,

> when she had already been stabalized on her reflux meds and  referred out to

> the GI and allergist, the head was brought up again. However, I will always

> regret that I didn't bring it up. It's possible that the doctor might have

> given me the referral at that point since she had no problem doing so 3

> months later. So, if your niece has significant medical issues, the doctors

> may feel that it's the least problematic issue and may not be aware of how

> your sister feels. I wonder how they would respond if she brought it up.

>

>

>

> pro band articles?

>

>

>

>

>

>

> My sister just got back from visiting her nephew and she is worried b/c she

> says his head looks worse than my sons did, my son measured 15, 15 and 17

> assymetry with eye and ear assymetry so was pretty severe so if his eye, ear

> and head are worse than my sons thats not good.  It really is to be expected

> since he is a sick little boy who has spent the majority of his life in the

> hospital.  And when he is not in the hospital he spends a great deal of time

> in the carseat or bouncy seat.  But she would love an article she could post

> to her on fb that would be pro band for her to read since his doctors do not

> seem concerned.  She said they are working on trying to get him to look a

> certain direction so I would assume he also has torticollis but he already

> receives therapy, including physical through early intervention so they are

> probably on top of that.  I am just surprised his many doctors, many of

> which are at the childrens hospital, or any of his therapists have never

> mentioned this to him.  I guess another case of ppl thinking it will round

> out :-(

>

> --

> -mommy to Emma, Becca, ,

> and

>

> Girl Scout cookies are coming!

>

>

--

Sent from my mobile device

-mommy to Emma, Becca, ,

, , and baby girl no name (yeah I know, nothing new, does

ever pick a name in a timely manner?) July 2010

[Guest guest]

Hey - if your sister wants treatment, then I say she should go for it and bring it up to the doctors.

There are some articles in the file section on this list.

Also, here is a link to a special volume of a journal from the American Academy of Orthotists and Prosthetists that is all about plagiocephaly and even focuses some on bands.

http://www.oandp.org/jpo/library/index/2004_04S.asp

Here is the text from one of the articles that is actually written by my ortho ( Plank). There are also articles there from other names that I recognize (Tim Littlefield from CT). So, I'm guessing that this is a mainstream journal. This article would seem to support the use of a band in your niece's case.

http://www.oandp.org/jpo/library/2004_04S_028.asp

"It is the opinion of the American Academy of Pediatrics in its July 2003 clinical report 7 that attempts at less invasive correction such as parental education of repositioning, tummy time, and range-of motion-assessments are typically the first alternative. Although infants with mild plagiocephaly could esthetically benefit with the use of an orthotic device, the natural progression of the asymmetry is relatively unknown. Further research is needed to justify medical need. Therefore, it is the severity of the diagnosis that determines treatment options.

Orthotic intervention is often recommended when there is no response to previous home programs or when secondary changes to the skull exist. Ear shift, forehead flattening, and orbital or facial involvement are clinical observations that once present should be monitored closely for progression. Moderate presentations of deformational plagiocephaly at a very early age (0-3 months) should still attempt repositioning. Physical therapy evaluation and treatment are recommended when the diagnosis of torticollis is also present.

Infants between the ages of 3 and 12 months with moderate to severe plagiocephaly are excellent candidates for cranial remolding. Orthotic treatment is appropriate when the shape does not improve, when age-appropriate at initial evaluation, or because of parental preference. Severe presentations of deformational plagiocephaly can begin treatment once appropriate neck strength has been obtained (typically not before 3 months of age). This population will strongly benefit from early intervention as less growth potential is expected with the older child.

In the hands of an experienced clinician, cranial remolding orthoses are an effective, noninvasive, treatment option for persistent moderate or severe deformational plagiocephaly. Numerous U.S. Food and Drug Administration-approved cranial remolding orthoses are currently available. Using slight alterations in design, all helmets, bands, caps, and so on, attempt to achieve a more normalized skull through strategically placed forces and directing of new growth."

You can also go to pubmed.gov to search for any kind of medically related articles. We recently did a search because one of my son's specialists had recommended a course of treatment that we were uncomfortable with (long term antibiotics because he had a UTI). We were able to find that her recommendations were based upon treatments that the research did not support. When we brought this up to the doctor with our references in hand, she agreed that she was just being overly consertative and that if we were uncomfortable with it, we could skip it.

I do have to warn you that many of them do not have the full text and you have to pay to have access to it. However, the abstracts were enough for our purpose (abstracts are a brief synopsis of the content of the article)

Others may have more answers for you in terms of specific articles, but this should give you a place to start if you wanted to do a search.

Good luck

pro band articles?>>>>>>> My sister just got back from visiting her nephew and she is worried b/c she> says his head looks worse than my sons did, my son measured 15, 15 and 17> assymetry with eye and ear assymetry so was pretty severe so if his eye, ear> and head are worse than my sons thats not good. It really is to be expected> since he is a sick little boy who has spent the majority of his life in the> hospital. And when he is not in the hospital he spends a great deal of time> in the carseat or bouncy seat. But she would love an article she could post> to her on fb that would be pro band for her to read since his doctors do not> seem concerned. She said they are working on trying to get him to look a> certain direction so I would assume he also has torticollis but he already> receives therapy, including physical through early intervention so they are> probably on top of that. I am just surprised his many doctors, many of> which are at the childrens hospital, or any of his therapists have never> mentioned this to him. I guess another case of ppl thinking it will round> out :-(>> --> -mommy to Emma, Becca, ,> and >> Girl Scout cookies are coming!>>-- Sent from my mobile device-mommy to Emma, Becca, ,, , and baby girl no name (yeah I know, nothing new, does ever pick a name in a timely manner?) July 2010