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Re: Digest Number 2928

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Hi Marcy,

My son uses Saizen. He has been on it for 4 years. I don't think

the approval from your insurance company has anything to do with the

brand Saizen itself, but maybe they have a maximum coverage on any

growth hormone. uses the Cool Click, and it is the only way

we have ever administered his growth hormone. It is a needle-free

device that delivers the medication via a high pressure stream

directly through the skin. Although I have never given myself an

injection with it, it is described to feel like a rubber band

snapping against the skin. Most of the time, my son doesn't flinch

at all. The people who are calling are probably the Cool Click

distributors. They do call a lot, but this is a good thing, as you

never run out of supplies. We have dealt with numerous medical

supply companies as well as home delivery pharmacies throughout

's life, and I have to say that Serono (the company that makes

Cool Click & Saizen) is one of the easiest ones to deal with. They

always respond to any inquiries I have immediately, and I never worry

about running out of supplies. If I were you, I would go ahead &

take the GH delivery now when they are ready to send it. You don't

have to start giving it yet, and the GH has a shelf life of at least

a year.

Kim C.

Hello,

Has anyones child used this Growth Hormone before?(Saizen) na

has

been given a six month life time approval from our insurance company

to

start. I don't understand only six months max but i'm assuming it

will

be reavaluated in six months. We are suppose to go to training

July11th. This company keeps calling asking if she can be in thier

study. has

this happened to any one before? This one lady calls everyday, i

feel

like she is a aggrivating telemarketer. I have heard of other GH

types

used but not this one. They have 2 injection devices, one cool click

which I have heard mention and one click. The company wants to

delivery

the meds now,is that how it is done? We don't have class till July.

Dr. H

wanted us to wait to she her but this woman says they will stop the

process and we will have to reapply all overrr again which took over

six

months to get. I'm going to call my insurance company and see if they

can change the start date and find out about this cazy lady calling

me at

work and home each day. It took us a while to decide what we would

do,

then it took the insurrrance company forever to approve. We will be

going to the convention and I am nervous about traveling with GH

being it

would only be a week starting it. I feel that starting the day after

we

get back is better because we are near her pedi and other doctors.

Who

know maybe after next week we will be starting them sooner. We see

her

genetics and orrtho.

I'll keep you posted.

Marcy

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Guest guest

Hey, my son has been on GH for several years but has gotten tired of the

needles recently. I think I'll checkinto this!!!

Inga

At 08:22 PM 6/17/2005 -0400, you wrote:

>

> Hi Marcy,

>

> My son uses Saizen. He has been on it for 4 years. I don't think

> the approval from your insurance company has anything to do with the

> brand Saizen itself, but maybe they have a maximum coverage on any

> growth hormone. uses the Cool Click, and it is the only way

> we have ever administered his growth hormone. It is a needle-free

> device that delivers the medication via a high pressure stream

> directly through the skin. Although I have never given myself an

> injection with it, it is described to feel like a rubber band

> snapping against the skin. Most of the time, my son doesn't flinch

> at all. The people who are calling are probably the Cool Click

> distributors. They do call a lot, but this is a good thing, as you

> never run out of supplies. We have dealt with numerous medical

> supply companies as well as home delivery pharmacies throughout

> 's life, and I have to say that Serono (the company that makes

> Cool Click & Saizen) is one of the easiest ones to deal with. They

> always respond to any inquiries I have immediately, and I never worry

> about running out of supplies. If I were you, I would go ahead &

> take the GH delivery now when they are ready to send it. You don't

> have to start giving it yet, and the GH has a shelf life of at least

> a year.

>

> Kim C.

>

>

>

> Hello,

> Has anyones child used this Growth Hormone before?(Saizen) na

> has

> been given a six month life time approval from our insurance company

> to

> start. I don't understand only six months max but i'm assuming it

> will

> be reavaluated in six months. We are suppose to go to training

> July11th. This company keeps calling asking if she can be in thier

> study. has

> this happened to any one before? This one lady calls everyday, i

> feel

> like she is a aggrivating telemarketer. I have heard of other GH

> types

> used but not this one. They have 2 injection devices, one cool click

> which I have heard mention and one click. The company wants to

> delivery

> the meds now,is that how it is done? We don't have class till July.

> Dr. H

> wanted us to wait to she her but this woman says they will stop the

> process and we will have to reapply all overrr again which took over

> six

> months to get. I'm going to call my insurance company and see if they

> can change the start date and find out about this cazy lady calling

> me at

> work and home each day. It took us a while to decide what we would

> do,

> then it took the insurrrance company forever to approve. We will be

> going to the convention and I am nervous about traveling with GH

> being it

> would only be a week starting it. I feel that starting the day after

> we

> get back is better because we are near her pedi and other doctors.

> Who

> know maybe after next week we will be starting them sooner. We see

> her

> genetics and orrtho.

> I'll keep you posted.

> Marcy

>

>

>

> ----------

>

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Guest guest

> Hi Tammy,

I had this dilemma the first time I went to the convention too. I

sent my mom to the ones I deemed less important with a notebook to

take notes and I went to the other ones. Last year for the first

time, some of the segments (not all) were available to purchase on

DVD, but we did not get these immediately after the convention.

Also, I think the reason they were able to do this was through some

donated money earmarked for this purpose. I have not heard whether

they will be doing the same this year. My advice to you would be to

split up and/or put a tape recorder in a room neither of you attend.

Kim C.

> Message: 16

> Date: Fri, 17 Jun 2005 21:13:39 -0000

>

> Subject: Question on Convention seminars

>

> This question is for anyone who has been to the convention in

> Chicago.

>

> I was looking at the convention schedule this morning and noticed

> that there are alot of seminars that are scheduled at the same

> time. There are a few that I want to go to, but do the scheduling

> times I can't make them all.

>

> For example, I want to go to the GHD, the Precocious Puberty, Basics

> of RSS/SGA, and Adrenarche & Puberty segment, They are all held

> 9am. Then also at 2:30-4pm they have the 1-2-3 magic and the

> Growth Hormone Treatment segment.

>

> Is there a DVD on the segments that you can not attend? Or do I send

> my husband to one and I go to another each with a tape recorder? Or

> am I maybe reading the times wrong. This maybe the only year we get

> to go due to the expense of it and I want to get everything I can

> out of it.

>

> Thanks,

> Tammy

> Mom to 19mos, 14lbs 13oz, RSS/SGA, GERD, fundoplication, g-

> tube and ADHD and about to go on GHT.

>

>

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