Re: talk w/Tim's endo on Lupron/Arimidex/bone age/diabetes

[Guest guest]

Inga - wow - so much to think about and worry about. My thoughts

are with you. Keep us posted please.

- H

> Tim's endo got back to me today. I hope I get this all right, but

this I

> believe is the gist of what he said:

>

> Studies have shown that after a year of using Arimidex that there

was no

> difference in predicted height. Boys make a little of their own

estrogen

> but most is converted from testosterone. The Lupron decreases the

> estrogen. The bone age increases more rapidly with more

estrogen, so the

> Lupron should help the bone age to reach maturation more slowly,

which

> would be age 18. Tim's bone age is 2 years ahead (12yrs instead

of his

> chronological age of 10 yrs). So he increased his Lupron doseage.

>

> The treatment of bone age with Lupron and not with Arimidex was

started by

> Dr. Geffner from LA, who also presented at the MAGIC conference

and was

> recommended to me by MAGIC a few years ago, so I guess there are

different

> opinions about its use by good endos. I hope they do get this

right

> though. I suppose with a bone age 2 years ahead of his age, since

our endo

> said he would stop growing at a bone age of 18, he would only have

until

> he's 16 - unless they can slow it WAY down to be progressing LESS

than his

> chrono age - but I don't have any idea if the side effects of

Lupron would

> be worth such a slowing!

>

> The symptoms of diabetes are a lot of drinking and peeing, which

Tim

> doesn't have, so I don't think his weight gain comes from that.

I'm

> thinking that maybe he just got in a bit more of an oral eating

habit over

> the summer in addition to his gtube. For awhile, I subtracted his

oral

> calories from his tube feedings, but I hadn't done this for a

while...

>

> Inga