Re: File about RSS - what I did

[Guest guest]

Isabelle - HI! You may be speaking of my posts as well regarding

files. It was suggested by several well-seasoned members of this

group to put together a documented file of your child's medical

history. I have two sets of these files - one for myself - and one

I plan to give Dr. Harbison. What she chooses to do with the

information is up to her. But, at least I will be prepared! I did

Ian's as follows:

2 binders with 6 sections - each with metal tabs at the top to hold

the paper in place. Each section labeled with the appropriate

documentation as follows:

1st Binder

1. Birth/Neonatal

2. Surgeries

3. Nutrition

4. Speech

5. Hospital

6. Pediatric

2nd Binder

1. Endocrinology

2. Gastroenterology

3. Genetics

4. Growth Charts

5. Laboratory

6. Radiology

Each section has it's own respective medical documentation. I make

sure that each time I see the doc - I put the documentation

immediately where it belongs. I just started doing this - and BOY,

has it been a GOD send! It is so much easier to keep track of all

Ian's medical records - and helps me keep track of what's next!

I also have a separate white folder containing pictures of Ian that

I place inside the first binder.

I also printed for myself and Dr. H a list of all the contacts (Ped,

Endo, Gastro, Genet, and Hospital)with names of physician, practice,

address and phone number so that she will be able to have that

information handy if needed.

Hope this information was useful to you.

- H

> >

> > Hi everyone,

> >

> > I'm reading a lot of your post and I'm wondering about

something.

> A lot of you are talking about a file with documents about RSS.

I'm

> member of Magic Foundation but I never saw any section about

> documents into the site. What I need to do for having those

> documents? We had our first appointement with Endo few weeks ago

> and she was not so receptive about the RSS and I'm thinking maybe

> with more information it could be easier for me to talk with her.

> >

> > Thanks to help me.

> >

> > Isabelle

> > (Laurie-Anne 5 non RSS and -Olivier 2½ RSS 14 lbs)

> >

> >

> >

> > ---------------------------------

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> >