Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 I know some of you are dealing with celiac, so hopefully someone can help me here. I suspect celiac runs in our family, and feel my 65 yo mother is dealing with some of the complications of having it for years. She is in considerable pain in her back, hips and legs with shooting pains from hips through legs. Does anyone have any ideas on this? Also, she has finally gone on this diet, how long before she can expect relief from this pain? She is seeing doctors, but none who know what is wrong with her or know anything about celiac. She lives in Tyler Texas, if anyone can recommend a good doc. Thank you. Lolita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 I spent last weekend with a researcher from the U of MD Celiac Center (www.celiaccenter.org) & learned a lot about CD and other gluten problems. A few comments - re ASD & ADHD, the body's dysfunctional response to gluten is not the same as that in CD, altho one can have both problems. Re body pain & cd - again one can have cd, but there are also other gluten responses that can cause the same problems, such as a classic allergy to gluten grains (IgE), an improper immune reaction (IgG), or opioid response (theorized in ADHD & ASD cases). CD can be triggered by an event, such as puberty, menopause, viruses, etc. So you can test negative for cd antibodies, yet develop cd later in life. There is now a DNA test in the works so predisposition can be identified. New research indicates that untreated cd triggers insulin dependent diabetes and that up to 6% of people with Type I diabetes have CD. The rate is also high for people with downs syndrome; some hospitals now automatically test DS children for CD. Ok, if you made it through that, here's my experience re pain. I had a fibro dx following a long viral illness and my life was devastated by the severe pain. After going gfcf with my child (and I cheated a tiny bit outside of the home), to my surprise I began feeling better within a month. Slow progress continued, then sped up once I stopped cheating. After 9 mos gfcf, I had amalgam fillings removed & began mercury chelation. The last of the (now sporatic and far less intense) pain & fog lifted, and I confidently declared myself well! The bad news is that I just completed 6 weeks of daily gluten in order to be tested for CD. Chronic pain, congestion, exhaustion, sleep dysfuntion & brain fog have returned, though not as severe. You might try contacting the Celiac Center for Research, UofMD, for a doctor near you. Also, skin prick for RAST blood testing and IgG food panel could be helpful. I would lean towards a doctor with an immunology/allergy/environmental medicine background - JMO. Good luck! -- In GFCFKids@y..., Lolita Cook <lita@b...> wrote: > I know some of you are dealing with celiac, so hopefully someone can help > me here. I suspect celiac runs in our family, and feel my 65 yo mother is > dealing with some of the complications of having it for years. > > She is in considerable pain in her back, hips and legs with shooting pains > from hips through legs. Does anyone have any ideas on this? Also, she has > finally gone on this diet, how long before she can expect relief from this > pain? > > She is seeing doctors, but none who know what is wrong with her or know > anything about celiac. She lives in Tyler Texas, if anyone can recommend a > good doc. Quote Link to comment Share on other sites More sharing options...
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