Re: Neck advise please

[Guest guest]

I think I would get a PT eval. It can't hurt and it can only ease your mind. I would just call and ask the pediatrician for a referral. If they refuse to give it to you, that is another reason to switch pediatricians. Where do you live? My daughter was in PT for about 6 months. I LOVED her PT. He convinced me to go forward with the first and second DOC bands. She no longer has torticollis! Also, make sure you go to a pediatric PT! I had to fight to get the one I wanted. I went to a PT with my son, 3 years ago who obviously didn't see kids at all, so I learned my lesson. Even if you have to drive to see a PT that specializes in children, it is so worth it!

HTH.

Mom to Paige, 12 months old

Woodbridge, VA

Doc Band #1 - 4 months

Doc Band #2 - 1 month

From: Kathy Lora Jensen <kathylorajensen@...>Subject: Neck advise pleasePlagiocephaly Date: Wednesday, February 24, 2010, 7:56 PM

Hi,I am thinking it is time to have 's neck evaluated more thoroughly. The most concerned so far other than me has been the chiropractor and all she says is his neck is a little off and then she adjusts it. was never diagnosed with torticollis and I am fairly confident he never had it. (Thinking back, I think my 5.5 year old had mild torticollis that led to his plagio.) has a preference to turn right, especially when sleeping, but he never had a head tilt. He is able to turn both directions. He just turns right more than left. When he is sleeping on his back, he sometimes turns so far that his chin is to his shoulder. I had noticed it less since he started the chiropractor visits last May. However, lately it has regressed. This may be because he started daycare in Jan and he will only nap there sitting up! He sleeps in a low rocking chair at daycare. When the teachers try

to lay him down, he wakes up. We are surprised that he refuses to nap like the other kids. This has me very worried about his neck. Besides when we remove the helmet, I would prefer he did not favor sleeping on his flat spot.For those of you taking your children for neck therapy, who diagnosed the neck problems? Was it the pediatrician? Should I see a physical therapist? Are there neck specialists? We are in the process of switching pediatricians. The old one wasn't concerned about the neck, but then I am switching because of her casual attitude about multiple things, including the head. Should I take into the new pediatrician before his next scheduled check up, which isn't until June? Any advise on what to do about the neck? Thanks in advance. I don't know what I would do without this group during this difficult time.BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.Thanks,Kathy, mom to almost 21 months, almost 9 months in Starband

[Guest guest]

My dd was diagnosed by our ped... but I had to do my own research and

bring it up and ask about tort before she got a dx.

And acually, my dd's tort wasn't the classic muscle tort, her's is

actually a structural asymmetry in her skull base and irregularities in

her spinal cord.

You can learn alot about tort just by googlng. You can find alot of

pictures, illustrations and descriptions of tort.

Jen

Mom to Luli - 4 yrs old

Torticollis, Plagio, Syringomyelia

Neck advise please

Hi,

I am thinking it is time to have 's neck evaluated more

thoroughly. The most concerned so far other than me has been the

chiropractor and all she says is his neck is a little off and then she

adjusts it. was never diagnosed with torticollis and I am fairly

confident he never had it. (Thinking back, I think my 5.5 year old had

mild torticollis that led to his plagio.) has a preference to

turn

right, especially when sleeping, but he never had a head tilt. He is

able to turn both directions. He just turns right more than left.

When

he is sleeping on his back, he sometimes turns so far that his chin is

to his shoulder. I had noticed it less since he started the

chiropractor visits last May.

However, lately it has regressed. This may be because he started

daycare in Jan and he will only nap there sitting up! He sleeps in a

low rocking chair at daycare. When the teachers try to lay him down,

he

wakes up. We are surprised that he refuses to nap like the other kids.

This has me very worried about his neck. Besides when we remove the

helmet, I would prefer he did not favor sleeping on his flat spot.

For those of you taking your children for neck therapy, who diagnosed

the neck problems? Was it the pediatrician? Should I see a physical

therapist? Are there neck specialists? We are in the process of

switching pediatricians. The old one wasn't concerned about the neck,

but then I am switching because of her casual attitude about multiple

things, including the head. Should I take into the new

pediatrician before his next scheduled check up, which isn't until

June?

Any advise on what to do about the neck? Thanks in advance. I don't

know what I would do without this group during this difficult time.

BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.

Thanks,

Kathy, mom to almost 21 months, almost 9 months in Starband

[Guest guest]

Kathy,

Our chiro says that it is common for little ones to keep having their neck go out of alignment because they are so active. Have you asked your chiro whether he is concerned that it is more than typical? If so, does he think it's a spinal alignment issue or a muscular issue? I ask because the chiro is the best treatment if it is the spine and the PT is the best if it is something else. If it's the spine, then perhaps he just isn't holding between appointments. needed 3 times a week appointments for about 2 months before she started holding at all.

It probably wouldn't hurt to get a PT eval if you are concerned. also tended to sleep more on her right side when she was younger but her head was never tilted much. And, she didn't resist my attempts to reposition her on her left side. Unfortunately, the repositioning moved her from plagio to brachy, but that's another story. Anyway, having had a full PT eval, I know that I don't need to be worried about any kind of tort because the PT would have found it. So, if it would ease your mind, ask for the referral and look for a pediatric PT.

Neck advise please

Hi,I am thinking it is time to have 's neck evaluated more thoroughly. The most concerned so far other than me has been the chiropractor and all she says is his neck is a little off and then she adjusts it. was never diagnosed with torticollis and I am fairly confident he never had it. (Thinking back, I think my 5.5 year old had mild torticollis that led to his plagio.) has a preference to turn right, especially when sleeping, but he never had a head tilt. He is able to turn both directions. He just turns right more than left. When he is sleeping on his back, he sometimes turns so far that his chin is to his shoulder. I had noticed it less since he started the chiropractor visits last May. However, lately it has regressed. This may be because he started daycare in Jan and he will only nap there sitting up! He sleeps in a low rocking chair at daycare. When the teachers try to lay him down, he wakes up. We are surprised that he refuses to nap like the other kids. This has me very worried about his neck. Besides when we remove the helmet, I would prefer he did not favor sleeping on his flat spot.For those of you taking your children for neck therapy, who diagnosed the neck problems? Was it the pediatrician? Should I see a physical therapist? Are there neck specialists? We are in the process of switching pediatricians. The old one wasn't concerned about the neck, but then I am switching because of her casual attitude about multiple things, including the head. Should I take into the new pediatrician before his next scheduled check up, which isn't until June? Any advise on what to do about the neck? Thanks in advance. I don't know what I would do without this group during this difficult time.BTW, I'm so relieved to finally being switching pediatricians! It is mentally a tiny bit of closure to this plagio ordeal.Thanks,Kathy, mom to almost 21 months, almost 9 months in Starband

[Guest guest]

I think you are right to be concerned about sleeping in the chair, weather there is a neck issue or not sleeping bent neck is not good. I think an eval with a pediatric PT would be a good idea. For my son I had to ask the ped about it and she referred us to a PT, the first of which was not a pediatric one, the next one we saw was and there was a big difference in the abiltity to help him in our case.btw, I am trying to change peds for the very same reasons , very frustrating! good luck with your new one!le 9mosFrom: Kathy Lora Jensen <kathylorajensen@...>Plagiocephaly Sent: Wed, February 24, 2010 4:56:50 PMSubject: Neck advise please

Hi,

I am thinking it is time to have 's neck evaluated more

thoroughly. The most concerned so far other than me has been the

chiropractor and all she says is his neck is a little off and then she

adjusts it. was never diagnosed with torticollis and I am fairly

confident he never had it. (Thinking back, I think my 5.5 year old had

mild torticollis that led to his plagio.) has a preference to turn

right, especially when sleeping, but he never had a head tilt. He is

able to turn both directions. He just turns right more than left. When

he is sleeping on his back, he sometimes turns so far that his chin is

to his shoulder. I had noticed it less since he started the

chiropractor visits last May.

However, lately it has regressed. This may be because he started

daycare in Jan and he will only nap there sitting up! He sleeps in a

low rocking chair at daycare. When the teachers try to lay him down, he

wakes up. We are surprised that he refuses to nap like the other kids.

This has me very worried about his neck. Besides when we remove the

helmet, I would prefer he did not favor sleeping on his flat spot.

For those of you taking your children for neck therapy, who diagnosed

the neck problems? Was it the pediatrician? Should I see a physical

therapist? Are there neck specialists? We are in the process of

switching pediatricians. The old one wasn't concerned about the neck,

but then I am switching because of her casual attitude about multiple

things, including the head. Should I take into the new

pediatrician before his next scheduled check up, which isn't until June?

Any advise on what to do about the neck? Thanks in advance. I don't

know what I would do without this group during this difficult time.

BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.

Thanks,

Kathy, mom to almost 21 months, almost 9 months in Starband

[Guest guest]

Hi,

Thanks.  We live in the Silicon Valley area of CA.  So, if anyone has a

referral for a pediatric PT who has experience with toddler neck

issues, please let me know. 

Thanks,

Kathy, mom to almost 21 months

McLaughlin wrote:

 

I think I would get a PT eval.   It can't hurt and it can

only ease your mind.  I would just call and ask the pediatrician for a

referral.  If they refuse to give it to you, that is another reason to

switch pediatricians.   Where do you live?  My daughter was in PT for

about 6 months.  I LOVED her PT.  He convinced me to go forward with

the first and second DOC bands.   She no longer has torticollis!  Also,

make sure you go to a pediatric PT!  I had to fight to get the one I

wanted.  I went to a PT with my son, 3 years ago who obviously didn't

see kids at all, so I learned my lesson.  Even if you have to drive to

see a PT that specializes in children, it is so worth it!

 

HTH.

 

Mom to Paige, 12 months old

Woodbridge, VA

Doc Band #1 - 4 months

Doc Band #2 - 1 month

From: Kathy Lora Jensen <kathylorajensengmail>

Subject: Neck advise please

Plagiocephaly

Date: Wednesday, February 24, 2010, 7:56 PM

 

Hi,

I am thinking it is time to have 's neck evaluated more

thoroughly. The most concerned so far other than me has been the

chiropractor and all she says is his neck is a little off and then she

adjusts it. was never diagnosed with torticollis and I am fairly

confident he never had it. (Thinking back, I think my 5.5 year old had

mild torticollis that led to his plagio.) has a preference to turn

right, especially when sleeping, but he never had a head tilt. He is

able to turn both directions. He just turns right more than left. When

he is sleeping on his back, he sometimes turns so far that his chin is

to his shoulder. I had noticed it less since he started the

chiropractor visits last May.

However, lately it has regressed. This may be because he started

daycare in Jan and he will only nap there sitting up! He sleeps in a

low rocking chair at daycare. When the teachers try to lay him down, he

wakes up. We are surprised that he refuses to nap like the other kids.

This has me very worried about his neck. Besides when we remove the

helmet, I would prefer he did not favor sleeping on his flat spot.

For those of you taking your children for neck therapy, who diagnosed

the neck problems? Was it the pediatrician? Should I see a physical

therapist? Are there neck specialists? We are in the process of

switching pediatricians. The old one wasn't concerned about the neck,

but then I am switching because of her casual attitude about multiple

things, including the head. Should I take into the new

pediatrician before his next scheduled check up, which isn't until

June?

Any advise on what to do about the neck? Thanks in advance. I don't

know what I would do without this group during this difficult time.

BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.

Thanks,

Kathy, mom to almost 21 months, almost 9 months in Starband

[Guest guest]

Hi,

That is interesting.  My son had internal skull base asymmetries. 

My husband takes my son to an osteopath.   My understanding is that the

osteopath believes the root cause of my son's plagio is that he was

born with internal skull base asymmetries.  It is so odd that according

to our memory and all pictures, my son had no plagio at even 3 to 4

months.  That is our pediatrician's recollection too since she actually

refers babies on for helmets, but she stopped checking for plagio after

the 4 month visit.

-Kathy, mom to almost 21 months in Starband since 12 months

JenandLuli@... wrote:

 

My dd was diagnosed by our ped... but I had to do my own research

and

bring it up and ask about tort before she got a dx.

And acually, my dd's tort wasn't the classic muscle tort, her's is

actually a structural asymmetry in her skull base and irregularities in

her spinal cord.

You can learn alot about tort just by googlng. You can find alot of

pictures, illustrations and descriptions of tort.

Jen

Mom to Luli - 4 yrs old

Torticollis, Plagio, Syringomyelia

Neck advise please

Hi,

I am thinking it is time to have 's neck evaluated more

thoroughly. The most concerned so far other than me has been the

chiropractor and all she says is his neck is a little off and then she

adjusts it. was never diagnosed with torticollis and I am fairly

confident he never had it. (Thinking back, I think my 5.5 year old had

mild torticollis that led to his plagio.) has a preference to

turn

right, especially when sleeping, but he never had a head tilt. He is

able to turn both directions. He just turns right more than left.

When

he is sleeping on his back, he sometimes turns so far that his chin is

to his shoulder. I had noticed it less since he started the

chiropractor visits last May.

However, lately it has regressed. This may be because he started

daycare in Jan and he will only nap there sitting up! He sleeps in a

low rocking chair at daycare. When the teachers try to lay him down,

he

wakes up. We are surprised that he refuses to nap like the other kids.

This has me very worried about his neck. Besides when we remove the

helmet, I would prefer he did not favor sleeping on his flat spot.

For those of you taking your children for neck therapy, who diagnosed

the neck problems? Was it the pediatrician? Should I see a physical

therapist? Are there neck specialists? We are in the process of

switching pediatricians. The old one wasn't concerned about the neck,

but then I am switching because of her casual attitude about multiple

things, including the head. Should I take into the new

pediatrician before his next scheduled check up, which isn't until

June?

Any advise on what to do about the neck? Thanks in advance. I don't

know what I would do without this group during this difficult time.

BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.

Thanks,

Kathy, mom to almost 21 months, almost 9 months in Starband

[Guest guest]

Hi,

Thanks.  I'll ask the chiro the next visit.  I know she adjusts 's

neck and then it is out again by the next visit.  Lately it has been

worse I believe because was sleeping upright in the chair at

daycare.  Good news is the teacher told me started sleeping lying

down in the chair.  's head never tilted much either.  ('s

did for about the first month.)  's head turns right more than

left.  We didn't notice for many months because we were watching for a

tilt like had.  I thought 's neck was in great shape.  We

tried to reposition since birth, but that meant rotating his head

postition so we actually put him on his bad side part of the time. :|( 

It is all so frustrating!

I'm going to search for a pediatric PT just to be safe.

Thanks,

Kathy

wrote:

 

Kathy,

 

Our chiro says that it is common for little ones to keep having

their neck go out of alignment because they are so active. Have you

asked your chiro whether he is concerned that it is more than typical?

If so, does he think it's a spinal alignment issue or a muscular issue?

I ask because the chiro is the best treatment if it is the spine and

the PT is the best if it is something else. If it's the spine, then

perhaps he just isn't holding between appointments. needed 3

times a week appointments for about 2 months before she started holding

at all.

 

It probably wouldn't hurt to get a PT eval if you are concerned.

also tended to sleep more on her right side when she was

younger but her head was never tilted much. And, she didn't resist my

attempts to reposition her on her left side. Unfortunately, the

repositioning moved her from plagio to brachy, but that's another

story. Anyway, having had a full PT eval, I know that I don't need to

be worried about any kind of tort because the PT would have found it.

So, if it would ease your mind, ask for the referral and look for a

pediatric PT.

 

 

Neck advise please

 

Hi,

I am thinking it is time to have 's neck evaluated more

thoroughly. The most concerned so far other than me has been the

chiropractor and all she says is his neck is a little off and then she

adjusts it. was never diagnosed with torticollis and I am fairly

confident he never had it. (Thinking back, I think my 5.5 year old had

mild torticollis that led to his plagio.) has a preference to turn

right, especially when sleeping, but he never had a head tilt. He is

able to turn both directions. He just turns right more than left. When

he is sleeping on his back, he sometimes turns so far that his chin is

to his shoulder. I had noticed it less since he started the

chiropractor visits last May.

However, lately it has regressed. This may be because he started

daycare in Jan and he will only nap there sitting up! He sleeps in a

low rocking chair at daycare. When the teachers try to lay him down, he

wakes up. We are surprised that he refuses to nap like the other kids.

This has me very worried about his neck. Besides when we remove the

helmet, I would prefer he did not favor sleeping on his flat spot.

For those of you taking your children for neck therapy, who diagnosed

the neck problems? Was it the pediatrician? Should I see a physical

therapist? Are there neck specialists? We are in the process of

switching pediatricians. The old one wasn't concerned about the neck,

but then I am switching because of her casual attitude about multiple

things, including the head. Should I take into the new

pediatrician before his next scheduled check up, which isn't until

June?

Any advise on what to do about the neck? Thanks in advance. I don't

know what I would do without this group during this difficult time.

BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.

Thanks,

Kathy, mom to almost 21 months, almost 9 months in Starband

[Guest guest]

Kathy, We've been seeing a pt at Lucile packard children's hospital. She is great. We have palo alto medical as our HMO group and pediatric pt is through Lucile packard. I know this is somewhat in your area. It was our pt that gave us the info about cirs and why we even got the helmet in the first place. DianeMom to STARband since Oct. Sent from my iPhoneOn Feb 26, 2010, at 4:34 PM, Kathy Lora Jensen <kathylorajensen@...> wrote:

Hi,

Thanks. I'll ask the chiro the next visit. I know she adjusts 's

neck and then it is out again by the next visit. Lately it has been

worse I believe because was sleeping upright in the chair at

daycare. Good news is the teacher told me started sleeping lying

down in the chair. 's head never tilted much either. ('s

did for about the first month.) 's head turns right more than

left. We didn't notice for many months because we were watching for a

tilt like had. I thought 's neck was in great shape. We

tried to reposition since birth, but that meant rotating his head

postition so we actually put him on his bad side part of the time. :|(

It is all so frustrating!

I'm going to search for a pediatric PT just to be safe.

Thanks,

Kathy

wrote:

Kathy,

Our chiro says that it is common for little ones to keep having

their neck go out of alignment because they are so active. Have you

asked your chiro whether he is concerned that it is more than typical?

If so, does he think it's a spinal alignment issue or a muscular issue?

I ask because the chiro is the best treatment if it is the spine and

the PT is the best if it is something else. If it's the spine, then

perhaps he just isn't holding between appointments. needed 3

times a week appointments for about 2 months before she started holding

at all.

It probably wouldn't hurt to get a PT eval if you are concerned.

also tended to sleep more on her right side when she was

younger but her head was never tilted much. And, she didn't resist my

attempts to reposition her on her left side. Unfortunately, the

repositioning moved her from plagio to brachy, but that's another

story. Anyway, having had a full PT eval, I know that I don't need to

be worried about any kind of tort because the PT would have found it.

So, if it would ease your mind, ask for the referral and look for a

pediatric PT.

Neck advise please

Hi,

I am thinking it is time to have 's neck evaluated more

thoroughly. The most concerned so far other than me has been the

chiropractor and all she says is his neck is a little off and then she

adjusts it. was never diagnosed with torticollis and I am fairly

confident he never had it. (Thinking back, I think my 5.5 year old had

mild torticollis that led to his plagio.) has a preference to turn

right, especially when sleeping, but he never had a head tilt. He is

able to turn both directions. He just turns right more than left. When

he is sleeping on his back, he sometimes turns so far that his chin is

to his shoulder. I had noticed it less since he started the

chiropractor visits last May.

However, lately it has regressed. This may be because he started

daycare in Jan and he will only nap there sitting up! He sleeps in a

low rocking chair at daycare. When the teachers try to lay him down, he

wakes up. We are surprised that he refuses to nap like the other kids.

This has me very worried about his neck. Besides when we remove the

helmet, I would prefer he did not favor sleeping on his flat spot.

For those of you taking your children for neck therapy, who diagnosed

the neck problems? Was it the pediatrician? Should I see a physical

therapist? Are there neck specialists? We are in the process of

switching pediatricians. The old one wasn't concerned about the neck,

but then I am switching because of her casual attitude about multiple

things, including the head. Should I take into the new

pediatrician before his next scheduled check up, which isn't until

June?

Any advise on what to do about the neck? Thanks in advance. I don't

know what I would do without this group during this difficult time.

BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.

Thanks,

Kathy, mom to almost 21 months, almost 9 months in Starband