Re: I have a question for anyone with kids that are a little bit older (about 4)

[Guest guest]

Zach is 3 1/2 and is still wearing the DBB at nights (10 hours).

We're heading out to Iowa this summer for a checkup. (Zach will be

4). I don't really know what to anticipate. If Dr. P tells us to

wear it for another year, we'll do it without a problem. We're lucky

that Zach doesn't ever make mention of the fact that he has to wear

" shoes " to bed. You know, even if Dr. P tells us we'd be okay with

discontinuing its use - I think we'd opt to wear it for another year.

Holly

Zachary 7/27/02

Unilateral Right C/F

Treated by Dr. Ponseti

DBB Nights Only

>

> Is anyone else still in the FAB at night? And not just because you

> want to.... but because it is still being required by your doctor?

> is still wearing her FAB for about 14-16 hours, and this is per

> Dr. Ponseti as of our last appt in August last year. We will be

> having our follow up on March 17 and are curious to see what he has to

> say. really wants Dr. Ponseti to tell her that she doesn't need

> to wear her " special shoes " anymore.

> With just reading about the Soccer and Ballet update from Theresa, it

> just got me curious how some of our older kids are doing!

>

> in Iowa, mommy to 4yrs., bilateral clubfoot

>

[Guest guest]

Holly,

I hope that you didn't misunderstand.... I am not complaining about

her wearing her shoes, not at all... infact it makes me feel better

with her wearing them. But she really began protesting about

2 1/2 mos ago and has even gone as far as telling me she wanted to

call Dr. Ponseti and tell him that she was done!!! LOL I told her

that it was not up for discussion and that if she wanted to play

soccer like she wants to she HAD to wear the shoes!!

is the type of girl who is ALWAYS going.... I swear I think

she even talks and runs in her sleep, LOL, she dosen't want to be

held up by anything. Put it this way she WALKS down the stairs in

her FAB!!! Talk about instant heart attack for mommy!!! LOL

in Iowa, mommy to 4yrs. 11/12/01, bilateral clubfoot

> >

> > Is anyone else still in the FAB at night? And not just because

you

> > want to.... but because it is still being required by your

doctor?

> > is still wearing her FAB for about 14-16 hours, and this

is per

> > Dr. Ponseti as of our last appt in August last year. We will

be

> > having our follow up on March 17 and are curious to see what he

has to

> > say. really wants Dr. Ponseti to tell her that she

doesn't need

> > to wear her " special shoes " anymore.

> > With just reading about the Soccer and Ballet update from

Theresa, it

> > just got me curious how some of our older kids are doing!

> >

> > in Iowa, mommy to 4yrs., bilateral clubfoot

> >

>

[Guest guest]

Now there's a sight I'd like to see! Heart attack is right!

wrote:

Holly,

I hope that you didn't misunderstand.... I am not complaining about

her wearing her shoes, not at all... infact it makes me feel better

with her wearing them. But she really began protesting about

2 1/2 mos ago and has even gone as far as telling me she wanted to

call Dr. Ponseti and tell him that she was done!!! LOL I told her

that it was not up for discussion and that if she wanted to play

soccer like she wants to she HAD to wear the shoes!!

is the type of girl who is ALWAYS going.... I swear I think

she even talks and runs in her sleep, LOL, she dosen't want to be

held up by anything. Put it this way she WALKS down the stairs in

her FAB!!! Talk about instant heart attack for mommy!!! LOL

in Iowa, mommy to 4yrs. 11/12/01, bilateral clubfoot

> >

> > Is anyone else still in the FAB at night? And not just because

you

> > want to.... but because it is still being required by your

doctor?

> > is still wearing her FAB for about 14-16 hours, and this

is per

> > Dr. Ponseti as of our last appt in August last year. We will

be

> > having our follow up on March 17 and are curious to see what he

has to

> > say. really wants Dr. Ponseti to tell her that she

doesn't need

> > to wear her " special shoes " anymore.

> > With just reading about the Soccer and Ballet update from

Theresa, it

> > just got me curious how some of our older kids are doing!

> >

> > in Iowa, mommy to 4yrs., bilateral clubfoot

> >

>

[Guest guest]

,

At 4 years, she is wearing them 14-16 hours? Wow, that seems like a lot for a

4 year-old. Shouldn't she be down to 12 hours?

I'm just curious.

My daughter just turned 2 as wears her FAB (s) 12-14 hours.

wrote:

Is anyone else still in the FAB at night? And not just because you

want to.... but because it is still being required by your doctor?

is still wearing her FAB for about 14-16 hours, and this is per

Dr. Ponseti as of our last appt in August last year. We will be

having our follow up on March 17 and are curious to see what he has to

say. really wants Dr. Ponseti to tell her that she doesn't need

to wear her " special shoes " anymore.

With just reading about the Soccer and Ballet update from Theresa, it

just got me curious how some of our older kids are doing!

in Iowa, mommy to 4yrs., bilateral clubfoot

[Guest guest]

,

Yes, She is still doing 14-16 hours per Dr.Ponseti.... If I am

remembering right he said something about her having very strong

supinators, so I would assume that is the reason she is still in the

FAB so long. We go back to see him on March 17.

in Iowa, mommy to 4yrs., bilateral clubfoot

> Is anyone else still in the FAB at night? And not just because

you

> want to.... but because it is still being required by your

doctor?

> is still wearing her FAB for about 14-16 hours, and this

is per

> Dr. Ponseti as of our last appt in August last year. We will be

> having our follow up on March 17 and are curious to see what he

has to

> say. really wants Dr. Ponseti to tell her that she doesn't

need

> to wear her " special shoes " anymore.

> With just reading about the Soccer and Ballet update from Theresa,

it

> just got me curious how some of our older kids are doing!

>

> in Iowa, mommy to 4yrs., bilateral clubfoot

>

>

>

>

>

>

[Guest guest]

yeah, I totally read it wrong - which isn't surprising. I was leaving

Zach's room the other night and he yells " Mommmmmmmmmma, you forgot to

tie my shoes " - oy vey. Also, I totally didn't read that your little

one was 4 - I was thinking she was younger. Why? I have no idea.

Anyhoo, so THIS is what I have to look forward to eh? Zach never

complains. We keep thinking it's coming - when is it coming? And he

just goes with the flow. My guess is, once he gets even older he'll

start to realize his little brother isn't wearing any shoes to bed and

complain that he has to (keeping my fingers crossed that he doesn't).

That's too funny that she'll walk down the stairs in her DBB. That

would scare me to death. We don't let Zach walk in his because we

kept having troubles with the screws coming loose and falling out.

We've had to replace two bars early because of it. So now he's bummed

because we don't even let him get out of bed wearing it, he has to

yell for us and we'll take it off. Pain in the rear when he has to go

to the bathroom in the middle of the night.

Sorry for not reading more carefully - blame it on....oh I don't know.

Mommy brain, something like that! LOL

Holly

Zachary 7/27/02

Unilateral Right C/F

Treated by Dr. Ponseti

DBB Nights Only

> > >

> > > Is anyone else still in the FAB at night? And not just because

> you

> > > want to.... but because it is still being required by your

> doctor?

> > > is still wearing her FAB for about 14-16 hours, and this

> is per

> > > Dr. Ponseti as of our last appt in August last year. We will

> be

> > > having our follow up on March 17 and are curious to see what he

> has to

> > > say. really wants Dr. Ponseti to tell her that she

> doesn't need

> > > to wear her " special shoes " anymore.

> > > With just reading about the Soccer and Ballet update from

> Theresa, it

> > > just got me curious how some of our older kids are doing!

> > >

> > > in Iowa, mommy to 4yrs., bilateral clubfoot

> > >

> >

>

[Guest guest]

Holly,

Have you considered the PM FAB?? Jeez, it's so flat and nice for

walking. Sure, wears down the bottoms but I have yet to have to

*replace* the caps although I did order a set from for in case for $10.

Darbi's foot is at size 6-1/2 regular shoes and her new PM's have

plenty of room in the toes, about 3/4 " IIRC. is working on the

larger sizes now so it's possible he could wear these till the finale.

Maybe?

Kori

At 11:40 AM 3/4/2006, you wrote:

>yeah, I totally read it wrong - which isn't surprising. I was leaving

>Zach's room the other night and he yells " Mommmmmmmmmma, you forgot to

>tie my shoes " - oy vey. Also, I totally didn't read that your little

>one was 4 - I was thinking she was younger. Why? I have no idea.

>Anyhoo, so THIS is what I have to look forward to eh? Zach never

>complains. We keep thinking it's coming - when is it coming? And he

>just goes with the flow. My guess is, once he gets even older he'll

>start to realize his little brother isn't wearing any shoes to bed and

>complain that he has to (keeping my fingers crossed that he doesn't).

> That's too funny that she'll walk down the stairs in her DBB. That

>would scare me to death. We don't let Zach walk in his because we

>kept having troubles with the screws coming loose and falling out.

>We've had to replace two bars early because of it. So now he's bummed

>because we don't even let him get out of bed wearing it, he has to

>yell for us and we'll take it off. Pain in the rear when he has to go

>to the bathroom in the middle of the night.

>

>Sorry for not reading more carefully - blame it on....oh I don't know.

> Mommy brain, something like that! LOL

>

>Holly

>Zachary 7/27/02

>Unilateral Right C/F

>Treated by Dr. Ponseti

>DBB Nights Only

>

>

> > > >

> > > > Is anyone else still in the FAB at night? And not just because

> > you

> > > > want to.... but because it is still being required by your

> > doctor?

> > > > is still wearing her FAB for about 14-16 hours, and this

> > is per

> > > > Dr. Ponseti as of our last appt in August last year. We will

> > be

> > > > having our follow up on March 17 and are curious to see what he

> > has to

> > > > say. really wants Dr. Ponseti to tell her that she

> > doesn't need

> > > > to wear her " special shoes " anymore.

> > > > With just reading about the Soccer and Ballet update from

> > Theresa, it

> > > > just got me curious how some of our older kids are doing!

> > > >

> > > > in Iowa, mommy to 4yrs., bilateral clubfoot

> > > >

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

hehehe No problem Holly!

I think that has realized that her older brother dosen't

have to wear shoes so why does she... And I have tried everything

short of tieing her to the bed to keep her from coming down the

stairs.... *sigh*

I am surprised that we are still on her original bar, I thought for

sure we would have had to replace it several times by now. But I

think it is because she is relativly small girl!

in Iowa, mommy to 4yrs. 11/12/01, bilateral clubfoot

> > > >

> > > > Is anyone else still in the FAB at night? And not just

because

> > you

> > > > want to.... but because it is still being required by your

> > doctor?

> > > > is still wearing her FAB for about 14-16 hours, and

this

> > is per

> > > > Dr. Ponseti as of our last appt in August last year. We

will

> > be

> > > > having our follow up on March 17 and are curious to see what

he

> > has to

> > > > say. really wants Dr. Ponseti to tell her that she

> > doesn't need

> > > > to wear her " special shoes " anymore.

> > > > With just reading about the Soccer and Ballet update from

> > Theresa, it

> > > > just got me curious how some of our older kids are doing!

> > > >

> > > > in Iowa, mommy to 4yrs., bilateral clubfoot

> > > >

> > >

> >

>

[Guest guest]

Kori,

I have yet to see a PM FAB in person.... hmmm.... I will

bring up all of Becca's anticts to Dr. P the next time we are

there. We would have to wait for the larger sizes though as she

is wearing a 8 regular shoe. It defineatly sounds like a safer

option!

in Iowa, mommy to 4yrs. 11/12/01, bilateral clubfoot

> > > > >

> > > > > Is anyone else still in the FAB at night? And not just

because

> > > you

> > > > > want to.... but because it is still being required by your

> > > doctor?

> > > > > is still wearing her FAB for about 14-16 hours,

and this

> > > is per

> > > > > Dr. Ponseti as of our last appt in August last year. We

will

> > > be

> > > > > having our follow up on March 17 and are curious to see

what he

> > > has to

> > > > > say. really wants Dr. Ponseti to tell her that she

> > > doesn't need

> > > > > to wear her " special shoes " anymore.

> > > > > With just reading about the Soccer and Ballet update from

> > > Theresa, it

> > > > > just got me curious how some of our older kids are

doing!

> > > > >

> > > > > in Iowa, mommy to 4yrs., bilateral clubfoot

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

have send you an impression kit. This would be great for him to

work on designing the larger shoes. Right now the counter in the

heel is a bit low, and he needs more older kids to have impressions

of the heel and back calf area to be able to make these properly for

older kids.

He's sending me a molding sock thingie for Darbi's foot so we can

figure this out, I'm sure he'd be interested in 's feet too.

Kori

At 02:29 PM 3/4/2006, you wrote:

>Kori,

> I have yet to see a PM FAB in person.... hmmm.... I will

>bring up all of Becca's anticts to Dr. P the next time we are

>there. We would have to wait for the larger sizes though as she

>is wearing a 8 regular shoe. It defineatly sounds like a safer

>option!

>

> in Iowa, mommy to 4yrs. 11/12/01, bilateral clubfoot

>

>

>

> > > > > >

> > > > > > Is anyone else still in the FAB at night? And not just

>because

> > > > you

> > > > > > want to.... but because it is still being required by your

> > > > doctor?

> > > > > > is still wearing her FAB for about 14-16 hours,

>and this

> > > > is per

> > > > > > Dr. Ponseti as of our last appt in August last year. We

>will

> > > > be

> > > > > > having our follow up on March 17 and are curious to see

>what he

> > > > has to

> > > > > > say. really wants Dr. Ponseti to tell her that she

> > > > doesn't need

> > > > > > to wear her " special shoes " anymore.

> > > > > > With just reading about the Soccer and Ballet update from

> > > > Theresa, it

> > > > > > just got me curious how some of our older kids are

>doing!

> > > > > >

> > > > > > in Iowa, mommy to 4yrs., bilateral clubfoot

> > > > > >

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Interesting. I remember at our last visit that Dr. Tuck (who worked with

Dr. P. in Iowa for several years according to all the diplomas on his wall)

said something like " Dr. Ponseti never used to recommend wearing the fab

until 5 yrs. old. I don't know what could have changed after all these

years. " He told us originally that he (Dr. Tuck) likes the kids in the fab

for a good 2-3 years after casting, " depending on how long the kid will

tolerate it. " As I interpret that (I can ask at our next visit but

hopefully that won't be for a few months as things are going well), keep

him in the fab for at least two years - longer is great if they tolerate it

well, but if they're really can't stand it anymore AND aren't showing any

signs of relapse, it is ok after two years to stop, but he'd prefer 3

years. Of course, this is my recollection from visits over a year ago, so

I may not be remembering/interpreting it correctly.

- Seth

(meir, lcf, 1/29/04, fab 12/7 - at least for the next year)

At 11:49 PM 3/3/2006 +0000, you wrote:

>Is anyone else still in the FAB at night? And not just because you

>want to.... but because it is still being required by your doctor?

> is still wearing her FAB for about 14-16 hours, and this is per

>Dr. Ponseti as of our last appt in August last year. We will be

>having our follow up on March 17 and are curious to see what he has to

>say. really wants Dr. Ponseti to tell her that she doesn't need

>to wear her " special shoes " anymore.

>With just reading about the Soccer and Ballet update from Theresa, it

>just got me curious how some of our older kids are doing!

>

> in Iowa, mommy to 4yrs., bilateral clubfoot

>

>

>

>

>

>