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Re: Help...Blisters,sores,and A-Typical

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Dr. Ponseti had told us at one point to turn our shoes in more, about what he

told you. We have also had some sore issues lately and have left Janelyse out of

her shoes a night here and there trying to get the red spots to go away. I also

stretch her foot all the time, mainly to check for relapse and to maintain

dorsiflexion. So far she is totally fine. Her dr. saw her foot yesterday and

said it looks beautiful. I do want to point out that she is in a hip spica cast

and her feet are not exactly at the same level so that may have something to do

with the red spots on her foot and heel. So far so good though :)

Hang in there!

Marcia

Help...Blisters,sores,and A-Typical

Oh, where to begin! :o(

Lilee has gotten another sore (her 2nd) on her feet from her P/M.

It's really not the make of the shoes, its her foot. She has a very

pudgy foot, and alot of extra skin. She gets the sores on the inner

side of her foot where the middle strap goes. Turns real redish,

sometimes purplish, then the skin peels off and theres an open

sore/blister. We tried to alter them a little with no luck. I emailed

Dr. Ponseti, and the pics of this and whats going on.

and Dr. Ponseti have ordered me to take them off her. Dr.

Ponseti isnt happy about her not being in a healing cast, but we dont

have much choice. is making her a new pair of shoes with a

sliding bigger tongue to try and pull the pressure away from the

middle strap. He said if it doesnt work, hes got another idea. Didn't

ask what. And if they dont work, then we will need to make a trip to

Iowa so they can do hands on with her foot to make it work. Dr.

Ponseti said the Dobbs brace would NOT work for Lilee. Said that it

wouldnt hold her foot securley enough. He said in some pictures (the

ones of her standing), that her foot looks perfectly corrected. In

others he said that the deep crease in the heel area concerned him

because that generally means that there isnt enough correction. He

wants us to turn her brace in with the new shoes down to 40-50

degrees! WOW! Has anyone else had to do this? He said maybe her heel

was a little too corrected, and that turning it in will help the body

tighten that extra skin and pull the crease, extra skin away. He said

if she continues to have issues and/or she loses correction we will

need to go any see him again. She will get her new shoes on Monday,

so that is 5 days total with NO brace. They want her to heal the

sore. I have to admit it, that scares me! I have been doing the Dobbs

stretches 2X daily. So far so good I think! God, I hope things will

be Ok and work out! Anyone else having issues? Anyone else had to

turn the shoes back in? I'm scared. It seems like a neverending

battle. Thanks to all in advance!

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I also told Dr. Ponseti about Lilees knot under her Tenotomy scar. He said that

sometimes/rarely the Tendon will grow out of its sheeth and kinda ball up there.

Anyone else expierence this? Did it pose a problem?

Christee

Mother of...

*Josh~Learning/Speech Delays (9)

**Aspen~ Bilateral Metatarsus Adductus (6)

***Dylan~PTSD/Anxiety (4)

****Lilee~A-Typical UCF w/Plantaris ® & Metatarsus Adductus (L)

*P/M Brace 16-18/24.Struggling w/pressure sores (8 months)

Concidering Dobbs bar & braces

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