Re: Autumn update and new sister

[Guest guest]

,

I don't have any knowledge to share with you regarding Summer's

condition, but I do want to welcome her into your family. She is

getting off to a rough start, but she is getting good care and I

just know she will come through okay.

Now, as for you, you need to make sure you are taking care of

yourself! I hope you are getting much needed rest. It is so

stressful to have a new baby without problems and with Summer in the

NICU, it just makes things so much more complicated. Try to get

lots of sleep, 'cause you're going to need it once Summer goes home!

In the meantime, I know you all will be in my prayers and I'm sure

in the prayers of many others on this listserve. Please keep us

updated. If nothing else, it helps to put your feelings into words

and release some of the worry, frustration and anxiety.

Jodi Z

P.S. Max has dealt with OCD, anxiety and PDD-like symptoms (not

Aspberger's, but still.....). With the exception of a rough night

tonight, he has largely overcome these issues and learned to deal

with them in a healthy manner. It's taken a lot of time, money,

patience and dedication to get him where he is, but he is so much

better than he ever has been. I am telling you this to give you

hope about Skye. It all seems like so much now, but hang in there.

It WILL get better!

[Guest guest]

Congratulations on your new addition! I hope that you discover

answers. I have read in some research about SGA-born children

(especially late-trimester IUGR) that once one sibling is born this

way, the risks are significantly higher for a second sibling to be

born SGA. (Now, this is not necessarily the same as children born

with short SGA -- complicated).

I am confident that your daughter is in great hands at that

hospital, and that they will figure out what is going on and help

her. Please know that we are thinking of you and your new

daughter. Prayers are with you!

> Hi all. I just wrote a post and it vanished when I hit send. I

> just wanted to ask you all a question. Autumn is doing good, she

is

> up to 17 lbs as of a couple of days ago. I have not posted in a

> while due to our computer crashing about 1.5 mos ago, I am now

> postin from the hospital. I gave birth to my new daughter Summer

> Rose last Friday. She had been closely followed with ultrasounds

> and it was noticed she ahd stopped growing 2 weeks earlier so they

> got me to the hospital immidiatle and induceds. She was born at 4

> lbs 13 oz, tiny little but was doing well. Went home sunday

> then tuesday she turned totally blue during a feed, I got her to

> come back with lots of stimulation and we went to the er. she is

> now in the rcnic (neonatal intensive care) at childrens here in

> cinci ohio. they think it may be reflux and she shuts of her

> airways then her stats drop drastically and she get no oxygen adn

> needs stimulation to come back, and we are trying to figure out

> whjat is up. I feed her in a sitting position now it is helping.

> she has had barium swallow and upper gi tests, all normal, antoher

> endscopy test on monday to check her out. any one had this

happen?

> they also wanted genetics to look at her because htey said feeing

> pros and her size could mean syndrome...anyways, she is

> proportionate, acutally her head is small, so was autumns at birth

> too, I was told because couldnt grow righ in womb, so once out it

> shot up catch up growth to 50% and ther has sstayed, but her body

> never caught up. I dont' know what is going on now. This is

been

> crazy 2 months...mymom got breast cancer, good news is it didn't

> spread adn radiation and lumpectomy should be enough, son Skye ahd

> neck lump removed (benign, yippe) and jsut got diagnosed last week

> with aspergers anxiety and ocd after mos of evals at childrens.

he

> also is on periactin and gained 4 lbs in a month...he hadn't

gained

> any in over a year and is really small and skinny, docs dont' know

> why, was born ave size....any ways, any one experiecned reflux

like

> this?

> thanks.

>

> mom t Autumn almost 18 mso.RSS Summer 6 days, Skye 6.5

> yrs, Ocean 3 yrs

[Guest guest]

-this brings back a few memories....not medically...my step daughter

is summer rose and she weighed 5 13' when she was born...anyway, kyla

had severe reflux but never to the point where she turned blue and

shut her airways,,,,,, i am sorry to hear about her, and take care of

yourself and the rest, i pray for your family for the hell you are

going through.........stephanei kyla 4 rss jonathan 21 months, non

rss

-- In RSS-Support , " anderkat3 " <anderkat3@y...> wrote:

> Hi all. I just wrote a post and it vanished when I hit send. I

> just wanted to ask you all a question. Autumn is doing good, she

is

> up to 17 lbs as of a couple of days ago. I have not posted in a

> while due to our computer crashing about 1.5 mos ago, I am now

> postin from the hospital. I gave birth to my new daughter Summer

> Rose last Friday. She had been closely followed with ultrasounds

> and it was noticed she ahd stopped growing 2 weeks earlier so they

> got me to the hospital immidiatle and induceds. She was born at 4

> lbs 13 oz, tiny little but was doing well. Went home sunday

> then tuesday she turned totally blue during a feed, I got her to

> come back with lots of stimulation and we went to the er. she is

> now in the rcnic (neonatal intensive care) at childrens here in

> cinci ohio. they think it may be reflux and she shuts of her

> airways then her stats drop drastically and she get no oxygen adn

> needs stimulation to come back, and we are trying to figure out

> whjat is up. I feed her in a sitting position now it is helping.

> she has had barium swallow and upper gi tests, all normal, antoher

> endscopy test on monday to check her out. any one had this happen?

> they also wanted genetics to look at her because htey said feeing

> pros and her size could mean syndrome...anyways, she is

> proportionate, acutally her head is small, so was autumns at birth

> too, I was told because couldnt grow righ in womb, so once out it

> shot up catch up growth to 50% and ther has sstayed, but her body

> never caught up. I dont' know what is going on now. This is been

> crazy 2 months...mymom got breast cancer, good news is it didn't

> spread adn radiation and lumpectomy should be enough, son Skye ahd

> neck lump removed (benign, yippe) and jsut got diagnosed last week

> with aspergers anxiety and ocd after mos of evals at childrens. he

> also is on periactin and gained 4 lbs in a month...he hadn't gained

> any in over a year and is really small and skinny, docs dont' know

> why, was born ave size....any ways, any one experiecned reflux like

> this?

> thanks.

>

> mom t Autumn almost 18 mso.RSS Summer 6 days, Skye 6.5

> yrs, Ocean 3 yrs

[Guest guest]

hi katherine!

i dont have any experience with reflux but wanted to post to you to let

you know your whole family is in my thoughts and prayers!! congrates

on summer's birth, i hope all will be figured out and well for her

soon!! ((hugs)) to your mom!! glad to hear autumn is doing well and

that you have answere to all your testing with skye!! hang in there

and keep us posted!! i am sure someone on here with more reflux

experience will post back to you!! ((HUGS))

jodie c

[Guest guest]

Hey ,

Sounds like you have a lot going on. Like Jodi Z said

make sure you get rest as often as you can. First

congratulations on baby Summer. I have no answer to

offer but will pray for her. I'm glad you finally got

an answer for Skye. It will make doing research and

asking questions easier now that you have an answer.

You also know that you will always get good advice,

help and support here. I am happy to hear Autumn is

doing well.

I will keep you all in my prayers. Please keep us

posted on Summer.

B

5 1/2 and Kelli 2 3/4

--- anderkat3 wrote:

> Hi all. I just wrote a post and it vanished when I

> hit send. I

> just wanted to ask you all a question. Autumn is

> doing good, she is

> up to 17 lbs as of a couple of days ago. I have not

> posted in a

> while due to our computer crashing about 1.5 mos

> ago, I am now

> postin from the hospital. I gave birth to my new

> daughter Summer

> Rose last Friday. She had been closely followed

> with ultrasounds

> and it was noticed she ahd stopped growing 2 weeks

> earlier so they

> got me to the hospital immidiatle and induceds. She

> was born at 4

> lbs 13 oz, tiny little but was doing well.

> Went home sunday

> then tuesday she turned totally blue during a feed,

> I got her to

> come back with lots of stimulation and we went to

> the er. she is

> now in the rcnic (neonatal intensive care) at

> childrens here in

> cinci ohio. they think it may be reflux and she

> shuts of her

> airways then her stats drop drastically and she get

> no oxygen adn

> needs stimulation to come back, and we are trying to

> figure out

> whjat is up. I feed her in a sitting position now

> it is helping.

> she has had barium swallow and upper gi tests, all

> normal, antoher

> endscopy test on monday to check her out. any one

> had this happen?

> they also wanted genetics to look at her because

> htey said feeing

> pros and her size could mean syndrome...anyways, she

> is

> proportionate, acutally her head is small, so was

> autumns at birth

> too, I was told because couldnt grow righ in womb,

> so once out it

> shot up catch up growth to 50% and ther has sstayed,

> but her body

> never caught up. I dont' know what is going on now.

> This is been

> crazy 2 months...mymom got breast cancer, good news

> is it didn't

> spread adn radiation and lumpectomy should be

> enough, son Skye ahd

> neck lump removed (benign, yippe) and jsut got

> diagnosed last week

> with aspergers anxiety and ocd after mos of evals at

> childrens. he

> also is on periactin and gained 4 lbs in a

> month...he hadn't gained

> any in over a year and is really small and skinny,

> docs dont' know

> why, was born ave size....any ways, any one

> experiecned reflux like

> this?

> thanks.

>

> mom t Autumn almost 18 mso.RSS Summer 6

> days, Skye 6.5

> yrs, Ocean 3 yrs

>

>

>

__________________________________________________

[Guest guest]

- first of all congratulations on your new baby girl. I don't know

anything about the reflux she is experiencing - I hope you find out the cause

and can figure this out. I will be praying for you and your family. Jane, mom

to katie - 22 months - 19lb, 29 " .

[Guest guest]

Glad to hear about Autumn! AND, congrats on the big arrival! I'm so

sorry things are going so well though with everything else.

Hopefully Childrens' in Cinncinnati is good. You know now because of

Autumn not to back down if they don't find anything. There should be

something they can tetll you or do I hope. Please let us know if

there is anything we can do to help.

, mom to , 5 adn Emerence 2 RSS/SGA 29 mo, Queen of

Stubbornness and Defiance 21lb 32 "

> Hi all. I just wrote a post and it vanished when I hit send. I

> just wanted to ask you all a question. Autumn is doing good, she

is

> up to 17 lbs as of a couple of days ago. I have not posted in a

> while due to our computer crashing about 1.5 mos ago, I am now

> postin from the hospital. I gave birth to my new daughter Summer

> Rose last Friday. She had been closely followed with ultrasounds

> and it was noticed she ahd stopped growing 2 weeks earlier so they

> got me to the hospital immidiatle and induceds. She was born at 4

> lbs 13 oz, tiny little but was doing well. Went home sunday

> then tuesday she turned totally blue during a feed, I got her to

> come back with lots of stimulation and we went to the er. she is

> now in the rcnic (neonatal intensive care) at childrens here in

> cinci ohio. they think it may be reflux and she shuts of her

> airways then her stats drop drastically and she get no oxygen adn

> needs stimulation to come back, and we are trying to figure out

> whjat is up. I feed her in a sitting position now it is helping.

> she has had barium swallow and upper gi tests, all normal, antoher

> endscopy test on monday to check her out. any one had this happen?

> they also wanted genetics to look at her because htey said feeing

> pros and her size could mean syndrome...anyways, she is

> proportionate, acutally her head is small, so was autumns at birth

> too, I was told because couldnt grow righ in womb, so once out it

> shot up catch up growth to 50% and ther has sstayed, but her body

> never caught up. I dont' know what is going on now. This is been

> crazy 2 months...mymom got breast cancer, good news is it didn't

> spread adn radiation and lumpectomy should be enough, son Skye ahd

> neck lump removed (benign, yippe) and jsut got diagnosed last week

> with aspergers anxiety and ocd after mos of evals at childrens. he

> also is on periactin and gained 4 lbs in a month...he hadn't gained

> any in over a year and is really small and skinny, docs dont' know

> why, was born ave size....any ways, any one experiecned reflux like

> this?

> thanks.

>

> mom t Autumn almost 18 mso.RSS Summer 6 days, Skye 6.5

> yrs, Ocean 3 yrs

[Guest guest]

Congratulations on the new baby! I will be praying for you and your family.

le mom to Datreon RSS

[Guest guest]

Hi ,

Congrats on the birth of Summer. I love her name. I am so sorry to

hear that you are dealing with so much right now, but hang in there.

I do have some thoughts on what Summer may be doing though. I emailed

you privately and I hope you can access the link that I sent. Let me

know if you can't. I am also going to try to put it on this post,

but you know how that goes. Here it is.

http://nips.med-web.com/Handouts/Individual%20Pages/ltm.htm

had trouble when he was born with blue spells after I would

try to feed him. And, he breathed weird in certain positions. It

was sort of loud. Have you noticed any loud breathing with her?

Anyway, this is just something you can read and see if it sounds like

her. The good thing is, she will grow out of it, if this is what is

going on. Their airways are very floopy so the slightest position

can set all of this off. I hope this helps you. Let us know what you

find out. The link will take you to a website on Tracheomalacia and

Laryngomalacia. They are very similar.

Take care and I am thinking about you,

Jodi R.

> Hi all. I just wrote a post and it vanished when I hit send. I

> just wanted to ask you all a question. Autumn is doing good, she

is

> up to 17 lbs as of a couple of days ago. I have not posted in a

> while due to our computer crashing about 1.5 mos ago, I am now

> postin from the hospital. I gave birth to my new daughter Summer

> Rose last Friday. She had been closely followed with ultrasounds

> and it was noticed she ahd stopped growing 2 weeks earlier so they

> got me to the hospital immidiatle and induceds. She was born at 4

> lbs 13 oz, tiny little but was doing well. Went home sunday

> then tuesday she turned totally blue during a feed, I got her to

> come back with lots of stimulation and we went to the er. she is

> now in the rcnic (neonatal intensive care) at childrens here in

> cinci ohio. they think it may be reflux and she shuts of her

> airways then her stats drop drastically and she get no oxygen adn

> needs stimulation to come back, and we are trying to figure out

> whjat is up. I feed her in a sitting position now it is helping.

> she has had barium swallow and upper gi tests, all normal, antoher

> endscopy test on monday to check her out. any one had this happen?

> they also wanted genetics to look at her because htey said feeing

> pros and her size could mean syndrome...anyways, she is

> proportionate, acutally her head is small, so was autumns at birth

> too, I was told because couldnt grow righ in womb, so once out it

> shot up catch up growth to 50% and ther has sstayed, but her body

> never caught up. I dont' know what is going on now. This is been

> crazy 2 months...mymom got breast cancer, good news is it didn't

> spread adn radiation and lumpectomy should be enough, son Skye ahd

> neck lump removed (benign, yippe) and jsut got diagnosed last week

> with aspergers anxiety and ocd after mos of evals at childrens. he

> also is on periactin and gained 4 lbs in a month...he hadn't gained

> any in over a year and is really small and skinny, docs dont' know

> why, was born ave size....any ways, any one experiecned reflux like

> this?

> thanks.

>

> mom t Autumn almost 18 mso.RSS Summer 6 days, Skye 6.5

> yrs, Ocean 3 yrs

[Guest guest]

Congratulations!! We will be thinking of you often and hope you keep us

posted!

Dayna

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of princessgs84@...

Sent: Friday, July 15, 2005 9:48 PM

To: RSS-Support

Subject: Re: Autumn update and new sister

Congratulations on the new baby! I will be praying for you and your family.

le mom to Datreon RSS

[Guest guest]

I haven't been on in a while....I just saw this post. Congrats on

the baby! Sorry you are having a tough time though...I hope things

get better quickly. How many weeks gestation were you?

I'm still holding here at 38 weeks....

take care,

Sheryl (Dalia, RSS, 20 mos, 18ish lbs, 29ish in, Prevacid,

Periactin, Mirilax) - new baby any day now

> Hi all. I just wrote a post and it vanished when I hit send. I

> just wanted to ask you all a question. Autumn is doing good, she

is

> up to 17 lbs as of a couple of days ago. I have not posted in a

> while due to our computer crashing about 1.5 mos ago, I am now

> postin from the hospital. I gave birth to my new daughter Summer

> Rose last Friday. She had been closely followed with ultrasounds

> and it was noticed she ahd stopped growing 2 weeks earlier so they

> got me to the hospital immidiatle and induceds. She was born at 4

> lbs 13 oz, tiny little but was doing well. Went home sunday

> then tuesday she turned totally blue during a feed, I got her to

> come back with lots of stimulation and we went to the er. she is

> now in the rcnic (neonatal intensive care) at childrens here in

> cinci ohio. they think it may be reflux and she shuts of her

> airways then her stats drop drastically and she get no oxygen adn

> needs stimulation to come back, and we are trying to figure out

> whjat is up. I feed her in a sitting position now it is helping.

> she has had barium swallow and upper gi tests, all normal, antoher

> endscopy test on monday to check her out. any one had this

happen?

> they also wanted genetics to look at her because htey said feeing

> pros and her size could mean syndrome...anyways, she is

> proportionate, acutally her head is small, so was autumns at birth

> too, I was told because couldnt grow righ in womb, so once out it

> shot up catch up growth to 50% and ther has sstayed, but her body

> never caught up. I dont' know what is going on now. This is

been

> crazy 2 months...mymom got breast cancer, good news is it didn't

> spread adn radiation and lumpectomy should be enough, son Skye ahd

> neck lump removed (benign, yippe) and jsut got diagnosed last week

> with aspergers anxiety and ocd after mos of evals at childrens.

he

> also is on periactin and gained 4 lbs in a month...he hadn't

gained

> any in over a year and is really small and skinny, docs dont' know

> why, was born ave size....any ways, any one experiecned reflux

like

> this?

> thanks.

>

> mom t Autumn almost 18 mso.RSS Summer 6 days, Skye 6.5

> yrs, Ocean 3 yrs