Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Our appt. with Dr H. went very well (new stats will be in my signature at the bottom). She tweaked Olivia's meds a bit and we discussed GHT in depth. We've found out that her OI (brittle bone disorder) will not become worse because of GH. Which means our Genetisist misinformed us greatly. I agree that GH is the best option for Olivia right now, weather or not she responds in height, she'll still get the full benefit of increased muscle tone, muscle mass, appetite, etc. which means she could have a much better quality of life and be a regular 5 year old instead of always tuckering out. So now our true battle begins with the Canadian government over GHT. Please wish us luck because this is probably going to take 1 to 2 years just for her to start GHT. Leah, mom to 10 and Olivia 5.5yrs, RSS, OI, 22lbs, 36 " , leg assemetry 1cm, mild kephosis. Quote Link to comment Share on other sites More sharing options...
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