RSS support IN SPANISH - apoyosrsrss

[Guest guest]

Hi,

I just wanted to let you all know in the past few months I have been

searching in the internet in English and Spanish for RSS / SGA

kids/people. I have found several medical case studies and have

emailed Switzerland and Ireland and gotten emails back with promises to

spread the word about MAGIC and (can't remember name right now) group

in England! ALSO, just got my first contact from a dad in Spain off of

a bunch of messages I left on some health chat webboards.

SO, a have thought about lauching a mirror support board in Spanish so

I just did so - if ANYONE here is fluent or is willing to participate

in Spanish please pop over to grupos/apoyosrsrss

Thanks!

, mom to , 5 and Emerence 2, 29 mo 32 " 21 lbs.

[Guest guest]

Hi ,

Glad to hear you got the Spanish RSS Support group set up. I hope it

is successful.

Ken M

> Hi,

>

> I just wanted to let you all know in the past few months I have

been

> searching in the internet in English and Spanish for RSS / SGA

> kids/people. I have found several medical case studies and have

> emailed Switzerland and Ireland and gotten emails back with

promises to

> spread the word about MAGIC and (can't remember name right now)

group

> in England! ALSO, just got my first contact from a dad in Spain

off of

> a bunch of messages I left on some health chat webboards.

>

> SO, a have thought about lauching a mirror support board in Spanish

so

> I just did so - if ANYONE here is fluent or is willing to

participate

> in Spanish please pop over to grupos/apoyosrsrss

>

> Thanks!

>

> , mom to , 5 and Emerence 2, 29 mo 32 " 21 lbs.

[Guest guest]

I am hoping we can pull more people in from around the world. WE are

fortunate (no matter how many bad doctors we seem to find!) that we

have a LOT of good options here in the US. Many in other countries

are not so lucky - they have smaller countries and smaller budgets.

If anyone can refer a friend feel free!

> > Hi,

> >

> > I just wanted to let you all know in the past few months I have

> been

> > searching in the internet in English and Spanish for RSS / SGA

> > kids/people. I have found several medical case studies and have

> > emailed Switzerland and Ireland and gotten emails back with

> promises to

> > spread the word about MAGIC and (can't remember name right now)

> group

> > in England! ALSO, just got my first contact from a dad in Spain

> off of

> > a bunch of messages I left on some health chat webboards.

> >

> > SO, a have thought about lauching a mirror support board in

Spanish

> so

> > I just did so - if ANYONE here is fluent or is willing to

> participate

> > in Spanish please pop over to grupos/apoyosrsrss

> >

> > Thanks!

> >

> > , mom to , 5 and Emerence 2, 29 mo 32 " 21 lbs.