Re: New Diagnosis, Houston

[Guest guest]

HI,

I think there are several families in TX...however, most people are

getting ready or en route to the convention in Chicago. If y ou are

able to drop everything and go I would highly recommend it. You can

find details at www.magicfoundation.org...it is this Thurs - Sun am.

Welcome!

, mom to , 5 and Emerence 29 mo 21lb 32 " RSS/SGA

> Dear All,

>

>

>

> I am posting for the first time. My son, 13, and growth hormone

deficient

> has recently been diagnosed as RSS. Are there any families on the

list who

> live in Houston?

>

>

>

> Eleanor

>

> Mom to , 13

>

>

>

>

>

>

>

>

[Guest guest]

Eleanor,

I live in Houston. My son, 17 month, just diagnosed RSS in UTMB two weeks

ago. Will did you get your son diagnosed? We try to make an appointment with

Endo. in Texas children hospital. No call back yet.

Jing

" Eleanor S. " wrote:

Dear All,

I am posting for the first time. My son, 13, and growth hormone deficient

has recently been diagnosed as RSS. Are there any families on the list who

live in Houston?

Eleanor

Mom to , 13

[Guest guest]

Hi Eleanor

My name is and I live in NJ. My daughter

who is 5 1/2 was diagnosed with RSS when she

was 3 3/4 by a geneticist and confirmed by an endo a

few months later. This year we finally met Dr. H (who

is Dr. Harbison and endo in NYC who is a specialist in

RSS) and she said she is not RSS but that she is

growth failure but really doesn't know why. is

31.7 pounds and about 38 1/2 inches. If someone has

not told you yet go to the MAGIC Foundation website at

www.magicfoundation. org (no space). Their convention

starts today and that is where most of the people from

this listserve are. What until next week when

everyone gets back and starts posting. You will learn

so much here.

Welcome.

B

5 1/2 and Kelli 3 (finally she turned 3 on

Monday!)

--- " Eleanor S. "

wrote:

> Dear All,

>

>

>

> I am posting for the first time. My son, 13, and

> growth hormone deficient

> has recently been diagnosed as RSS. Are there any

> families on the list who

> live in Houston?

>

>

>

> Eleanor

>

> Mom to , 13

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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