Re: Re: jennifer-carter's smo's

[Guest guest]

Kathleen-

I am so glad to hear how quickly they helped . Our PT doesn't think he

will require them long. We are using them for grounding and more support so he

can get his truck and pelvis in alignment. I asked about the sure step, but she

said those are more for low tone, and recommend the standard smo, which I was a

little sad about because they are so much nicer looking. Whatever gets my

little guy walking is what I want though. He is 18 months on Friday!

Thanks again for all your advice!

leenernd wrote:

-

I see that you are getting the smo's for carter! They do really help-

david for the most part no longer wears his smo's as he is just as

stable walking naturally as he is with the smo's. I do have to say

they really did help stabilize his ankles and provide the support he

needed to be able to walk. We will probably put him in the smo's

again-he's just outgrown the shoes he wears with them and we haven't

had a chance to get some new ones!! Good luck with the smo's and I

hope they help!

kathleen

mom to david bcf fab 12/7

> Hi all!

>

> My son Weston was born with a clubfoot on his left side,

torticollis

> (sp?), and low tone. He received his first cast at 7 days old and

> then consecutive casts thereafter for 3 months. The fiberglass

casts

> were changed every 2-3 weeks. At 3 months old Weston had a heel

cord

> lengthening surgery (tenotomy?). His leg was then placed in a

cast

> which was changed again every 2-3 weeks. Then at 5 1/2 months he

was

> given the DBB. He wore that at first for 18 hours a day then he

was

> weaned down to 12 hours. He hated the DBB and cried all the

time!

> After about 3 months with the DBB he began to push down with his

> right leg and pull up with his left to get his foot out of the

DBB.

> We would tighten the DBB as much as possible, but he still managed

to

> free himself. So our doctor fitted him with an AFO for Weston to

> wear when he was sleeping. Weston started pulling up on furniture

> around 12 months old. At first his foot was flat, but then

gradually

> as he was putting more weight on it his left foot reverted back to

> its original position. Our doctor wanted us to wait to do

anything

> until Weston was walking. We disagreed. He seemed to be in pain

and

> stopped standing up as much. We felt Weston wouldn't walk unless

his

> foot was flat. We sought another opinion. The new doctor

> immediately put Weston in another series of casts, changed every 2

> weeks. After that series of casts Weston was fitted with another

AFO

> for sleeping. Everything seemed fine. Weston started walking at

20

> months. At first he was walking on the bottom of his foot. But

> again, slowly the foot reverted back to the original position.

This

> time Weston's physical therapist recommended an AFO for him to

wear

> all day. We have since been through two sets of AFO's. Weston is

> now 2. If he walks barefoot on a hard surface his left foot is

> mostly flat. But, if Weston stands on any soft surface like

carpet,

> our couch or his crib, his foot is completely turned over.

>

> I'm sure his low tone isn't helping any of this. Weston is still

in

> PT once a week. We are doing the best we know, but it just isn't

> good enough.

>

> Because of the advice of some really great ladies, Weston will be

> seeing Ponseti next Friday! We are excited and nervous.

>

> I know this is long, but I thought maybe someone would see

something

> similiar in my story and have some advice.

>

> Cooke

> Clayton, NC

> Weston - 3/22/04 left clubfoot

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