Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 The clubfeet would present with arthorgyposis rather than separate of is my understanding. Here's a link with basic information from shriners: http://www.shrinershq.org/patientedu/arthrogryposis.html Here's another basic article, but I like that it gives you an idea of what doctors might be needed: http://www.orthoseek.com/articles/arthrogryposis.html I hope you are able to find some helpful info! I'm sorry I don'tknow more. Joy --- volng8r1 wrote: > I know someone's posted on here before about hand deformities, but I > can't remember what was said. We pretty much have a confirmation that > Lucas has arthrogryposis in addition to BCF (or is it because of???). > We will be seeing a doc in Iowa at his next appt, and are splinting > his hands at night in the mean time. Does anyone else have info or > another site? I've been trying to look, but it's pretty limited. > > Thanks! > Jenn > Lucas 12/10/04 > > > > > Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) http://www.caringbridge.org/visit/grantphilip __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Thanks for the links! Jenn > > > I know someone's posted on here before about hand deformities, but I > > can't remember what was said. We pretty much have a confirmation that > > Lucas has arthrogryposis in addition to BCF (or is it because of???). > > We will be seeing a doc in Iowa at his next appt, and are splinting > > his hands at night in the mean time. Does anyone else have info or > > another site? I've been trying to look, but it's pretty limited. > > > > Thanks! > > Jenn > > Lucas 12/10/04 > > > > > > > > > > > > > Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html > Iris (2-01) > Spencer (3-03) > Grant (9-05) http://www.caringbridge.org/visit/grantphilip > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 hi, ollie was born with bcf and a weakness in his hands, the above mentioned condition was thrown into the equation but doctors ruled it out as he hadno other symtoms. but ollie has to have hand exercises everyday. he's showing improvment and is happily picking up toys and playing. docs have said we wont know for sure what long term problems are until hes older. but as i said he's doing fine for now. good luck, haz of uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Jenn, Here's a link to a website for a national support group for arthrogryposis: http://www.avenuesforamc.com/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.