Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 , Thank you so much for sharing alittle more information with us. It sounds like you are doing VERY well and we appreciate hearing it all! ) Did you have any issues eating when you were smaller? My son has a j tube and struggles with eating anything orally. And also, did you have growth hormone therapy at all? Your height seems pretty good. Especially considering you are only an inch shortter than myslef! ) I hope you will continue to chime in here! ) Thanks for the info! Jodi R. 's mom > Hi again everyone! Thank you for making me feel welcome here. Since > you asked... a short bit about me: > > > Age: 20 > Southwest Missouri State University > Majoring in Marketing > Diagnosed with RSS at birth > currenty: 5'1 102# > > I am told that I am a bit of a unique RSS case because I have VERY > tall parents (mom 5'8, Dad 6'3, 16 Y/o sister 5'11). I was studied at > the University of Missouri throughout childhood. > > I began researching RSS more here recently. I have talked about it > with my dad a lot and we came to the conclusion that I should share my > story with parents. My dad was very scared and wondered what he did > wrong when I was little. He thought itwas his fault. It wasn't, as > you all know, but he did wish he had more information to go on. > > They told him that many RSS kids (this was information from the 50's > mind you) have learning and growth problems throughout childhood. > Although I was always small, I always made it known that I was just > like everyone else. My dad used to say " your tiny but your tough! " > > As an RSS adult it is proof that RSS kids can grow up to be completely > functioning adults. I am small as an adult but I have still achieved > a 3.81 college GPA and I am living a " normal " life. (does anyone > really know what normal is though?) This message is not at all to > brag, but hopefully to bring hope to someone new to RSS and let them > know that their child is special, but special for who they are, not > for what their genes tell them. > > Thanks for all the welcome messages. I really appreciate it! Please > let me know how else you want to " pick my brain " > > ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Thank you. Your words are very comforting and encouraging. - mom with RSS boy age 2 > Hi again everyone! Thank you for making me feel welcome here. Since > you asked... a short bit about me: > > > Age: 20 > Southwest Missouri State University > Majoring in Marketing > Diagnosed with RSS at birth > currenty: 5'1 102# > > I am told that I am a bit of a unique RSS case because I have VERY > tall parents (mom 5'8, Dad 6'3, 16 Y/o sister 5'11). I was studied at > the University of Missouri throughout childhood. > > I began researching RSS more here recently. I have talked about it > with my dad a lot and we came to the conclusion that I should share my > story with parents. My dad was very scared and wondered what he did > wrong when I was little. He thought itwas his fault. It wasn't, as > you all know, but he did wish he had more information to go on. > > They told him that many RSS kids (this was information from the 50's > mind you) have learning and growth problems throughout childhood. > Although I was always small, I always made it known that I was just > like everyone else. My dad used to say " your tiny but your tough! " > > As an RSS adult it is proof that RSS kids can grow up to be completely > functioning adults. I am small as an adult but I have still achieved > a 3.81 college GPA and I am living a " normal " life. (does anyone > really know what normal is though?) This message is not at all to > brag, but hopefully to bring hope to someone new to RSS and let them > know that their child is special, but special for who they are, not > for what their genes tell them. > > Thanks for all the welcome messages. I really appreciate it! Please > let me know how else you want to " pick my brain " > > ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 , You should tell your father that he did a GOOD thing for you: his height, as well as your mom's, is probably why you made it to 5'1 " , a very respectable height with or without RSS! I assume that you did not use growth hormones, as you did not mention it in your message about yourself. Thank you so much for sharing. It always makes us parents feel better when we read about successful RSS adults. Have you check out the RSS People listserve? It's only for RSS adults. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Hi , 5'1 " for RSS is great considering I am not RSS and I'm 5'2 " . My daughter is 5 1/2 and was originally diagnosed with RSS at age 3 3/4, however, Dr. H who is an expert in RSS says she is not. At this point she has diagnosed her as growth failure but doesn't know why. We are scheduled for further blood testing later this month. 's target height would be 5'2 " , however, with growth failure she is tracking now to be 4'10 " . What are you studying at college? You sound like you have a great young lady and doing very well. That's what I want for my daughter and I just hope that I teach her all those good qualities. B 5 1/2 and Kelli 3 --- wrote: > Hi again everyone! Thank you for making me feel > welcome here. Since > you asked... a short bit about me: > > > Age: 20 > Southwest Missouri State University > Majoring in Marketing > Diagnosed with RSS at birth > currenty: 5'1 102# > > I am told that I am a bit of a unique RSS case > because I have VERY > tall parents (mom 5'8, Dad 6'3, 16 Y/o sister 5'11). > I was studied at > the University of Missouri throughout childhood. > > I began researching RSS more here recently. I have > talked about it > with my dad a lot and we came to the conclusion that > I should share my > story with parents. My dad was very scared and > wondered what he did > wrong when I was little. He thought itwas his > fault. It wasn't, as > you all know, but he did wish he had more > information to go on. > > They told him that many RSS kids (this was > information from the 50's > mind you) have learning and growth problems > throughout childhood. > Although I was always small, I always made it known > that I was just > like everyone else. My dad used to say " your tiny > but your tough! " > > As an RSS adult it is proof that RSS kids can grow > up to be completely > functioning adults. I am small as an adult but I > have still achieved > a 3.81 college GPA and I am living a " normal " life. > (does anyone > really know what normal is though?) This message is > not at all to > brag, but hopefully to bring hope to someone new to > RSS and let them > know that their child is special, but special for > who they are, not > for what their genes tell them. > > Thanks for all the welcome messages. I really > appreciate it! Please > let me know how else you want to " pick my brain " > > ~ > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Hi ~ If Kelli is trcking to be 4'10 she is still doing great. Hopefully doctors will be able to put thier finger on the problem issue soon. I am a junior at Missouri State Univeristy and studying marketing and economics. ( I know I know I'm crazy right?) Good to hear from you and have a great week! > > > Hi again everyone! Thank you for making me feel > > welcome here. Since > > you asked... a short bit about me: > > > > > > Age: 20 > > Southwest Missouri State University > > Majoring in Marketing > > Diagnosed with RSS at birth > > currenty: 5'1 102# > > > > I am told that I am a bit of a unique RSS case > > because I have VERY > > tall parents (mom 5'8, Dad 6'3, 16 Y/o sister 5'11). > > I was studied at > > the University of Missouri throughout childhood. > > > > I began researching RSS more here recently. I have > > talked about it > > with my dad a lot and we came to the conclusion that > > I should share my > > story with parents. My dad was very scared and > > wondered what he did > > wrong when I was little. He thought itwas his > > fault. It wasn't, as > > you all know, but he did wish he had more > > information to go on. > > > > They told him that many RSS kids (this was > > information from the 50's > > mind you) have learning and growth problems > > throughout childhood. > > Although I was always small, I always made it known > > that I was just > > like everyone else. My dad used to say " your tiny > > but your tough! " > > > > As an RSS adult it is proof that RSS kids can grow > > up to be completely > > functioning adults. I am small as an adult but I > > have still achieved > > a 3.81 college GPA and I am living a " normal " life. > > (does anyone > > really know what normal is though?) This message is > > not at all to > > brag, but hopefully to bring hope to someone new to > > RSS and let them > > know that their child is special, but special for > > who they are, not > > for what their genes tell them. > > > > Thanks for all the welcome messages. I really > > appreciate it! Please > > let me know how else you want to " pick my brain " > > > > ~ > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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