Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Your son will do GREAT with Dr.Ponseti! We flew from Oregon, so I know the trip. ) My daughter also has A-Typical. You will get a special brace made for A-Typical feet called s. The are SO much better than the DBB! I hated those also! All's she did was scream and cry in them! She adapted to the s in about 2 days without much fuss. I am glad you are chosing to go see Dr. Ponseti, you will not regret it! Christee Mother of... *Josh~Learning/Speech Delays (9) **Aspen~ Bilateral Metatarsus Adductus (6) ***Dylan~PTSD/Anxiety (4) ****Lilee~A-Typical UCF w/Plantaris ® & Metatarsus Adductus (L) *P/M Brace 16-18/24.Struggling w/pressure sores (8 months) Concidering Dobbs bar & braces --------------------------------- Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Wow that's great Deana, you are in the best hands now. We had a similar situation to you 3 years ago, and took to Dr Ponseti when he was 3 months old. We live in South Africa so it was a long journey but so worthwhile. I'm thankful every day that we found this remarkable man in time. You'll love him! Have a good trip to Iowa and 24 Jan 2003, bilateral cf Moss CEO Steps Charity <http://www.steps.org.za> www.steps.org.za Cell: _____ From: nosurgery4clubfoot [mailto:nosurgery4clubfoot ] On Behalf Of danaandfamily Sent: 02 May 2006 07:43 AM To: nosurgery4clubfoot Subject: Baby Luke Hi everyone, My son Luke is 5 months old. He has bilateral club foot. He started casting after the second day of birth. When Luke was born it was two days before Thanksgiving. Therefore we had to wait a couple days before an orthapedic could come and tell us what was wrong with Lukes feet. The hospital kept me for three nights. Finaly an Orthapedic doc came, Told us Luke has a 95% chance he will not need surgery. That made us happy. The doc says it can be fixed. he explained that castings needed to be done. We had no Idea about clubfoot, I can say the doctor made us feel so much better telling us the things he said, it relaxed us to much. Anyways; We were doing castings every week. The doctor told us his feet are doing wonderfull. We are more than 50% there! That made us feel good. Then the last cast will stay on for 3 Weeks. Well, when we went in to take off the 3 week cast this is when things were not going so good anymore. The doc said his feet are not getting better and he will need surgery. We were so disapointed. We believed for so many weeks our son was doing great. They put more casts on him for two weeks while we waited for his braces. The doc also says he wants to do surgey when he is 9 months old. We got the braces, we hate the braces! We cant keep them on his feet the right way. Anyways this is about the time I start to investigate clubfoot. We decide to go get a second opinion 3 hours away from us. This doc says posterior release as soon as possible. We set the date. 1 week later I joined nosurgery4clubfoot. I recieved info on how to talk with doc Ponseti. I sent him an e mail of Lukes feet. Dr Ponseti says Luke has aytipical clubfoot. He also says to come see him in Iowa. My husband and us are going. After all the good things I hear about his work, I would be crazy not to. We leave thursday. Northern California to Iowa we go. Our appointment is on May 8th. I will post U all soon. Thanks for all the good info. And good luck to us all. Luke's Mommy. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Dana- Best wishes to you and your baby boy Luke!! He is in the best hands possible. Good luck with the trip and keep us posted when you have a chance on Luke's progress. Make sure you take lots of pictures as he will appreciate them when he is older! take care, kathleen mom to david bcf fab 12/7 > > Hi everyone, > My son Luke is 5 months old. He has bilateral club foot. He started > casting after the second day of birth. When Luke was born it was two > days before Thanksgiving. Therefore we had to wait a couple days > before an orthapedic could come and tell us what was wrong with Lukes > feet. The hospital kept me for three nights. Finaly an Orthapedic doc > came, Told us Luke has a 95% chance he will not need surgery. That > made us happy. The doc says it can be fixed. he explained that > castings needed to be done. We had no Idea about clubfoot, I can say > the doctor made us feel so much better telling us the things he said, > it relaxed us to much. Anyways; We were doing castings every week. > The doctor told us his feet are doing wonderfull. We are more than > 50% there! That made us feel good. Then the last cast will stay on > for 3 Weeks. Well, when we went in to take off the 3 week cast this > is when things were not going so good anymore. The doc said his feet > are not getting better and he will need surgery. We were so > disapointed. We believed for so many weeks our son was doing great. > They put more casts on him for two weeks while we waited for his > braces. The doc also says he wants to do surgey when he is 9 months > old. We got the braces, we hate the braces! We cant keep them on his > feet the right way. Anyways this is about the time I start to > investigate clubfoot. We decide to go get a second opinion 3 hours > away from us. This doc says posterior release as soon as possible. We > set the date. 1 week later I joined nosurgery4clubfoot. I recieved > info on how to talk with doc Ponseti. I sent him an e mail of Lukes > feet. Dr Ponseti says Luke has aytipical clubfoot. He also says to > come see him in Iowa. My husband and us are going. After all the good > things I hear about his work, I would be crazy not to. We leave > thursday. Northern California to Iowa we go. Our appointment is on > May 8th. I will post U all soon. Thanks for all the good info. And > good luck to us all. Luke's Mommy. Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Best of luck to you - in your travels and with Luke's treatment. He is in the best hands now. I believe Dr. Ponseti will have him taken care of in no time! > > Hi everyone, > My son Luke is 5 months old. He has bilateral club foot. He started > casting after the second day of birth. When Luke was born it was two > days before Thanksgiving. Therefore we had to wait a couple days > before an orthapedic could come and tell us what was wrong with Lukes > feet. The hospital kept me for three nights. Finaly an Orthapedic doc > came, Told us Luke has a 95% chance he will not need surgery. That > made us happy. The doc says it can be fixed. he explained that > castings needed to be done. We had no Idea about clubfoot, I can say > the doctor made us feel so much better telling us the things he said, > it relaxed us to much. Anyways; We were doing castings every week. > The doctor told us his feet are doing wonderfull. We are more than > 50% there! That made us feel good. Then the last cast will stay on > for 3 Weeks. Well, when we went in to take off the 3 week cast this > is when things were not going so good anymore. The doc said his feet > are not getting better and he will need surgery. We were so > disapointed. We believed for so many weeks our son was doing great. > They put more casts on him for two weeks while we waited for his > braces. The doc also says he wants to do surgey when he is 9 months > old. We got the braces, we hate the braces! We cant keep them on his > feet the right way. Anyways this is about the time I start to > investigate clubfoot. We decide to go get a second opinion 3 hours > away from us. This doc says posterior release as soon as possible. We > set the date. 1 week later I joined nosurgery4clubfoot. I recieved > info on how to talk with doc Ponseti. I sent him an e mail of Lukes > feet. Dr Ponseti says Luke has aytipical clubfoot. He also says to > come see him in Iowa. My husband and us are going. After all the good > things I hear about his work, I would be crazy not to. We leave > thursday. Northern California to Iowa we go. Our appointment is on > May 8th. I will post U all soon. Thanks for all the good info. And > good luck to us all. Luke's Mommy. Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 What a wonderful decision to go see Dr. Ponseti. Good for you for investigating the whole clubfoot thing and finding this group. Thank goodness Dr. P was discovered before the surgery. danaandfamily wrote: Hi everyone, My son Luke is 5 months old. He has bilateral club foot. He started casting after the second day of birth. When Luke was born it was two days before Thanksgiving. Therefore we had to wait a couple days before an orthapedic could come and tell us what was wrong with Lukes feet. The hospital kept me for three nights. Finaly an Orthapedic doc came, Told us Luke has a 95% chance he will not need surgery. That made us happy. The doc says it can be fixed. he explained that castings needed to be done. We had no Idea about clubfoot, I can say the doctor made us feel so much better telling us the things he said, it relaxed us to much. Anyways; We were doing castings every week. The doctor told us his feet are doing wonderfull. We are more than 50% there! That made us feel good. Then the last cast will stay on for 3 Weeks. Well, when we went in to take off the 3 week cast this is when things were not going so good anymore. The doc said his feet are not getting better and he will need surgery. We were so disapointed. We believed for so many weeks our son was doing great. They put more casts on him for two weeks while we waited for his braces. The doc also says he wants to do surgey when he is 9 months old. We got the braces, we hate the braces! We cant keep them on his feet the right way. Anyways this is about the time I start to investigate clubfoot. We decide to go get a second opinion 3 hours away from us. This doc says posterior release as soon as possible. We set the date. 1 week later I joined nosurgery4clubfoot. I recieved info on how to talk with doc Ponseti. I sent him an e mail of Lukes feet. Dr Ponseti says Luke has aytipical clubfoot. He also says to come see him in Iowa. My husband and us are going. After all the good things I hear about his work, I would be crazy not to. We leave thursday. Northern California to Iowa we go. Our appointment is on May 8th. I will post U all soon. Thanks for all the good info. And good luck to us all. Luke's Mommy. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 My son, Evan, is 5 months and has atypcial club feet as well. We live in St. Louis and see Dr. Dobbs who studied under Dr. P and uses his method. We got through the casting phase last week and moved on to the brace. Unfortunately, he developed a nasty sore on the top of his foot and the brace had to come off. Evan is a twin and pretty small (only 9.5-10 lbs) and we knew his size might present a problem with the brace. The good news is that the casting worked very well to correct his feet, we just have to hold off on the braces until he grows a bit. He will go back in casts in the meantime. Even with these complications, we still think Dr. P's non-surgical approach is best. Good luck!! If anyone out there has a child with atypical club feet, is familiar with Dr. Dobbs' brace and has had similar issues I describe above, please let me know. I am struggling a bit with all of this and feel like we did something wrong costing us some time. We think part of the problem was the fit of the socks we used - they have to fit perfectly in the brace; any wrinkle can cause blisters and sores. I had a lot of trouble finding socks to fit my little guy. I thought I found something and then the sores got worse. Anyway, just looking for anyone out there that has had similar experiences. Jennie needing prayers wrote: What a wonderful decision to go see Dr. Ponseti. Good for you for investigating the whole clubfoot thing and finding this group. Thank goodness Dr. P was discovered before the surgery. danaandfamily wrote: Hi everyone, My son Luke is 5 months old. He has bilateral club foot. He started casting after the second day of birth. When Luke was born it was two days before Thanksgiving. Therefore we had to wait a couple days before an orthapedic could come and tell us what was wrong with Lukes feet. The hospital kept me for three nights. Finaly an Orthapedic doc came, Told us Luke has a 95% chance he will not need surgery. That made us happy. The doc says it can be fixed. he explained that castings needed to be done. We had no Idea about clubfoot, I can say the doctor made us feel so much better telling us the things he said, it relaxed us to much. Anyways; We were doing castings every week. The doctor told us his feet are doing wonderfull. We are more than 50% there! That made us feel good. Then the last cast will stay on for 3 Weeks. Well, when we went in to take off the 3 week cast this is when things were not going so good anymore. The doc said his feet are not getting better and he will need surgery. We were so disapointed. We believed for so many weeks our son was doing great. They put more casts on him for two weeks while we waited for his braces. The doc also says he wants to do surgey when he is 9 months old. We got the braces, we hate the braces! We cant keep them on his feet the right way. Anyways this is about the time I start to investigate clubfoot. We decide to go get a second opinion 3 hours away from us. This doc says posterior release as soon as possible. We set the date. 1 week later I joined nosurgery4clubfoot. I recieved info on how to talk with doc Ponseti. I sent him an e mail of Lukes feet. Dr Ponseti says Luke has aytipical clubfoot. He also says to come see him in Iowa. My husband and us are going. After all the good things I hear about his work, I would be crazy not to. We leave thursday. Northern California to Iowa we go. Our appointment is on May 8th. I will post U all soon. Thanks for all the good info. And good luck to us all. Luke's Mommy. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Dana we wish Luke the best (and he'll get the BEST in Iowa!) Let us know if there is any thing we can help with or questions we can answer! s. Baby Luke Hi everyone, My son Luke is 5 months old. He has bilateral club foot. He started casting after the second day of birth. When Luke was born it was two days before Thanksgiving. Therefore we had to wait a couple days before an orthapedic could come and tell us what was wrong with Lukes feet. The hospital kept me for three nights. Finaly an Orthapedic doc came, Told us Luke has a 95% chance he will not need surgery. That made us happy. The doc says it can be fixed. he explained that castings needed to be done. We had no Idea about clubfoot, I can say the doctor made us feel so much better telling us the things he said, it relaxed us to much. Anyways; We were doing castings every week. The doctor told us his feet are doing wonderfull. We are more than 50% there! That made us feel good. Then the last cast will stay on for 3 Weeks. Well, when we went in to take off the 3 week cast this is when things were not going so good anymore. The doc said his feet are not getting better and he will need surgery. We were so disapointed. We believed for so many weeks our son was doing great. They put more casts on him for two weeks while we waited for his braces. The doc also says he wants to do surgey when he is 9 months old. We got the braces, we hate the braces! We cant keep them on his feet the right way. Anyways this is about the time I start to investigate clubfoot. We decide to go get a second opinion 3 hours away from us. This doc says posterior release as soon as possible. We set the date. 1 week later I joined nosurgery4clubfoot. I recieved info on how to talk with doc Ponseti. I sent him an e mail of Lukes feet. Dr Ponseti says Luke has aytipical clubfoot. He also says to come see him in Iowa. My husband and us are going. After all the good things I hear about his work, I would be crazy not to. We leave thursday. Northern California to Iowa we go. Our appointment is on May 8th. I will post U all soon. Thanks for all the good info. And good luck to us all. Luke's Mommy. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Dana, I just wanted you to know that the story of my daughter is almost identical to yours. My daughter has bilateral atypical clubfoot and was treated by different doctors, but they couldn't correct her feet. They finally said my only decision was to wait until she was old enough for surgery. I too contacted Dr. Ponseti and he told me not to let them cut her and to come see him. We started seeing Dr. Ponseti when Sydney was 9 weeks old. During our first visit we stayed for 3 weeks at the Mc House. Dr. Ponseti has Sydney's feet fully corrected in casts before we went home. It was more than any Dr. here could do. It was amazing. We did go back for visits with him as needed and now Sydney is doing so well that we have a 4 month break until our next visit. (If everything goes as planned.) She is wearing the Ponseti/ brace 18 hours a day. She has never has a sore, a blister, or even cried because of the brace. She sits patiently when I put it on and does not mind at all. I just wanted to re-assure you that you were doing the right thing and that Luke will be in great hands in Iowa. Please E-mail me and I will send you my phone number if you have any questions or would just like to talk about it. I will be glad to share my experience or help you in anyway I can. Good Luck and God Bless! " Tell your family that Little Sydney will be able to run and dance without ever knowing that anything was ever wrong. " ~Dr. Ponseti November 2005 Blanton ville, GA Sydney: 9 months old, Bilateral Atypical Clubfeet ps....Sydney's Aunt also has B/A/C and was treated with surgery and is now extremely disfigured and pending a 9th surgery just to help her walk. She is 21 and can not run and is limited on her mobility. It is such a blessing for Sydney and all the other babies to have the opportunity for a life without limitations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Good for you! And best of luck. Luke is in wonderful hands. Keep us posted! (fellow Californian, mom to ...RCF...3/30/04...also a Ponseti patient) > > Hi everyone, > My son Luke is 5 months old. He has bilateral club foot. He started > casting after the second day of birth. When Luke was born it was two > days before Thanksgiving. Therefore we had to wait a couple days > before an orthapedic could come and tell us what was wrong with Lukes > feet. The hospital kept me for three nights. Finaly an Orthapedic doc > came, Told us Luke has a 95% chance he will not need surgery. That > made us happy. The doc says it can be fixed. he explained that > castings needed to be done. We had no Idea about clubfoot, I can say > the doctor made us feel so much better telling us the things he said, > it relaxed us to much. Anyways; We were doing castings every week. > The doctor told us his feet are doing wonderfull. We are more than > 50% there! That made us feel good. Then the last cast will stay on > for 3 Weeks. Well, when we went in to take off the 3 week cast this > is when things were not going so good anymore. The doc said his feet > are not getting better and he will need surgery. We were so > disapointed. We believed for so many weeks our son was doing great. > They put more casts on him for two weeks while we waited for his > braces. The doc also says he wants to do surgey when he is 9 months > old. We got the braces, we hate the braces! We cant keep them on his > feet the right way. Anyways this is about the time I start to > investigate clubfoot. We decide to go get a second opinion 3 hours > away from us. This doc says posterior release as soon as possible. We > set the date. 1 week later I joined nosurgery4clubfoot. I recieved > info on how to talk with doc Ponseti. I sent him an e mail of Lukes > feet. Dr Ponseti says Luke has aytipical clubfoot. He also says to > come see him in Iowa. My husband and us are going. After all the good > things I hear about his work, I would be crazy not to. We leave > thursday. Northern California to Iowa we go. Our appointment is on > May 8th. I will post U all soon. Thanks for all the good info. And > good luck to us all. Luke's Mommy. Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Hi everyone, My son Luke and our family just recently went to Iowa. To see Dr. Ponseti. We are so happy that we came stumbled on to this web sight. Thanks to you girls hangin out in the surgery sight, Luke will not be getting the surgery. Luke was born November 23 2005. He b/c/f. We had no idea untill he was born. My doctor called around for us to have an orthapidic come and see his feet. The hospital did not release us fo 2 1/2 days. We actually spent Thanksgiving in the Hospital. Anyways:Finally an Orthapidic doc showed up. He told us Luke only needs casts and has 95% chance he dosn't need surgery.This made us feel so good. My husband actually cried after talking with the Doc. The things I remember hearing is, you can fix it. He will not need surgery. We were good with that. Luke was casted about one hour Latter. We got a new cast every week.They usually always fell off or Luke's feet sank back into the cast. a few times I called to tell them the cast was slipping. One of the assistants told me this is normal. He was not happy that I was calling about this. He told me (This is not going to happen overnight). I was so upset with him. I was affraid to call for anything after that. Anyways: The Ortho told us his feet are doing very well around the 8th week. This is when the last cast will go on for 3 weeks. After the three week cast the Ortho told us his feet are not doing good and he needs surgery. He put casts on Luke again for 2 weeks. After the 2 week casts came off. We were told Luke will need surgery. We will wait untill Luke is 9 months old. Posterior release. Luke was almost 4 months old at this time. We had luke in this plastic brace made for children with pigion toe. We complained to the Ortho about the braces then we had special plastic braces made for Luke. These were worthless too. We wanted to get a second opinion For Luke. We went to sacramento to see a Pediartric Ortho. He wanted to do the surgery to. We set up the surgery for June 5th. Luke would be 6 months old. The doc from Sacramento said his braces are wothless. We didn't even use them after we spoke with the doc from sacramento. So we came home. We talked alot about the doc from Sacramento. We tried to convence our selves it is the right thing to do. Thats when I started looking in the surgery club footers web sight. That is when I stumbled across alot of moms and some dads who sugested doing Dr Ponseti method. People gave us so much info. We were really starting to go crazy. It was like starting all over to us. We were frustated at first. But we made the calls sent the email to Dr POnseti. To our surprise. He called us back he wrote us back. He wanted to fix Lukes feet. He told us Luke has aytipicl clubfeet. We set up the appointment and left the next week. We stayed at the Mc house. We felt so comfortable there. It was amazing how many Clubfoot cases were coming and going there. We were able to meet so many people with the same problem we have. It was just great for us. We started casting with Dr. Ponseti right away. We were so amazed at how different Dr Ps castings looked compared to our old Dr. back home, and THEY STAYED ON! Every single one of them. Just after the first cast was taken off we had never seen Lukes feet that straight. We think Dr. Ponseti is just the best.And we know he is. I just want to Thank him for being so smart. Thank god for him. Needless to say we are home now and just removed Lukes last cast after a tenotomy. His feet look so good. He is in a mitchell brace 3rd day. Luke is doing pretty good with it. We are so thankfull to all you concerned parents out there pointing out better directions for us who dont know about Dr Ponseti.Do you beleive our Ortho at home told me not to read stuff on the internet, it is all horror stories. I am so glad all of us have the internet to discuss this sort of thing. I have been trying to put pictures in this sight but I keep getting this page is not responding, after trying to load the pictures. I am also going to buy a new car seat for Luke. Does anyone know which type of car seat is good with the mitchell brace? Thanks everyone. Dana Aschbrenner, Luke aschbrenner b/c/f mitchell brace 3 days. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Oh sweetie I am just so happy for you! What a wonderful testimonial! I hope you will copy this exact same message over to the surgery site to help others who come there with your same problems. Your message needs repeated and repeated and repeated!!! My oldest son had atypical feet too. Doctors told us he needed surgery. We found Dr. Poneti when he was just under 2 years old, before that surgery, thank God! Good luck with your FAB. If you have any problems (doubt you will) you come on and we'll help you all we can! Since it sounds like all is going well the only tip I'll send today is to keep track of his bar length; they can out grow that pretty fast so adjust as needed to keep him comfortable. Sorry I'm no help on car seats. ee Mother of 3 Clubfooted Sons: - Bilateral Club Feet April 1998 Everett - Bilateral Club Feet September 2003 Garrison - Bilateral Club Feet March 2006 Baby Luke Hi everyone, My son Luke and our family just recently went to Iowa. To see Dr. Ponseti. We are so happy that we came stumbled on to this web sight. Thanks to you girls hangin out in the surgery sight, Luke will not be getting the surgery. Luke was born November 23 2005. He b/c/f. We had no idea untill he was born. My doctor called around for us to have an orthapidic come and see his feet. The hospital did not release us fo 2 1/2 days. We actually spent Thanksgiving in the Hospital. Anyways:Finally an Orthapidic doc showed up. He told us Luke only needs casts and has 95% chance he dosn't need surgery.This made us feel so good. My husband actually cried after talking with the Doc. The things I remember hearing is, you can fix it. He will not need surgery. We were good with that. Luke was casted about one hour Latter. We got a new cast every week.They usually always fell off or Luke's feet sank back into the cast. a few times I called to tell them the cast was slipping. One of the assistants told me this is normal. He was not happy that I was calling about this. He told me (This is not going to happen overnight). I was so upset with him. I was affraid to call for anything after that. Anyways: The Ortho told us his feet are doing very well around the 8th week. This is when the last cast will go on for 3 weeks. After the three week cast the Ortho told us his feet are not doing good and he needs surgery. He put casts on Luke again for 2 weeks. After the 2 week casts came off. We were told Luke will need surgery. We will wait untill Luke is 9 months old. Posterior release. Luke was almost 4 months old at this time. We had luke in this plastic brace made for children with pigion toe. We complained to the Ortho about the braces then we had special plastic braces made for Luke. These were worthless too. We wanted to get a second opinion For Luke. We went to sacramento to see a Pediartric Ortho. He wanted to do the surgery to. We set up the surgery for June 5th. Luke would be 6 months old. The doc from Sacramento said his braces are wothless. We didn't even use them after we spoke with the doc from sacramento. So we came home. We talked alot about the doc from Sacramento. We tried to convence our selves it is the right thing to do. Thats when I started looking in the surgery club footers web sight. That is when I stumbled across alot of moms and some dads who sugested doing Dr Ponseti method. People gave us so much info. We were really starting to go crazy. It was like starting all over to us. We were frustated at first. But we made the calls sent the email to Dr POnseti. To our surprise. He called us back he wrote us back. He wanted to fix Lukes feet. He told us Luke has aytipicl clubfeet. We set up the appointment and left the next week. We stayed at the Mc house. We felt so comfortable there. It was amazing how many Clubfoot cases were coming and going there. We were able to meet so many people with the same problem we have. It was just great for us. We started casting with Dr. Ponseti right away. We were so amazed at how different Dr Ps castings looked compared to our old Dr. back home, and THEY STAYED ON! Every single one of them. Just after the first cast was taken off we had never seen Lukes feet that straight. We think Dr. Ponseti is just the best.And we know he is. I just want to Thank him for being so smart. Thank god for him. Needless to say we are home now and just removed Lukes last cast after a tenotomy. His feet look so good. He is in a mitchell brace 3rd day. Luke is doing pretty good with it. We are so thankfull to all you concerned parents out there pointing out better directions for us who dont know about Dr Ponseti.Do you beleive our Ortho at home told me not to read stuff on the internet, it is all horror stories. I am so glad all of us have the internet to discuss this sort of thing. I have been trying to put pictures in this sight but I keep getting this page is not responding, after trying to load the pictures. I am also going to buy a new car seat for Luke. Does anyone know which type of car seat is good with the mitchell brace? Thanks everyone. Dana Aschbrenner, Luke aschbrenner b/c/f mitchell brace 3 days. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.9.3/374 - Release Date: 6/23/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Hi Dana, That is fantastic news, I'm so glad you went to Iowa! This group doesn't allow attachments but there is another group called CFPics which is where you can send your photos for us to see. I think you need to fill in a short questionnaire before you can join. We found that the brace didn't quite fit our car seat but we put a rolled up towel under his knees which made it fit and comfortable for him. Once he grew a little more and his feet were near the edge where the seat was a bit wider he fit anyway. All the best, with (3.5y) and Alister (3.5y, right CF, Ponseti method, UK) --- danaandfamily wrote: > Hi everyone, > My son Luke and our family just recently went to > Iowa. To see Dr. > Ponseti. We are so happy that we came stumbled on to > this web sight. > Thanks to you girls hangin out in the surgery sight, > Luke will not be > getting the surgery. > Luke was born November 23 2005. He b/c/f. We had no > idea untill he > was born. My doctor called around for us to have an > orthapidic come > and see his feet. The hospital did not release us fo > 2 1/2 days. We > actually spent Thanksgiving in the Hospital. > Anyways:Finally an > Orthapidic doc showed up. He told us Luke only needs > casts and has > 95% chance he dosn't need surgery.This made us feel > so good. My > husband actually cried after talking with the Doc. > The things I > remember hearing is, you can fix it. He will not > need surgery. We > were good with that. Luke was casted about one hour > Latter. We got a > new cast every week.They usually always fell off or > Luke's feet sank > back into the cast. a few times I called to tell > them the cast was > slipping. One of the assistants told me this is > normal. He was not > happy that I was calling about this. He told me > (This is not going to > happen overnight). I was so upset with him. I was > affraid to call for > anything after that. Anyways: The Ortho told us his > feet are doing > very well around the 8th week. This is when the last > cast will go on > for 3 weeks. After the three week cast the Ortho > told us his feet are > not doing good and he needs surgery. He put casts on > Luke again for 2 > weeks. After the 2 week casts came off. We were told > Luke will need > surgery. We will wait untill Luke is 9 months old. > Posterior release. > Luke was almost 4 months old at this time. We had > luke in this > plastic brace made for children with pigion toe. We > complained to the > Ortho about the braces then we had special plastic > braces made for > Luke. These were worthless too. We wanted to get a > second opinion For > Luke. We went to sacramento to see a Pediartric > Ortho. He wanted to > do the surgery to. We set up the surgery for June > 5th. Luke would be > 6 months old. The doc from Sacramento said his > braces are wothless. > We didn't even use them after we spoke with the doc > from sacramento. > So we came home. We talked alot about the doc from > Sacramento. We > tried to convence our selves it is the right thing > to do. Thats when > I started looking in the surgery club footers web > sight. That is when > I stumbled across alot of moms and some dads who > sugested doing Dr > Ponseti method. People gave us so much info. We were > really starting > to go crazy. It was like starting all over to us. We > were frustated > at first. But we made the calls sent the email to Dr > POnseti. To our > surprise. He called us back he wrote us back. He > wanted to fix Lukes > feet. He told us Luke has aytipicl clubfeet. We set > up the > appointment and left the next week. We stayed at the > Mc > house. We felt so comfortable there. It was amazing > how many Clubfoot > cases were coming and going there. We were able to > meet so many > people with the same problem we have. It was just > great for us. We > started casting with Dr. Ponseti right away. We were > so amazed at how > different Dr Ps castings looked compared to our old > Dr. back home, > and THEY STAYED ON! Every single one of them. Just > after the first > cast was taken off we had never seen Lukes feet that > straight. We > think Dr. Ponseti is just the best.And we know he > is. I just want to > Thank him for being so smart. Thank god for him. > Needless to say we > are home now and just removed Lukes last cast after > a tenotomy. His > feet look so good. He is in a mitchell brace 3rd > day. Luke is doing > pretty good with it. We are so thankfull to all you > concerned parents > out there pointing out better directions for us who > dont know about > Dr Ponseti.Do you beleive our Ortho at home told me > not to read stuff > on the internet, it is all horror stories. I am so > glad all of us > have the internet to discuss this sort of thing. I > have been trying > to put pictures in this sight but I keep getting > this page is not > responding, after trying to load the pictures. I am > also going to buy > a new car seat for Luke. Does anyone know which type > of car seat is > good with the mitchell brace? Thanks everyone. > Dana Aschbrenner, Luke aschbrenner b/c/f mitchell > brace 3 days. > > > > > ___________________________________________________________ Now you can scan emails quickly with a reading pane. Get the new Yahoo! Mail. http://uk.docs.yahoo.com/nowyoucan.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hello Dana. Welcome. What a wonderful story. I am so glad it worked out for Luke in the end. Kori posted your pictures on CFPics site (can I assume you have joined that site as well?). What an amazing difference! Dr. Ponseti can do such great things!! Please post with updates. We love all stories with happy endings. I think many will agree Britax car seats are the best. They are also the most expensive. I personally have the Cosco Eddie Bauer car seat. My daughter, , also wears the P/M's (Ponseti brace). She is 2 now and doing fabulous. If you have more questions, ask away!! and 3-2-04, P/M's 14 hours danaandfamily wrote: Hi everyone, My son Luke and our family just recently went to Iowa. To see Dr. Ponseti. We are so happy that we came stumbled on to this web sight. Thanks to you girls hangin out in the surgery sight, Luke will not be getting the surgery. Luke was born November 23 2005. He b/c/f. We had no idea untill he was born. My doctor called around for us to have an orthapidic come and see his feet. The hospital did not release us fo 2 1/2 days. We actually spent Thanksgiving in the Hospital. Anyways:Finally an Orthapidic doc showed up. He told us Luke only needs casts and has 95% chance he dosn't need surgery.This made us feel so good. My husband actually cried after talking with the Doc. The things I remember hearing is, you can fix it. He will not need surgery. We were good with that. Luke was casted about one hour Latter. We got a new cast every week.They usually always fell off or Luke's feet sank back into the cast. a few times I called to tell them the cast was slipping. One of the assistants told me this is normal. He was not happy that I was calling about this. He told me (This is not going to happen overnight). I was so upset with him. I was affraid to call for anything after that. Anyways: The Ortho told us his feet are doing very well around the 8th week. This is when the last cast will go on for 3 weeks. After the three week cast the Ortho told us his feet are not doing good and he needs surgery. He put casts on Luke again for 2 weeks. After the 2 week casts came off. We were told Luke will need surgery. We will wait untill Luke is 9 months old. Posterior release. Luke was almost 4 months old at this time. We had luke in this plastic brace made for children with pigion toe. We complained to the Ortho about the braces then we had special plastic braces made for Luke. These were worthless too. We wanted to get a second opinion For Luke. We went to sacramento to see a Pediartric Ortho. He wanted to do the surgery to. We set up the surgery for June 5th. Luke would be 6 months old. The doc from Sacramento said his braces are wothless. We didn't even use them after we spoke with the doc from sacramento. So we came home. We talked alot about the doc from Sacramento. We tried to convence our selves it is the right thing to do. Thats when I started looking in the surgery club footers web sight. That is when I stumbled across alot of moms and some dads who sugested doing Dr Ponseti method. People gave us so much info. We were really starting to go crazy. It was like starting all over to us. We were frustated at first. But we made the calls sent the email to Dr POnseti. To our surprise. He called us back he wrote us back. He wanted to fix Lukes feet. He told us Luke has aytipicl clubfeet. We set up the appointment and left the next week. We stayed at the Mc house. We felt so comfortable there. It was amazing how many Clubfoot cases were coming and going there. We were able to meet so many people with the same problem we have. It was just great for us. We started casting with Dr. Ponseti right away. We were so amazed at how different Dr Ps castings looked compared to our old Dr. back home, and THEY STAYED ON! Every single one of them. Just after the first cast was taken off we had never seen Lukes feet that straight. We think Dr. Ponseti is just the best.And we know he is. I just want to Thank him for being so smart. Thank god for him. Needless to say we are home now and just removed Lukes last cast after a tenotomy. His feet look so good. He is in a mitchell brace 3rd day. Luke is doing pretty good with it. We are so thankfull to all you concerned parents out there pointing out better directions for us who dont know about Dr Ponseti.Do you beleive our Ortho at home told me not to read stuff on the internet, it is all horror stories. I am so glad all of us have the internet to discuss this sort of thing. I have been trying to put pictures in this sight but I keep getting this page is not responding, after trying to load the pictures. I am also going to buy a new car seat for Luke. Does anyone know which type of car seat is good with the mitchell brace? Thanks everyone. Dana Aschbrenner, Luke aschbrenner b/c/f mitchell brace 3 days. --------------------------------- Want to be your own boss? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
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