Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 aaaah Ali, it's those sweet fat cheeks and thighs that we mamas miss the most!! For me it's also the fat ring around Gracies wrists that is dissapearing more and more each day that I mourn - my baby is becoming a little girl *sigh* & Grace > > Kathleen and - I should mention that Paddy has very fat thighs > (takes after his momma), in comparison to his hips and shoulders. > Everyone comments on his chubby legs, as can be seen in the pic of him > in the bar. I'm going to try the measurement between the shoulders > tomorrow. Thanks again! > > Ali > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Ali, I am curious about Paddy's bracing protocol- I'm a bit confused after looking at your pictures and reading your earlier email. Did your doctor not prescribe the brace full time (23 hours/day) for the first 3 months after he was corrected? It looks like he wore the shoes by themselves without the bar during the day? I don't know if you know this, but that is not standard protocol since the shoes alone will do nothing to prevent regression. The bar is the key to hold the correction. The FAB holds the feet in the outward abduction (70° angle) and flexes the foot upward (dorsiflexion) to keep the Achilles tendon stretched. The typical protocol for the Ponseti method is to wear the brace full time (23 hours/day) for the first 3 months. Then the child wears the brace for 18-20 hours/day for *about* another 3 months, then 16-18 hours/day, eventually down to 10-12 hours (night time only) once they're walking full time. I'm sorry if you were already aware of this- I just thought I'd point it out in case you weren't because this is the best insurance against relapse. I'd really hate to see Paddy's feet regress and have him have to start all over with casting and bracing full time at an older age when he's mobile! Regards, & (3-16-00, lcf) > > Kathleen and - I should mention that Paddy has very fat thighs > (takes after his momma), in comparison to his hips and shoulders. > Everyone comments on his chubby legs, as can be seen in the pic of him > in the bar. I'm going to try the measurement between the shoulders > tomorrow. Thanks again! > > Ali > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Ali, I'll speak for and myself when I say sorry if you felt like you had to defend your son's treatment. We are a bit zealous in trying to make sure doctors are following protocol mainly because some docs who modify, modify in such a way that causes less than stellar results. If a doc says he is using the Ponseti method but then goes out and tweaks integral parts of the treatment to where children are not having their feet properly corrected or are relapsing it gives the method a bad name. We are kind of on a crusade to get orthos all around the country to recognize and become trained in the method so it defeats our purpose if there are docs out there doing a bad job at it. The whole reason that many of us are here is because we want to help educate parents on what to look for to spot faulty treatment. With that being said, it sounds like your doc IS being watchful, you guys ARE educated about the protocol, and above all, you're thrilled with Paddy's treatment. This is what's important. So, we're glad to have you with us here, and we're looking forward to getting to know more about you and Paddy! Thanks, > > - I don't know where my post is from yesterday. Did it go to > you only?? I was trying to answer with your msg attached but I guess > it didn't work. > > Anyway, for you and others who asked, yes, we are aware this isn't > *standard* protocol and my dr is too, as she trained with Dr. Ponseti. > She modifies treatment for each patient and has a very high success > rate so we are not worried. She's very experienced. I even asked about > the 23/7 when we started b/c I had read about it and she felt it > wasn't necessary in his case as we are getting the same results she > looks for with 12/7. He has a mild case. We also haven't had any > problems whatsoever, not one blister and he's never kicked off a shoe. > We, as well as our dr, are vigilant. We are very comfortable with his > treatment as he is progressing very well. Why do I feel like I´m > defending the treatment he´s getting??? We're not going through this > blindly... thank you all for your concern. > > For us, clubfeet is just another part of his life; it definitely is > not the center of our world. If it were more severe, maybe it would > be. It's not something I worry about daily. The adjustment to sleeping > has been the only issue and that again seems under control. He takes > his morning nap with the bar on as well and it seems fine. > > I just wanted to touch base here with others who have had the same > experiences. Seems most are further along than we are in the process. > It's nice to be able to look ahead a little. Thanks again for the > welcome! > > Ali > Paddy (10/21/05) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Ali, I'm sorry if you took my post the wrong way! I surely didn't intend for you to feel that my questions were at all negative. I was just offering the information about the protocol in case you didn't know. Paddy is the first child (treated with the Ponseti method) that I've heard of in my 6 years on the various clubfoot boards who went into the FAB at night only immediately following correction, so that's why I was confused and wanted to clarify. All the best! & (3-16-00, lcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Ali- Your son is adorable-I know I said this earlier and thanks for explaining about the chubby thighs!!! My darling son is 19 mo old and only weighs 23lbs so he is far from chubby-I wish I had some meat to play with!! In the database area-we have a place where you can register your son's doctor and since you have had such success with her-I would sign her up. Its a great tool for parents looking for ponseti doctors!! take care, kathleen mom to david bcf fab 12/7 > > - I don't know where my post is from yesterday. Did it go to > you only?? I was trying to answer with your msg attached but I guess > it didn't work. > > Anyway, for you and others who asked, yes, we are aware this isn't > *standard* protocol and my dr is too, as she trained with Dr. Ponseti. > She modifies treatment for each patient and has a very high success > rate so we are not worried. She's very experienced. I even asked about > the 23/7 when we started b/c I had read about it and she felt it > wasn't necessary in his case as we are getting the same results she > looks for with 12/7. He has a mild case. We also haven't had any > problems whatsoever, not one blister and he's never kicked off a shoe. > We, as well as our dr, are vigilant. We are very comfortable with his > treatment as he is progressing very well. Why do I feel like I´m > defending the treatment he´s getting??? We're not going through this > blindly... thank you all for your concern. > > For us, clubfeet is just another part of his life; it definitely is > not the center of our world. If it were more severe, maybe it would > be. It's not something I worry about daily. The adjustment to sleeping > has been the only issue and that again seems under control. He takes > his morning nap with the bar on as well and it seems fine. > > I just wanted to touch base here with others who have had the same > experiences. Seems most are further along than we are in the process. > It's nice to be able to look ahead a little. Thanks again for the > welcome! > > Ali > Paddy (10/21/05) > Quote Link to comment Share on other sites More sharing options...
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