Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Hi All, I am the mom of a 24 mth (Sept 24th) RSS boy, Justen, he is currently 15 lbs, and 29 inches. I, like everyone else, have been to nutrition, speech, OT, PT, and other then his size, he is a very normal little boy. He has never been hospitalized, and since having ear tubes placed, rarely gets sick. Our problem now is that although Justen has steadly been growing on his on little growth chart, he has been 15-16 lbs for the last year. We can not get him over the 16lb mark. He was referred to a GI a year ago, who said besides having RSS, he saw no other metabolism problems. Well, now once again, because of the plateau, his Ped has referred him to another GI. This one wants to give him the tube, and like the few other moms on here, I am terrified!! Not only do I not want him to become dependent, because he does eat, I am scared of school and day care problems that can occur with the tube. Has anyone expierenced having to send their RSS kid to a sitter or school with a tube? The GI is also referring him to Endo, who from what I hear will recommend a GH. I have read the post that some of you guys praise the hormone. Does the hormone work for both weight and height? Or just height? Another concerned, is that I have noticed in some diaper changes, that his bowels seem to contain undigested food, like whole pineapples. It looked as if it just came right out, has anyone expierenced that? I know a lot of you, praise Dr H, but is there anyone living in Chicago or surronding areas, that know of any other good Endo's? Sorry for the long post, but it's just so frustrating that this syndrome is not widely known, and so many doctors are clueless. Quote Link to comment Share on other sites More sharing options...
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