Re: Digest Number 3019 Kim C

August 20, 2005

kim,

-----SSHe has 5 cc's in her balloon is that right?>

------she vomits after 5 min on her tube feeds

-------She is on peptamin jr .Which she has been on since she was a year ols

nad she just turned 4.

------Tube looks fine, from my view anyway

------ nope not constipated but great thought

------- She gets 55 cc's an hour over night

any ideas???

Chrissy

August 21, 2005

Hi Chrissy,

I'm so sorry that poor Maddy is having all these troubles. Seems like our

kids/g-kids get more than their fair share sometimes.

Have you tried changing the button?? I though I read in another post about a

similar problem, they changed the button, and the problem was resolved.

Children can develop a sensitivity to things even though they've used them

for a long time (ie Maddy's formula)

Have you tried running a lower cc/hr rate for a longer period of time?

Have you tried a Farrell Valve? This way Maddy could be vented, as well as

fed, all night??

Has Maddy been tested for H. pylori??

In my experience with , he bloats with air when he's coming down with

something, or his asthma is acting up. Is Maddy retracting? getting extra

neb treatments??

I have experienced anxiety attacks, and what you're describing definitely

sounds like one. They're extremely frightening when they occur, even if you

know what's going on. The only thing that helps with mine, is relaxation

exercises, and focusing on something other than what is causing me to

stress. Not always as easy as it sounds.

Hope things start looking up.

HUGS!!

Pat

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