Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 I'm looking for advice. Our physical therapist recommended we decide if we wanted to treat Peyton's plagiocephaly. She will be 6 months old on Friday. She also has torticollis, right ankle inversion (brace pending), right sided weakness (cerebral palsy evaluation pending), acid reflux, she had pretty bad scoliosis but has started to resolve since she's sitting up more. I went to Hanger Orthotics and also our local Orthotics for evaluations. Hanger did the STAR laser imaging but he said he does not offer advice or his opinion on what you should do. Gee thanks. The other place does casting, and he took hand measurements, they are slightly off with what the STAR took. I know that her right anterior to left posterior, versus her left anterior to right posterior numbers are marginal. He said that with some insurances it has to be a difference of 6mm, hers is 4-5mm, with the hand measurements. She was also hard to hand measure, wouldn't hold still, of course. However, the numbers that represent M-L and A-P which I assume are the same as what STAR calls Cranial width vs Cranial length (because they are about the same numbers..) is off. He said that the ratio of those numbers had something to do with the depth of her head, and that it was over an inch off, or about 20%. That was kind of confusing, but I checked with my insurance and they have no requirements number wise on the helmets. If a doctor writes a script then they will cover it. So, here are the numbers, I don't want to make the wrong decision, but I dont want to put her through the helmet in the middle of summer if it's truly un-necessary. Thanks. Hand Taken Measurements. circumference-418mm M-L 128mm A-P 135mm (he said this is .95 and normal is .77 *the ratio, i guess?) Right-Ant to Left Post-133-134mm Left-Ant to Right Post-138mm I also have some special cranial measurements which he didn't discuss really. It says right, 65mm, with an arrow drawn towards orbitaltragial depth. Also Right 84mm, for cranial base from right and left subnasal point to tragus. Left says 63mm drawn down to Tragus and 87mm to go along with the cranial base on that side (the picture is odd and he drew arrows..sorry) STAR Anthropometric Measurements Obtained from the Insignia Scanning System Circumference: 423.0 mm Cranial vault (right ant. – left post.) 135.2 mm Cranial width: 129.3 mm Cranial vault (left ant. – right post.) 138.8 mm Cranial length: 137.8 mm Cranial vault asymmetry: 3.6 mm Cephalic index (CI): 93.8% So anyways, hopefully someone far wiser than me can help. If you could just tell me what you would do, i would appreciate it. I've already been told 3 times it's purely cosmetic, but I know it's not from research & The orthotists said it can cause jaw problems, etc. Thank you so much in advance. Krystle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 I can't tell you what to do, I can tell you her #s fall within what they call minor plagiocephaly and even then is barely 3-9 mm difference is minor but most normal ppl fall in the 4-6 range. So a lot of ppl would say she doesn't need a band for that but imo looks are more important, how do you feel about that? However she definitely has what they refer to as brachycephaly, iow the back of her head is probably flat all the way across, this effected her length to width ratio, it can also make her forehead wide. She is well within the severity for that where most ppl would band. But again, how do you feel about the way her head looks? I wouldn't discount getting a band at all but with everything she is going through I also would make my decision carefully. I would also ask how long they will band for. Obviously now/younger is better but most will band until at least 12 month so that means you have some time to get through some things b efore having to start if your worried about doing it now, jumping the gun, so many things at once or summer On 5/3/10, realisticdreams8 <realisticdreams424@...> wrote: > I'm looking for advice. Our physical therapist recommended we decide if we > wanted to treat Peyton's plagiocephaly. She will be 6 months old on Friday. > She also has torticollis, right ankle inversion (brace pending), right > sided weakness (cerebral palsy evaluation pending), acid reflux, she had > pretty bad scoliosis but has started to resolve since she's sitting up more. > > > I went to Hanger Orthotics and also our local Orthotics for evaluations. > Hanger did the STAR laser imaging but he said he does not offer advice or > his opinion on what you should do. Gee thanks. The other place does > casting, and he took hand measurements, they are slightly off with what the > STAR took. I know that her right anterior to left posterior, versus her > left anterior to right posterior numbers are marginal. He said that with > some insurances it has to be a difference of 6mm, hers is 4-5mm, with the > hand measurements. > > She was also hard to hand measure, wouldn't hold still, of course. > > However, the numbers that represent M-L and A-P which I assume are the same > as what STAR calls Cranial width vs Cranial length (because they are about > the same numbers..) is off. He said that the ratio of those numbers had > something to do with the depth of her head, and that it was over an inch > off, or about 20%. > > That was kind of confusing, but I checked with my insurance and they have no > requirements number wise on the helmets. If a doctor writes a script then > they will cover it. > > So, here are the numbers, I don't want to make the wrong decision, but I > dont want to put her through the helmet in the middle of summer if it's > truly un-necessary. > > Thanks. > > Hand Taken Measurements. > circumference-418mm > M-L 128mm > A-P 135mm (he said this is .95 and normal is .77 *the ratio, i guess?) > Right-Ant to Left Post-133-134mm > Left-Ant to Right Post-138mm > > I also have some special cranial measurements which he didn't discuss > really. It says right, 65mm, with an arrow drawn towards orbitaltragial > depth. Also Right 84mm, for cranial base from right and left subnasal point > to tragus. Left says 63mm drawn down to Tragus and 87mm to go along with > the cranial base on that side (the picture is odd and he drew arrows..sorry) > > STAR > > Anthropometric Measurements Obtained from the Insignia Scanning System > Circumference: 423.0 mm > Cranial vault (right ant. – left post.) 135.2 mm > Cranial width: 129.3 mm > Cranial vault (left ant. – right post.) 138.8 mm > Cranial length: 137.8 mm > Cranial vault asymmetry: 3.6 mm > Cephalic index (CI): > 93.8% > > > So anyways, hopefully someone far wiser than me can help. If you could just > tell me what you would do, i would appreciate it. I've already been told 3 > times it's purely cosmetic, but I know it's not from research & The > orthotists said it can cause jaw problems, etc. > > Thank you so much in advance. > > Krystle > > > -- Sent from my mobile device -mommy to Emma, Becca, , and Girl Scout cookies are coming! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 I agree with , that taking the time to weigh out what is best given all that she is going through. I also can't tell you what to do, but I am sure that you will make the best decision you can. For me, writing up a pro and con list then weighing each item from 1-10 and totaling up the columns helps when it comes to difficult decisions. There is no right answer. Weigh the factors unique for your family, your child and your unique situation. You will come up with the decision that is best for you. Personally, we really fretted over the decision to go with the helmet for our son. But we also worked on vigorous repositioning for a 4 months before going for the helmet. Since he developed it young (4 weeks) we had some extra time to play with. Since sutures are usually fused by 12 months, there isn't much time to decide. By 5 months the torticollis was gone, but we hadn't seen much improvement in his head shape. Our neurosurgeon told us that it is questionable if the helmet actually helps to reshape, but he did think it helped keep the pressure off that side of the head. We decided to go with the helmet. He has since been in the helmet for 4 months and we have noticed a significant improvement . . . an improvement we are happy with. I also know that there are people who chose not to do the helmet and are happy with the outcome of their decision. Hope this helps, > > I'm looking for advice. Our physical therapist recommended we decide if we > > wanted to treat Peyton's plagiocephaly. She will be 6 months old on Friday. > > She also has torticollis, right ankle inversion (brace pending), right > > sided weakness (cerebral palsy evaluation pending), acid reflux, she had > > pretty bad scoliosis but has started to resolve since she's sitting up more. > > > > > > I went to Hanger Orthotics and also our local Orthotics for evaluations. > > Hanger did the STAR laser imaging but he said he does not offer advice or > > his opinion on what you should do. Gee thanks. The other place does > > casting, and he took hand measurements, they are slightly off with what the > > STAR took. I know that her right anterior to left posterior, versus her > > left anterior to right posterior numbers are marginal. He said that with > > some insurances it has to be a difference of 6mm, hers is 4-5mm, with the > > hand measurements. > > > > She was also hard to hand measure, wouldn't hold still, of course. > > > > However, the numbers that represent M-L and A-P which I assume are the same > > as what STAR calls Cranial width vs Cranial length (because they are about > > the same numbers..) is off. He said that the ratio of those numbers had > > something to do with the depth of her head, and that it was over an inch > > off, or about 20%. > > > > That was kind of confusing, but I checked with my insurance and they have no > > requirements number wise on the helmets. If a doctor writes a script then > > they will cover it. > > > > So, here are the numbers, I don't want to make the wrong decision, but I > > dont want to put her through the helmet in the middle of summer if it's > > truly un-necessary. > > > > Thanks. > > > > Hand Taken Measurements. > > circumference-418mm > > M-L 128mm > > A-P 135mm (he said this is .95 and normal is .77 *the ratio, i guess?) > > Right-Ant to Left Post-133-134mm > > Left-Ant to Right Post-138mm > > > > I also have some special cranial measurements which he didn't discuss > > really. It says right, 65mm, with an arrow drawn towards orbitaltragial > > depth. Also Right 84mm, for cranial base from right and left subnasal point > > to tragus. Left says 63mm drawn down to Tragus and 87mm to go along with > > the cranial base on that side (the picture is odd and he drew arrows..sorry) > > > > STAR > > > > Anthropometric Measurements Obtained from the Insignia Scanning System > > Circumference: 423.0 mm > > Cranial vault (right ant. – left post.) 135.2 mm > > Cranial width: 129.3 mm > > Cranial vault (left ant. – right post.) 138.8 mm > > Cranial length: 137.8 mm > > Cranial vault asymmetry: 3.6 mm > > Cephalic index (CI): > > 93.8% > > > > > > So anyways, hopefully someone far wiser than me can help. If you could just > > tell me what you would do, i would appreciate it. I've already been told 3 > > times it's purely cosmetic, but I know it's not from research & The > > orthotists said it can cause jaw problems, etc. > > > > Thank you so much in advance. > > > > Krystle > > > > > > > > -- > Sent from my mobile device > > -mommy to Emma, Becca, , > and > > Girl Scout cookies are coming! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 I agree with the previous post. Unless I'm misunderstanding something, it's more of a brachycephaly issue. The plagio numbers look good to me. Maybe you should repost it as a brachy question so people who's children have brachy will read your post. You can get some input on her CI of 93.8% that way. I don't know much about brachy measurements, but I know other people on the board do. I can tell you that brachy doesn't usually correct on it's own, though. Good Luck! > > I'm looking for advice. Our physical therapist recommended we decide if we > > wanted to treat Peyton's plagiocephaly. She will be 6 months old on Friday. > > She also has torticollis, right ankle inversion (brace pending), right > > sided weakness (cerebral palsy evaluation pending), acid reflux, she had > > pretty bad scoliosis but has started to resolve since she's sitting up more. > > > > > > I went to Hanger Orthotics and also our local Orthotics for evaluations. > > Hanger did the STAR laser imaging but he said he does not offer advice or > > his opinion on what you should do. Gee thanks. The other place does > > casting, and he took hand measurements, they are slightly off with what the > > STAR took. I know that her right anterior to left posterior, versus her > > left anterior to right posterior numbers are marginal. He said that with > > some insurances it has to be a difference of 6mm, hers is 4-5mm, with the > > hand measurements. > > > > She was also hard to hand measure, wouldn't hold still, of course. > > > > However, the numbers that represent M-L and A-P which I assume are the same > > as what STAR calls Cranial width vs Cranial length (because they are about > > the same numbers..) is off. He said that the ratio of those numbers had > > something to do with the depth of her head, and that it was over an inch > > off, or about 20%. > > > > That was kind of confusing, but I checked with my insurance and they have no > > requirements number wise on the helmets. If a doctor writes a script then > > they will cover it. > > > > So, here are the numbers, I don't want to make the wrong decision, but I > > dont want to put her through the helmet in the middle of summer if it's > > truly un-necessary. > > > > Thanks. > > > > Hand Taken Measurements. > > circumference-418mm > > M-L 128mm > > A-P 135mm (he said this is .95 and normal is .77 *the ratio, i guess?) > > Right-Ant to Left Post-133-134mm > > Left-Ant to Right Post-138mm > > > > I also have some special cranial measurements which he didn't discuss > > really. It says right, 65mm, with an arrow drawn towards orbitaltragial > > depth. Also Right 84mm, for cranial base from right and left subnasal point > > to tragus. Left says 63mm drawn down to Tragus and 87mm to go along with > > the cranial base on that side (the picture is odd and he drew arrows..sorry) > > > > STAR > > > > Anthropometric Measurements Obtained from the Insignia Scanning System > > Circumference: 423.0 mm > > Cranial vault (right ant. – left post.) 135.2 mm > > Cranial width: 129.3 mm > > Cranial vault (left ant. – right post.) 138.8 mm > > Cranial length: 137.8 mm > > Cranial vault asymmetry: 3.6 mm > > Cephalic index (CI): > > 93.8% > > > > > > So anyways, hopefully someone far wiser than me can help. If you could just > > tell me what you would do, i would appreciate it. I've already been told 3 > > times it's purely cosmetic, but I know it's not from research & The > > orthotists said it can cause jaw problems, etc. > > > > Thank you so much in advance. > > > > Krystle > > > > > > > > -- > Sent from my mobile device > > -mommy to Emma, Becca, , > and > > Girl Scout cookies are coming! > Quote Link to comment Share on other sites More sharing options...
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