Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 I am in a real need for some advise because i don't know how much more my husband and I can handle!!! Things with Maddy are getting worse. She can't tolerate tube feeds at all last night she last a whole 5 mins. All she does is vomitt, and complain her belly hurts, and everytime she coughs she vomitts!! It's so frustrating because no doctor wants to deal with it. We have had her in the ER alteast 6 times this year for the dame thing and they always say it's a GI bug. She used to go through this every few weeks but then be good for a lil while but now it's EVERYNIGHT. Her GI doc won't see her till Sept. 7th but what do we in t he meantime since she can't use the pump at all?? Her sugars are all over the place and she's spilling Keytones. We could call Dr. H but the doctor's and hospitals here won't listen to her anymore than they listen to me. So last night around 2 am I was in bed stressing over what my next more should be and I started to get tightness in my chest and became short of breath. The more I thought about it the worst it got. So I think I was having an anxiety attack but I never had one before so I don't really know. Someone needs to take care of this lil girl but who??? Tonight we are going to try the pump again and see what happens. The odd thing is she can handle eating all day without any problems but that tube makes her sick. Plus I have been venting her like 10 times a day. Everytime TONS of air comes shooting out. Where is she getting all this air from?? and how is it getting into her belly?? She not on continues feeds so how would all that air get through. She hasn't even been outside sucking up air because it's been so hot I was afraid to let her out cause i don't want her to burn anymore calories. NY hospitals won't except our insuarance and where thats ok with Dr. H it's not with the other docs who need to take care of her while she's there and we sure as hell can't afford the hospital bill. So where do we go from here?> Chrissy Mom to Louis 6 Madison 4 RSS Shane 1 10 mons Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Chrissy, I can't answer any of your questions (other than the comment about the anxiety attack, b/c i had one right after Christian was born and i was trying to balance seeing him in the nicu & being home w/ ). But I've been following everything you goes are going through and please know that my heart goes out to you and my prayers are with you. If there's anything I can do, please ask. mom to , 7, and Christian, 4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 do u know whats so weird. We spent an entire weekend together and didn't hav eone problem we came home nad bam shit hits the fan. Thanks for a really great weekend as you can tell where maddy is concerned i don't get many great ones and you and ur boys made it a wonderfull time Chrissy Quote Link to comment Share on other sites More sharing options...
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