Re: Digest Number 3019

[Guest guest]

Chrissy,

I am sure you have already thought of these things, but just in case

you haven't...

Have you checked the amount of water in the balloon to make sure it

is at an acceptable level?

Does her tube look right in her stomach (i.e. not pulling in too tight)?

What kind of formula is she on? Could it be a problem tolerating the

formula?

Is she constipated?

What is her rate and dose on the pump? How long does she last before

she vomits?

I hope you come up with a solution for her to feel better soon.

Kim C.

On Aug 20, 2005, at 10:39 PM, RSS-Support wrote:

> Message: 22

> Date: Sat, 20 Aug 2005 21:10:39 EDT

> From: chrissynlou@...

> Subject: update on madison

>

> I am in a real need for some advise because i don't know how much

> more my

> husband and I can handle!!!

> Things with Maddy are getting worse. She can't tolerate tube feeds

> at all

> last night she last a whole 5 mins. All she does is vomitt, and

> complain her

> belly hurts, and everytime she coughs she vomitts!! It's so

> frustrating because

> no doctor wants to deal with it. We have had her in the ER alteast

> 6 times

> this year for the dame thing and they always say it's a GI bug.

> She used to go

> through this every few weeks but then be good for a lil while but

> now it's

> EVERYNIGHT. Her GI doc won't see her till Sept. 7th but what do we

> in t he

> meantime since she can't use the pump at all?? Her sugars are all

> over the place

> and she's spilling Keytones. We could call Dr. H but the doctor's and

> hospitals here won't listen to her anymore than they listen to me.

>

> So last night around 2 am I was in bed stressing over what my next

> more

> should be and I started to get tightness in my chest and became

> short of breath.

> The more I thought about it the worst it got. So I think I was

> having an

> anxiety attack but I never had one before so I don't really know.

> Someone needs to

> take care of this lil girl but who???

>

> Tonight we are going to try the pump again and see what happens.

> The odd

> thing is she can handle eating all day without any problems but

> that tube makes

> her sick. Plus I have been venting her like 10 times a day.

> Everytime TONS of

> air comes shooting out. Where is she getting all this air from??

> and how is

> it getting into her belly?? She not on continues feeds so how

> would all that

> air get through. She hasn't even been outside sucking up air

> because it's been

> so hot I was afraid to let her out cause i don't want her to burn

> anymore

> calories.

>

> NY hospitals won't except our insuarance and where thats ok with

> Dr. H it's

> not with the other docs who need to take care of her while she's

> there and we

> sure as hell can't afford the hospital bill. So where do we go

> from here?>

> Chrissy

> Mom to

> Louis 6

> Madison 4 RSS

> Shane 1

> 10 mons

>