Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Hi Kaitlyn, Just wanted to say that it is great to hear the update on Kaden. Also, statistically speaking, the chances of you having another clubfoot baby (if neither you nor your husband has clubfoot) is only 3-4%. I don't know who told you that your next child will likely have clubfoot, but that is not a true statement, statistically speaking. I would hate for you to be concerned due to incorrect information. I have four kids and only the youngest has clubfeet. Carol > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: update on Kaden >Date: Tue, 18 Jul 2006 02:12:59 -0000 > >Hi everyone! I know i havent posted for awhile, but ive just been >reading about everything thats been posted on here, taking in all >information. Kaden is doing really well in his Ponceti braces. He is >getting more and more used to getting them put back on after the hour >out of them....this will last probly another 2 months, give or take >depending on his progress. Right now he is in them 23 hours per day, >1 hour out. >He has begun rolling over from his back to his stomach, which i hear >is a pretty hard thing to do, especailly with the braces on...but he >has learned to do it!!! > >His braces are adjusted to 60 degrees on the left foot, as this foot >is a typical clubfoot, and the right foot, which is an atypical >clubfoot is at 30 degrees. I asked my doctor why such the difference, >and he explained that if the atypical foot were adjusted to 60 >degrees, it can lead to whats called a banana foot, and we dont want >that. So this is why the angles are different on each foot. > >I've learned alot from this group and want to thank you for starting >it. We've been told that our next child, when we have one, would most >likely have clubfoot too, and now i wont be so overloaded with >confusing information. Thanx! > >Kaitlyn Hood >Ashlan and sburg, Ohio > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 HI Kaitlyn, It's great to hear things are going well for you in the Ponseti braces we have these too and I think they are fantastic. I'm sure some other parents might speak up here if I've got this totally wrong but the thing that is concerning me is the thing you said about having the braces at diferent angles becasue one of your son's feet is atypical and therefore at 30 degrees. Both our son's feet are atypical and both of his boots are set to 60 degrees. I've never heard of 'banana feet' being caused by setting the brace up like Dr Ponseti says. He actually reccommends the Ponseti brace for atypical clubfoot and as far as I know it's never been suggested they should be set up at anything different to 60 degrees. The only time I've heard of boots being at 30 is on a child where only one foot is a clubfoot and then the non-clubfoot is put at 30 degrees. I really would question why your doctor has said to do this as it's pointless going through the bracing schedule if things aren't being done correctly. It might be worth emailing Dr Ponseti if nothing else as I'm sure he'd let you know if your doctor is giving you incorrect information. Hope this helps Kathy:) nateskat44805 wrote: Hi everyone! I know i havent posted for awhile, but ive just been reading about everything thats been posted on here, taking in all information. Kaden is doing really well in his Ponceti braces. He is getting more and more used to getting them put back on after the hour out of them....this will last probly another 2 months, give or take depending on his progress. Right now he is in them 23 hours per day, 1 hour out. He has begun rolling over from his back to his stomach, which i hear is a pretty hard thing to do, especailly with the braces on...but he has learned to do it!!! His braces are adjusted to 60 degrees on the left foot, as this foot is a typical clubfoot, and the right foot, which is an atypical clubfoot is at 30 degrees. I asked my doctor why such the difference, and he explained that if the atypical foot were adjusted to 60 degrees, it can lead to whats called a banana foot, and we dont want that. So this is why the angles are different on each foot. I've learned alot from this group and want to thank you for starting it. We've been told that our next child, when we have one, would most likely have clubfoot too, and now i wont be so overloaded with confusing information. Thanx! Kaitlyn Hood Ashlan and sburg, Ohio --------------------------------- All new Yahoo! Mail " The new Interface is stunning in its simplicity and ease of use. " - PC Magazine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Kaitlyn, Good to hear from you, glad to hear that Kaden is doing so well. You watch out, now that he is rolling over he's going to be mobile and all over the place! I would love to have you pick your doctor's brain a little more about the " banana foot " thing. It's interesting that Dr. Ponseti and a lot of the other top Ponseti docs deal with atypical feet everyday, but they haven't made any distinction in the degrees of the bracing for atypical or typical. Not disagreeing with his explanation per se, just curious... Can he elaborate on how the increased angle would do this to the foot? And what exactly does he mean by banana shaped - like curved like a " C " along the lateral border of the foot? Or curved on the bottom (and if so, which way - rockerbottom or like an upside down cup)? ...so many questions, so little time... A couple more if you don't mind; : ) I don't remember if you mentioned before who Kaden's doctor is, would you mind sharing? Also, was the last cast on the atypical foot still abducted to about 60-70 degrees, and then only braced to 30? I have to admit that this worries me a little because an atypical foot could have a bit higher tendency to relapse and could be more difficult to re-correct if it did start to turn in again. I hope you don't take this as criticsm, I just think it's important to keep educated on any new findings (for myself) and/or to let other parents know information that's out there so they can discuss with their physician. In case you are interested, here's the abstract presented at the AAOS meeting earlier this year regarding maximum abduction: Natural History And The Effects Of Foot Hyperabduction In Clubfoot Relapses Paper No: 244 Thursday, March 23, 2006 10:54 AM - 11:00 AM Location: McCormick Place S104 Lovell, BS Iowa City IA (n) Lori Dolan, PhD Iowa City IA (n) Ignacio V Ponseti, MD Iowa City IA (n) A Morcuende, MD Iowa City IA (n) Moderator(s): Frances A. Farley MD Ann Arbor MI J Mubarak, MD San Diego CA Pediatrics Maximally abducting the last cast and brace in the Ponseti method significantly reduced rates of relapse and extensive corrective surgery. This study evaluates the natural history of clubfoot relapses after successful correction with the Ponseti method and the effect of foot hyperabduction on relapse prevention. Consecutive case-series from 1948 through December 2000. A total of 320 patients (502 clubfeet) having no previous foot surgery other than tendoachilles tenotomy (7 percent of feet) were evaluated. Two groups were created based on abduction in the last cast and brace. Group I: clubfeet (1948-1984) did not receive maximum abduction (n=291). Group II: clubfeet (1991-2000) with maximum abduction (n= 211). 70 percent were male, 23 percent had family history, 57 percent had bilateral deformity. 33 percent (95/288) of group I had previous conservative treatment at outside institutions versus 77 percent (163/211) of group II. Casting and tenotomy corrected 286/291 (98 percent) of group I and 209/211 (99 percent) of group II. In group I, 170 (58 percent) clubfeet relapsed compared to 59 (28 percent) in group II (p<0.0001). 91 percent of relapses occur before five years of age. Noncompliance remained similar at 65 percent in group I and 61 percent in group II. Relapses were related to non-compliance with the brace (p=0.001). Extensive surgical releases decreased from 11 percent in group I to 4 percent in group II (p=0.004), and anterior tibialis transfer from 51 percent to 15 percent (p<0.0001). Less than 10 percent of feet will relapse after the 6th birthday, but the tendency to relapse may persist until 11 years of age. Maximum abduction of the last cast and brace significantly reduced relapses and the need for extensive corrective surgery. Congrats again on Kaden rolling over, hope to hear that he is getting reduced hours in the brace right on schedule! I appreciate any feedback you might have on all of this too. Thanks, > > Hi everyone! I know i havent posted for awhile, but ive just been > reading about everything thats been posted on here, taking in all > information. Kaden is doing really well in his Ponceti braces. He is > getting more and more used to getting them put back on after the hour > out of them....this will last probly another 2 months, give or take > depending on his progress. Right now he is in them 23 hours per day, > 1 hour out. > He has begun rolling over from his back to his stomach, which i hear > is a pretty hard thing to do, especailly with the braces on...but he > has learned to do it!!! > > His braces are adjusted to 60 degrees on the left foot, as this foot > is a typical clubfoot, and the right foot, which is an atypical > clubfoot is at 30 degrees. I asked my doctor why such the difference, > and he explained that if the atypical foot were adjusted to 60 > degrees, it can lead to whats called a banana foot, and we dont want > that. So this is why the angles are different on each foot. > > I've learned alot from this group and want to thank you for starting > it. We've been told that our next child, when we have one, would most > likely have clubfoot too, and now i wont be so overloaded with > confusing information. Thanx! > > Kaitlyn Hood > Ashlan and sburg, Ohio > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 , Our doctor is Dr Adamcyzk from Akron Children's Hospital in Akron Ohio. I highly reccommend him, he has done great with Kaden. He explained the " banana foot " to us like this....it creates a bend in the foot that is improper, and eventually kaden would be walking solely on him heel, and not on the correct part of his foot. Thats in lamens terms that i could understand it. Hsi feet still looked GREAT at our last appt, and our next one is August 1st...and if they look as good at this one as our last, he said he will be totally thrilled with his progress. They havent relapsed at all, and he said that if we are very particular with the braces still, as I have been VERY particular about his feet placement in them, then he will do wonderful and shouldnt have any problems at the rate he is going now. Alot of people have questioned me about my doc's practices, but he has had several successfull cases. I even asked for a referral before i went to him, and he gave me one that is in our area...so thats cool. They too were very happy with him and recommended him. Yeah, i cant wait till his time is lessened in the braces...that means he can wear more than onsie type outfits that snap in the crotch area .....lol. I've heard that alot of older kids who are still in the braces, such as 1-2-3 year olds, whatever, will WANT thier braces on while sleeping...is this true? Of course if you make them a special thing ive heard. Kaitlyn > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > reading about everything thats been posted on here, taking in all > > information. Kaden is doing really well in his Ponceti braces. He is > > getting more and more used to getting them put back on after the hour > > out of them....this will last probly another 2 months, give or take > > depending on his progress. Right now he is in them 23 hours per day, > > 1 hour out. > > He has begun rolling over from his back to his stomach, which i hear > > is a pretty hard thing to do, especailly with the braces on...but he > > has learned to do it!!! > > > > His braces are adjusted to 60 degrees on the left foot, as this foot > > is a typical clubfoot, and the right foot, which is an atypical > > clubfoot is at 30 degrees. I asked my doctor why such the difference, > > and he explained that if the atypical foot were adjusted to 60 > > degrees, it can lead to whats called a banana foot, and we dont want > > that. So this is why the angles are different on each foot. > > > > I've learned alot from this group and want to thank you for starting > > it. We've been told that our next child, when we have one, would most > > likely have clubfoot too, and now i wont be so overloaded with > > confusing information. Thanx! > > > > Kaitlyn Hood > > Ashlan and sburg, Ohio > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 , Our doctor is Dr Adamcyzk from Akron Children's Hospital in Akron Ohio. I highly reccommend him, he has done great with Kaden. He explained the " banana foot " to us like this....it creates a bend in the foot that is improper, and eventually kaden would be walking solely on him heel, and not on the correct part of his foot. Thats in lamens terms that i could understand it. Hsi feet still looked GREAT at our last appt, and our next one is August 1st...and if they look as good at this one as our last, he said he will be totally thrilled with his progress. They havent relapsed at all, and he said that if we are very particular with the braces still, as I have been VERY particular about his feet placement in them, then he will do wonderful and shouldnt have any problems at the rate he is going now. Alot of people have questioned me about my doc's practices, but he has had several successfull cases. I even asked for a referral before i went to him, and he gave me one that is in our area...so thats cool. They too were very happy with him and recommended him. Yeah, i cant wait till his time is lessened in the braces...that means he can wear more than onsie type outfits that snap in the crotch area .....lol. I've heard that alot of older kids who are still in the braces, such as 1-2-3 year olds, whatever, will WANT thier braces on while sleeping...is this true? Of course if you make them a special thing ive heard. Kaitlyn > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > reading about everything thats been posted on here, taking in all > > information. Kaden is doing really well in his Ponceti braces. He is > > getting more and more used to getting them put back on after the hour > > out of them....this will last probly another 2 months, give or take > > depending on his progress. Right now he is in them 23 hours per day, > > 1 hour out. > > He has begun rolling over from his back to his stomach, which i hear > > is a pretty hard thing to do, especailly with the braces on...but he > > has learned to do it!!! > > > > His braces are adjusted to 60 degrees on the left foot, as this foot > > is a typical clubfoot, and the right foot, which is an atypical > > clubfoot is at 30 degrees. I asked my doctor why such the difference, > > and he explained that if the atypical foot were adjusted to 60 > > degrees, it can lead to whats called a banana foot, and we dont want > > that. So this is why the angles are different on each foot. > > > > I've learned alot from this group and want to thank you for starting > > it. We've been told that our next child, when we have one, would most > > likely have clubfoot too, and now i wont be so overloaded with > > confusing information. Thanx! > > > > Kaitlyn Hood > > Ashlan and sburg, Ohio > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 , Our doctor is Dr Adamcyzk from Akron Children's Hospital in Akron Ohio. I highly reccommend him, he has done great with Kaden. He explained the " banana foot " to us like this....it creates a bend in the foot that is improper, and eventually kaden would be walking solely on him heel, and not on the correct part of his foot. Thats in lamens terms that i could understand it. Hsi feet still looked GREAT at our last appt, and our next one is August 1st...and if they look as good at this one as our last, he said he will be totally thrilled with his progress. They havent relapsed at all, and he said that if we are very particular with the braces still, as I have been VERY particular about his feet placement in them, then he will do wonderful and shouldnt have any problems at the rate he is going now. Alot of people have questioned me about my doc's practices, but he has had several successfull cases. I even asked for a referral before i went to him, and he gave me one that is in our area...so thats cool. They too were very happy with him and recommended him. Yeah, i cant wait till his time is lessened in the braces...that means he can wear more than onsie type outfits that snap in the crotch area .....lol. I've heard that alot of older kids who are still in the braces, such as 1-2-3 year olds, whatever, will WANT thier braces on while sleeping...is this true? Of course if you make them a special thing ive heard. Kaitlyn > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > reading about everything thats been posted on here, taking in all > > information. Kaden is doing really well in his Ponceti braces. He is > > getting more and more used to getting them put back on after the hour > > out of them....this will last probly another 2 months, give or take > > depending on his progress. Right now he is in them 23 hours per day, > > 1 hour out. > > He has begun rolling over from his back to his stomach, which i hear > > is a pretty hard thing to do, especailly with the braces on...but he > > has learned to do it!!! > > > > His braces are adjusted to 60 degrees on the left foot, as this foot > > is a typical clubfoot, and the right foot, which is an atypical > > clubfoot is at 30 degrees. I asked my doctor why such the difference, > > and he explained that if the atypical foot were adjusted to 60 > > degrees, it can lead to whats called a banana foot, and we dont want > > that. So this is why the angles are different on each foot. > > > > I've learned alot from this group and want to thank you for starting > > it. We've been told that our next child, when we have one, would most > > likely have clubfoot too, and now i wont be so overloaded with > > confusing information. Thanx! > > > > Kaitlyn Hood > > Ashlan and sburg, Ohio > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Kaitlyn- As your son's time in the shoes are reduced-I would recommend doing a " block of freedom " and incorporating the shoes being put back on at bedtime. My son is 22 months old. At bedtime, we put his pjs on and then his socks and then we ask him to go get his magic shoes! He does, climbs into our bed and we put the shoes on him. He can be very inpatient sometimes and will point to his other foot almost as if saying-hurry up mom, get a move on. This is what works for us and as he enters the terrible twos, I think the reasoning of calling them " magic " help him out. He almost never fights us to have them put on, he just lays there and watches us do our work. I have begun asking him if he wants to help and he helps me lace them up. I believe the whole bedtime association is what has helped us in getting him to wear his shoes(not that we would give him a choice!!). HTH, kathleen mom to david bcf fab 12/7 and daughter edd 9/1/06 > > > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > > reading about everything thats been posted on here, taking in all > > > information. Kaden is doing really well in his Ponceti braces. > He is > > > getting more and more used to getting them put back on after the > hour > > > out of them....this will last probly another 2 months, give or > take > > > depending on his progress. Right now he is in them 23 hours per > day, > > > 1 hour out. > > > He has begun rolling over from his back to his stomach, which i > hear > > > is a pretty hard thing to do, especailly with the braces on...but > he > > > has learned to do it!!! > > > > > > His braces are adjusted to 60 degrees on the left foot, as this > foot > > > is a typical clubfoot, and the right foot, which is an atypical > > > clubfoot is at 30 degrees. I asked my doctor why such the > difference, > > > and he explained that if the atypical foot were adjusted to 60 > > > degrees, it can lead to whats called a banana foot, and we dont > want > > > that. So this is why the angles are different on each foot. > > > > > > I've learned alot from this group and want to thank you for > starting > > > it. We've been told that our next child, when we have one, would > most > > > likely have clubfoot too, and now i wont be so overloaded with > > > confusing information. Thanx! > > > > > > Kaitlyn Hood > > > Ashlan and sburg, Ohio > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Kaitlyn, Now I remember, I think you mentioned Dr. Adamcyzk before. I have to tell you that I was wrong. : ) There's a new paper out from Dr. Ponseti on complex clubfoot and they ARE recommending that these feet be set at a lesser degree! I had perused the paper but had missed this part: " Well-molded shoes attached in 40° outer rotation to a foot abduction bar are indispensable to prevent relapse in short, stubby complex clubfeet. " " The foot should not be abducted beyond 40°. " So Yay! Sounds like Dr. Adamcyzk is up on the latest stuff. You should talk to him about submitting the case studies required to get on Dr. Ponseti's qualified physicians list. I hope you don't feel that we have been too tough on him (or you) in our scrutiny of his techniques and in questioning things. I'm sure you've heard this before, but it is very common for a doctor to say he is using the Ponseti method and then " tweak " things to his liking but in the process decreasing the success of the method and/or increasing the chances of relapse. It's great to hear of someone new who is doing things right! Wishing you and Kaden continued success! Keep us posted on his progress. > > > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > > reading about everything thats been posted on here, taking in all > > > information. Kaden is doing really well in his Ponceti braces. > He is > > > getting more and more used to getting them put back on after the > hour > > > out of them....this will last probly another 2 months, give or > take > > > depending on his progress. Right now he is in them 23 hours per > day, > > > 1 hour out. > > > He has begun rolling over from his back to his stomach, which i > hear > > > is a pretty hard thing to do, especailly with the braces on...but > he > > > has learned to do it!!! > > > > > > His braces are adjusted to 60 degrees on the left foot, as this > foot > > > is a typical clubfoot, and the right foot, which is an atypical > > > clubfoot is at 30 degrees. I asked my doctor why such the > difference, > > > and he explained that if the atypical foot were adjusted to 60 > > > degrees, it can lead to whats called a banana foot, and we dont > want > > > that. So this is why the angles are different on each foot. > > > > > > I've learned alot from this group and want to thank you for > starting > > > it. We've been told that our next child, when we have one, would > most > > > likely have clubfoot too, and now i wont be so overloaded with > > > confusing information. Thanx! > > > > > > Kaitlyn Hood > > > Ashlan and sburg, Ohio > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Kaitlyn: May I ask if your son's clubfoot/feet were atypical or typical? Just curious. I had been taking my son to see Dr. Schrader, who is in the same office, and I have not had success with him treating Dino, who is now 8 months old. Thanks --- " nateskat44805 " wrote: > > > > > > > > > > > > > > > > > > > , > > Our doctor is Dr Adamcyzk from Akron Children's Hospital in Akron > > Ohio. I highly reccommend him, he has done great with Kaden. He > > explained the " banana foot " to us like this....it creates a bend in > > the foot that is improper, and eventually kaden would be walking > > solely on him heel, and not on the correct part of his foot. Thats in > > lamens terms that i could understand it. Hsi feet still looked GREAT > > at our last appt, and our next one is August 1st...and if they look as > > good at this one as our last, he said he will be totally thrilled with > > his progress. They havent relapsed at all, and he said that if we are > > very particular with the braces still, as I have been VERY particular > > about his feet placement in them, then he will do wonderful and > > shouldnt have any problems at the rate he is going now. > > > > Alot of people have questioned me about my doc's practices, but he has > > had several successfull cases. I even asked for a referral before i > > went to him, and he gave me one that is in our area...so thats cool. > > They too were very happy with him and recommended him. > > > > Yeah, i cant wait till his time is lessened in the braces...that means > > he can wear more than onsie type outfits that snap in the crotch area > > .....lol. > > > > I've heard that alot of older kids who are still in the braces, such > > as 1-2-3 year olds, whatever, will WANT thier braces on while > > sleeping...is this true? Of course if you make them a special thing > > ive heard. > > > > Kaitlyn > > > > > > > > > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > > > reading about everything thats been posted on here, taking in all > > > > information. Kaden is doing really well in his Ponceti braces. > > He is > > > > getting more and more used to getting them put back on after the > > hour > > > > out of them....this will last probly another 2 months, give or > > take > > > > depending on his progress. Right now he is in them 23 hours per > > day, > > > > 1 hour out. > > > > He has begun rolling over from his back to his stomach, which i > > hear > > > > is a pretty hard thing to do, especailly with the braces on...but > > he > > > > has learned to do it!!! > > > > > > > > His braces are adjusted to 60 degrees on the left foot, as this > > foot > > > > is a typical clubfoot, and the right foot, which is an atypical > > > > clubfoot is at 30 degrees. I asked my doctor why such the > > difference, > > > > and he explained that if the atypical foot were adjusted to 60 > > > > degrees, it can lead to whats called a banana foot, and we dont > > want > > > > that. So this is why the angles are different on each foot. > > > > > > > > I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Oh, I forgot, I also wanted to respond to your question about the kids actually *wanting* the brace on -- it really is true. My son can sleep without his (on the VERY rare occasion that he has been out of it) but there are lots of moms here who'll attest to their child actually being unable to sleep without the brace after a while. When I am getting Sammy ready for bed (he's 22 months), I just ask him if he's ready to put his night night shoes on and he shakes his head yes. If he says no I know that there's something wrong - he's started being able to tell me if the shoes are hurting so I can troubleshoot for needing to widen his bar or get new shoes. It doesn't hurt that he actually likes to wear shoes so he really wants me to put them on! > > > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > > reading about everything thats been posted on here, taking in all > > > information. Kaden is doing really well in his Ponceti braces. > He is > > > getting more and more used to getting them put back on after the > hour > > > out of them....this will last probly another 2 months, give or > take > > > depending on his progress. Right now he is in them 23 hours per > day, > > > 1 hour out. > > > He has begun rolling over from his back to his stomach, which i > hear > > > is a pretty hard thing to do, especailly with the braces on...but > he > > > has learned to do it!!! > > > > > > His braces are adjusted to 60 degrees on the left foot, as this > foot > > > is a typical clubfoot, and the right foot, which is an atypical > > > clubfoot is at 30 degrees. I asked my doctor why such the > difference, > > > and he explained that if the atypical foot were adjusted to 60 > > > degrees, it can lead to whats called a banana foot, and we dont > want > > > that. So this is why the angles are different on each foot. > > > > > > I've learned alot from this group and want to thank you for > starting > > > it. We've been told that our next child, when we have one, would > most > > > likely have clubfoot too, and now i wont be so overloaded with > > > confusing information. Thanx! > > > > > > Kaitlyn Hood > > > Ashlan and sburg, Ohio > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 , My son's left foot is considered typical, and right foot is atypical. So they arent the same. Im sorry to hear that you havent had much success with Dr Shrader...i personally havent been seen by him and dont know of him. Sorry! I have seen DR Riley once though for a recasting, and for a recasting too while Adamcyzk was on vacation...lol. To everyone else, thanx for your encouragement! Kaitlyn > > > > > > > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > > > > reading about everything thats been posted on here, taking in all > > > > > information. Kaden is doing really well in his Ponceti braces. > > > He is > > > > > getting more and more used to getting them put back on after the > > > hour > > > > > out of them....this will last probly another 2 months, give or > > > take > > > > > depending on his progress. Right now he is in them 23 hours per > > > day, > > > > > 1 hour out. > > > > > He has begun rolling over from his back to his stomach, which i > > > hear > > > > > is a pretty hard thing to do, especailly with the braces on ....but > > > he > > > > > has learned to do it!!! > > > > > > > > > > His braces are adjusted to 60 degrees on the left foot, as this > > > foot > > > > > is a typical clubfoot, and the right foot, which is an atypical > > > > > clubfoot is at 30 degrees. I asked my doctor why such the > > > difference, > > > > > and he explained that if the atypical foot were adjusted to 60 > > > > > degrees, it can lead to whats called a banana foot, and we dont > > > want > > > > > that. So this is why the angles are different on each foot. > > > > > > > > > > I > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Everett just accepts them as part of his nightly pajama routine also. He tries now to help us buckle them. ee Mother of 3 Clubfooted Sons: - Bilateral Club Feet April 1998 Everett - Bilateral Club Feet September 2003 Garrison - Bilateral Club Feet March 2006 Visit us on the Web! www.WildlifeRevivalTaxidermy.com Re: update on Kaden Oh, I forgot, I also wanted to respond to your question about the kids actually *wanting* the brace on -- it really is true. My son can sleep without his (on the VERY rare occasion that he has been out of it) but there are lots of moms here who'll attest to their child actually being unable to sleep without the brace after a while. When I am getting Sammy ready for bed (he's 22 months), I just ask him if he's ready to put his night night shoes on and he shakes his head yes. If he says no I know that there's something wrong - he's started being able to tell me if the shoes are hurting so I can troubleshoot for needing to widen his bar or get new shoes. It doesn't hurt that he actually likes to wear shoes so he really wants me to put them on! > > > > > > Hi everyone! I know i havent posted for awhile, but ive just been > > > reading about everything thats been posted on here, taking in all > > > information. Kaden is doing really well in his Ponceti braces. > He is > > > getting more and more used to getting them put back on after the > hour > > > out of them....this will last probly another 2 months, give or > take > > > depending on his progress. Right now he is in them 23 hours per > day, > > > 1 hour out. > > > He has begun rolling over from his back to his stomach, which i > hear > > > is a pretty hard thing to do, especailly with the braces on...but > he > > > has learned to do it!!! > > > > > > His braces are adjusted to 60 degrees on the left foot, as this > foot > > > is a typical clubfoot, and the right foot, which is an atypical > > > clubfoot is at 30 degrees. I asked my doctor why such the > difference, > > > and he explained that if the atypical foot were adjusted to 60 > > > degrees, it can lead to whats called a banana foot, and we dont > want > > > that. So this is why the angles are different on each foot. > > > > > > I've learned alot from this group and want to thank you for > starting > > > it. We've been told that our next child, when we have one, would > most > > > likely have clubfoot too, and now i wont be so overloaded with > > > confusing information. Thanx! > > > > > > Kaitlyn Hood > > > Ashlan and sburg, Ohio > > > > > > ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.10.1/390 - Release Date: 7/17/2006 Quote Link to comment Share on other sites More sharing options...
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