New Parents who join Listserve

October 10, 2005

Hi Everyone,

One of the things I do when new parents write me or contact MAGIC is

to very strongly suggest they join this listserve. I'm attaching the

top 10 questions they seem to have when they contact me. Everyone

here is so great at getting new parents on board. (Ken, maybe these

questions could be some sort of FAQ--any volunteers!?)

Also, just a friendly suggestion (and I know Ken has brought this up

before, so sorry if I sound like a broken record!): I would suggest

that subject lines very clearly deliniate chat versus other

discussion, or maybe even keep one-to-one chat offline. With the

Yahoo-groups search function being much more limiting than the past

(you have to keep hitting Previous to search new ranges), I think we

need to make it very inviting for new parents who " lurk " . If they

don't immediately see discussion topics related to specific RSS

issues, they may not immediately join.

(I'll share my " Info all parents of RSS children should know " letter

in another posting).

Thanks! -

Katy

MAGIC RSS Division Co-Consultant

Mom to , age 8, GHT since age 3

1. How do I know my child really has RSS?

2. Feeding/appetite enhancement tips?

3. Where can I find a doctor in _______? Which specialists?

4. Is GHT really safe? Can it be given if a child has normal GH

levels?

5. Is there a blood test for RSS?

6. I'd like to talk with other RSS parents.

7. I'm an adult with RSS. Can I have children? Is RSS hereditary?

8. Doctors are accusing me of not feeding my child. Where can get

info on RSS? What are my legal options? (THIS IS THE TOUGHEST Q of

ALL!)

9. What should I be doing and when?

10. What are the developmental risks of RSS?

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