Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 , Sorry I can not offer any advise. My son who will be two in July does this too. It's like his ankle just gives out and he falls to the floor then cries and holds his foot. We did buy him a pair of Nike shoes that are high tops thinking that it would support the ankles more and not fall as much. This seems to help, but very little. He also does hold his knee and cry, not after he has fallen, I just I just put that off as growing pains. Maybe they are connected. Please let me know what they say. Tabitha amandajlear wrote: Hi and I are off to see his Consultant tomorrow and I thought I would just quickly ask a quick couple of questions. Al has bilateral talipes, he's 2 yrs 4 months and since he started to walk (about 7 or 8 months old - he had casts just afterwards!) he has been falling down. This is more than the average child and I have generally put it down to the muscles growing. However as you can see we are not 2 years down the line nearly and I do not believe that this is right. Al can be just standign there and the next minute he is in a heap on the floor. Please can other bilateral CF parents with similar age or older children please let me know whether there children did the same. I believe the problem is 's ankles. He has also complained of back pain and more recently knee pain. If I put him down too quickly he hasn't flexed his knee and this causes him pain too. Thanks in advance for any help / insight you can offer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 , My daughter (2 years 2 mos)has had the opportunity to have many specialists in her life - we try to look at it as a blessing, we really do! LOL - including our local ortho, Dr. Ponseti and folks in Iowa, and our PT and OT who have been with us since she was born. Granted she has had other issues but low tone is one of those things she's had to deal with and is overcoming. She has weakness in the ankles because of it. Took me awhile to believe it because her legs are so strong in other ways but she compensates so it is hidden. We thought for awhile that she just needed an ATTT and her feet would be good - but alas we're in the process of being fitted for SMO's which are ankle high AFO's - because of this weakness in her ankles. Her muscles need to strengthen with her feet in correct alignment from the heel to the ankle and then she'll be fine. They say it will take anywhere from a few months to a year for her ankles to strengthen enough to support her well. I am finding that this seems to be an issue that is more common with cf kids than those who aren't however the ortho can quote no stats. Just experience. Our PT feels the same and the orthotist chimes in as well in agreement as he sees a lot of feet. LOL Low tone can be less than obvious but can effect the limbs as well as the trunk and generally comes in 'groups'. In other words you are usually low tone in more than one area. It has been an education learning some of the ways it effects her and how we can help her overcome it but in general it seems it is more common than folks realize and often goes unnoticed until something brings it to your attention. I'd explore that possibility with your Dr - a PT can really help with it or to just help strengthen his muscles in general. Chris Falling Down Hi and I are off to see his Consultant tomorrow and I thought I would just quickly ask a quick couple of questions. Al has bilateral talipes, he's 2 yrs 4 months and since he started to walk (about 7 or 8 months old - he had casts just afterwards!) he has been falling down. This is more than the average child and I have generally put it down to the muscles growing. However as you can see we are not 2 years down the line nearly and I do not believe that this is right. Al can be just standign there and the next minute he is in a heap on the floor. Please can other bilateral CF parents with similar age or older children please let me know whether there children did the same. I believe the problem is 's ankles. He has also complained of back pain and more recently knee pain. If I put him down too quickly he hasn't flexed his knee and this causes him pain too. Thanks in advance for any help / insight you can offer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 While we wait for our SMO's we have tried high top shoes - but ones with more stable high tops like the old fashioned white high tops - and they do seem to help. Granted we can't see her foot in them but she seems happier and walks more with them on. Chris Re: Falling Down , Sorry I can not offer any advise. My son who will be two in July does this too. It's like his ankle just gives out and he falls to the floor then cries and holds his foot. We did buy him a pair of Nike shoes that are high tops thinking that it would support the ankles more and not fall as much. This seems to help, but very little. He also does hold his knee and cry, not after he has fallen, I just I just put that off as growing pains. Maybe they are connected. Please let me know what they say. Tabitha amandajlear wrote: Hi and I are off to see his Consultant tomorrow and I thought I would just quickly ask a quick couple of questions. Al has bilateral talipes, he's 2 yrs 4 months and since he started to walk (about 7 or 8 months old - he had casts just afterwards!) he has been falling down. This is more than the average child and I have generally put it down to the muscles growing. However as you can see we are not 2 years down the line nearly and I do not believe that this is right. Al can be just standign there and the next minute he is in a heap on the floor. Please can other bilateral CF parents with similar age or older children please let me know whether there children did the same. I believe the problem is 's ankles. He has also complained of back pain and more recently knee pain. If I put him down too quickly he hasn't flexed his knee and this causes him pain too. Thanks in advance for any help / insight you can offer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 Hi , I'm writing in a rush so I hope this makes sense. My daughter Emma would fall for seemingly no reason and she still did occasionally until about 6 months ago. She is now 6 1/2 years old. What I've noticed is that she appears to have more strength in her legs lately as well as better balance. She also has a tighter heel cord in her left foot (which is stiffer overall) that I think contributes to how quickly she can recover from a loss of balance. Dan Falling Down Hi and I are off to see his Consultant tomorrow and I thought I would just quickly ask a quick couple of questions. Al has bilateral talipes, he's 2 yrs 4 months and since he started to walk (about 7 or 8 months old - he had casts just afterwards!) he has been falling down. This is more than the average child and I have generally put it down to the muscles growing. However as you can see we are not 2 years down the line nearly and I do not believe that this is right. Al can be just standign there and the next minute he is in a heap on the floor. Please can other bilateral CF parents with similar age or older children please let me know whether there children did the same. I believe the problem is 's ankles. He has also complained of back pain and more recently knee pain. If I put him down too quickly he hasn't flexed his knee and this causes him pain too. Thanks in advance for any help / insight you can offer Quote Link to comment Share on other sites More sharing options...
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