Re: Chantel and asymmetry

[Guest guest]

Eyes are also a problem. Mikey has one eyeball larger than the other- the

larger one on the same side as her larger hand, longer leg, longer arm. Was

corrected with glasses and wearing an eyepatch 2 hours a day for several

years.We didn't catch it until she was 3. Neither did her many drs, preschool

teachers,etc.when we had Xmas pictures made it s

howed very clearly in one them. One more thing to watch for.

I also think leg surgery would be for extreme length discreprancy. Has

anyone had that done?

Ellen, Mom,GMom to Mikey, 9, 50 " ,56 lbs, GHT, Lupron,(having some problems

with dosages of Lupron- anyone else with that problem?)

[Guest guest]

Chantel - I agree with Jodi - it can be very hard to tell whether or

not my son Ian has it. Unless he is on the actual board where they

check each limb separately - you wouldn't be able to tell - but,

when they do use the board - he is 1 cm shorter on his left side.

- H

> Chantel,

> I have to agree with Jodie C. about discrepancies in

measurements. My

> son, , who is 3, also has asymmetry. But, it depends on who

you

> talk to. Dr. H was the first doctor to even notice this. His

hands

> and feet are different and he even has asymmetry IN his MOUTH!

Also,

> no one noticed, not even me, that has the

> different " thicknesses " too. I just noticed this no too long ago.

His

> left arm and leg is " thicker " than the other. Sometimes it can be

very

> hard to notice, and other times you notice it after they have

grown

> some. It is very hard to measure these kids, as Dr. H is VERY

> particular and meticulous in measuring them. She stretches them

and

> uses books, etc. even went to see an Ortho. who said

> didn't have asymmetry! It can be very slight or very obvious.

You

> never know, he may not even have it at all.

>

> Jodi R.