Re: Ran into another baby...

[Guest guest]

hi laura

im from the philippines

my daughter isha has a unilateral clubfoot. how would you know if a childs

clubfoot is a mild or a severe one? please let me know. you know i wish i could

be in iowa ryt now to see dr ponsetti.... but cant afford it and im way too

far....well i brought my baby to pedia ortho who claims he follows ponsetti

method...my baby foot looks better now well its not 100 % straight it about 70%

percert. no one can tel she has a clubfoot...except when someone stares at

it.lol... she was placed in cast for two months..now its the shoe... its so hard

you know to see her like this... shes almost one and ready to stand ...but how??

regards...

satya

wrote:

Hi. I ran into an 11 month old today in s today at the

library! That's the first time we have ever seen another clubfoot

child in treatment, casts or braces (except for 1 time in Dr. P's

office). So fun for Lily to see someone who looked like her! Is there

ever a clubfoot gathering in Iowa City? The way Lily laughed and

pointed at the little one's s made me happy.

However, after speaking with this mother, I know she is seeing the

local ortho who is not following Dr. P to a " T " . Her daughter's case

is unilateral and mild and she was fine with the local ortho. I didn't

say anything other than that we loved Dr. Ponseti and if she was ever

concerned, he and his team have worked miracles on Lily, but in

retrospect, I think I should have said something, but what?

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[Guest guest]

Hi,

There is a doctor in the ines who follows the Ponseti Method

and is reportedly very good. Her name is Dr. Aguillara, I do not

know what city she's in right off hand but JM's mom (JM is

5!) is seeing her and I will email and ask her to contact you.

Severity is usually not a factor and if the foot isn't

straight... it is not corrected. It should not only be straight,

but it should point out to the side at a very dramatic

angle. Straight is great... but you don't want straight till after

years of brace wear (the foot comes back to neutral/straight).

I posted in response to your other post this morning, hope you see

that. If you can show us her foot that would help a lot.

I think you should find Dr. Aguillara and have her give you a second

opinion. Don't worry too much, we'll help you through this and Isha

will have a perfect foot soon.

Kori

At 07:12 PM 7/20/2006, you wrote:

>hi laura

>im from the philippines

>my daughter isha has a unilateral clubfoot. how would you know if a

>childs clubfoot is a mild or a severe one? please let me know. you

>know i wish i could be in iowa ryt now to see dr ponsetti.... but

>cant afford it and im way too far....well i brought my baby to pedia

>ortho who claims he follows ponsetti method...my baby foot looks

>better now well its not 100 % straight it about 70% percert. no one

>can tel she has a clubfoot...except when someone stares at it.lol...

>she was placed in cast for two months..now its the shoe... its so

>hard you know to see her like this... shes almost one and ready to

>stand ...but how?? regards...

>

>

>satya

> wrote:

>Hi. I ran into an 11 month old today in s today at the

>library! That's the first time we have ever seen another clubfoot

>child in treatment, casts or braces (except for 1 time in Dr. P's

>office). So fun for Lily to see someone who looked like her! Is there

>ever a clubfoot gathering in Iowa City? The way Lily laughed and

>pointed at the little one's s made me happy.

>

>However, after speaking with this mother, I know she is seeing the

>local ortho who is not following Dr. P to a " T " . Her daughter's case

>is unilateral and mild and she was fine with the local ortho. I didn't

>say anything other than that we loved Dr. Ponseti and if she was ever

>concerned, he and his team have worked miracles on Lily, but in

>retrospect, I think I should have said something, but what?

>

>

>

>Send instant messages to your online friends

><http://uk.messenger.yahoo.com>http://uk.messenger.yahoo.com

>

>

[Guest guest]

Hi Satya.

I only " knew " in this case the severity of the clubfoot because the

mother told me (I assume the doctor told her). I think Kori posted a

good answer to you (although I am not sure yet I agree that severity

doesn't matter--although I could be wrong too--waiting to hear back

from Kori on this).

There are several concerns raised by your email and I am not so

experienced in this sort of thing so I hope someone else posts. Here

are some thoughts: #1. Dr. Ponseti responds to his e-mails. Send

him photos of your daughter's foot (I will attach at the bottom a

description of the photos that should be taken.) #2. Kori seems to

have information on a good Ponseti doctor in the Philippines. #3.

Her foot should be quite straight, not 70% straight #4. Can you

please post what brace she is in, what degree it is set at, how

frequently she wears it, etc. #5 I think (and I do not know, this

is a question for a doctor) that she should be able to bear weight on

her feet at a year, when she is out of the brace (I am assuming you

say she cannot stand because she in the brace with the " arc " to it?).

#6 Can you post pictures here to CFPICS?

I found this link very helpful ( www.global-help.org and click on

Publications to download a copy of Clubfoot: Ponseti Management) when

I was trying to determine how closely my doctor was following Ponseti

protocol but the proof is really in the pudding as us Americans say

(and probably the British, Canadians...). Meaning, her feet should

look " right " if the treatment is " right " .

Thanks for the post. This board has been a wealth of information for

me--I hope it is for you too!

Photo instructions I received from Dr. Ponseti: " If you could send

me pictures, I might be able to give you some idea of what needs to

be done. I would like to see her held in a standing position bearing

weight on her bare feet on a hard surface (not carpet) from the

front and from the back. I need to see her from the knees down.

Then have her lie on her back, place the palm of your hand against

the sole of her foot and gently press the foot into dorsiflexion.

Take a side view of each foot in this position. "

> Hi. I ran into an 11 month old today in s today

at the

> library! That's the first time we have ever seen another clubfoot

> child in treatment, casts or braces (except for 1 time in Dr. P's

> office). So fun for Lily to see someone who looked like her! Is

there

> ever a clubfoot gathering in Iowa City? The way Lily laughed and

> pointed at the little one's s made me happy.

>

> However, after speaking with this mother, I know she is seeing the

> local ortho who is not following Dr. P to a " T " . Her daughter's

case

> is unilateral and mild and she was fine with the local ortho. I

didn't

> say anything other than that we loved Dr. Ponseti and if she was

ever

> concerned, he and his team have worked miracles on Lily, but in

> retrospect, I think I should have said something, but what?

>

>

>

>

>

>

>

> Send instant messages to your online friends

http://uk.messenger.yahoo.com

>

>