Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Grant has had more blood draws than I care to think about. They can get a blood draw out a baby's finger or arm at that age if they need to. A heel is ideal, but it's not the only way. Just make sure, if there is a need for a draw, to have them apply a gel heat pack (for an infant). If the blood draw is the PKU test then that is done right away in the hospital before casting would begin. My second daughter (no clubfeet) had to have it done again because they didn't get the right amount of blood the first time. I think it was done about a week or two after the initial test. If this is the case, a finger wouldn't be particularly fun, but it wouldn't be impossible either. I think it's pretty rare for the test to have to be done over again, though. I believe the only time a blood draw would be done in early infancy (besides the PKU) would be if something was wrong, such as jaundice, etc. Otherwise, as said the only blood draw my other kids needed was for lead and anemia at one year. As for the shots, I see that being a challenge, but if you are doing Ponseti you should be done with the casting pretty close to the time you'd start the series (around 2 months). I'm thinking they could work with that even if it was a bit delayed. And, my question would be, is there elsewhere the shot(s) can be given? Joy --- kannhoudek wrote: > The biggest obstacle we had was figuring out the shots with the > casts. Never problems with drawing blood. But then again, I don't > remember them needing to get blood from Aleksander while he was in > casts. > > I only remember one blood test, and he was much older. I think it > was to check lead levels in his blood. They just pricked his finger > and got what they needed that way. No big deal. > > Also, Aleksander didn't get his first cast until he was nearly 1 > month old. He was a little older when casting was done as a result, > but again, no big deal. Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) http://www.caringbridge.org/visit/grantphilip __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Our pediatrician did need to draw blood from Lily's heel for some test that the state of New Mexico requires. We knew about this ahead of time & asked that the hospital where Lily's cf was treated get the blood sample during a cast change. They told us they also would have been able to make a small hole in the cast to get the blood out - I think that would not have been easy. Kim kannhoudek wrote: The biggest obstacle we had was figuring out the shots with the casts. Never problems with drawing blood. But then again, I don't remember them needing to get blood from Aleksander while he was in casts. I only remember one blood test, and he was much older. I think it was to check lead levels in his blood. They just pricked his finger and got what they needed that way. No big deal. Also, Aleksander didn't get his first cast until he was nearly 1 month old. He was a little older when casting was done as a result, but again, no big deal. Aleksander, 11/24/04 bcf > > Hi Jane, > > I don't get to post much anymore but I just happened to read yours today. > First, congratulations on the pregnancy. Now, according to Dr. Herzenberg, > it is okay to take your baby home and start the clubfoot treatment 2 weeks > after birth. I think that the story you were reading was a very rare > occurrence. Assuming all is well with the baby, there is no reason for > blood to be taken at a " normal " well-baby check up. Therefore, it would not > interfere with the casting process. > > Hope this helps. > > Good luck! > > > > Pediatric check up right after baby's birth > > Hi, I am expecting a baby girl in about a month and a half. I guess > I know I will have lot more time NOW, compared to the time when > actually baby comes, so doing lots of research on clubfeet! > > I was browsing someone's website which detailed their child's > clubfoot treatment process from the beginning up until now and have > a question on one thing. > According to the website, they said they started treatment from day > 4 of the baby's birth and had to go through a routine pediatrician > check up for the baby. And it included bloodtest for infants--and > there were some problems between her cast and blood test. > Here is the link which explains their story; > > http://hometown.aol.com/vc11/warning.htm > > I am thinking about taking my baby to the clubfoot clinic within a > week to ten days after the birth and I am not sure what to do with > mandatory baby check up with a peds--which thing should come first? > Cast or ped check up? Any experiences or thoughts? Our hospital > recommends to bring our baby in two weeks for ped check up. > I am a first time mama and just full of questions... > > Also, when you see the website on the above, the parents also > mentioned hip problem and she wore a harness to create a depression > in her hip. > Is this common to have when the baby has clubfeet? > > I am a first time mama and just have full of questions... > > Jane > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 A note on PKU my widwife taught me - she used a tool that made a small slice rather than the tool that just makes a round needle poke. I actually ordered the thing on line per her instruction and had it shipped to my house. The blood flows more easily so they don't have to squeeze the foot so badly to get the blood out. She used a small heat pack, warmed the heel, then poked him with that gadget adn it was so easy. Everett's PKU in the hospital was so friggen horrible I nearly threw up with them squeezing his foot blue to get blood and him screaming until he nearly passed out. Garrison never made a wimper. s. Re: Re: Pediatric check up right after baby's birth Grant has had more blood draws than I care to think about. They can get a blood draw out a baby's finger or arm at that age if they need to. A heel is ideal, but it's not the only way. Just make sure, if there is a need for a draw, to have them apply a gel heat pack (for an infant). If the blood draw is the PKU test then that is done right away in the hospital before casting would begin. My second daughter (no clubfeet) had to have it done again because they didn't get the right amount of blood the first time. I think it was done about a week or two after the initial test. If this is the case, a finger wouldn't be particularly fun, but it wouldn't be impossible either. I think it's pretty rare for the test to have to be done over again, though. I believe the only time a blood draw would be done in early infancy (besides the PKU) would be if something was wrong, such as jaundice, etc. Otherwise, as said the only blood draw my other kids needed was for lead and anemia at one year. As for the shots, I see that being a challenge, but if you are doing Ponseti you should be done with the casting pretty close to the time you'd start the series (around 2 months). I'm thinking they could work with that even if it was a bit delayed. And, my question would be, is there elsewhere the shot(s) can be given? Joy --- kannhoudek wrote: > The biggest obstacle we had was figuring out the shots with the > casts. Never problems with drawing blood. But then again, I don't > remember them needing to get blood from Aleksander while he was in > casts. > > I only remember one blood test, and he was much older. I think it > was to check lead levels in his blood. They just pricked his finger > and got what they needed that way. No big deal. > > Also, Aleksander didn't get his first cast until he was nearly 1 > month old. He was a little older when casting was done as a result, > but again, no big deal. Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) http://www.caringbridge.org/visit/grantphilip __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 --- number23 wrote: > A note on PKU my widwife taught me - she used a tool that made a small slice > rather than the tool that just makes a round needle poke. I actually ordered > the thing on line per her instruction and had it shipped to my house. > > The blood flows more easily so they don't have to squeeze the foot so badly > to get the blood out. She used a small heat pack, warmed the heel, then > poked him with that gadget adn it was so easy. Everett's PKU in the hospital > was so friggen horrible I nearly threw up with them squeezing his foot blue > to get blood and him screaming until he nearly passed out. Garrison never > made a wimper. My daughter Iris (a homebirth, also!) had hers done twice, and they just did the foot poke after warming the heel thoroughly with the gel heat pack. I kid you not, the child did not cry at all. Iris and Spencer, at their one year finger pokes (anemia and lead test) didn't cry. The woman who did Iris's PKU seemed so nervous to have us in there, but Iris just lay there as calmly as could be. Isn't it interesting how different kids react? Rose screamed like they were trying to kill her almost every casting session, even with Dr. Ponseti. Joy Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) http://www.caringbridge.org/visit/grantphilip __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Yeah, Marcus' pediatrician does the same. You would think, from hearing the conversations, that Marcus was born with a dislocated hip rather than CF. The doctor treating him for his CF did a very thorough exam of the hips when we first started casting and again when casting was done. The pediatrician kept asking about the hips wanting us to do an ultrasound. I had the CF doctor re-examine the hips in even more detail based on the peds observation. He did and said they're normal. Sure enough, at the 6-month check-up, the ped acted like he never got the ok on the hips and sent us for an x-ray. It pissed me off, but I consented only to prove it to him. It was normal. I'm curious to see if he'll bring it up again. kannhoudek wrote: Aleksander had two ultrasounds on his hips. He was breech, and early. No problems, but our pediatrician always asks about his hips instead of his feet. Cracks me up every time. I finally corrected her at his 1 year check-up. We'll see what she says next week at his 18 months appointment... > Pediatric check up right after baby's birth > > > Hi, I am expecting a baby girl in about a month and a half. I guess > I know I will have lot more time NOW, compared to the time when > actually baby comes, so doing lots of research on clubfeet! > > I was browsing someone's website which detailed their child's > clubfoot treatment process from the beginning up until now and have > a question on one thing. > According to the website, they said they started treatment from day > 4 of the baby's birth and had to go through a routine pediatrician > check up for the baby. And it included bloodtest for infants-- and > there were some problems between her cast and blood test. > Here is the link which explains their story; > > http://hometown.aol.com/vc11/warning.htm<http://hometown.aol.com/vc11 /warning.htm> > > I am thinking about taking my baby to the clubfoot clinic within a > week to ten days after the birth and I am not sure what to do with > mandatory baby check up with a peds--which thing should come first? > Cast or ped check up? Any experiences or thoughts? Our hospital > recommends to bring our baby in two weeks for ped check up. > I am a first time mama and just full of questions... > > Also, when you see the website on the above, the parents also > mentioned hip problem and she wore a harness to create a depression > in her hip. > Is this common to have when the baby has clubfeet? > > I am a first time mama and just have full of questions... > > Jane > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 --- needing prayers wrote: > Yeah, Marcus' pediatrician does the same. You would think, from hearing the > conversations, that Marcus was born with a dislocated hip rather than CF. The > doctor treating him for his CF did a very thorough exam of the hips when we > first started casting and again when casting was done. The pediatrician kept > asking about the hips wanting us to do an ultrasound. I had the CF doctor > re-examine the hips in even more detail based on the peds observation. He did > and said they're normal. Sure enough, at the 6-month check-up, the ped acted > like he never got the ok on the hips and sent us for an x-ray. It pissed me > off, but I consented only to prove it to him. It was normal. I'm curious to > see if he'll bring it up again. I think it's actually a good thing the ped is paying such close attention to the hips. He sounds like he's on the conservative side, though. DDH, developmental dysplasia of the hips, doesn't necessarily present or noticed at birth but months afterward. Here's a link that summarizes it very well: http://www.lpch.org/diseaseHealthInfo/HealthLibrary/orthopaedics/ddh.html One of the risk factors is clubfoot. Your ped probably figures you're in good hands in regards to the clubfeet. I have a feeling if it didn't show anything on the six month x-ray it's doubtful you'd need anymore observation. Joy Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) http://www.caringbridge.org/visit/grantphilip __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Hello, all Thanks for sharing all of your experiences, thoughts and wisdom! ee, I don't think I will ever be 'know-it-all' mama. ^^ lol After reading all the posts, I guess it would be best to do ped check up first (either that's after a week or two after the discharge) and make sure my baby is alright and then head to go for clubfoot treatment. The reason I asked was that I have decided to go to Dr. Herzenberg in Baltimore. We live in Philly, which is 2 hours away from and to Baltimore. So, though it's possible, it's not going to be that easy to make an extra travel with an infant for a 4 hour RT, just to take the cast on and off, other than going there for weekly casts. Just one more thing to ask as a dummy mama... If there is any urgent problems with casts, bar, shoes and etc , would it be wise to have some ortho.ped surgeon available local,here in Philly, too? Or should we still rush to Baltimore every time? We have CHOP (Childrens Hospital of Phila) Hospital here and I agonized a bit when I chose my daugher's clubfeet treatment because my ob/gyn dept automatically assumed that I would go to CHOP. It'a long story how I ended up with Dr. H, but I talked to many of mamas here and gathered valuble info, so I am pretty confident about choosing Dr. H instead of a doctor at CHOP. To be honest, it's not that comfortable for me to ask doctors/nurses at my obgyn what I would have to do in case there are problems. Then, they probably would say, " Then,, why do you have to go to Baltimore, when we have one of the best doctors available here, too? " . And it's such a good information to have about hip problem potentials. I hope my baby turns out OK, but it's always good to be educated for my daughter's special situation. Again, thanks to ya all!! Jane > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Re: Pediatric check up right after baby's >birth >Date: Thu, 18 May 2006 13:07:49 -0700 (PDT) > > > >--- number23 wrote: > > > A note on PKU my widwife taught me - she used a tool that made a small >slice > > rather than the tool that just makes a round needle poke. I actually >ordered > > the thing on line per her instruction and had it shipped to my house. > > > > The blood flows more easily so they don't have to squeeze the foot so >badly > > to get the blood out. She used a small heat pack, warmed the heel, >then > > poked him with that gadget adn it was so easy. Everett's PKU in the >hospital > > was so friggen horrible I nearly threw up with them squeezing his foot >blue > > to get blood and him screaming until he nearly passed out. Garrison >never > > made a wimper. > >My daughter Iris (a homebirth, also!) had hers done twice, and they just >did >the foot poke after warming the heel thoroughly with the gel heat pack. I >kid >you not, the child did not cry at all. Iris and Spencer, at their one year >finger pokes (anemia and lead test) didn't cry. The woman who did Iris's >PKU >seemed so nervous to have us in there, but Iris just lay there as calmly as >could be. Isn't it interesting how different kids react? Rose screamed >like >they were trying to kill her almost every casting session, even with Dr. >Ponseti. > >Joy > >Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html >Iris (2-01) >Spencer (3-03) >Grant (9-05) http://www.caringbridge.org/visit/grantphilip > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Jane, I know Dr. H has a great reputation. Congrats to you for going with your research and mom instincts and not automatically relying on your local docs. You sound like a real smart cookie! If there is a problem with the cast, you can just remove it yourself and then call your doc. Our ortho instructed us to remove the casts if we had concerns about them because of any reason. I don't see any reason to have a closer ortho. Clubfoot, and the treatment for it, is really not an emergency condition so most issues can be resolved with a phone call and/or can wait to see your regular doc. Just my two cents on that, Carol Re: Re: Pediatric check up right after baby's >birth >Date: Thu, 18 May 2006 13:07:49 -0700 (PDT) > > > >--- number23 wrote: > > > A note on PKU my widwife taught me - she used a tool that made a small >slice > > rather than the tool that just makes a round needle poke. I actually >ordered > > the thing on line per her instruction and had it shipped to my house. > > > > The blood flows more easily so they don't have to squeeze the foot so >badly > > to get the blood out. She used a small heat pack, warmed the heel, >then > > poked him with that gadget adn it was so easy. Everett's PKU in the >hospital > > was so friggen horrible I nearly threw up with them squeezing his foot >blue > > to get blood and him screaming until he nearly passed out. Garrison >never > > made a wimper. > >My daughter Iris (a homebirth, also!) had hers done twice, and they just >did >the foot poke after warming the heel thoroughly with the gel heat pack. I >kid >you not, the child did not cry at all. Iris and Spencer, at their one year >finger pokes (anemia and lead test) didn't cry. The woman who did Iris's >PKU >seemed so nervous to have us in there, but Iris just lay there as calmly as >could be. Isn't it interesting how different kids react? Rose screamed >like >they were trying to kill her almost every casting session, even with Dr. >Ponseti. > >Joy > >Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html<http://www.geocities.\ com/joybelle15/rosesclubfootpage.html> >Iris (2-01) >Spencer (3-03) >Grant (9-05) http://www.caringbridge.org/visit/grantphilip<http://www.caringbridge.org/visit/\ grantphilip> > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Carol Thanks again..this board gives me such comfort and I am so glad I found one like this! I just keep praying that our child will be born healthy and won't have any complications or problems other than her twisted feet. As I approach to the final month of my pregnancy, I am still a bit afraid sometimes --what if it's so severe, how can I handle putting her shoes properly every day and night, when I am notoriously famous for not being a handy woman (very clumsy!!), but I know I will be forever thankful to have her as my child! Jane > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: Re: Re: Pediatric check up right after baby's >birth >Date: Thu, 18 May 2006 21:51:37 -0500 > >Jane, > >I know Dr. H has a great reputation. Congrats to you for going with your >research and mom instincts and not automatically relying on your local >docs. You sound like a real smart cookie! > >If there is a problem with the cast, you can just remove it yourself and >then call your doc. Our ortho instructed us to remove the casts if we had >concerns about them because of any reason. I don't see any reason to have >a closer ortho. Clubfoot, and the treatment for it, is really not an >emergency condition so most issues can be resolved with a phone call and/or >can wait to see your regular doc. Just my two cents on that, > >Carol > Re: Re: Pediatric check up right after >baby's > >birth > >Date: Thu, 18 May 2006 13:07:49 -0700 (PDT) > > > > > > > >--- number23 wrote: > > > > > A note on PKU my widwife taught me - she used a tool that made a >small > >slice > > > rather than the tool that just makes a round needle poke. I >actually > >ordered > > > the thing on line per her instruction and had it shipped to my >house. > > > > > > The blood flows more easily so they don't have to squeeze the foot >so > >badly > > > to get the blood out. She used a small heat pack, warmed the heel, > >then > > > poked him with that gadget adn it was so easy. Everett's PKU in the > >hospital > > > was so friggen horrible I nearly threw up with them squeezing his >foot > >blue > > > to get blood and him screaming until he nearly passed out. Garrison > >never > > > made a wimper. > > > >My daughter Iris (a homebirth, also!) had hers done twice, and they >just > >did > >the foot poke after warming the heel thoroughly with the gel heat pack. > I > >kid > >you not, the child did not cry at all. Iris and Spencer, at their one >year > >finger pokes (anemia and lead test) didn't cry. The woman who did >Iris's > >PKU > >seemed so nervous to have us in there, but Iris just lay there as >calmly as > >could be. Isn't it interesting how different kids react? Rose >screamed > >like > >they were trying to kill her almost every casting session, even with >Dr. > >Ponseti. > > > >Joy > > > >Rose (1-99) >http://www.geocities.com/joybelle15/rosesclubfootpage.html<http://www.geocities\ ..com/joybelle15/rosesclubfootpage.html> > >Iris (2-01) > >Spencer (3-03) > >Grant (9-05) >http://www.caringbridge.org/visit/grantphilip<http://www.caringbridge.org/visit\ /grantphilip> > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Jane, I recall during most of my pg praying that would be whole and healthy and without club feet even. Because of this, it was actually a " surprise " to me when she was born with club feet. The world of club feet treatment is a new world to navigate but there are good road maps and you meet so many wonderful and interesting people along the way. All the things you are afraid of now will soon become second nature. The terms which are " Greek " now will be falling off of your tongue soon. You will be holding your precious baby and be grateful for her, as you are now, even with clubbed feet. Now that we are past the hard part of things, I truly don't wish on most days that had been born any differently. As a mom, there are always opportunities for worry, but club feet are not that huge in the scheme of things and, when all of our little clubfooted babies are in kindergarten running around the playground on fully functional feet, it should be just a memory. I am always available to email privately, as well. Feel free to contact me any time. Carol Re: Re: Pediatric check up right after >baby's > >birth > >Date: Thu, 18 May 2006 13:07:49 -0700 (PDT) > > > > > > > >--- number23 wrote: > > > > > A note on PKU my widwife taught me - she used a tool that made a >small > >slice > > > rather than the tool that just makes a round needle poke. I >actually > >ordered > > > the thing on line per her instruction and had it shipped to my >house. > > > > > > The blood flows more easily so they don't have to squeeze the foot >so > >badly > > > to get the blood out. She used a small heat pack, warmed the heel, > >then > > > poked him with that gadget adn it was so easy. Everett's PKU in the > >hospital > > > was so friggen horrible I nearly threw up with them squeezing his >foot > >blue > > > to get blood and him screaming until he nearly passed out. Garrison > >never > > > made a wimper. > > > >My daughter Iris (a homebirth, also!) had hers done twice, and they >just > >did > >the foot poke after warming the heel thoroughly with the gel heat pack. > I > >kid > >you not, the child did not cry at all. Iris and Spencer, at their one >year > >finger pokes (anemia and lead test) didn't cry. The woman who did >Iris's > >PKU > >seemed so nervous to have us in there, but Iris just lay there as >calmly as > >could be. Isn't it interesting how different kids react? Rose >screamed > >like > >they were trying to kill her almost every casting session, even with >Dr. > >Ponseti. > > > >Joy > > > >Rose (1-99) >http://www.geocities.com/joybelle15/rosesclubfootpage.html<http://www.geocities\ ..com/joybelle15/rosesclubfootpage.html><http://www.geocities.com/joybelle15/rose\ sclubfootpage.html<http://www.geocities.com/joybelle15/rosesclubfootpage.html>> > >Iris (2-01) > >Spencer (3-03) > >Grant (9-05) >http://www.caringbridge.org/visit/grantphilip<http://www.caringbridge.org/visit\ /grantphilip><http://www.caringbridge.org/visit/grantphilip<http://www.caringbri\ dge.org/visit/grantphilip>> > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Thank you for your thoughts. I actually met Dr. D once when we were considering CHOP and though I could see he was pretty knowledgable, I could see that he deviates from the Ponseti protocol. Of course there cannot be one definite medical opinion on anything, but I was little uncomfortable about treating my child with deviations--it does not mean that his theory is wrong by any means--I am sure he achieves good results with his patients--but I wanted to be more of a conservative side, I guess. Jane > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Pediatric check up right after baby's >birth >Date: Fri, 19 May 2006 18:42:50 -0000 > >Jane, > >I will tell you what I know about Dr. son at CHOP, and I >hope no one minds my being frank about it. I'm also sure others have >some opinions because his name is one I have heard here on the board, >and they can tell you what they think. Also let me say that my >opinion is based not on personal experience, only what I have gleaned >from others on this group. >But I digress, here are a few messages from the archives that sort of >documents the history of one couple's experience with him. Messages: >14180, 14188, 14454, 15079,15087, & 15094. In case you're wondering >how I know this right off-hand, I guess you could say it is because he >is sort of a " red flag " doc. If you take a look through these >messages you will see a family that was very satisfied with their >child's casting treatment w/ Dr. son; so in answer to your >question about someone closer to you who could help with a problem >cast, this may be okay. Although it does mention that he uses >fiberglass instead of plaster, but there are definitely some very good >Ponseti docs who use fiberglass, so this in itself would not be a >reason not to use him in case of emergency. The rest of the messages >will lead you through the rest of this same child's treatment with Dr. >son showing exactly how he deviates from the Ponseti method when >it comes to surgery. Yes, the tenotomy is " technically " surgery, but >that's where the similarity between what a true Ponseti doc does when >he snips the achilles tendon and what Dr. son does when he " gets >inside " the foot. So anyway, what I am saying in essence is that it >might be okay to see him if you needed to for a casting emergency >(which is pretty unlikely to happen w/ Dr. H anyway), but I personally >would not let him touch my child for ANYTHING else. > >Hope this helps, > >Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace, 12-14hrs/day) > > > > > > > > > A note on PKU my widwife taught me - she used a tool that made a >small > > >slice > > > > rather than the tool that just makes a round needle poke. I >actually > > >ordered > > > > the thing on line per her instruction and had it shipped to my >house. > > > > > > > > The blood flows more easily so they don't have to squeeze the >foot so > > >badly > > > > to get the blood out. She used a small heat pack, warmed the >heel, > > >then > > > > poked him with that gadget adn it was so easy. Everett's PKU in >the > > >hospital > > > > was so friggen horrible I nearly threw up with them squeezing >his foot > > >blue > > > > to get blood and him screaming until he nearly passed out. >Garrison > > >never > > > > made a wimper. > > > > > >My daughter Iris (a homebirth, also!) had hers done twice, and they >just > > >did > > >the foot poke after warming the heel thoroughly with the gel heat >pack. I > > >kid > > >you not, the child did not cry at all. Iris and Spencer, at their >one year > > >finger pokes (anemia and lead test) didn't cry. The woman who did >Iris's > > >PKU > > >seemed so nervous to have us in there, but Iris just lay there as >calmly as > > >could be. Isn't it interesting how different kids react? Rose >screamed > > >like > > >they were trying to kill her almost every casting session, even >with Dr. > > >Ponseti. > > > > > >Joy > > > > > >Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html > > >Iris (2-01) > > >Spencer (3-03) > > >Grant (9-05) http://www.caringbridge.org/visit/grantphilip > > > > > >__________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Hi Jane!! I just wanted to tell you, you are making a wonderful choice going to Dr. Herzenberg! My daughter went to him before we moved. I think you will be very happy with the treatment you will receive from him and his team. 2 hours distance travel isn't too bad to go for excellent treatment. I understand your concern about the shots etc. I never had a problem with this issue at all. My daughter was casted at 2 days old. My pediatrician just worked around the casting schedule. Good luck and let us know when the little one arrives!!! and 3-2-04, P/M's 12-14 hours Jane Kang wrote: Thank you for your thoughts. I actually met Dr. D once when we were considering CHOP and though I could see he was pretty knowledgable, I could see that he deviates from the Ponseti protocol. Of course there cannot be one definite medical opinion on anything, but I was little uncomfortable about treating my child with deviations--it does not mean that his theory is wrong by any means--I am sure he achieves good results with his patients--but I wanted to be more of a conservative side, I guess. Jane >From: " " >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Pediatric check up right after baby's >birth >Date: Fri, 19 May 2006 18:42:50 -0000 > >Jane, > >I will tell you what I know about Dr. son at CHOP, and I >hope no one minds my being frank about it. I'm also sure others have >some opinions because his name is one I have heard here on the board, >and they can tell you what they think. Also let me say that my >opinion is based not on personal experience, only what I have gleaned >from others on this group. >But I digress, here are a few messages from the archives that sort of >documents the history of one couple's experience with him. Messages: >14180, 14188, 14454, 15079,15087, & 15094. In case you're wondering >how I know this right off-hand, I guess you could say it is because he >is sort of a " red flag " doc. If you take a look through these >messages you will see a family that was very satisfied with their >child's casting treatment w/ Dr. son; so in answer to your >question about someone closer to you who could help with a problem >cast, this may be okay. Although it does mention that he uses >fiberglass instead of plaster, but there are definitely some very good >Ponseti docs who use fiberglass, so this in itself would not be a >reason not to use him in case of emergency. The rest of the messages >will lead you through the rest of this same child's treatment with Dr. >son showing exactly how he deviates from the Ponseti method when >it comes to surgery. Yes, the tenotomy is " technically " surgery, but >that's where the similarity between what a true Ponseti doc does when >he snips the achilles tendon and what Dr. son does when he " gets >inside " the foot. So anyway, what I am saying in essence is that it >might be okay to see him if you needed to for a casting emergency >(which is pretty unlikely to happen w/ Dr. H anyway), but I personally >would not let him touch my child for ANYTHING else. > >Hope this helps, > >Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace, 12-14hrs/day) > > > > > > > > > A note on PKU my widwife taught me - she used a tool that made a >small > > >slice > > > > rather than the tool that just makes a round needle poke. I >actually > > >ordered > > > > the thing on line per her instruction and had it shipped to my >house. > > > > > > > > The blood flows more easily so they don't have to squeeze the >foot so > > >badly > > > > to get the blood out. She used a small heat pack, warmed the >heel, > > >then > > > > poked him with that gadget adn it was so easy. Everett's PKU in >the > > >hospital > > > > was so friggen horrible I nearly threw up with them squeezing >his foot > > >blue > > > > to get blood and him screaming until he nearly passed out. >Garrison > > >never > > > > made a wimper. > > > > > >My daughter Iris (a homebirth, also!) had hers done twice, and they >just > > >did > > >the foot poke after warming the heel thoroughly with the gel heat >pack. I > > >kid > > >you not, the child did not cry at all. Iris and Spencer, at their >one year > > >finger pokes (anemia and lead test) didn't cry. The woman who did >Iris's > > >PKU > > >seemed so nervous to have us in there, but Iris just lay there as >calmly as > > >could be. Isn't it interesting how different kids react? Rose >screamed > > >like > > >they were trying to kill her almost every casting session, even >with Dr. > > >Ponseti. > > > > > >Joy > > > > > >Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html > > >Iris (2-01) > > >Spencer (3-03) > > >Grant (9-05) http://www.caringbridge.org/visit/grantphilip > > > > > >__________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 In Iowa they were always real good about letting you weigh between casts. s. Re: Pediatric check up right after baby's birth You know, the nurses at Aleksander's ped's office were really uptight about the shots. When he first came in with the casts on (he didn't need shots at that appointment), they got all freaked out about where they would give him his shots. I just asked that when his next set of casts were put on that they put them just a tiny bit lower. So instead of going fully up his leg, they left about 1/4 to 1/2 inch room for the shots. It didn't compromise the casts at all, and the nurses were able to give him the shots without any trouble. Oh, they weren't too happy when I came in with him in the casts, but they figured it out. But then again, I wasn't in any mood to take any crap about it. : ) I usually tried to get his appointments on the same day, usually with casts first, then the ped. Then I could get his weight without the casts on for his doctor too. I guess that is another thing to check into. See if you can have your baby weighed at the clubfoot clinic without the casts on. And if they measure your baby too, it will give you more accurate info for both your doctor, and your baby book. > > > The biggest obstacle we had was figuring out the shots with the > > casts. Never problems with drawing blood. But then again, I don't > > remember them needing to get blood from Aleksander while he was in > > casts. > > > > I only remember one blood test, and he was much older. I think it > > was to check lead levels in his blood. They just pricked his finger > > and got what they needed that way. No big deal. > > > > Also, Aleksander didn't get his first cast until he was nearly 1 > > month old. He was a little older when casting was done as a result, > > but again, no big deal. > > > > Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html > Iris (2-01) > Spencer (3-03) > Grant (9-05) http://www.caringbridge.org/visit/grantphilip > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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