Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Michele- It all depends on the child-probably not the answer you wanted to hear. My son is/was developmentally behind in his gross motor skills and at 6 mo we had him evaluated by EI. He gets free in our house PT twice a month through our state's first steps program. He didn't crawl until 9 months, didn't stand freely until 13 months, and didn't start walking until 18 months(he's 21 months old now). We believe-his doc, therapist, and us-partly due to his clubfeet and the whole process-ie casting/shoes/etc, and partly due to his extreme flexibility in all his muscles/joints caused the delay in gross motor. I don't want to scare you-and the EI people will be your best/most helpful asset. Make sure you know your rights as a parent prior to the evaluation-check out your state's website so that you can be familiar with what " qualifies " a child. The best part of EI is that the therapists focus their practice on children and making sure they " hit " their developmental milestones. was at one point at the level of a 9 month old when he was 17 months old because he wasn't walking yet-once he started walking-he jumped ahead to age appropriate behavior. Our EI evaluator still teases us that we are the only parents that wanted their kid to be eligible for services-our goal was to make sure david got and still receives everything he needs to succeed in life. Therapy sessions are like big play dates-david has no idea that he is doing " therapy " as he gets to climb, jump, and most recently play with his feet in a bucket of dried kidney beans. He loves when comes to our house as she brings " TOYS " !!! HTH-hang in there and let me know if you need help finding online info about your state's EI program. kathleen mom to david bcf fab 12/7 and baby daughter edd 9/1/06 > > Okay. I have another question for all the vets out there. Maddie is > just about 9 months now, and is down to about 15 hours a day in her > s. She's been at this time for about 2 months, I think. She > is still not rolling over from her stomach to back, and very rarely > from back to front. She's not crawiling, or even close to it. She's > developmentally fine from her waist up, according to the pediatrician, > but she's definitely delayed below the waist. The ped feels that she > has low muscle tone in her lower body. He said this might be why she > developed clubfeet in the first place, or this was the result of all > the casts and bracing, etc. Either way, she's going to be evaluated > for Early Intervention in july. I've seen plenty of pictures of your > children not being hindered by the brace. Any advice? Is there > usually a delay because of the treatments? I don't think so, but I > figured I'd ask the experts. Thanks in advance. > - Michele > 5/18/02 and Maddie 9/6/05 s 15/7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Kathleen, Thanks for the response. It's interesting that you mention the extreme flexibility in the muscles and joints because Maddie can fold herself in half and put her feet in her mouth without bending her knee or neck. I always thought that was a little strange. We have EI coming to the house on July 12th for a 2.5 hour evaluation. It can't hurt, in my opinion. I'm sure I'll have questions about EI soon enough, so I'll be bugging you soon. - Michele leenernd wrote: Michele- It all depends on the child-probably not the answer you wanted to hear. My son is/was developmentally behind in his gross motor skills and at 6 mo we had him evaluated by EI. He gets free in our house PT twice a month through our state's first steps program. He didn't crawl until 9 months, didn't stand freely until 13 months, and didn't start walking until 18 months(he's 21 months old now). We believe-his doc, therapist, and us-partly due to his clubfeet and the whole process-ie casting/shoes/etc, and partly due to his extreme flexibility in all his muscles/joints caused the delay in gross motor. I don't want to scare you-and the EI people will be your best/most helpful asset. Make sure you know your rights as a parent prior to the evaluation-check out your state's website so that you can be familiar with what " qualifies " a child. The best part of EI is that the therapists focus their practice on children and making sure they " hit " their developmental milestones. was at one point at the level of a 9 month old when he was 17 months old because he wasn't walking yet-once he started walking-he jumped ahead to age appropriate behavior. Our EI evaluator still teases us that we are the only parents that wanted their kid to be eligible for services-our goal was to make sure david got and still receives everything he needs to succeed in life. Therapy sessions are like big play dates-david has no idea that he is doing " therapy " as he gets to climb, jump, and most recently play with his feet in a bucket of dried kidney beans. He loves when comes to our house as she brings " TOYS " !!! HTH-hang in there and let me know if you need help finding online info about your state's EI program. kathleen mom to david bcf fab 12/7 and baby daughter edd 9/1/06 > > Okay. I have another question for all the vets out there. Maddie is > just about 9 months now, and is down to about 15 hours a day in her > s. She's been at this time for about 2 months, I think. She > is still not rolling over from her stomach to back, and very rarely > from back to front. She's not crawiling, or even close to it. She's > developmentally fine from her waist up, according to the pediatrician, > but she's definitely delayed below the waist. The ped feels that she > has low muscle tone in her lower body. He said this might be why she > developed clubfeet in the first place, or this was the result of all > the casts and bracing, etc. Either way, she's going to be evaluated > for Early Intervention in july. I've seen plenty of pictures of your > children not being hindered by the brace. Any advice? Is there > usually a delay because of the treatments? I don't think so, but I > figured I'd ask the experts. Thanks in advance. > - Michele > 5/18/02 and Maddie 9/6/05 s 15/7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 My opinion based on one clubfoot child who is just seven months old and three non clubfoot children is that your daughter is experiencing delays which are not based on the treatment or the brace but on something either connected or unrelated to the clubfoot. , my clubfoot baby, is rolling all over the place, both front to back and back to front and can get anywhere she wants this way, with or without the brace on. As I have shared before to others on this board, I have a non club foot child who is almost six who was delayed with his motor skills. My clubfoot baby has so far met her milestones before he did. Some kids just have delays due to reasons sometimes unknown. It is good that you are getting EI involved. We did that, as well, for my son with delays and it was helpful. All the best to you, Carol Low Muscle Tone Okay. I have another question for all the vets out there. Maddie is just about 9 months now, and is down to about 15 hours a day in her s. She's been at this time for about 2 months, I think. She is still not rolling over from her stomach to back, and very rarely from back to front. She's not crawiling, or even close to it. She's developmentally fine from her waist up, according to the pediatrician, but she's definitely delayed below the waist. The ped feels that she has low muscle tone in her lower body. He said this might be why she developed clubfeet in the first place, or this was the result of all the casts and bracing, etc. Either way, she's going to be evaluated for Early Intervention in july. I've seen plenty of pictures of your children not being hindered by the brace. Any advice? Is there usually a delay because of the treatments? I don't think so, but I figured I'd ask the experts. Thanks in advance. - Michele 5/18/02 and Maddie 9/6/05 s 15/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 Michele, My opinion is don't worry. As I understand it, club feet and low muscle tone are connected. My son is unilateral. He's 9.5 months. He has no interest in crawling. He sort of inches himself around. Some babies never crawl. He can roll better from his back to stomach. He can go stomach to back, but not as well. The muscle tone in his club foot is noticeably less than his Normal foot. We were told by the dr, as well as info I had read, that this was what would happen. Another thing to keep in mind is that all babys don't do certain things at the same time. My cousin's son did not walk until 20 months, and he has no issues. It never hurts to have EI do an evaluation. Good Luck and Logan (9.5mo 12-14hrs DBB) Re: Low Muscle Tone My opinion based on one clubfoot child who is just seven months old and three non clubfoot children is that your daughter is experiencing delays which are not based on the treatment or the brace but on something either connected or unrelated to the clubfoot. , my clubfoot baby, is rolling all over the place, both front to back and back to front and can get anywhere she wants this way, with or without the brace on. As I have shared before to others on this board, I have a non club foot child who is almost six who was delayed with his motor skills. My clubfoot baby has so far met her milestones before he did. Some kids just have delays due to reasons sometimes unknown. It is good that you are getting EI involved. We did that, as well, for my son with delays and it was helpful. All the best to you, Carol Low Muscle Tone Okay. I have another question for all the vets out there. Maddie is just about 9 months now, and is down to about 15 hours a day in her s. She's been at this time for about 2 months, I think. She is still not rolling over from her stomach to back, and very rarely from back to front. She's not crawiling, or even close to it. She's developmentally fine from her waist up, according to the pediatrician, but she's definitely delayed below the waist. The ped feels that she has low muscle tone in her lower body. He said this might be why she developed clubfeet in the first place, or this was the result of all the casts and bracing, etc. Either way, she's going to be evaluated for Early Intervention in july. I've seen plenty of pictures of your children not being hindered by the brace. Any advice? Is there usually a delay because of the treatments? I don't think so, but I figured I'd ask the experts. Thanks in advance. - Michele 5/18/02 and Maddie 9/6/05 s 15/7 Quote Link to comment Share on other sites More sharing options...
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