Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Hi, I haven't been on the list in a while and I caught onto the subject and was interested in knowing who was looking for a doctor in Catskills NY and if you were successful in finding one to deal with GFCF and autism. I also live in Catskills NY and have had many difficulties in that area getting different services and finding individuals with expertise in autism. At one point I felt that I was the only parent in the Catskills with a child with autism. I would be interested in hearing from the parent in the Catskills for general info and shared experiences. Please email me privately. hess1979@... > > I just spoke to the family counselor at my son's ABA pre-school. > She feels > > that with the progress my son's made, he won't need to be there > next year. > > Marty - > I am choked up with happiness for you! I am so proud. Way to go ! > > I am including a copy of a letter our pediatrician wrote for us that > helped tremendously with the school district. Perhaps if you find a > sympathetic doctor you can use this as a template. > > Good luck! > > Moira > mom to Vico (4.5 ASD) and Culzean (17 months) > > Dear LAUSD Administration: > > As Vico Giammatteo's pediatrician, I am writing to you to express my > concerns regarding his health. Vico has moderate autism, with severe > speech delays and abnormal social interactions. However, he also has > marked gluten enteropathy and dairy intolerance. He has high levels > of antibodies to gliadin and casein. If he is exposed to wheat, rye, > barley, oats or any dairy product; he suffers persistent vomiting to > the point of dehydration, hives, fever, as well as loss of speech, > tantrums, social withdrawal, and night terrors. The exposure can be > either ingestion or simple skin contact. Hew was devastated for weeks > after playing with wheat-based Play Dough in preschool! > > Vico requires one on one school supervision. This adult would mediate > his verbal interactions with other children as well as assure Vico's > safety throughout the school day. Vico needs 30-45 minute speech > therapy at least twice weekly with a therapist familiar with autistic > students. > > During the past year Vico has made tremendous gains on his strict > casein and gluten-free diet along with aggressive speech therapy. He > spoke his first sentence and interacted with another child at > preschool! We have great hopes that he will continue to thrive in a > carefully monitored environment. > > Sincerely, Quote Link to comment Share on other sites More sharing options...
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