Re: Re: Question for RSS people who are parents of average sized children--For Laurie

[Guest guest]

Laurie,

Thank you for posting. I am 28 yrs. old and have RSS. It is good to hear from

someone who has RSS and has had a child. We just do not have much research. I

have hesitated on having children because I was not sure what the pregnancy

might be like, as well as the possibility of having an RSS child. I would love

my child no matter what, but I do worry because I know the struggles. Would you

mind telling me if you had any certain difficulties with your pregnancy etc.. I

would sure appreciate anything you have to offer.

Thank You,

Brock wrote:

There simply isn't any literature on children of RSS adults. But it

sure is great to hear that you have a healthy son -- despite very

geneticist telling people that it shouldn't be a problem, parents

still worry.

I do not believe that a tendency to be skinny would be a " trait "

passed down to a child from an RSS parent. Gut instinct. I say this

primarily because studies are showing that so many RSS children grow

up to be overweight as adults! But again, there just isn't any

literature.

I would say that your child probably is just thin as a child, like

other kids. My non-RSS son is in the 15th percentile for weight and

75th percentile for height.... Jenn

> Hi....I usually read but do not post on this web site. I have RSS

and

> I have an average sized son. He is 9 going on 10 years old and yes

> taller than I already. The one question I have is do any people

with

> RSS have children with problems putting on weight? I know that as a

> RSS person as a child I could not put on weight, and I am concerned

> that has been passed to my son. He eats very well, very healthy,

but

> he is skinny. I would like to hear from other parents. We have had

> testing done on him, found no reason why he is like it.

>

> Laurie

[Guest guest]

....

My pregnancy was a difficult one. First I was already

over weight. I am 4ft 1inches, and at that time

weighed about 100 lbs. I already had high blood

pressure, probably due to family genes. I also

married a tall guy, 6ft 5inches. Plus I was an

asthmatic...so I got a lot of wammys. If you do not

have these factors you might not have such a hard

pregnancy. I had always been told not to married a

tall person otherwise I would not be able to carry the

child. Not.....I had asthma/bronchitis from the 5th

month on. The doctors said my son was due in mid

november I said nope, between October 15-30th, he was

born on the 20th. I was pulled off of work at the

beginning of September due to pre clampsia, and the

week before delivering, was thought to have

contractions due to the bronchitis again. The ob did

a sonogram and found that I did not have any more

room, so at the end of the week I had a c-section.

One thing is that during the pregnancy, they did a

sonogram to make sure the bone length of my son. If

you have a normal sized baby you will get big. He was

7lbs, 6oz and 19 1/2 inches long, 5 1/2 weeks early.

Make sure you have a good ob and genetics md.

--- Wray wrote:

> Laurie,

> Thank you for posting. I am 28 yrs. old and have

> RSS. It is good to hear from someone who has RSS

> and has had a child. We just do not have much

> research. I have hesitated on having children

> because I was not sure what the pregnancy might be

> like, as well as the possibility of having an RSS

> child. I would love my child no matter what, but I

> do worry because I know the struggles. Would you

> mind telling me if you had any certain difficulties

> with your pregnancy etc.. I would sure appreciate

> anything you have to offer.

> Thank You,

>

>

> Brock wrote:

> There simply isn't any literature on children of RSS

> adults. But it

> sure is great to hear that you have a healthy son --

> despite very

> geneticist telling people that it shouldn't be a

> problem, parents

> still worry.

>

> I do not believe that a tendency to be skinny would

> be a " trait "

> passed down to a child from an RSS parent. Gut

> instinct. I say this

> primarily because studies are showing that so many

> RSS children grow

> up to be overweight as adults! But again, there

> just isn't any

> literature.

>

> I would say that your child probably is just thin as

> a child, like

> other kids. My non-RSS son is in the 15th

> percentile for weight and

> 75th percentile for height.... Jenn

>

>

> > Hi....I usually read but do not post on this web

> site. I have RSS

> and

> > I have an average sized son. He is 9 going on 10

> years old and yes

> > taller than I already. The one question I have is

> do any people

> with

> > RSS have children with problems putting on weight?

> I know that as a

> > RSS person as a child I could not put on weight,

> and I am concerned

> > that has been passed to my son. He eats very

> well, very healthy,

> but

> > he is skinny. I would like to hear from other

> parents. We have had

> > testing done on him, found no reason why he is

> like it.

> >

> > Laurie

>

>

>

>

>