Re: Stories from families who have opted not to have treatment

[Guest guest]

JoJo,

Band providers have different cut offs for what ages they will band at. Many

will treat until 18 months of age. Some say no after 12 months, and some go to 2

years. I know people who have started as late as 17 months and been pleased with

the results - although they are less dramatic than the results received with a

young baby. I don't think you've missed the boat, but you should move quickly if

you want to band.

-christine

sydney, 5 yrs, starband grad

> >

> > Hello all,

> >

> > my beautiful 13 month old baby has PC and has a very flat head at the back

that is slightly flatter on the right. I have spoken to a few NHS professionals,

nurses, Dr's and health visitors and also his great uncle who is a

paediatrician, who all reassure me that the condition will correct itself over

time and there is no real consequence other than cosmetic (but lets face it in

this day and age cosmetic issues can be very upsetting for some). I haven't

pushed to see a neuro surgeon but am considering whether I should.

> >

> > He is rolling around in his sleep now and sleeping on his front so is not

always on his back as he used to be, but to be honest over the last few months I

haven't noticed any real change.

> >

> > I was wondering if there were any parents out there who had opted not to

seek private treatment or use of helmet but who have seen improvements in their

baby's condition? A lot of the charity websites and other medical websites I

have visited seem to really push the use of helmet but don't seem to have

anything re: advice for those who aren't on the helmet route yet or opting not

to.

> >

> > Should I push for a referral to the neuro surgeon at our local hospital?

What do people think? I would really love to hear from anyone who has thoughts

or advice.

> >

> > JoJo

> >

>