Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 I keep meaning to write in to the site and tell you this. I went to see an orthopedic consultant at Great Ormond Street as at one stage it looked like my daughter Maddy had hip dysplasia. I'd found a paper about orthopedic and muscle problems of RSS people and this said hip dysplasia was an increased risk, so I took the paper along. Anyway as it turned out there was nothing wrong with Maddies hips (hooray) but the consultant looked at the RSS diagnosis information in the paper (usual stuff: elfin face, asymetry, curvy pinkies etc) Anyway he said " Ah clinodactily - we orthopedic surgeons have always said that this is a sign of someone who is a bone setter " so I said " that's interesting as one of my ancestors was a bone setter. " - we got into a long conversaion about family trees etc.etc. The bone setter in my family was washed up on the Welsh shore, taken in by a local Welsh family and eventually married their daughter. He was thought to have been on a wrecked Spanish galleon (very romantic!) But anyway I was thinking - this might indicate that he had RSS and it might indicate that RSS is passed down.. but by some mechanism we don't know about yet. Realise this is a daft long shot but - anyone out there with relatives who were bone doctors?! Gillian --------------------------------- Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide with voicemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Okay - am I a complete moron? I have no idea what a bone setter is. Please help me to underestand....LOL thanks. - H > I keep meaning to write in to the site and tell you this. > > I went to see an orthopedic consultant at Great Ormond Street as at one stage it looked like my daughter Maddy had hip dysplasia. I'd found a paper about orthopedic and muscle problems of RSS people and this said hip dysplasia was an increased risk, so I took the paper along. > > Anyway as it turned out there was nothing wrong with Maddies hips (hooray) but the consultant looked at the RSS diagnosis information in the paper (usual stuff: elfin face, asymetry, curvy pinkies etc) Anyway he said " Ah clinodactily - we orthopedic surgeons have always said that this is a sign of someone who is a bone setter " so I said " that's interesting as one of my ancestors was a bone setter. " - we got into a long conversaion about family trees etc.etc. The bone setter in my family was washed up on the Welsh shore, taken in by a local Welsh family and eventually married their daughter. He was thought to have been on a wrecked Spanish galleon (very romantic!) > > But anyway I was thinking - this might indicate that he had RSS and it might indicate that RSS is passed down.. but by some mechanism we don't know about yet. Realise this is a daft long shot but - anyone out there with relatives who were bone doctors?! > > Gillian > > > > --------------------------------- > Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide with voicemail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Deb - I was going to be a smart alec and respond to you like " it's something like an irish setter " - but, then again - I didn't want to upset anyone by my ridiculous comments that come from I don't know where. Exhaustion maybe? The constant nagging of my children to spend more time with them that I already do? Or the son of mine who takes one bite of dinner and says he's done. Yes, that must be it - I needed to say something funny. Atleast my shoes fit. LOL (inside joke folks) Okay - going to the neighbors with the boys to jump on their trampolene for awhile. You can all crucify me know <grin>. - H > I second .........what is a bone setter? > > D > Re: curvy pinkies > > > > I keep meaning to write in to the site and tell you this. > > > > I went to see an orthopedic consultant at Great Ormond Street as at one > stage it looked like my daughter Maddy had hip dysplasia. I'd found a paper > about orthopedic and muscle problems of RSS people and this said hip > dysplasia was an increased risk, so I took the paper along. > > > > Anyway as it turned out there was nothing wrong with Maddies hips (hooray) > but the consultant looked at the RSS diagnosis information in the paper > (usual stuff: elfin face, asymetry, curvy pinkies etc) Anyway he said " Ah > clinodactily - we orthopedic surgeons have always said that this is a sign > of someone who is a bone setter " so I said " that's interesting as one of my > ancestors was a bone setter. " - we got into a long conversaion about family > trees etc.etc. The bone setter in my family was washed up on the Welsh > shore, taken in by a local Welsh family and eventually married their > daughter. He was thought to have been on a wrecked Spanish galleon (very > romantic!) > > > > But anyway I was thinking - this might indicate that he had RSS and it > might indicate that RSS is passed down.. but by some mechanism we don't know > about yet. Realise this is a daft long shot but - anyone out there with > relatives who were bone doctors?! > > > > Gillian > > > > > > > > --------------------------------- > > Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide with > voicemail > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Gillian - LOL = laughing out loud. Very interesting post though. Thank you for explaining. - H > > I second .........what is a bone setter? > > > > D > > Re: curvy pinkies > > > > > > > I keep meaning to write in to the site and tell you this. > > > > > > I went to see an orthopedic consultant at Great Ormond Street as > at one > > stage it looked like my daughter Maddy had hip dysplasia. I'd > found a paper > > about orthopedic and muscle problems of RSS people and this said > hip > > dysplasia was an increased risk, so I took the paper along. > > > > > > Anyway as it turned out there was nothing wrong with Maddies > hips (hooray) > > but the consultant looked at the RSS diagnosis information in the > paper > > (usual stuff: elfin face, asymetry, curvy pinkies etc) Anyway he > said " Ah > > clinodactily - we orthopedic surgeons have always said that this > is a sign > > of someone who is a bone setter " so I said " that's interesting as > one of my > > ancestors was a bone setter. " - we got into a long conversaion > about family > > trees etc.etc. The bone setter in my family was washed up on the > Welsh > > shore, taken in by a local Welsh family and eventually married > their > > daughter. He was thought to have been on a wrecked Spanish > galleon (very > > romantic!) > > > > > > But anyway I was thinking - this might indicate that he had RSS > and it > > might indicate that RSS is passed down.. but by some mechanism we > don't know > > about yet. Realise this is a daft long shot but - anyone out there > with > > relatives who were bone doctors?! > > > > > > Gillian > > > > > > > > > > > > --------------------------------- > > > Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide > with > > voicemail > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 OMG Deb. LOL - H > > > I second .........what is a bone setter? > > > > > > D > > > Re: curvy pinkies > > > > > > > > > > I keep meaning to write in to the site and tell you this. > > > > > > > > I went to see an orthopedic consultant at Great Ormond Street as > > at one > > > stage it looked like my daughter Maddy had hip dysplasia. I'd > > found a paper > > > about orthopedic and muscle problems of RSS people and this said > > hip > > > dysplasia was an increased risk, so I took the paper along. > > > > > > > > Anyway as it turned out there was nothing wrong with Maddies > > hips (hooray) > > > but the consultant looked at the RSS diagnosis information in the > > paper > > > (usual stuff: elfin face, asymetry, curvy pinkies etc) Anyway he > > said " Ah > > > clinodactily - we orthopedic surgeons have always said that this > > is a sign > > > of someone who is a bone setter " so I said " that's interesting as > > one of my > > > ancestors was a bone setter. " - we got into a long conversaion > > about family > > > trees etc.etc. The bone setter in my family was washed up on the > > Welsh > > > shore, taken in by a local Welsh family and eventually married > > their > > > daughter. He was thought to have been on a wrecked Spanish > > galleon (very > > > romantic!) > > > > > > > > But anyway I was thinking - this might indicate that he had RSS > > and it > > > might indicate that RSS is passed down.. but by some mechanism we > > don't know > > > about yet. Realise this is a daft long shot but - anyone out there > > with > > > relatives who were bone doctors?! > > > > > > > > Gillian > > > > > > > > > > > > > > > > --------------------------------- > > > > Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide > > with > > > voicemail > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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