Re: New to the group and I have a question

[Guest guest]

Hi Sara,

Welcome to the group!

I have twin boys who are 3 1/2 years old now. One of

them has a clubfoot and is still wearing the DBB. He

also wore it full-time from about 3 to 6 months old,

then we gradually went down to 18h, 16h, 14h, 12h, and

now he's only wearing it at night (10-12h).

Anyway, he had no trouble moving around with the DBB

at all, you'll be amazed, and the boys reached all

their milestones (like rolling over, sitting up,

crawling, standing, walking) within a week of each

other, so it really made no difference at all.

The only real 'limitation' I think he ever had, was

that Alister couldn't get on the ride-ons with the DBB

on. So when they were at that age I used to hide

their ride-ons until his brace could come off in the

afternoon, so that he didn't have to watch while his

brother was able to ride around. That worked well

and I don't think he ever felt like he was

disadvantaged or anything.

Hope this helps,

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

--- twobabygirls2006

wrote:

> Hi everyone. Here's a little information about me.

> I have twin

> girls who are a little over 3 months old. During my

> pregnancy one

> of my girls, Bella, had very low amniotic fluid, and

> as a result was

> born with dislocated hips and bilateral clubbed

> feet. We see an

> orthopedic surgeon at the Mayo Clinic in Rochester,

> MN who uses the

> Ponsetti Method. Bella got her first casts when she

> was 3 weeks

> old. She had a tenotomy about a month ago and got

> her last casts

> off last Tuesday. She's been in the dennis brown

> bar for almost a

> week now. The first two days were really rough but

> now I don't

> think she even notices the bar.

>

> Here's my question. I'm wondering if she's going to

> be able to move

> around while wearing the FAB. She's too little to

> do anything right

> now, but she'll be in the FAB 23/7 until she's 6

> months old. Will

> being in the FAB delay her being able to move

> around? I'm mostly

> worried because she has a twin sister who doesn't

> have any physical

> limitations, and I don't want Bella to be delayed

> compared to her

> sister.

>

> Thanks!

>

> Sara

>

>

>

>

>

>

>

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[Guest guest]

While my 18 month old isn't walking yet, he crawls everywhere in it. He only

has it on for a little while when he is awake, so the fact that he learned so

quickly how to do this was surprising especially because he is so delayed in his

development. Don't worry, she will definitely be able to keep up with her twin!

11/19/04

twobabygirls2006 wrote:

Hi everyone. Here's a little information about me. I have twin

girls who are a little over 3 months old. During my pregnancy one

of my girls, Bella, had very low amniotic fluid, and as a result was

born with dislocated hips and bilateral clubbed feet. We see an

orthopedic surgeon at the Mayo Clinic in Rochester, MN who uses the

Ponsetti Method. Bella got her first casts when she was 3 weeks

old. She had a tenotomy about a month ago and got her last casts

off last Tuesday. She's been in the dennis brown bar for almost a

week now. The first two days were really rough but now I don't

think she even notices the bar.

Here's my question. I'm wondering if she's going to be able to move

around while wearing the FAB. She's too little to do anything right

now, but she'll be in the FAB 23/7 until she's 6 months old. Will

being in the FAB delay her being able to move around? I'm mostly

worried because she has a twin sister who doesn't have any physical

limitations, and I don't want Bella to be delayed compared to her

sister.

Thanks!

Sara

[Guest guest]

Hi there and welcome to the group. Congratulations on your twin daughters.

Wearing the brace does not limit a child's mobility at all. These children turn

over, crawl, and even walk in their brace. It becomes second nature to them. The

only thing is that the dennis brown brace is a bit heavier than another

alternative (the Ponseti/ brace). It doesn't mean your little girl won't

be able to move around in it. It may just take her a wee bit longer to gain the

strength to lift the brace when rolling over. All in all, the brace won't

compromise her mobility by much.

twobabygirls2006 wrote: Hi everyone. Here's a

little information about me. I have twin

girls who are a little over 3 months old. During my pregnancy one

of my girls, Bella, had very low amniotic fluid, and as a result was

born with dislocated hips and bilateral clubbed feet. We see an

orthopedic surgeon at the Mayo Clinic in Rochester, MN who uses the

Ponsetti Method. Bella got her first casts when she was 3 weeks

old. She had a tenotomy about a month ago and got her last casts

off last Tuesday. She's been in the dennis brown bar for almost a

week now. The first two days were really rough but now I don't

think she even notices the bar.

Here's my question. I'm wondering if she's going to be able to move

around while wearing the FAB. She's too little to do anything right

now, but she'll be in the FAB 23/7 until she's 6 months old. Will

being in the FAB delay her being able to move around? I'm mostly

worried because she has a twin sister who doesn't have any physical

limitations, and I don't want Bella to be delayed compared to her

sister.

Thanks!

Sara

[Guest guest]

Hi and welcome to the club! I have a 2 1/2 year old boy who has been wearing

the FAB since he was 2 months old. He's a Go Getter! The FAB has not slowed

him down developmentally one single little bit. There are very few children who

suffer any delays, and most often those are related to some other issue

involved, not the clubfoot and brace. The hours in the brace are reduced

gradually, you child will meet her mile stones just fine. Keep in mind all

children develop differently and your twins won't be right on track with each

other no matter what. Good luck!

ee

Mother of 3 Clubfooted Sons:

- Bilateral Club Feet April 1998

Everett - Bilateral Club Feet September 2003

Garrison - Bilateral Club Feet March 2006

New to the group and I have a question

Hi everyone. Here's a little information about me. I have twin

girls who are a little over 3 months old. During my pregnancy one

of my girls, Bella, had very low amniotic fluid, and as a result was

born with dislocated hips and bilateral clubbed feet. We see an

orthopedic surgeon at the Mayo Clinic in Rochester, MN who uses the

Ponsetti Method. Bella got her first casts when she was 3 weeks

old. She had a tenotomy about a month ago and got her last casts

off last Tuesday. She's been in the dennis brown bar for almost a

week now. The first two days were really rough but now I don't

think she even notices the bar.

Here's my question. I'm wondering if she's going to be able to move

around while wearing the FAB. She's too little to do anything right

now, but she'll be in the FAB 23/7 until she's 6 months old. Will

being in the FAB delay her being able to move around? I'm mostly

worried because she has a twin sister who doesn't have any physical

limitations, and I don't want Bella to be delayed compared to her

sister.

Thanks!

Sara

[Guest guest]

Hi Sara-who do you see in Rochester? My 4 yr. old, Jaren, sees Dr.

Shaughnessy. He says he does Ponseti, but it's not to a " T " . He

told us to have Jaren wear the DBB 24/7 until he was a year old. He

also said that he could quit using the DBB when he turned two. We

kept them on until he was over 3. So just make sure that whomever

you are seeing is REALLY following the Ponseti method and not

deviating from it. As far as the moving around part, it will not

stop her at all. Kids adapt so easily to just about everything.

-Kim

>

> Hi everyone. Here's a little information about me. I have twin

> girls who are a little over 3 months old. During my pregnancy one

> of my girls, Bella, had very low amniotic fluid, and as a result

was

> born with dislocated hips and bilateral clubbed feet. We see an

> orthopedic surgeon at the Mayo Clinic in Rochester, MN who uses

the

> Ponsetti Method. Bella got her first casts when she was 3 weeks

> old. She had a tenotomy about a month ago and got her last casts

> off last Tuesday. She's been in the dennis brown bar for almost a

> week now. The first two days were really rough but now I don't

> think she even notices the bar.

>

> Here's my question. I'm wondering if she's going to be able to

move

> around while wearing the FAB. She's too little to do anything

right

> now, but she'll be in the FAB 23/7 until she's 6 months old. Will

> being in the FAB delay her being able to move around? I'm mostly

> worried because she has a twin sister who doesn't have any

physical

> limitations, and I don't want Bella to be delayed compared to her

> sister.

>

> Thanks!

>

> Sara

>

[Guest guest]

Kim:

We see Dr. Stans at Mayo. I don't think he follows the Ponsetti

Method to a " T " either, but that might just be for us because of

Bella's dislocated hips. She'll have her hips surgically repaired

at 6 months, and then she'll be in a cast that lifts her legs up and

out for about 6-8 weeks. While she's in that cast she won't be able

to wear the DBB, so I think the plan is to extend the hip cast to

her toes so her feet can be turned out like they were with her other

casts. Hopefully this will keep them corrected. He also said

something about wearing the DBB only until 9 months, but I can't

remember exactly. I know Ponsetti says wear it until the baby is 2-

4 years old. I'll have to ask him about that next time we see him.

Thanks for your response.

Sara

> >

> > Hi everyone. Here's a little information about me. I have twin

> > girls who are a little over 3 months old. During my pregnancy

one

> > of my girls, Bella, had very low amniotic fluid, and as a result

> was

> > born with dislocated hips and bilateral clubbed feet. We see an

> > orthopedic surgeon at the Mayo Clinic in Rochester, MN who uses

> the

> > Ponsetti Method. Bella got her first casts when she was 3 weeks

> > old. She had a tenotomy about a month ago and got her last

casts

> > off last Tuesday. She's been in the dennis brown bar for almost

a

> > week now. The first two days were really rough but now I don't

> > think she even notices the bar.

> >

> > Here's my question. I'm wondering if she's going to be able to

> move

> > around while wearing the FAB. She's too little to do anything

> right

> > now, but she'll be in the FAB 23/7 until she's 6 months old.

Will

> > being in the FAB delay her being able to move around? I'm

mostly

> > worried because she has a twin sister who doesn't have any

> physical

> > limitations, and I don't want Bella to be delayed compared to

her

> > sister.

> >

> > Thanks!

> >

> > Sara

> >

>

[Guest guest]

Sara,

Hopefully your doctor will be as willing to listen to your input as

my son's doctor has been. We take him to Gillette in St. , and

his doctor had mentioned releasing him from his shoes at 18 months

(which he will be this week). I told her I wasn't comfortable with

that and she was fine with it.

I had been mentioning the extended wear, up to age 4, to her for

quite some time. At Aleksander's last visit a few weeks ago, she

said that Dr. Ponseti had increased the age and Aleksander should

stay in the shoes until age 3 at a minimum. I guess sometimes

parents get the information before the doctors, so be persistent.

Aleksander, 11/24/04, bcf

> > >

> > > Hi everyone. Here's a little information about me. I have

twin

> > > girls who are a little over 3 months old. During my pregnancy

> one

> > > of my girls, Bella, had very low amniotic fluid, and as a

result

> > was

> > > born with dislocated hips and bilateral clubbed feet. We see

an

> > > orthopedic surgeon at the Mayo Clinic in Rochester, MN who

uses

> > the

> > > Ponsetti Method. Bella got her first casts when she was 3

weeks

> > > old. She had a tenotomy about a month ago and got her last

> casts

> > > off last Tuesday. She's been in the dennis brown bar for

almost

> a

> > > week now. The first two days were really rough but now I

don't

> > > think she even notices the bar.

> > >

> > > Here's my question. I'm wondering if she's going to be able

to

> > move

> > > around while wearing the FAB. She's too little to do anything

> > right

> > > now, but she'll be in the FAB 23/7 until she's 6 months old.

> Will

> > > being in the FAB delay her being able to move around? I'm

> mostly

> > > worried because she has a twin sister who doesn't have any

> > physical

> > > limitations, and I don't want Bella to be delayed compared to

> her

> > > sister.

> > >

> > > Thanks!

> > >

> > > Sara

> > >

> >

>

[Guest guest]

--- number23 wrote:

> Keep in mind all children develop differently and

> your twins won't be right on track with each other

> no matter what.

Good point, ee! I didn't mean to say that all

twins should or will develop at exactly the same time

just because mine did. I just think the fact that

they did means that the clubfoot really didn't make

any difference.

I know other twins (without any medical problems) that

have developed totally differently, the most extreme I

think is with a colleague of mine where one boy could

walk a full 6 months before his brother. I'm just

really glad that that didn't happen with us, I'm sure

I would have been worried otherwise.

with (3.5y)

and Alister (3.5y, right CF, Ponseti method UK)

> New to the group and

> I have a question

>

>

> Hi everyone. Here's a little information about

> me. I have twin

> girls who are a little over 3 months old. During

> my pregnancy one

> of my girls, Bella, had very low amniotic fluid,

> and as a result was

> born with dislocated hips and bilateral clubbed

> feet. We see an

> orthopedic surgeon at the Mayo Clinic in

> Rochester, MN who uses the

> Ponsetti Method. Bella got her first casts when

> she was 3 weeks

> old. She had a tenotomy about a month ago and got

> her last casts

> off last Tuesday. She's been in the dennis brown

> bar for almost a

> week now. The first two days were really rough

> but now I don't

> think she even notices the bar.

>

> Here's my question. I'm wondering if she's going

> to be able to move

> around while wearing the FAB. She's too little to

> do anything right

> now, but she'll be in the FAB 23/7 until she's 6

> months old. Will

> being in the FAB delay her being able to move

> around? I'm mostly

> worried because she has a twin sister who doesn't

> have any physical

> limitations, and I don't want Bella to be delayed

> compared to her

> sister.

>

> Thanks!

>

> Sara

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Sara~

Welcome to the group... you are going to really enjoy all the help and

guidance you will get! I also have twin girls who are now almost 2 (6/24).... I

was very concerned also about one of them developing sooner that the other and

it has been so fun to see each one of them develop at their own pace.... they

came 2 months early (born at 32 weeks) so the held off on the casting process

until she came home at a month old.... as soon as we got her home we started the

casting....she went once a week for 6 weeks then the tenotomy with another

cast.... she then did the 23/7 for 2 months then we went wrong and dropped her

hours to soon and she did relapse at about 6 months old....we didn't think we

had another choice but to do surgery but then I found this wonderful group and

they all highly encouraged me to recast and start all over....SO, I did....she

was 9 months when we recasted ....it only took 3 casts to correct it that time

then she went to the 23/7 for 2 months and

gradually dropped down from there....and trust me we were very cautious when

dropping hours that time.....we were so thankful that it worked and she didn't

mind it at all....she learned how to crawl and stand and even walk behind her

push toys with it on...these kids are amazing!!! I was concerned about starting

over so late and her missing out on things.. (Avery has the club foot) Delaney

did start walking several months before Avery but once Avery started walking she

did great....she walked behind push toys for months but wouldn't stand alone...I

am not sure if it is because of the club foot and DBB OR if it is because of

being born early and it just taking time to develop....Delaney was always the

stronger of the two!....It has been a blast to see them both develop because

Delaney has always been more physical on climbing, walking ect..... then Avery

has always been the first one to talk....but as soon as Avery started

walking....Delaney starting talking....it was all

within that same week!! It has been double the work (and then adding casts and

shoes to that) but it has been double the fun now.... enjoy each step of the way

because it is over so fast...I can't believe they are turning two!....Avery now

sleeps with her shoes on and doesn't think a thing about it....it is never a

problem putting them on and I hope she doesn't start getting upset because her

sister doesn't need to wear them.....

To protect the bar from hitting other things and especially her sister....we

took a piece of pipe insulation and cut it from bolt to bolt and sliced it to

slip over the bar.....remember that as she gets mobile...it really helps...it

isn't pretty but we didn't care ....it was more to protect people and

things....now she only sleeps with it so no one sees her.....we took black

electrical tape and secured it......

If you ever have any questions ..especially about having the twins....I would

be happy to try to help you!! I am actually in Chicago area....so not to far

from you!

Best of luck to you....

twobabygirls2006 wrote:

Hi everyone. Here's a little information about me. I have twin

girls who are a little over 3 months old. During my pregnancy one

of my girls, Bella, had very low amniotic fluid, and as a result was

born with dislocated hips and bilateral clubbed feet. We see an

orthopedic surgeon at the Mayo Clinic in Rochester, MN who uses the

Ponsetti Method. Bella got her first casts when she was 3 weeks

old. She had a tenotomy about a month ago and got her last casts

off last Tuesday. She's been in the dennis brown bar for almost a

week now. The first two days were really rough but now I don't

think she even notices the bar.

Here's my question. I'm wondering if she's going to be able to move

around while wearing the FAB. She's too little to do anything right

now, but she'll be in the FAB 23/7 until she's 6 months old. Will

being in the FAB delay her being able to move around? I'm mostly

worried because she has a twin sister who doesn't have any physical

limitations, and I don't want Bella to be delayed compared to her

sister.

Thanks!

Sara

[Guest guest]

Hello Sara.

I am so glad to see the positive responses to your question. I had twin boys

in November and Evan has bilateral club feed and what appeared to be a

dislocated hip (turned out to only be abnormal muscle/tissue development that

was " stretched " back to neutral). The problem for him was that he was too small

to be casted right away, so we had to wait until he was 7-8 lbs, which took

about three months. We started the brace a few weeks ago, but he got a sore

that we had to let heal and he was re-casted. He gets the casts off in a week

and he will start the bracing process again. Anyway, he goes into the brace

23/7 at 6 months old. So, I, too, am worried about his development with respect

to rolling over, crawling, etc. I figure he has a 3 year old sister and a twin

brother to keep up with, so he'll do whatever it takes!! But, am glad to see

that the brace is generally a non-issue.

Keep in touch to let me know how it goes. I'll do the same.

Jennie

twobabygirls2006 wrote:

Hi everyone. Here's a little information about me. I have twin

girls who are a little over 3 months old. During my pregnancy one

of my girls, Bella, had very low amniotic fluid, and as a result was

born with dislocated hips and bilateral clubbed feet. We see an

orthopedic surgeon at the Mayo Clinic in Rochester, MN who uses the

Ponsetti Method. Bella got her first casts when she was 3 weeks

old. She had a tenotomy about a month ago and got her last casts

off last Tuesday. She's been in the dennis brown bar for almost a

week now. The first two days were really rough but now I don't

think she even notices the bar.

Here's my question. I'm wondering if she's going to be able to move

around while wearing the FAB. She's too little to do anything right

now, but she'll be in the FAB 23/7 until she's 6 months old. Will

being in the FAB delay her being able to move around? I'm mostly

worried because she has a twin sister who doesn't have any physical

limitations, and I don't want Bella to be delayed compared to her

sister.

Thanks!

Sara